Re: Making the big changes.... maybe?! ACK

[Guest guest]

I read somewhere that wellness is not the absence of disease but living

well with it. We can't compare our level of wellness to the rest of

the world. I have asthma, I consider myself healthy for someone with

asthma. I, if I compare myself at all, will compare myself to other

asthmatics. Another example would be Reeve, he may be

paralyzed, but he is still very healthy, and hasn't been hospitalized

for several years until he broke his leg this summer. So being healthy

is a relative term.

I find that if I have enough magnesium in my diet I don't crave

chocolate as much. I can stop after a small piece and not make it my

main meal.

Getting out and exercising again is hard. I've had the worst time this

year, I took several falls this year so I had pain on top of the chronic

pain.

And eating healthy. I know that protein is good for me, but chewing

gives me terrible headaches. and half of the time i don't have the

energy to cook. I have a five minute - five ingredient rule. If it

requires more than five things and takes more than minutes, it ain't

getting cooked.

the trick is to learn shortcuts in some areas so that you can spend the

energy in the important areas.

** , Stinky's caretaker**

Our purpose in life is to have

a life of purpose.

[Guest guest]

Aisha- You go girl!!!!! One tiny step at a time. You have so much to give,

now you need to take a little.Know we are here for you & love you.

ne

----Original Message Follows----

From: " Aisha Elderwyn " <aisha@...>

Reply-egroups

" Being Sick Support Group " <egroups>

Subject: Making the big changes.... maybe?! ACK

Date: Sat, 11 Nov 2000 13:32:32 +1100

Hi gang,

Big change in my life at the moment.

I'm mega tired so don't be surprised if you don't hear from me for awhile,

its cause I'm asleep. I just cant seem to get over this fatigue.

I have also decided its time I took better care of me. I look after everyone

sometimes to the expense of myself. Sometimes? Well ok - usually always at

the expense of myself. So I'm going to try and practice what I preach! *ACK*

So - am cutting out junk. No chocolate! (Or limited) This is going to be

hard cause I often use this as a comfort thing. I also think being so tired

I'm looking for the sugar boost, so I'm going to have a class of cordial

instead - so I get that sugar boost without the fat. God knows I don't need

anymore fat!!!

I want to be healthy. Aisha means alive and well. I'm half way there! I am

alive. That was a hard battle on its own but I made it. I am lucky. Now I

just need to be well. If only the " choose to be well " thing was that easy

huh? Having an illness kinda screws up the " being well " part.

However I haven't been happy with how I have been towards myself lately. Not

doing much, not getting my ass off the bed etc. Now I don't know if this is

cause I am tired and not well or cause I'm apathetic - but its a vicious

circle. I wont know till I try and if I get sick from trying something then

I know not to try it again. But not trying means I will never get anywhere

and I don't want that.

At the end of every day I think " I've done nothing today " and beat myself up

for it. So its time to kick that attitude up the bum.

I'm 27 and I have my entire life to lead. Sick or not its my responsibility

to make it the best that I can. So I have decided to look after myself

better. Here's what I've been thinking...

Have better hygiene - which means not being stubborn and doing it myself

which causes me to be in agony and exhausted. So I will get help - I hate

getting help.

Exercise - even if its only a few leg lifts or a short walk around the

house, its getting my butt out of bed and is better for me. Again I wont

know till I try?

Resting when I am tired - LOL yeah sure - this will be hard also but why am

I pushing and pushing when I could nap for an hour and maybe feel better?

But don't you find that you get sick of " resting? "

Eating better - I am so limited on what I can eat, cause I cant really eat

anything, but eating the amount of chocolate per day that I do isn't going

to be good for me. I would like to fit into my clothes and not be fat. The

only thing I can do to help that is to not eat junk.

Attitude - Get G to kick my ass when I fall back into my " Its never going to

happen so what's the point " attitude. Or when I want chockie, or if I don't

nap etc. I told him he has to get strong and tell me off. He said " I can do

that. " I laughed. He's so happy I am alive he'd get me the moon if he could.

I need to remember why I want to do this - its ultimately for me to be happy

in my life.

So I will try to be here for everyone, and know that I will read every

message. I just might not have the energy to reply. But I am going to, for

once, try doing something to correct the way I feel about myself in the

faint hope that it makes me well so I can live my life the way I want.

I just will not accept that I might be sick, like this, for the next 60

years. I wont have it. You've all heard me complain about wanting my life

back so I'm going to try to get it. I will be sensible though. But I do want

my life back and sitting on my ass living like I am, knowing that its wrong,

isn't going to give me what I want.

Already I don't think I will last on this, but I have to. If I am going to

make something of my life only I can do it. So wish me luck, cause my will

power when it comes to these things is terrible.

I love you all, and will continue to be here for you all, always.I'll

conquer the world yet! ;-)

*huge hugs*

Aisha

*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

Believe that there's a light at the end of the tunnel.

Believe that you may be that light for someone else.

- Kobi Yamada

*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

Aisha Elderwyn

ICQ: #55461955

MSN Instant Messenger

AIM: aishaelderwyn

IRC: DALnet # (angel`isha)

Email: aisha@...

Website: http://www.elderwyn.com/aisha

Being Sick Support Group:

Medical Resources and Documents:

http://www.elderwyn.com/medicallinks

_________________________________________________________________________

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Share information about yourself, create your own public profile at

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[Guest guest]

GOOD LUCK!!

I will be praying for you too succeed!

--

Hugs to you

Tasha

Aisha Elderwyn wrote:

Hi gang, Big change in my life

at the moment. I'm mega tired so don't be surprised if you don't hear

from me for awhile, its cause I'm asleep. I just cant seem to get over

this fatigue. I have also decided its time I took better care of me.

I look after everyone sometimes to the expense of myself. Sometimes? Well

ok - usually always at the expense of myself. So I'm going to try and practice

what I preach! *ACK* So - am cutting out junk. No chocolate! (Or limited)

This is going to be hard cause I often use this as a comfort thing. I also

think being so tired I'm looking for the sugar boost, so I'm going to have

a class of cordial instead - so I get that sugar boost without the fat.

God knows I don't need anymore fat!!! I want to be healthy. Aisha

means alive and well. I'm half way there! I am alive. That was a hard battle

on its own but I made it. I am lucky. Now I just need to be well. If only

the "choose to be well" thing was that easy huh? Having an illness kinda

screws up the "being well" part. However I haven't been happy with

how I have been towards myself lately. Not doing much, not getting my ass

off the bed etc. Now I don't know if this is cause I am tired and not well

or cause I'm apathetic - but its a vicious circle. I wont know till I try

and if I get sick from trying something then I know not to try it again.

But not trying means I will never get anywhere and I don't want that. At

the end of every day I think "I've done nothing today" and beat myself

up for it. So its time to kick that attitude up the bum. I'm 27 and

I have my entire life to lead. Sick or not its my responsibility to make

it the best that I can. So I have decided to look after myself better.

Here's what I've been thinking... Have better hygiene - which means

not being stubborn and doing it myself which causes me to be in agony and

exhausted. So I will get help - I hate getting help.Exercise - even if

its only a few leg lifts or a short walk around the house, its getting

my butt out of bed and is better for me. Again I wont know till I try?Resting

when I am tired - LOL yeah sure - this will be hard also but why

am I pushing and pushing when I could nap for an hour and maybe feel better?

But don't you find that you get sick of "resting?"Eating better - I am

so limited on what I can eat, cause I cant really eat anything, but eating

the amount of chocolate per day that I do isn't going to be good for me.

I would like to fit into my clothes and not be fat. The only thing I can

do to help that is to not eat junk.Attitude - Get G to kick my ass when

I fall back into my "Its never going to happen so what's the point" attitude.

Or when I want chockie, or if I don't nap etc. I told him he has to get

strong and tell me off. He said "I can do that." I laughed. He's so happy

I am alive he'd get me the moon if he could. I need to remember why I want

to do this - its ultimately for me to be happy in my life. So I will

try to be here for everyone, and know that I will read every message. I

just might not have the energy to reply. But I am going to, for once, try

doing something to correct the way I feel about myself in the faint hope

that it makes me well so I can live my life the way I want. I just

will not accept that I might be sick, like this, for the next 60 years.

I wont have it. You've all heard me complain about wanting my life back

so I'm going to try to get it. I will be sensible though. But I do want

my life back and sitting on my ass living like I am, knowing that its wrong,

isn't going to give me what I want. Already I don't think I will last

on this, but I have to. If I am going to make something of my life only

I can do it. So wish me luck, cause my will power when it comes to these

things is terrible. I love you all, and will continue to be here for

you all, always.I'll conquer the world yet! ;-) *huge hugs*Aisha *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

Believe that there's a light at the end of the tunnel.

Believe that you may be that light for someone else.

- Kobi Yamada

*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

Aisha Elderwyn

ICQ: #55461955

MSN Instant Messenger

AIM: aishaelderwyn

IRC: DALnet # (angel`isha)

Email: aisha@...

Website: http://www.elderwyn.com/aisha

Being Sick Support Group:

Medical Resources and Documents:

http://www.elderwyn.com/medicallinks

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~~~~~~~~~~~~~~~

“Hold on to what is good, even if it's a handful of earth. Hold

on to what you believe, even if it's a tree that stands by itself. Hold

on to what you must do even, if it's a long way from here. Hold on to your

life, even if it's easier to let go." - Pueblo Prayer

[Guest guest]

Them's fightin' words! This sounds great Aisha! We will miss your

regular posts, but we aren't going anywhere LOL!

I think it is great news about the chocky, aren't you hyperglycaemic?

If so then anything with sugar will give you a very short energy

boost along with a major slump, LOl but you know that hey? I know it

too, and still sometimes give in to temptation, but I am always sorry

when I end up comatose an hour or so later. Hang in there, hon, be

strong (as always) The walking around the house, and leg lifts etc

sound great, you have a really good plan there, and a great husband

to help you, so you go girl!

Love and hugs

:-)

> Hi gang,

>

> Big change in my life at the moment.

>

> I'm mega tired so don't be surprised if you don't hear from me for

awhile, its cause I'm asleep. I just cant seem to get over this

fatigue.

>

> I have also decided its time I took better care of me. I look after

everyone sometimes to the expense of myself. Sometimes? Well ok -

usually always at the expense of myself. So I'm going to try and

practice what I preach! *ACK*

>

> So - am cutting out junk. No chocolate! (Or limited) This is going

to be hard cause I often use this as a comfort thing. I also think

being so tired I'm looking for the sugar boost, so I'm going to have

a class of cordial instead - so I get that sugar boost without the

fat. God knows I don't need anymore fat!!!

>

> I want to be healthy. Aisha means alive and well. I'm half way

there! I am alive. That was a hard battle on its own but I made it. I

am lucky. Now I just need to be well. If only the " choose to be well "

thing was that easy huh? Having an illness kinda screws up the " being

well " part.

>

> However I haven't been happy with how I have been towards myself

lately. Not doing much, not getting my ass off the bed etc. Now I

don't know if this is cause I am tired and not well or cause I'm

apathetic - but its a vicious circle. I wont know till I try and if I

get sick from trying something then I know not to try it again. But

not trying means I will never get anywhere and I don't want that.

>

> At the end of every day I think " I've done nothing today " and beat

myself up for it. So its time to kick that attitude up the bum.

>

> I'm 27 and I have my entire life to lead. Sick or not its my

responsibility to make it the best that I can. So I have decided to

look after myself better. Here's what I've been thinking...

>

> Have better hygiene - which means not being stubborn and doing it

myself which causes me to be in agony and exhausted. So I will get

help - I hate getting help.

> Exercise - even if its only a few leg lifts or a short walk around

the house, its getting my butt out of bed and is better for me. Again

I wont know till I try?

> Resting when I am tired - LOL yeah sure - this will be hard also

but why am I pushing and pushing when I could nap for an hour and

maybe feel better? But don't you find that you get sick of " resting? "

> Eating better - I am so limited on what I can eat, cause I cant

really eat anything, but eating the amount of chocolate per day that

I do isn't going to be good for me. I would like to fit into my

clothes and not be fat. The only thing I can do to help that is to

not eat junk.

> Attitude - Get G to kick my ass when I fall back into my " Its never

going to happen so what's the point " attitude. Or when I want

chockie, or if I don't nap etc. I told him he has to get strong and

tell me off. He said " I can do that. " I laughed. He's so happy I am

alive he'd get me the moon if he could. I need to remember why I want

to do this - its ultimately for me to be happy in my life.

>

> So I will try to be here for everyone, and know that I will read

every message. I just might not have the energy to reply. But I am

going to, for once, try doing something to correct the way I feel

about myself in the faint hope that it makes me well so I can live my

life the way I want.

>

> I just will not accept that I might be sick, like this, for the

next 60 years. I wont have it. You've all heard me complain about

wanting my life back so I'm going to try to get it. I will be

sensible though. But I do want my life back and sitting on my ass

living like I am, knowing that its wrong, isn't going to give me what

I want.

>

> Already I don't think I will last on this, but I have to. If I am

going to make something of my life only I can do it. So wish me luck,

cause my will power when it comes to these things is terrible.

>

> I love you all, and will continue to be here for you all,

always.I'll conquer the world yet! ;-)

>

> *huge hugs*

> Aisha

>

>

> *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

> Believe that there's a light at the end of the tunnel.

> Believe that you may be that light for someone else.

> - Kobi Yamada

> *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

>

> Aisha Elderwyn

> ICQ: #55461955

> MSN Instant Messenger

> AIM: aishaelderwyn

> IRC: DALnet # (angel`isha)

> Email: aisha@e...

> Website: http://www.elderwyn.com/aisha

> Being Sick Support Group:

>

> Medical Resources and Documents:

> http://www.elderwyn.com/medicallinks

[Guest guest]

Hmmm...positive changes . I'm here in Minnesota-USA cheering for

you! Take care of yourself.

Love and prayers,

#4

> Hi gang,

>

> Big change in my life at the moment.

>

> I'm mega tired so don't be surprised if you don't hear from me for

awhile, its cause I'm asleep. I just cant seem to get over this

fatigue.

>

> I have also decided its time I took better care of me. I look after

everyone sometimes to the expense of myself. Sometimes? Well ok -

usually always at the expense of myself. So I'm going to try and

practice what I preach! *ACK*

>

> So - am cutting out junk. No chocolate! (Or limited) This is going

to be hard cause I often use this as a comfort thing. I also think

being so tired I'm looking for the sugar boost, so I'm going to have

a class of cordial instead - so I get that sugar boost without the

fat. God knows I don't need anymore fat!!!

>

> I want to be healthy. Aisha means alive and well. I'm half way

there! I am alive. That was a hard battle on its own but I made it. I

am lucky. Now I just need to be well. If only the " choose to be well "

thing was that easy huh? Having an illness kinda screws up the " being

well " part.

>

> However I haven't been happy with how I have been towards myself

lately. Not doing much, not getting my ass off the bed etc. Now I

don't know if this is cause I am tired and not well or cause I'm

apathetic - but its a vicious circle. I wont know till I try and if I

get sick from trying something then I know not to try it again. But

not trying means I will never get anywhere and I don't want that.

>

> At the end of every day I think " I've done nothing today " and beat

myself up for it. So its time to kick that attitude up the bum.

>

> I'm 27 and I have my entire life to lead. Sick or not its my

responsibility to make it the best that I can. So I have decided to

look after myself better. Here's what I've been thinking...

>

> Have better hygiene - which means not being stubborn and doing it

myself which causes me to be in agony and exhausted. So I will get

help - I hate getting help.

> Exercise - even if its only a few leg lifts or a short walk around

the house, its getting my butt out of bed and is better for me. Again

I wont know till I try?

> Resting when I am tired - LOL yeah sure - this will be hard also

but why am I pushing and pushing when I could nap for an hour and

maybe feel better? But don't you find that you get sick of " resting? "

> Eating better - I am so limited on what I can eat, cause I cant

really eat anything, but eating the amount of chocolate per day that

I do isn't going to be good for me. I would like to fit into my

clothes and not be fat. The only thing I can do to help that is to

not eat junk.

> Attitude - Get G to kick my ass when I fall back into my " Its never

going to happen so what's the point " attitude. Or when I want

chockie, or if I don't nap etc. I told him he has to get strong and

tell me off. He said " I can do that. " I laughed. He's so happy I am

alive he'd get me the moon if he could. I need to remember why I want

to do this - its ultimately for me to be happy in my life.

>

> So I will try to be here for everyone, and know that I will read

every message. I just might not have the energy to reply. But I am

going to, for once, try doing something to correct the way I feel

about myself in the faint hope that it makes me well so I can live my

life the way I want.

>

> I just will not accept that I might be sick, like this, for the

next 60 years. I wont have it. You've all heard me complain about

wanting my life back so I'm going to try to get it. I will be

sensible though. But I do want my life back and sitting on my ass

living like I am, knowing that its wrong, isn't going to give me what

I want.

>

> Already I don't think I will last on this, but I have to. If I am

going to make something of my life only I can do it. So wish me luck,

cause my will power when it comes to these things is terrible.

>

> I love you all, and will continue to be here for you all,

always.I'll conquer the world yet! ;-)

>

> *huge hugs*

> Aisha

>

>

> *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

> Believe that there's a light at the end of the tunnel.

> Believe that you may be that light for someone else.

> - Kobi Yamada

> *=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*

>

> Aisha Elderwyn

> ICQ: #55461955

> MSN Instant Messenger

> AIM: aishaelderwyn

> IRC: DALnet # (angel`isha)

> Email: aisha@e...

> Website: http://www.elderwyn.com/aisha

> Being Sick Support Group:

>

> Medical Resources and Documents:

> http://www.elderwyn.com/medicallinks

[Guest guest]

Thanks for all the support guys. I felt better last night as I had done a small amount of what I wanted to do... (not much though!)

Was still stubborn and did too much for myself .... *slap*

Exercise .... well I walked to the kitchen LMAO ... and got half the amount of chockie I used to have .... so um ... wonder if that's better? LOLOLOL

Resting when I am tired..... um....*slap*...

Attitude...... well cause I did some things I have wanted to do for ages I was more positive to myself which can only be good.

Get G to kick my ass when I fall ..... lol .... I have the attitude though so I kick back! ;-)

So its going to be a hard challenge. But I am stubborn, so I just have to apply this to myself *coughs* Its always so much easier assisting others then doing what you preech hey!!

Love you all ~ how are you all?? Where are you all at just now?

Aisha

[Guest guest]

"Getting out and exercising again is hard. I've had the worst time thisyear, I took several falls this year so I had pain on top of the chronicpain."

*ugh* Poor honey *gentle hugs* How are you doing now?

"And eating healthy. I know that protein is good for me, but chewinggives me terrible headaches."

I cant chew, live on mush ... lol... I love you 5 rule thing though!!!

Hows stinky going?

Lots of love

Aisha

[Guest guest]

"Them's fightin' words!"

Fought hard to be alive so why am I not fighting to live my life the best I can hey!!! :-)

"I think it is great news about the chocky, aren't you hyperglycaemic?"

hypo - meaning my blood sugar levels drop. So I am having cordial drinks to keep the sugars regular. I always know when i need it.

Thanks for your support honey!

Love Aisha

[Guest guest]

I'm mega tired so don't be surprised if you don't hear from me for awhile,

its cause I'm asleep. I just cant seem to get over this fatigue.

#######Illnesses seem to have that affect on us!!

> I have also decided its time I took better care of me. I look after

everyone sometimes to the expense of myself. Sometimes? Well ok - usually

always at the expense of myself. So I'm going to try and practice what I

preach! *ACK*

########About Time!!!!

> So - am cutting out junk. No chocolate! (Or limited) This is going to be

hard cause I often use this as a comfort thing. I also think being so tired

I'm looking for the sugar boost, so I'm going to have a class of cordial

instead - so I get that sugar boost without the fat. God knows I don't need

anymore fat!!!

##########Just one or two bites sometimes helps take the craving away until

you get used to none at all.

> I want to be healthy. Aisha means alive and well. I'm half way there! I

am alive. That was a hard battle on its own but I made it. I am lucky. Now

I just need to be well. If only the " choose to be well " thing was that easy

huh? Having an illness kinda screws up the " being well " part.

>

> However I haven't been happy with how I have been towards myself lately.

Not doing much, not getting my ass off the bed etc. Now I don't know if

this is cause I am tired and not well or cause I'm apathetic - but its a

vicious circle. I wont know till I try and if I get sick from trying

something then I know not to try it again. But not trying means I will

never get anywhere and I don't want that.

###########Are you allowed to get up and about, or will it cause more

damage???

> At the end of every day I think " I've done nothing today " and beat myself

up for it. So its time to kick that attitude up the bum.

>

> I'm 27 and I have my entire life to lead. Sick or not its my

responsibility to make it the best that I can. So I have decided to look

after myself better. Here's what I've been thinking...

#########OH OH!!!!

> Have better hygiene - which means not being stubborn and doing it myself

which causes me to be in agony and exhausted. So I will get help - I hate

getting help.

##########But you know what you'd be saying to us!!! USE THE HELP!!!!

> Exercise - even if its only a few leg lifts or a short walk around the

house, its getting my butt out of bed and is better for me. Again I wont

know till I try?

########Your getting very brave here, make sure someone is right beside you

to help if needed....

> Resting when I am tired - LOL yeah sure - this will be hard also but why

am I pushing and pushing when I could nap for an hour and maybe feel

better? But don't you find that you get sick of " resting? "

###########I think we all get sick of being sick, but you have completely

been bedridden for two years or more haven't you?

> Eating better - I am so limited on what I can eat, cause I cant really

eat anything, but eating the amount of chocolate per day that I do isn't

going to be good for me. I would like to fit into my clothes and not be

fat. The only thing I can do to help that is to not eat junk.

###########Can you tolarate all soft foods or are you limited on them also?

I know you have a hard time chewing and swolloing, as they set off an

attack for you. I would love to fit in my cloths too!!!

> Attitude - Get G to kick my ass when I fall back into my " Its never going

to happen so what's the point " attitude. Or when I want chockie, or if I

don't nap etc. I told him he has to get strong and tell me off. He said " I

can do that. " I laughed. He's so happy I am alive he'd get me the moon if

he could. I need to remember why I want to do this - its ultimately for me

to be happy in my life.

#########OK Gwydion, we are all witness to her giving you permission to

kick her butt!!!

#########All seriousness Aisha, I wish you all the luck in the world. You

take those first steps today and and a couple more next week, so as youu

go, and I believe you can do it, yoou will slide,bbut that's OK, yoou will

get upp and take that extra step tomorrow!! Wish I lived beside youu then

we could take those steps together, help each other out in what to eat that

is tolerated, just have support for each other! You have your family there

to help you, let them, youu are a very sweet person, it is high time you

looked after you...

Lots Of Support Here For You!!!

Lots Of Love Too!

Helen

[Guest guest]

things are going ok. I actually got to go to pool and walk for awhile.

Stinky on the other hand is not doing well at all. I'm going to have to

call the vet tomorrow and talk to him.

** , Stinky's caretaker**

Our purpose in life is to have

a life of purpose.

[Guest guest]

Was still stubborn and did too much for myself .... *slap*

###########TSK<TSK!!!

>

> Exercise .... well I walked to the kitchen LMAO ... and got half the

amount of chockie I used to have .... so um ... wonder if that's better?

##########That was great congratulations!!! YAAAAAAAA

> Resting when I am tired..... um....*slap*...

#############HMMMMMMM Will have to sing you a lullaby like I do the

youngun's.

> Attitude...... well cause I did some things I have wanted to do for ages

I was more positive to myself which can only be good.

##########That's Great!!!!!!!

> Get G to kick my ass when I fall ..... lol .... I have the attitude

though so I kick back! ;-)

#############Now, Now You gave him permission....Remember?????

> So its going to be a hard challenge. But I am stubborn, so I just have to

apply this to myself *coughs* Its always so much easier assisting others

then doing what you preech hey!!

>

> Love you all ~ how are you all?? Where are you all at just now?

>

> Aisha

##############Yeh, it is easier to tell others what to do than to do it

ourselves. My hats off to you for giving it a try. A little at a time,

you'll be OK!!

Love Ya--Helen

--- angelbear1129@...

--- EarthLink: It's your Internet.

[Guest guest]

"I just cant seem to get over this fatigue. #######Illnesses seem to have that affect on us!!"

LOL Helen - I had noticed!!!!! Then when you want to sleep you cant. If it wasnt for the handfull of drugs I take when its "sleep time" I dont think I'd sleep at all. Funnily enough, I'm still mega tired - guess it could be cause I'm ill hey? LOL" So - am cutting out junk. No chocolate! (Or limited)"

Except for today ;-)

"Are you allowed to get up and about, or will it cause more damage???"

I think my dr's think I am able to do more then I am. They dont really tell me anything about this actually. I guess its cause they know I'm sensible and will look after myself *coughs uh huh* Basically just do what I can I was told."##########But you know what you'd be saying to us!!! USE THE HELP!!!!"

*looks at Helen*

*Shakes her head*

*pokes her tongue out*

*grins*

*shakes her head again*

*mutters nup no blah*"I think we all get sick of being sick, but you have completely been bedridden for two years or more haven't you?"

Since December 22, 1997. "Can you tolarate all soft foods or are you limited on them also?I know you have a hard time chewing and swolloing, as they set off anattack for you. I would love to fit in my cloths too!!!"

Limited - its the textures, tastes and tempreatures that set off an attack. Typical. But drinking the diluted cordial is good, so I am drinking more which I think is helping somewhat, and is better for my sugars.

"OK Gwydion, we are all witness to her giving you permission tokick her butt!!!"

No no - no one saw that ....

"All seriousness Aisha, I wish you all the luck in the world. Youtake those first steps today and and a couple more next week, so as youugo, and I believe you can do it, yoou will slide, but that's OK, yoou willget upp and take that extra step tomorrow!! Wish I lived beside youu thenwe could take those steps together, help each other out in what to eat thatis tolerated, just have support for each other! You have your family thereto help you, let them, youu are a very sweet person, it is high time youlooked after you..."

I will, just let me finish saving the world first lol ... You can take those steps with me you know. All you have to do is send me a cheque for $5000000 to sign up for the Aisha New Start programe... *giggles*

Seriously though, if you want to make the changes in your life you have to start also, and I would love for someone to do this with me. Would make it almost fun...

Thanks for the support Helen, Love ya lots babe!

How are you feeling? How are the kiddies?

Write when you are up to it.

Love Aisha