Re: Re: response to Matt's post

[Guest guest]

Hooray for . Thanks for your comments.

It was recommended that I originally see Dr. Talpaz, but my local oncologist

already had a relationship with another CML expert there, so I opted to

follow his lead. However, after meeting Dr. Talpaz on one of my trips, I

wondered if I might have made a mistake.

I might do just that.

Sincerely,

Matt

ville, Florida

Dx January of 2005

Gleevec since March of 2005

Treated at MD

Father of 3

In a message dated 3/28/2007 1:05:40 P.M. Eastern Standard Time,

ncogan@... writes:

Matt wrote:

I myself strongly considered switching facilities as MDACC is sometimes very

impersonal, for instance I waited 3 hours past my appointment time this

month and the doctor came in for 3 minutes or less. (His PA is wonderful and

spent a long time answering questions and rendering opinions.)

And for anyone that thinks that I am promoting one view over another, I am

not. I am simply trying to reflect what one view is and I realize others have

different treatment plans and different views. I hope it is helpful to get

different opinions.

_____________

Hi Matt,

If you want to stay connected to a CML specialist, you might consider going

to Dr. Talpaz at Ann Arbor.....many of his MDACC patients have followed him

there, and they are reporting that is it a lot nicer, being a small and

much more personal facility.

When I see Dr. Druker at OHSU, which is also a small facility....When I s

rarely late and I have a full hour of his time when I am due for a bmb (he

does his own). If I am just doing a follow-up for my trial, I still see him

personally for 1/2 hour.

I did not think you were promoting one point of view, rather just sharing

your information and experience from MDACC. I think it is good that we

come from different specialty centers and can share what we are told. We do

need to remember that these drugs are BIG business and there is a lot of $$

attached to them.....and the drug companies are funding different

research....research....<WBR>and there is politics involved at times. Obviou

would like to hold on to the lion's share of this market. They are

presently running a side by side trial for newly dx of Gleevec vs

Sprycel....and will consider side effects and results.....Sprycel....and will

one year trial for each patient.

For you personally, I was mostly commenting that if you really have bad,

significant side effects to Gleevec....there is another opinion out there

(I believe) that says 'maybe try a different drug'.

Best to you,

C.

************************************** AOL now offers free email to everyone.

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[Guest guest]

Hooray for . Thanks for your comments.

It was recommended that I originally see Dr. Talpaz, but my local oncologist

already had a relationship with another CML expert there, so I opted to

follow his lead. However, after meeting Dr. Talpaz on one of my trips, I

wondered if I might have made a mistake.

I might do just that.

Sincerely,

Matt

ville, Florida

Dx January of 2005

Gleevec since March of 2005

Treated at MD

Father of 3

In a message dated 3/28/2007 1:05:40 P.M. Eastern Standard Time,

ncogan@... writes:

Matt wrote:

I myself strongly considered switching facilities as MDACC is sometimes very

impersonal, for instance I waited 3 hours past my appointment time this

month and the doctor came in for 3 minutes or less. (His PA is wonderful and

spent a long time answering questions and rendering opinions.)

And for anyone that thinks that I am promoting one view over another, I am

not. I am simply trying to reflect what one view is and I realize others have

different treatment plans and different views. I hope it is helpful to get

different opinions.

_____________

Hi Matt,

If you want to stay connected to a CML specialist, you might consider going

to Dr. Talpaz at Ann Arbor.....many of his MDACC patients have followed him

there, and they are reporting that is it a lot nicer, being a small and

much more personal facility.

When I see Dr. Druker at OHSU, which is also a small facility....When I s

rarely late and I have a full hour of his time when I am due for a bmb (he

does his own). If I am just doing a follow-up for my trial, I still see him

personally for 1/2 hour.

I did not think you were promoting one point of view, rather just sharing

your information and experience from MDACC. I think it is good that we

come from different specialty centers and can share what we are told. We do

need to remember that these drugs are BIG business and there is a lot of $$

attached to them.....and the drug companies are funding different

research....research....<WBR>and there is politics involved at times. Obviou

would like to hold on to the lion's share of this market. They are

presently running a side by side trial for newly dx of Gleevec vs

Sprycel....and will consider side effects and results.....Sprycel....and will

one year trial for each patient.

For you personally, I was mostly commenting that if you really have bad,

significant side effects to Gleevec....there is another opinion out there

(I believe) that says 'maybe try a different drug'.

Best to you,

C.

************************************** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Hooray for . Thanks for your comments.

It was recommended that I originally see Dr. Talpaz, but my local oncologist

already had a relationship with another CML expert there, so I opted to

follow his lead. However, after meeting Dr. Talpaz on one of my trips, I

wondered if I might have made a mistake.

I might do just that.

Sincerely,

Matt

ville, Florida

Dx January of 2005

Gleevec since March of 2005

Treated at MD

Father of 3

In a message dated 3/28/2007 1:05:40 P.M. Eastern Standard Time,

ncogan@... writes:

Matt wrote:

I myself strongly considered switching facilities as MDACC is sometimes very

impersonal, for instance I waited 3 hours past my appointment time this

month and the doctor came in for 3 minutes or less. (His PA is wonderful and

spent a long time answering questions and rendering opinions.)

And for anyone that thinks that I am promoting one view over another, I am

not. I am simply trying to reflect what one view is and I realize others have

different treatment plans and different views. I hope it is helpful to get

different opinions.

_____________

Hi Matt,

If you want to stay connected to a CML specialist, you might consider going

to Dr. Talpaz at Ann Arbor.....many of his MDACC patients have followed him

there, and they are reporting that is it a lot nicer, being a small and

much more personal facility.

When I see Dr. Druker at OHSU, which is also a small facility....When I s

rarely late and I have a full hour of his time when I am due for a bmb (he

does his own). If I am just doing a follow-up for my trial, I still see him

personally for 1/2 hour.

I did not think you were promoting one point of view, rather just sharing

your information and experience from MDACC. I think it is good that we

come from different specialty centers and can share what we are told. We do

need to remember that these drugs are BIG business and there is a lot of $$

attached to them.....and the drug companies are funding different

research....research....<WBR>and there is politics involved at times. Obviou

would like to hold on to the lion's share of this market. They are

presently running a side by side trial for newly dx of Gleevec vs

Sprycel....and will consider side effects and results.....Sprycel....and will

one year trial for each patient.

For you personally, I was mostly commenting that if you really have bad,

significant side effects to Gleevec....there is another opinion out there

(I believe) that says 'maybe try a different drug'.

Best to you,

C.

************************************** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.