New Book: Family care in HIV/AIDS: Exploring Lived Experience

[Guest guest]

Here's an interesting resource on family care in HIV/AIDS through the

lived experiences of caregivers and care receivers:

FAMILY CARE IN HIV/AIDS: Exploring Lived Experience

By: PREMILLA D`CRUZ Indian Institute of Management, Kozhikode

This book vividly describes family care in HIV/AIDS through the lived

experiences of caregivers and care receivers. It contributes to our

knowledge not only because of the contemporary relevance of family

caregiving, but also because of its focus on HIV/AIDS which, being a

relatively new disease, is little understood yet poses unique

challenges due to its stigmatising, long-drawn, debilitating and

terminal nature. Based on a study conducted in Mumbai, Family Care in

HIV/AIDS captures the lived experiences of 10 caregivers and seven

care receivers belonging to diverse socio-economic groups and

traditional as well as non-traditional family settings.

Overall, the book provides valuable insights into a range of

important issues related to caregiving in family settings while

identifying areas for intervention and further research. In addition,

it overcomes many gaps identified in the substantive area of family

care by Western researchers.

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Table of Contents

Introduction: The Dynamics of Family Care

HIV/AIDS and Family Care

Contextualising the Study

Losing Autonomy and Redefining Family Relationships

Struggling to Prolong Life

Preserving Family and Learning Whom to Count On

The Way Forward

References

Index

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Reviews:

It is one heart-wrenching real-life narrative after another. The author examines

various aspects of living with the disease such as the struggle to prolong life,

the nightmare of managing finance, treatment, the upbringing of children, the

emotional drain of secrecy, lack of public or even family support, and the

physical strain of coping. It is a depressing read but also one that leaves you

amazed with the strength of people in the face of such crushing circumstances.

[Hindustan Times]

Family Care in HIV/AIDS stresses the need for enhancing counselling and support

services to caregivers in the family. [The Telegraph]

For More

Information:http://www.indiasage.com/browse/book.asp?bookid=800 & Subject_Name= & mo\

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