Re: I'm in Hematologic remission!!

[Guest guest]

I too was told Monday I had reached hematological remission. Only 6 weeks

on Gleevec. I was sure surprised. I told my Dr, " well, you know I AM an

over-achiever! " He has a pretty good sense of humor.

BTW, are there any of you in the Florida panhandle area, or maybe south

Alabama? I am near Pensacola. Was just curious if maybe anyone had the same

oncologist as I do.

Regards,

Chris

************************************** See what's free at http://www.aol.com.

[Guest guest]

Congratulations! I also just reached Hemotologic remission. Can anyone guide

us on the next step

addieoh <addieoh@...> wrote: Last week my WBC count was 2.4.

Today at my appointment, they were at

5.4. My doctor told me I'm in hematologic remission! I can't believe

it happened this quickly! I was diagnosed a little over a month ago.

I'm so happy!

[Guest guest]

That is wonderful and congratulations. Celebrate the victories, big and

small.

Sincerely,

Matt

ville, Florida

Dx January of 2005

Gleevec since March of 2005

Treated at MD

Father of 3

In a message dated 4/18/2007 9:57:20 P.M. Eastern Standard Time,

addieoh@... writes:

Last week my WBC count was 2.4. Today at my appointment, they were at

5.4. My doctor told me I'm in hematologic remission! I can't believe

it happened this quickly! I was diagnosed a little over a month ago.

I'm so happy!

************************************** See what's free at http://www.aol.com.

[Guest guest]

The next step will be to reach CCR or a Complete Cytogenic Response.

At diagnosis time you are usually 100% Philadelphia Chromosome positive

(pH+). The testing for pH+ is usually done every 3 months. You want to

achieve CCR within 12 months of starting Gleevec.

A good interim goal is to reach MCR or a Major Cytogenic Response. A pH+

value of less than 35%.

I hope I haven't lost you with all this.

To really complicate matters, there are 3 different tests that can be used

to measure the pH+. BMB, FISH and PCR.

Make sure that you get a copy of each test result. It will make it very easy

to follow your own progress.

Zavie

Zavie (age 68)

67 Shoreham Avenue

Ottawa, Canada, dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

Re: [ ] I'm in Hematologic remission!!

Congratulations! I also just reached Hemotologic remission. Can anyone

guide us on the next step

addieoh <addieoh@...> wrote: Last week my WBC count was 2.4.

Today at my appointment, they were at

5.4. My doctor told me I'm in hematologic remission! I can't believe

it happened this quickly! I was diagnosed a little over a month ago.

I'm so happy!

[Guest guest]

Zavie,

Thanks for the info. As far as the three tests, should I get all three tests

or is on better than they oher.

Zavie miller <zmiller@...> wrote:

The next step will be to reach CCR or a Complete Cytogenic Response.

At diagnosis time you are usually 100% Philadelphia Chromosome positive

(pH+). The testing for pH+ is usually done every 3 months. You want to

achieve CCR within 12 months of starting Gleevec.

A good interim goal is to reach MCR or a Major Cytogenic Response. A pH+

value of less than 35%.

I hope I haven't lost you with all this.

To really complicate matters, there are 3 different tests that can be used

to measure the pH+. BMB, FISH and PCR.

Make sure that you get a copy of each test result. It will make it very easy

to follow your own progress.

Zavie

Zavie (age 68)

67 Shoreham Avenue

Ottawa, Canada, dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

Re: [ ] I'm in Hematologic remission!!

Congratulations! I also just reached Hemotologic remission. Can anyone

guide us on the next step

addieoh <addieoh@...> wrote: Last week my WBC count was 2.4.

Today at my appointment, they were at

5.4. My doctor told me I'm in hematologic remission! I can't believe

it happened this quickly! I was diagnosed a little over a month ago.

I'm so happy!

[Guest guest]

I am from the Florida Panhandle -- Crestview. I use an oncologist in

Pensacola, Dr. Tann. I also go to M.D. in Houston, Texas and see Dr.

Ktargarin. (I don't think I spelled this correctly.)

I was diagnosed with CML November, 2002 and have been on Gleevec since

December, 2002. I have reached cytogenetic remission but not molecular

remission.

Can I get your email?

Sincerely,

letitbe@... wrote:

I too was told Monday I had reached hematological remission. Only 6

weeks

on Gleevec. I was sure surprised. I told my Dr, " well, you know I AM an

over-achiever! " He has a pretty good sense of humor.

BTW, are there any of you in the Florida panhandle area, or maybe south

Alabama? I am near Pensacola. Was just curious if maybe anyone had the same

oncologist as I do.

Regards,

Chris

************************************** See what's free at http://www.aol.com.

[Guest guest]

Your doctor will decide which test he needs to run. Once you get to the CCR

level of response, you will need to do the PCR test in order to measure any

change. The BMB and FISH tests are not as sensitive as the PCR test.

I would ask him to start doing the PCR test early so that you will have a

value to compare it to once you have reached CCR.

Zavie

Zavie (age 68)

67 Shoreham Avenue

Ottawa, Canada, dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

Re: [ ] I'm in Hematologic remission!!

Congratulations! I also just reached Hemotologic remission. Can anyone

guide us on the next step

addieoh <addieoh@...> wrote: Last week my WBC count was 2.4.

Today at my appointment, they were at

5.4. My doctor told me I'm in hematologic remission! I can't believe

it happened this quickly! I was diagnosed a little over a month ago.

I'm so happy!

[Guest guest]

O!!! YIPPEEE!!!

Number 1054 in the Zero Club

Zavie

Zavie (age 68)

67 Shoreham Avenue

Ottawa, Canada, dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

Re: [ ] I'm in Hematologic remission!!

I am from the Florida Panhandle -- Crestview. I use an oncologist in

Pensacola, Dr. Tann. I also go to M.D. in Houston, Texas and see

Dr. Ktargarin. (I don't think I spelled this correctly.)

I was diagnosed with CML November, 2002 and have been on Gleevec since

December, 2002. I have reached cytogenetic remission but not molecular

remission.

Can I get your email?

Sincerely,

letitbe@... wrote:

I too was told Monday I had reached hematological remission. Only

6 weeks

on Gleevec. I was sure surprised. I told my Dr, " well, you know I AM an

over-achiever! " He has a pretty good sense of humor.

BTW, are there any of you in the Florida panhandle area, or maybe south

Alabama? I am near Pensacola. Was just curious if maybe anyone had the same

oncologist as I do.

Regards,

Chris

************************************** See what's free at

http://www.aol.com.