Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 >My old GP asked me regularly if hot baths made >me limp. They didn't until some time after my >diagnosis. Maybe that effect came later for me >than for some, or maybe my diagnosis came earlier? The same thing happened to me, Russ. I am RRMS; I had my first symptoms (numbness) about 25 years ago; subsequent symptoms (more numbness) were mild and far apart. This year, however, I developed L'hermittes and partial deafness; and suddenly I can't take hot baths anymore. Up till this year, I NEVER had a problem with hot baths. Loved 'em. The hotter the better. I also loved hot weather. But now I can't get anywhere near a hot bath, and any weather above 80, I've got the AC on. I wonder what this means. Russ, was there any change in your symptoms that corresponded time-wise with the inability to take a hot bath? Just wondering... -- Maureen Maureen, and others who might wonder. I had long had some numbness too. Just didn't pay attention to it. Hot baths and hot tubs become less of a problem to ponder once other symptoms of MS begin to manifest. For me, I could still walk when I noticed that I was a limp noodle when I tried to get out of the hot water. Only, a little limp. No pun intended. A little later, the limp became more severe, my foot dragged, and showers were less of a problem than baths. I am pasting in below from a personal reply to Caren who asked me the following questions. Maybe, some of you would care add~to or could answer her better than I have? " Tell me- what happens when people say they can't walk? " Well, people look at them kinda in disbelief. Everybody can walk, can't they? If you're sitting down in a normal chair, you still look pretty normal. LOL If they only knew... The chair is a good prop, heh? ...hehe... Actually, the fact is that most people would rather not see me try to walk. When I met my caregiver, Joy, I used only a cane thinking I was less disabled that way. I also used restaurant tables, walls, other people's chairs, and anything else I could grasp to stabilize myself. Pride is a dangerous thing. " Is it weakness or stiffness? " Yes! Probably, both!! When I first get up in the mornings, my legs don't want to work at all. The pain and stiffness is mostly in my lower back, which I originally thought was a pulled muscle or some kind of injury. As my day progresses, the discomfort diminishes but the legs still are very much unable to do what I tell them. For me, my right leg is the most uncooperative. Since I can't raise my toes up, or lift my foot by bending my knee, walking is a real struggle. Joy got my Dr to prescribe a leg brace which really helps by keeping my foot in an L position so I can swing my whole leg forward from the hip. Otherwise, the foot drops and comes to rest dragging backwards. Not a good way to try to walk. By using a 4-wheeled walker, I can get around okay for short distances, in the house etc. It has a seat for when I stop and bicycle type hand brakes, which I grip with each step. I keep breaking the cables. When I go any distance, a wheelchair is less hassle for everyone, and at least ten times faster. Now that I've got a motorized scooter, I use it for anyplace close by or walking the dog. " I know I have only scratched the surface with my knowledge with it all...Are you walking now? " No, I'm sitting down! hehe I never was good at using the computer on the move. LOL I hope this answers a couple of your questions and that you never have to gain your knowledge of MS~can't walk first~hand. I neglected to answer, perhaps, one of the most troubling aspects of the what happens when you " can't walk " question. You don't make it to the restroom in time! The problem takes on new meaning~if you fall. Russ Quote Link to comment Share on other sites More sharing options...
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