Re: Holly please read

[Guest guest]

Holly if you read my e-mail again you will see I

said that years ago BMT were not working well but

you will see I said I see BMT patients in Med day

all the time now and they seem to do very very well

I hope anything I wrote did not bother you..

SkipD

Repeat "

Hello Tracey and ,

Tracey thanks..I do not post often only if I think

I can add something to the group. I read all....

no I never had a transplant, when I first took

CML that was not an option. Nor was a lot of things

we have today. I think after being on Myleran it

spoiled the chance of a transplant, I am not sorry

I think I would not have survived so long if I had had

one. In fact after a few years on Mylerand (

BUSULFAN)many of the folks that had various forms of

leukemia had not survived with a BMT. Now they seem

to survive just fine I see BMT patients all the time

in med day and they do just fine. Your right Tracey I

never had ccr either, in fact never heard of FISH PCR

or any of the other names until last couple of years

thanks to you and Zaviem and this wonderful group.

I have started a log of my low counts so that others

with either low or high counts know that they are just

another blip on the road and not to be overly

concerned. "

SkipD

Dx'ed 1978

http://easyskip.tripod.com

for my counts and story

--- Tracey <traceyincanada@...> wrote:

> Hi ,

--- hollyt0825 <hollyt0825@...> wrote:

>

> Hi all. I have been a member here for a pretty long

> time. I don't

> post often but I like to read the posts for

> information and usually

> feel encouraged and hopeful after leaving. However,

> after reading

> this thread I don't know that I will be back. After

> 7 years of

> remission on Gleevec I have suddenly, with no

> warning, advanced to

> accelerated phase. I am on Sprycel at the moment

> but my numbers

> keep crashing with it, and because there is no way

> to know what will

> happen with sprycel long term, I really have no

> choice at the moment

> but transplant. I came here to see if I could find

> any encouraging

> info on bmt and found this. This site has been

> helpful to me in the

> past but I feel like I just got punched in the

> stomache. Please,

> please, in the future, think about how your words

> might affect

> someone else reading them.I'm sorry to post

> something so negative

> but I just had to remind everyone that you don't

> know who might be

> reading or what they might be going through.

>

>

> > >

> > > Hey Tracey! Thanks for reminding me of Skip! I

> read a post of

> his

> > once,

> > > and was shocked at the length of time he's had

> CML! Great

> news! He

> > never had

> > > a transplant did he? I feel that as long as we

> can avoid

> > transplant, we can

> > > hopefully stick around.

> > > in NY

> > >

> >

> >

> >

> >

> >

> >