GRAD study for Pediatric Cancer/CML

April 11, 2007

Hi all,

For those of you who don't know me, here's a quick

Recap: I was diagnosed with CML just over four years ago, started

with Gleevec 400 mg

and have been in cytogenesis remission for several

Years now. (PCRU as of February 2007)

For new comers, please hang in there and have face in Gleevec treatment.

I am hoping some of you can help out my daughter for her Graduate Honors

Research Thesis. After my daughter witnessed me going

Through CML treatments well as spending time in a Children's Cancer center, she

decided to be proactive and investigate the primary quality of life concerns

that children and families coping with Pediatric Cancer face as well as what

communities are doing to support these patients and families. Her primary

concern was the lack of resources that were available for Pediatric Cancer. To

help her collect information as to what communities could improve on for

support, she has developed an online survey that parents can participate in. As

this topic is related to

Pediatric cancer patients including CML, I am posting the link to the survey in

hopes that you may be able to provide information or insight.

The link for the Survey is as follows:

She is doing preliminary information

gathering right now, and would love to hear from you about this topic, if

you're

interested. Any

identifying information you can provide will be

kept confidential unless

you indicate otherwise.

She would love to hear him from you if you have any additional questions or

input. Please email her at: missdianat@...

dxd 1/2003

400 mg Gleevec

PCRU 2/07 (finally)

Zero club #174

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