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RE: Introdusing myself

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Janne,

Welcome to the

group.  Burton is very catchable but he

isn’t worth digging up or was he cremated in which case he isn’t catchable.

I too had a

pacemaker for a brief time and it was replaced by an ICD when the EP study

showed that they could induce sustained VT. 

Currently my VT is of the non-sustained variety and the doctor’s want to

keep it that way.  I’d drink to that but

I am not allowed to drink anymore.  So

far by heart self corrects the VT.  I

need the pacemaker portion of the ICD for AV block as well.  I have enough VT episodes recorded on the

ICD that the technicians panic but the EP guy says not to worry.  I wish he could train his staff to not press

the panic button.

I am guessing that

they put the pacemakers and ICDs close to the surface so that when they need

replacement that it isn’t as stressful as the original implant.  Maybe some of the other members can confirm

that the replacement isn’t as bad.  I

also was concerned about the edges of the ICD being so discernable.  It could be that it sticks out to remind us

how grateful we should be that we have the safety net of the ICD to protect us.

My body is 63 and

showing it’s age.  My artificial valve

is 15, my stent about a year and the ICD will be a year in September.  I think that makes me an average age of

twenty.  I’m getting younger!

I like to get my

walk in early in the morning and play a game of waving to drivers to see how

many will respond.  It is getting harder

to get a response as most of them have a cell phone in one hand and the other hand

on the wheel.  They seem so intent on

their talking that I wonder if they even see me.  I would hate to have been through all the surgeries and then be

hit by someone driving while using a cell phone.

Remember it takes

time to heal and get used to the changes in your life.

Joe – from Kentucky

(USA).

God Loves Us All

-----Original

Message-----

From:

[mailto: ]On Behalf Of Janne

Sent: Friday, July 28, 2006 3:31

PM

Subject: Introdusing

myself

Hello,

I'm Janne, living in Norway, where we have no Pamela. (It doesn't matter, cause

I'd prefere Burton - but he's no longer catchable anyway :,)

I

had my ICD implanted on March 16.. It's a Guidant, a name I have

learned a lot about since I joined this group... Mine is a

T165. On the 3mo control reasently the ep said my

ICD wasn't needed so far, I hope it will continue that way.

The

pacemaker fraction, however, is working most of the time.

In

fact I had a pacemaker only implanted on March 13. The next day just when I was

about to leave the hospital they realized I needed a defibrillator as

well... Two days later I had the box and one of the leads

(ventricular) replaced.

I

have no structural or vascular heart disease, " just " AV-block and VT,

non sustained. The EPs can't give any explanation why my

electical system is failing. They also said my combination of bradycardy

and tackycardy is rare. ?? BTW, I'm 57 yrs young. My medication

regimen is 50mg metoprolol twice a day to reduse VES.

The

EPs say I have no restrictions when it comes to physical activity

( " just go ahead try and catch whatsoever! " ). But

that's certainly not how I feel. My muscles tire easily and

cold sweat are floading at any sort of houswork (not that odd?)

I also

have a painful incision site. One of the corners of the box is placed

right underneath the scar and it feels/looks like it (this corner

only) is barely covered by the skin. The Ep told me to give it a

year. If not any better by then, they eventually can reoperate to

put the box deeper. I think I've got these

problems because they placed the ICD where the pacemaker just

had been and not underneath the muscle membrane as they usually do...

Otherwise

I'm fine. Living countryside alone w.o. problems. Not all alone, though. I've

got lots of furry family members :)

I

may not write much (please overlook my bad English), but I'll continue to read

every post. Sending healing thoughts to every one of you. Thankful to have

found this group!

Regards,

Janne

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Janne,

Welcome to the group.

As someone who has lived abroad and relied on the tolerance of others

with my bad attempts at speaking their languages, I think you are

doing great with your post. Please keep it up!

I hope your ICD continues to get more comfortable. I think a majority

of us get it above the muscle (In the USA anyway).

Over time it gets less and less sensitive. I'm 3 years now and pretty

oblivious to it most of the time.

--Ken

--------------------------------------

> I may not write much (please overlook my bad English), but I'll

continue to read every post. Sending healing thoughts to every one of

you. Thankful to have found this group!

>

> Regards,

> Janne

>

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> Over time it gets less and less sensitive. I'm 3 years now and pretty

> oblivious to it most of the time.

I sure hope so. Two months out I don't feel it every single waking

second any more, but it's sore a lot of the time.

Lynn S.

------

Mama, homeschooler, writer, activist, spinner & knitter

http://www.siprelle.com

NOTICE: The National Security Agency may have read this email without

warning, warrant, or notice.

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