New to the group!

[Guest guest]

Happy birthday, Dawn! And welcome to the group! Don't worry about being

new to all of this - you'll catch on soon.

Sorry that your RA is so bad. How long have you had your diagnosis and

what meds are you on? Do you have a rheumatologist?

Hope you can feel good enough to enjoy your special day today!

[ ] New to the group!

> Hello! I am Dawn and I am new to the whole " group on-line thing. " I

> am 29,(well, 30 today), and suffer with severely active Rheumatoid

> Arthritis and am looking for help, support, and conversation with

> other people like me. My family and friends are very supportive, but

> people like myself understand certain things better. My e-mail

> address is dawn@.... Hope to hear from someone soon!

[Guest guest]

>

> Hello, I'm new to this group. I suffer from fibromyalgia. I'm a

> person who can deal with alot of pain, so I usually don't take any

pain

> medication until I absolutely can't take it anymore. Lately, I've

been

> getting severe muscle spasms-sometimes down my left side, right

side,

> in my legs, neck etc. My question is>> does anyone else experience

> these extremely painful muscle spasms? If so, could you give me any

> suggestions on what I could be doing for it. I've tried taking a

> multivit. and als potassium, thinking maybe I wasn't getting

enough.

> Please let me know. Thanks!

>

I was nearly bedridden until a friend told me about a Dr. R. St.

Amand in Marina del Rey CA that I went to and he reversed it for me.

The treatment is painful, but after several months, I am no longer

bothered by the flares and pain from that. Now I have RA, so I have

other problems, thank God, not both. His website is

www.fibromyalgiatreatment.com He wrote a book called What Your Doctor

May Not Tell You About Fibromyalgia and several others, and has the

condition himself.

Good Luck,

[Guest guest]

I

> My question is>> does anyone else experience

> these extremely painful muscle spasms?>>>>

>

Yes, lack of potassium causes them if you are taking prednisone, I believe.

Pris

[Guest guest]

> My question is>> does anyone else experience

> these extremely painful muscle spasms?>>>>

>

Also, if I exercise I get them.....

Pris

[Guest guest]

Welcome Girdey!

This is a great group to belong to.

Like you I have fibro and get painful muscle spasms in my shoulders

mostly. I take a muscle relaxant called Soma mainly at night but do

take it during the day when I don't have to drive. Also use heat wraps

or packs which help. Even beat my muscle some. Also take yoga which

helps my muscles. Hope this helps. Is there another name or ID we can

call you?

hugs,

Debbie L

>

> Hello, I'm new to this group. I suffer from fibromyalgia. I'm a

> person who can deal with alot of pain, so I usually don't take any

pain

> medication until I absolutely can't take it anymore. Lately, I've

been

> getting severe muscle spasms-sometimes down my left side, right side,

> in my legs, neck etc. My question is>> does anyone else experience

> these extremely painful muscle spasms? If so, could you give me any

> suggestions on what I could be doing for it. I've tried taking a

> multivit. and als potassium, thinking maybe I wasn't getting enough.

> Please let me know. Thanks!

>

[Guest guest]

I remember being told when I was pregnant that they can also be

caused by calcium deficiency. During pregnancy, that's caused by

growing the baby's bones at the expense of the mother's blood

calcium levels. But since pred use also causes bone loss, I just

assumed my cramps were calcium related.

>

>

> I

>

>

> > My question is>> does anyone else experience

> > these extremely painful muscle spasms?>>>>

> >

>

> Yes, lack of potassium causes them if you are taking prednisone,

I believe.

> Pris

>

>

>

>

>

>

[Guest guest]

Welcome to the group, SueAnn! Sorry that you have so many challenges, but

hope you like it here.

Not an MD

[ ] New to the Group!

> Hello, I am new to this group my name is SueAnn. I am from East Texas.

> I have had R.A. for 22 years! I also have A.S., Fibro, Glocoma,

> Sycope,and a Pacemaker! I have been taking Enbrel for over a year now!

> it is the only thing that has helped me so far with most of the pain.

> I have been reading a lot of the post and this is a very nice group of

> people here! I have not been in a group for sometime now! and I miss

> talking to others and learning from others. I hope to get to no a lot

> of you in this group! Hugs! SueAnn

[Guest guest]

Hi to everyone,

Im new to this group! I was diagnosed with CML 04/01/07, talking about a

" good " start of a year ...

Im 27 and sometimes I have difficulties admitting to myself that Im a cancer

patient. Most of the time I dont think about it, it makes life easier. Im on

Gleevec 400mg, and after 3 months I really do not have any side effects, the

first month was difficult but now everything is OK.

My Doc wanted to be on the safe side and have a tissue matching with my only

sister and it turned out to be that she is not a match. To make things even more

complicated my doc said that I have inherited a very rare type of bone marrow

from my parents, and my father is deceased and I dont have much family from my

fathers side. Hopefully my dearest mother will be a match.

The only thing that really makes me very sad is the fact that it would be

difficult to have children, I always wanted to have a lot of children ...

IS there someone among you that has had a baby while taking a break from

Gleevec or after a bone marrow translplant? I really would love to hear some

good news on this matter.

May God Bless you all, and May the happiest days of your past be the saddest

days of your future

All the best,

Kaqi 79

---------------------------------

Get your own web address.

Have a HUGE year through Small Business.

[Guest guest]

Dear ,

Thank you very much! You really helped me to decide to get pregnant after my

situation is stabilized. I have spoken to my doctor on this topic and he

explained to me everything I needed to know yet I didnt have the courage to make

a decision. He suggested for me to freeze some eggs and after the bone marrow

translplantation, if it is succesfull, he said that I can carry on with the

pregnancy myself.

Im lucky that my onchologist here in UK is a very good doctor and he is very

carefull with me. I havent been in touch with any of the patients in my hospital

with CML especially not any young ones and women. When I go for regullar check

ups there are only elderly people, Im sure Im the youngest patient that they

have with CML in my hospital out of 25 patients.

But I believe that if I have a child I will have another strong reason to stay

alive and fight

Im sure your son is happy to have you as a mother and Im sure he gives you

stregth to carry on fighting.

All the best,

Arta

" lunaemica@... " <lunaemica@...> wrote:

Hey Kaqi,

I am 31, and living with Gleevec and CML since 10/05. I have a 3 year old son. I

have a lot of troble with gleevec side-effects but I'm alive. I'm glad that you

are ok and that you have found us. I wish you the best and completely understand

your sorrow over pregnancy. The good news is that pregnancy and CML are not

incompatable, you just have to be watched very carefully. Gleevec is, however,

toxic to the fetus so before you decide to try to get pregnant get your CML

under control and speak with your onchologist. Best of luck, hang in there and

if you need someone to talk to I'm here.

:}

[ ] New to the group!

Hi to everyone,

Im new to this group! I was diagnosed with CML 04/01/07, talking about a " good "

start of a year ...

Im 27 and sometimes I have difficulties admitting to myself that Im a cancer

patient. Most of the time I dont think about it, it makes life easier. Im on

Gleevec 400mg, and after 3 months I really do not have any side effects, the

first month was difficult but now everything is OK.

My Doc wanted to be on the safe side and have a tissue matching with my only

sister and it turned out to be that she is not a match. To make things even more

complicated my doc said that I have inherited a very rare type of bone marrow

from my parents, and my father is deceased and I dont have much family from my

fathers side. Hopefully my dearest mother will be a match.

The only thing that really makes me very sad is the fact that it would be

difficult to have children, I always wanted to have a lot of children ...

IS there someone among you that has had a baby while taking a break from Gleevec

or after a bone marrow translplant? I really would love to hear some good news

on this matter.

May God Bless you all, and May the happiest days of your past be the saddest

days of your future

All the best,

Kaqi 79

------------ --------- --------- ---

Get your own web address.

Have a HUGE year through Small Business.

[Guest guest]

Hey Arta,

I'm glad you have the peace of a decision. Hang in there and you will get

through this! I hope you won't have to go through a BMT and that gleevec is a

permanent solution for you.

:}

[ ] New to the group!

Hi to everyone,

Im new to this group! I was diagnosed with CML 04/01/07, talking about a " good "

start of a year ...

Im 27 and sometimes I have difficulties admitting to myself that Im a cancer

patient. Most of the time I dont think about it, it makes life easier. Im on

Gleevec 400mg, and after 3 months I really do not have any side effects, the

first month was difficult but now everything is OK.

My Doc wanted to be on the safe side and have a tissue matching with my only

sister and it turned out to be that she is not a match. To make things even more

complicated my doc said that I have inherited a very rare type of bone marrow

from my parents, and my father is deceased and I dont have much family from my

fathers side. Hopefully my dearest mother will be a match.

The only thing that really makes me very sad is the fact that it would be

difficult to have children, I always wanted to have a lot of children ...

IS there someone among you that has had a baby while taking a break from Gleevec

or after a bone marrow translplant? I really would love to hear some good news

on this matter.

May God Bless you all, and May the happiest days of your past be the saddest

days of your future

All the best,

Kaqi 79

------------ --------- --------- ---

Get your own web address.

Have a HUGE year through Small Business.

[Guest guest]

Hi and Welcome,

Sounds like you have a FULL plate but handle it quiet well.

Thank you for what you are doing!!!! Not many single people

(or married) would do what you have. I know they have

made your life complete and they are why you get up

every day. I hope and pray you will make it 2 more years.

With our dd you never know. I made it to 47y/o. I

could no longer go. Keep up the good work.

Soft hugs and Prayers, Deta

Hugs-N-Pain@...: immomimblessed@...: Wed, 7 Nov

2007 19:49:31 -0800Subject: [ ] New to the Group!

Hello, my name is and I am a fibro, osteoarthritis, asthma, hypertensive,

stroke survivor. I am 42 years old single never married and mom to 7 adopted

kids and 1 grandson. I work full-time and volunteer part-time with the schools.

I have 4 kids in highschool. I have 1 senior 18 (elijah's mom),

16 1/2 Drill Commander NJROTC/wide receiver Varsity Football, Kristan 15 1/2

Petty Officer 3rd class NJROTC, 15 1/2 Wide reciever freshman football,

Seaman NJROTC.I also have a 21 year old daughter Kayla, at 13 year old daughter

Sadaya (flutest in concert band and sings in school choir) and a 10 1/2 year old

going on 45 named future drummer. I recently suffered a minnie Stroke

(TIA) it is believed that this was my second or third one because i had the same

symptoms several days apart before the next one. This happened a week ago. I had

temporary paralysis but am almost back to the way I was appearance wise. I have

fibromyalgia diagnosed at age 29, oa dx at age 39, asthma since age of 4 years

old. Hypertension since age 27. Went off meds after loosing 215lbs but history

in my family it came back. I am reaching a point where going to work is starting

to get on my nerves. Getting up stresses me out. Once I am up I am okay but the

thought is starting to get to me. I have been at my job for 18 years this month

and I am trying to make it to 20 years but I don't know. I hope I can with the

grace of God.I look forward to talking to all of you soon. . Leaving a Mark

for Jesus. Leave a Mark Ministries, LAMB Band. (Vocalist),

BlessedmomtooKayla, , , Kristan, Sadaya, , Nana to

Elijah Penny the boxer and daughter to Grandma

Emma!CentralCrossingHSNJROTCNFOOTBALL MOMOhio State Buckeys

(GOOOOOOBUCKS)

[Guest guest]

Hi

Welcome to the the group. You tire me out just listing all the health issues

and kids you are raising! Whew, good on you for taking on this commitment. I

have Lupus, 41, single, my pets, 3 dogs and a cat, are my kids! :-)

a

BC

Canada

---------------------------------

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