Update!

[Guest guest]

Hi ette,

Oh my gosh how long has it been since we've talked?!! What happened

to your eye? And you are so young too, I'm so sorry to hear about

that. Our thoughts are all with you and I really do hope you are OK now.

Everyone -ette is the mom who is a professional writer who

posted to our group awhile ago that she was looking to write an

article on apraxia. She helped us put together and write an " Is Your

Child A Late Talker " handout which was overseen by Marilyn Agin MD,

a Tallal PhD and others -and for those that have seen it you'll

see a special thank you to ette at the bottom. The " Is Your

Child A Late Talker " handout which I posted part of here will soon be

available (Rhonda) as a PDF file to print out!

About the article -because I had also been contacted by more than one

person at this point who is looking for the story about what we are

finding out here I asked ette if she could help me write it

because she's an Australian writer who is looking to break into the

US market more, knows what we are going through and seeing (even with

the ProEFA -ette is the mom who made up her own generic formula

by looking at the amounts of DHA, EPA and GLA in ProEFA and going to

a Long's Drug Store in California and making it up for her child -

she kept a journal about the amazing surges her daughter had/has) Speaking of

amazing -ette has an amazing background, very interesting and

perhaps she'll share more of it with all of us. She's like a super

mom -and now with this too...

I'm so happy that you are feeling better now -and if you are really

OK, and only then -then yes I would still love your help. Thank you

for all you have done so far.

ette -The one editor wanted our story in the May 2002 issue of this

one magazine, however I know that the article is still wanted so

whenever we get the article done -we'll get it out to all that asked

for it. Call me or I'll call you!

=====

[Guest guest]

Welcome back and I hope you are feeling better. With 4 little ones

you will be running in no time at all.

Great news for your son!!

denise

--- In @y..., ette Schmid <capnkiwi@y...>

wrote:

> I have to apolygise to for starers - I have been

> down and out for a LONG time and it happened so

> suddenly I didn't have a chance to let you know I

> wouldn't be able to write for some time!

[Guest guest]

Liz I am so happy every thing is going smoothy so far!!

Wish us luck Thursday. I have a feeling it will be much better then last

year.

Lindsey did the test last year, and the teacher said she bombed. But it

didn't make any difference. I know she's developmentally delayed.

Sounds like Halley will do fine:))))

Keep us updated!

Jennie

[Guest guest]

--Hi Liz,

Oh I am so happy for you and especially for Halley. I am sure it is

like having a huge weight lifted.

I didn't even know they tested as young as kindergarten. Is this to

go to first grade? And how do they deal with special needs children?

Well I am glad Halley has adjusted so nicely! Good for you!

Eileen

- In @y..., " lizardo27 " <lizardo27@a...> wrote:

> Hi all, I guess it's time for an update on our first week of

school.

> Halley has made a beautiful transistion into kindergarten, there

> seems to be no adjustment period this year, which is great! She

loves

> it and is excited everyday to go to school. Last year we had some

> major behavior issues at the beginning of the school year, and this

> year seems to be smooth sailing. She is settled into her routine,

and

> has already started receiving speech 5x a week / half hour

sessions.

> I really like her speech teacher, she seems to be very excited

about

> working with Halley. Halley played a game with her today, Halley

won

> the game, and actually said, I win! She is a chatterbox, though the

> words are not clear, I see postive results so far. She does well on

> the bus, and I have a neighbor child who is 8 keep an eye open for

> Halley.

> I did post earlier about the testing, in which all kindergarterners

> have to pass, and am concerned a bit with how the state and county

> are going to help me with her passing. Some special circumstances,

> need special attention. I am not going to allow the school system

to

> fail her because she can not talk, no way. I have an appointment

with

> the principal this week to discuss Halley. Will post on that later.

> Just thought I would update all.

[Guest guest]

WOW! That is amazing! I am thrilled for you and Halley. I am new to

the group and apraxia, and one of my biggest concerns is whether or not my

son will speak in time for Kindergarten. He is now 2-1/2 and I am praying

that he makes enough progress in the next 3 years so that he can go to

school. Good luck for the rest of the year.

Kim

>Hi all, I guess it's time for an update on our first week of school.

>Halley has made a beautiful transistion into kindergarten, there

>seems to be no adjustment period this year, which is great! She loves

>it and is excited everyday to go to school. Last year we had some

major behavior issues at the beginning of the school year, and this

year seems to be smooth sailing. She is settled into her routine, and

has already started receiving speech 5x a week / half hour sessions.

>I really like her speech teacher, she seems to be very excited about

working with Halley. Halley played a game with her today, Halley won

the game, and actually said, I win! She is a chatterbox, though the

words are not clear, I see postive results so far. She does well on

>the bus, and I have a neighbor child who is 8 keep an eye open for

Halley.

I did post earlier about the testing, in which all kindergarterners

have to pass, and am concerned a bit with how the state and county

>are going to help me with her passing. Some special circumstances,

need special attention. I am not going to allow the school system to

>fail her because she can not talk, no way. I have an appointment with

the principal this week to discuss Halley. Will post on that later.

>Just thought I would update all.

[Guest guest]

Eileen,

That is where my concerns lie, what they are going to do with her

having apraxia. I have left a message with the principal to schedule

an appointment. I want to know how she is going to help Halley pass

this, will she allow Halley to sign the word? Will she allow Halley

to make an attempt at the sounds? I am not sure, I want her to tell

me what the options are. I did not know that the school tested this

way. The other subjects are on

numbers/letters/colors/shapes/phonological order etc. So if she

passes all of that, and can not go on because of her speech, then

they hold her back, she then gets to repeat all this again, and what

happens if next year she still can not pass due to speech? I do not

know....but other than the testing stress, things are really well!

(haha)

Thanks again!

Liz

> --Hi Liz,

> Oh I am so happy for you and especially for Halley. I am sure it is

> like having a huge weight lifted.

> I didn't even know they tested as young as kindergarten. Is this to

> go to first grade? And how do they deal with special needs children?

> Well I am glad Halley has adjusted so nicely! Good for you!

> Eileen

>

>

>

[Guest guest]

Thanks! Good Luck Thursday, and let us know how it goes!

Liz

> Liz I am so happy every thing is going smoothy so far!!

> Wish us luck Thursday. I have a feeling it will be much better then

last

> year.

> Lindsey did the test last year, and the teacher said she bombed.

But it

> didn't make any difference. I know she's developmentally delayed.

> Sounds like Halley will do fine:))))

>

> Keep us updated!

> Jennie

>

>

>

[Guest guest]

At 03:13 PM 8/20/2002 -0500, you wrote:

>WOW! That is amazing! I am thrilled for you and Halley. I am new to

>the group and apraxia, and one of my biggest concerns is whether or not my

>son will speak in time for Kindergarten. He is now 2-1/2 and I am praying

>that he makes enough progress in the next 3 years so that he can go to

>school. Good luck for the rest of the year.

>

>Kim

I was going to write the exact same thing! Go Halley! I hope my 2 1/2 yr

old son Ben follows in her footsteps.

We recently heard from EI and they still have no one to send to our house

for private sessions, but they do have an 8 week group therapy session that

begins this Thursday. It runs from 10-11 AM, and they have a speech

therapist and a special ed teacher working w/ a group of 5 kids. Hopefully

he will get something out of this. I guess if nothing else, it is good

practice for when he starts the preschool handicapped program in

February. He also has his private session (that we pay for) on Thursday at

8:45 AM. She recommended that I use an electric toothbrush on his

gums/tongue every day to make him 'more aware' of them, and he seems to

like that. We have ordered the pro-efa and are waiting for it to arrive so

we can start him on that. I have really been working w/ him on his vowels

and he is slowly improving. Sometimes he can even get a consonant sound in

there, either at the beginning or end of the word. Another thing which I

love to hear is that recently he has started to use 2 words-- car (caw) and

tree (tee)- to tell me if he sees them or wants to go on them, whereas

before he'd basically just yell 'Ma!' and point to it. He is also

beginning to say " Ma! Heh! (Help!) " if he needs something instead of just

yelling or whining. One small step at a time! :-)

--Lis, Brittany and (29 mos, apraxic)

>

>

>

> >Hi all, I guess it's time for an update on our first week of school.

> >Halley has made a beautiful transistion into kindergarten, there

> >seems to be no adjustment period this year, which is great! She loves

> >it and is excited everyday to go to school. Last year we had some

>major behavior issues at the beginning of the school year, and this

>year seems to be smooth sailing. She is settled into her routine, and

>has already started receiving speech 5x a week / half hour sessions.

> >I really like her speech teacher, she seems to be very excited about

>working with Halley. Halley played a game with her today, Halley won

>the game, and actually said, I win! She is a chatterbox, though the

>words are not clear, I see postive results so far. She does well on

> >the bus, and I have a neighbor child who is 8 keep an eye open for

>Halley.

>I did post earlier about the testing, in which all kindergarterners

>have to pass, and am concerned a bit with how the state and county

> >are going to help me with her passing. Some special circumstances,

>need special attention. I am not going to allow the school system to

> >fail her because she can not talk, no way. I have an appointment with

>the principal this week to discuss Halley. Will post on that later.

> >Just thought I would update all.

>

>

>

>

>

>

>

[Guest guest]

-Hi Liz,

THe thing that I would say to the principle is that there is nothing

wrong with Halley's receptive/cognitive. She learns just fine that is

why she is in a mainstream class, and they should not keep her back

for not being able to speak a certain word a certain way. This

principle has accepted halley into the class to me I would think it

would be against her IEP or even the law to then not let her graduate

from kindergarten knowing in advance she has a speech problem.

I also read the test in your other post and have never heard of this

kind of test, where do they come up with their rules and tests

anyway! Halley should not be expected to say a word that is obviously

riduculous, that would be like saying to a child who is deaf, " In

order for your child to graduate he needs to listen to a story and

tell us what it is about! " Not exactly the same thing but pretty

close!

Good luck with your meeting and let us know how it goes.

Eileen

-- In @y..., " lizardo27 " <lizardo27@a...> wrote:

> Eileen,

> That is where my concerns lie, what they are going to do with her

> having apraxia. I have left a message with the principal to

schedule

> an appointment. I want to know how she is going to help Halley pass

> this, will she allow Halley to sign the word? Will she allow Halley

> to make an attempt at the sounds? I am not sure, I want her to tell

> me what the options are. I did not know that the school tested this

> way. The other subjects are on

> numbers/letters/colors/shapes/phonological order etc. So if she

> passes all of that, and can not go on because of her speech, then

> they hold her back, she then gets to repeat all this again, and

what

> happens if next year she still can not pass due to speech? I do not

> know....but other than the testing stress, things are really well!

> (haha)

> Thanks again!

> Liz

>

>

>

> > --Hi Liz,

> > Oh I am so happy for you and especially for Halley. I am sure it

is

> > like having a huge weight lifted.

> > I didn't even know they tested as young as kindergarten. Is this

to

> > go to first grade? And how do they deal with special needs

children?

> > Well I am glad Halley has adjusted so nicely! Good for you!

> > Eileen

> >

> >

> >

[Guest guest]

Hi Kim, I read your post and I just had to comment! My son

(apraxia/resovled, mild language/articulation issues) just started

Kindergarten last week and he was essentially NON-VERBAL (did not

even say mom or mama or much of anything outside of sounds) at the

same age your son is. I too felt the same way and thought and prayed

that he would be making enough progress to be in a mainstream

Kindergarten program! I am hear to tell you there is light at the end

of the tunnel and with you as mom and number one avocate, making sure

he is getting the support/services he needs he will do just fine! I

was just telling my husband today how far DJ has come from that time

when I never even heard the word " mama " to now and his teacher

telling me tonight at cirrculum night that he is doing " super " and she

sees him having no problems learning and if he keeps up the progress

in the speech/language, might not even qualify for services next

year!! Music to my ears, I almost burst into tears when she told me

that!!

I owe a lot of what I have learned from all the wonderful people on

this board (owners/moderaters/participants) that have enlightened me

and given me the courage and encouragement to keep on keepin' on!

Sorry for ramblin', I just got all melancholy there for a sec!!

> WOW! That is amazing! I am thrilled for you and Halley. I am

new to

> the group and apraxia, and one of my biggest concerns is whether

or not my

> son will speak in time for Kindergarten. He is now 2-1/2 and I am

praying

> that he makes enough progress in the next 3 years so that he can go

to

> school. Good luck for the rest of the year.

>

> Kim

[Guest guest]

Well I am crying-happy at my end of the computer! I am thrilled for your

success and feel the way that you originally felt!

Yes, there are times that I think my son is non-verbal, because days go by

without a word, then suddenly the word " teeth " pops out when he wants to

brush his teeth. Or the word, Juice (joo) comes out when he is thirsty.

And I look forward to the day that he says Mom/mama. My husband laughs

at me, because I have two speaking girls who say MOM every minute (at least

it seems that way) and I get so frustrated. He told me that someday, my

son will say Mom every minute and I will wish he wont. NOT TRUE! I

can't wait.

Can you shed some light on what made your efforts with your son so

successful? Multiple therapy? Special therapy, such as PROMPT or Kaufman

cards? Did you use Pro-EFA? OT?

And again, thanks and congrats! Kim

cafeolait1 <vware1@...

Hi Kim, I read your post and I just had to comment! My son

(apraxia/resovled,  mild language/articulation issues) just started

Kindergarten last week and he was essentially NON-VERBAL (did not

even say mom or mama or much of anything outside of sounds) at the

same age your son is. I too felt the same way and thought and prayed

that he would be making enough progress to be in a mainstream

Kindergarten program! I am hear to tell you there is light at the end

of the tunnel and with you as mom and number one avocate, making sure

he is getting the support/services he needs he will do just fine! I

was just telling my husband today how far DJ has come from that time

when I never even heard the word " mama " to now and his teacher

telling me tonight at cirrculum night that he is doing " super " and she

sees him having no problems learning and if he keeps up the progress

in the speech/language, might not even qualify for services next

year!! Music to my ears, I almost burst into tears when she told me

that!! 

I owe a lot of what I have learned from all the wonderful people on

this board (owners/moderaters/participants) that have enlightened me

and given me the courage and encouragement to keep on keepin' on!

Sorry for ramblin', I just got all melancholy there for a sec!!  

[Guest guest]

How did you get speech 5 times a week? Is it group/one-on-one?

Also, is she being pulled out of kindegarten for speech or do you do

it after kindegarten?

My girls start kindegarten next week. Wish me luck!

> Hi all, I guess it's time for an update on our first week of

school.

> Halley has made a beautiful transistion into kindergarten, there

> seems to be no adjustment period this year, which is great! She

loves

> it and is excited everyday to go to school. Last year we had some

> major behavior issues at the beginning of the school year, and

this

> year seems to be smooth sailing. She is settled into her routine,

and

> has already started receiving speech 5x a week / half hour

sessions.

> I really like her speech teacher, she seems to be very excited

about

> working with Halley. Halley played a game with her today, Halley

won

> the game, and actually said, I win! She is a chatterbox, though

the

> words are not clear, I see postive results so far. She does well

on

> the bus, and I have a neighbor child who is 8 keep an eye open for

> Halley.

> I did post earlier about the testing, in which all

kindergarterners

> have to pass, and am concerned a bit with how the state and county

> are going to help me with her passing. Some special circumstances,

> need special attention. I am not going to allow the school system

to

> fail her because she can not talk, no way. I have an appointment

with

> the principal this week to discuss Halley. Will post on that later.

> Just thought I would update all.

[Guest guest]

Kim,

Thanks and girlfriend, you are truly welcome! I KNOW how it

feels/felt!

As far as what has worked with DJ, I would have to say it has been a

combination of a few things. ONE being, early intervention, and that

means getting him in the program through our school district as soon

as he was eligible. We were blessed to have the most AWESOME special

programs preschool class/teacher! TWO, private ONE on ONE speech

therapy (DJ has no other underlying issues, other than

speech/language)Our crappy insurance doesn't cover it, but even if we

have to cut certain things out of our budget, he will get this. He is

currently getting one on one therapy (absolute scheduling miracle,

yipee!) through his public school 2xs/wk, 30 minutes and private,

2xs/wk, 30 minutes. It's pretty intense as when he was in preschool

he received ST twice a week but it was in a group with kids who were

all on differing levels. I presonally think this wasn't too

effective. His private ST's (he's had two) didn't use either " method "

persey, probably because his apraxia was not severe, and it did

resolve as he got older. THREE:, yes,I believe the ProEFA's have been

a factor in his progress as well. He has been taking them since about

March last year and currently takes 2 plus 1/2 a ProEPA all together,

usually after breakfast. I didnt start 2 ProEFAs until about 7 months

ago and the ProEPA about 3 months ago. I never tell anyone (even mr

skeptical, my husband) when I change things up so I can get an

unbiased opinion on what they (ST's, teachers, hubby)notice/say. So

far, it has helped, I believe! Finally, FOUR:, the natural language

maturation progress. Some of my son's issues were/are developemental

in nature. As he got/gets older, things are resolving, but he still

needs the the therapy to get him where he needs to be! Yikes, this is

turning into a looong post! Hope that helps and thanks again!

Vivian

> Well I am crying-happy at my end of the computer! I am thrilled

for your

> success and feel the way that you originally felt!

> Yes, there are times that I think my son is non-verbal, because

days go by

> without a word, then suddenly the word " teeth " pops out when he

wants to

> brush his teeth. Or the word, Juice (joo) comes out when he is

thirsty.

>

> And I look forward to the day that he says Mom/mama. My husband

laughs

> at me, because I have two speaking girls who say MOM every minute

(at least

> it seems that way) and I get so frustrated. He told me that

someday, my

> son will say Mom every minute and I will wish he wont. NOT

TRUE! I

> can't wait.

>

> Can you shed some light on what made your efforts with your son so

> successful? Multiple therapy? Special therapy, such as PROMPT or

Kaufman

> cards? Did you use Pro-EFA? OT?

>

> And again, thanks and congrats! Kim

[Guest guest]

> How did you get speech 5 times a week? Is it group/one-on-one?

I got speech 5x a week through the IEP with the last county I lived

in. I had an awesome team that worked with me on every issue, and had

her best interest at heart. It is a group session.

> Also, is she being pulled out of kindegarten for speech or do you

do

> it after kindegarten?

She is pulled out of kindergarten, goes to a speech room for her

sessions. It is done by the school therapist. They only wanted to

give her 1 hour per week, but then looked at the IEP and saw that it

required 5x a week, and changed that. They are scheduling an IEP

meeting and may want to change that, but I am not going to allow the

changes.

>

> My girls start kindegarten next week. Wish me luck!

>

Good Luck and let us know how it goes!!! I am excited for you.

Liz

[Guest guest]

Great ideas and suggestions. will not be receiving the classroom

intervention until next year this time, when he is actually 3-1/2 years

old, since he turns 3 in March, and that is in the middle of a school year.

I can't wait for this, I hear all the time that it helps to be with other

kids.

And as I mentioned earlier, we are in the paperwork process of getting him

into ST 2x a week and OT 1x a week. He just has speech one time a week

for one hour now, but I keep hearing to get him early and often, which is

what I am doing.

I don't know if this is my imagination or not, but the Pro-EFA may be

working already.....OR he is just making progress. Either way, I am

thrilled. He is using the words he knows more often and shouted out a

few new words this past weekend.

Finally, you touched on a thought that I have been wondering for a while.

I know that speech does not come to kids naturally, that they have to be

taught to speak, etc. But does age play a difference? As gets

older, does some speech progress, just coinciding with the age? I guess I

am looking for nature to play a positive role in this area.

Thanks again. Kim

[Guest guest]

Kim,

Once he turns 3 he can start even in the middle of the year.

Definitely worth it as he can then get services in the summer

(hopefully w/o too much of a fight)!

denise

> Great ideas and suggestions. will not be receiving the

classroom

> intervention until next year this time, when he is actually 3-1/2

years

> old, since he turns 3 in March, and that is in the middle of a

school year.

> I

[Guest guest]

OK, I'm sorry.......but he can start right in the middle/end of the year?

Just start on a monday in a class room....etc? That is amazing. I

honestly thought we would have to wait until the school year started.

Thanks for this info,,,, I will relay this to our school district. I

will start gearing up now for a possible fight. I already know who I want

to be his teacher.

THANKS! Kim

Kim,

-----------

Once he turns 3 he can start even in the middle of the year.

Definitely worth it as he can then get services in the summer

(hopefully w/o too much of a fight)!

denise

[Guest guest]

Hi Kim: The Board of Ed is responsible for him from 3rd birthday on. , whether

it is mid year or not. Call them 2 months prior to his birthday, so you can

schedule and get the evaluations, etc so as to not delay entry into their

services.

Re: [ ] Re: Update!

Great ideas and suggestions. will not be receiving the classroom

intervention until next year this time, when he is actually 3-1/2 years

old, since he turns 3 in March, and that is in the middle of a school year.

I can't wait for this, I hear all the time that it helps to be with other

kids.

[Guest guest]

My son turned 3 on March 17th..we had him evaluated March 25th..he

qualified for services ..the school district asked if I wanted to start right

away or what till August.. started school on April 19th and went till May

19th when the school year ended..every little bit helps..going that little bit

made this year a breeze..yesterday he walked right in and hugged his teacher

(he has the same teacher)..we did not qualify for summer services because he was

not there long enough..It is my understanding that the school district has to

offer services as soon as they turn 3..good luck

Re: [ ] Re: Update!

OK, I'm sorry.......but he can start right in the middle/end of the year?

Just start on a monday in a class room....etc? That is amazing. I

honestly thought we would have to wait until the school year started.

Thanks for this info,,,, I will relay this to our school district. I

will start gearing up now for a possible fight. I already know who I want

to be his teacher.

THANKS! Kim

Kim,

-----------

Once he turns 3 he can start even in the middle of the year.

Definitely worth it as he can then get services in the summer

(hopefully w/o too much of a fight)!

denise

[Guest guest]

not sure she is a genius but maybe more benign than others. You do not need

surgery you need iodine and enough of the right thyroid meds.

Gracia

I went to my doctor appointment and this doctor is a genius. First,

she looked at results and said everything looked good and even said

that the ft3 and ft4 are in the upper 1/3 range. Then she said either

I can wait two months or start on thyroid hormone. I thought what the

heck.....I am not in the hyper mode and why not try it. She prescribe

me Levothroid(Levothyroxine) .125 mg. I will be taking my first pill

tomorrow morning. She says that if I am still like this from 2-3 yrs

she would recommend surgery. She said that if I have aaannnyyy

problems with this brand that she would be willing to try other

brands. Someone answered my prayer/wish/ or whatever. I have caught

myself tearing up because I have been struggling for about a year. I

just want to feel better and get my life back together.

Thanks,

----------

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[Guest guest]

Well, the group is doing great! More people posting, and I am loving it! Thank All of You! I am kind of wrapped up with Dad and Christmas right now, but All of You are in my thoughts. Lots of Love and Blessings, Joy

[Guest guest]

Glad to hear your hip surgery went well. Take it one day (and one step) at a

time and do keep us in the loop.

And for

>

> Hi everyone!

>

> I'm finally gaining the energy to get on the computer and check email and

such, so I thought I would email an update.

>

> Surgery went very well Wednesday, and the actual PT starts tomorrow, so I'm

just sort of in between this weekend.