Greetings from Norway: I'm back

[Guest guest]

Hello, I’m Janne,

I joined the Zap list after I had my ICD implanted

in March 2006. Unfortunately I dropped out shortly after because of other

health issues comimg up (sudden & seriously) in my family.

I've had a full time job lately and didn't need any

treatments from my ICD until a few weeks ago, when I experienced an

" electrical storm " due to lots of VTs and VFs, the latter of type Torsades

de Pointes. I was put on Cordarone, at first IV and then pills. After staying

at home for two weeks I had another defib event, so I had to double the Cordarone

to 400 mg pr. day… My cardio probably was redusing the dose too

fast, all when I was hospitalized, at least that was the explanation given by

the el-phys.

I was never anxious

before about having this device in my body (though I’m living alone), but

now the thought of another el storm scares me. Being alone at nighttime is the hardest

thing… I also don’t know why it happened. I have no ischemia/vascular

heart disease (EF good, 67). May be LQTS or ARVD/C. Gene tests are

pending.

I am so glad to know about this group and all you wonderful

people! When lying there at the ER - feeling shaky while getting Cordarone

IV to stable my heart rhythm - I managed to calm down by thinking of Stacie’s

“shocking life for shocking people” – and it even made me

smile a little. Thank you, Stacie!

And thanks to those of you who replied to my messages

more than two yars ago, I am sorry for not writing back. I have to admit though

that I have been lurking a few times during this period - without participating,

partly because it’s hard and takes time to write in English (I have to use

my brain, LoL).

That’s all for now, I’ll try to read

some new & old group messages today.

Thanks for listening

Best wishes,

Janne