Aisha Re: Jai

[Guest guest]

> On a totally different angle, did he have blood work?

**yep and I never recieved the results, I am going to ask for all of

our results as I am going to change Dr's soonish, so will make sure

that I get everything before I do that. Unbelievable, arrived

yesterday for the appoint. and the referral wasn't there, so they

rang for it, and when it arrived the blood results weren't there, I

only remember that the ANA was 1/80 (sounds familiar) The

allergist/immunologist wants to test him for some strange bacteria

that is known to precipitate Stills disease, (am about to do some

research on this, as I don't know much about it) seems that both that

and Rieters are the most likely, and evidently Reiters doesn't always

show up on the test, only in about 60% of cases. Jai did come back

negative (HLA b27-neg) and I was told in Sydney that he didn't have

it because the test was neg. I was also told that it never occurs in

children, and that is evidently not true either, I found out

recently. Amazing that the Syd childrens hosp. could be so damn

bad!!!! Escpecially as they had us there for a week, and still sent

us home with nothing (Zeigler said it was nonspecific urethritus and

would go away by itself, yeah right, well it is back again

assholes!!!)

Did they look at organ function?

***nope, only did a scan on the kidneys pre and post voiding, but did

it when his symptoms were not there.

Did they check thyroid or any other pituatry based things?

**not sure, need the test results, will ring on Monday for them. The

guy I just saw wants some bloodwork done, but wanted to get it all

done at the same time, so said he would ring me on Monday after

having a think about it over the weekend. He said that it is

obviously systemic, and AI, it is just a matter of working out which

one! He did mention reactive arthritus. He has all the symptoms of

this, will have to do some research and see what I come up with,

based on the info I got regarding Reiters and Stills. Jai's dad's

cousin had Stills. I thought that was interesting though it's getting

a bit distant generationally.

Did they culture his urine? 24 hr urine test? etc... (more random

thoughts)

**not the 24 hour one, though I suggested it at the time, they

decided in all thier wisdom that it wasn't necessary. They only did

they usual dipstick in the urine trick which came up clear.

>

> " I also told him that I wanted to see an allergist to rule out that

one, as all of his symptoms could be related to a bad allergy (mucus

membranes inflamed, so gut and urinary tract involved, it is a long

shot, but I want it ruled out

> before we start looking for the obscure AI's, which my Dr seems

sure

> he has) "

**all allergies were ruled out on the basis of his symptoms, the

allergist is also an immunologist and used to be a rheumatology

registrar, so was pretty knowledgeable, I was actually quite

initially impressed with him. He spent an hour and a half with us,

and we will see what he comes up with. I was interested that he

proposed to actually do some research over the weekend and get back

to me on Mon. We will see......

Glad to see you have become a demanding bitch like I am WHOO HOOO!!!!

**yes, well I am fucking sick of all of this, it is just tooooo much

for all three of us to be sick and no diagnosis!!!!!!

> I've sent you the details. I keep his name off the list.

**Thanks honey :-)

And as for whipping you - well I would but you'd like it wayyyy too

much ;-)

**Oh baby whip me beat me! LMAO!!

ta ta!

:-)