Finding whats making you sick & Dorie

[Guest guest]

Dear Dorie

"I like your grass roots, easy to understand definition of Fibromyalgia."

LOL Thanks. I dont have much time for label diagnosises. I was labeled so many times, by so many people because they didnt know what they were doing, wanted my money, didnt listen, had too big an ego to send me to someone else or couldnt be bothered to run tests. So I've gone out of my way to look into FMS and CFS etc. Even my Dr's say they are labels cause people dont know what is wrong. I was misdiagnosed with CFS and almost died. I have read about people being bedridden for 8 years with CFS yet none of the Dr's run tests... it gets me really really angry.

"It is hard to explain. The more I learn about it the more I see what wasthe real cause of my so called MS. Remember that for 13 yrs I was told Ihad MS then told I don't, then told I have a unknown neurological condition they have been unable to name. Sigh, what ever...I hurt, I can't function like I used to, what ever name they give it...it is real and it sucks!!!"

Have they still not found it? MS can be diagnosed though MRI and Spinal Taps. I assume you have had those? I wonder if you have what I do? I ask as both my neuro and immuno tested me for MS. What are your symptoms and what tests (with results if you know them) have you gone though?

Maybe we can help?Lots of love Aisha.