Re: CML link

[Guest guest]

ne,

I don't know what you're talking about. No one has removed the link

for the CML Society. If you go to the links section, you will see

that it is still there (second to last):

/links

Tracey

>

> All

>

> Apparently the link for the CML Society website has been removed

from

> this site a few days after it was put on. Unfortunately a

disagreement

> between members on this board was what caused this to be removed.

Do

> you think it is fair to remove a link to a site that is meant to

> educate people, especially those newly diagnosed? This is a real

> disservice to those genuinely looking for information and maybe to

find

> some comfort and hope with what they find there. It is in no

> way " competition " for this site-its main purpose is not a

discussion

> forum, but somewhere to find answers to some questions CML'ers may

have.

>

> It is sad to see that on a site that is supposed to offer support

to

> those of us diagnosed with CML and our caregivers and supporters,

that

> such things have to go on. Of course this post may be removed and

I

> may no longer be able to post here due to my opinions as well, but

i in

> all sincerity hope that doesn't happen.

>

> If anyone would like to check out the CML Societys webpage please

go to

>

> www.cmlsociety.org

>

> I think you will find it to be very informative and you may just

learn

> something new.

>

> ne

>

[Guest guest]

Well, Tracey, I am not mistaken, and it has been gone for most of

the day today, funny how as soon as I posted the link was back...

Anyways thanks..

> >

> > All

> >

> > Apparently the link for the CML Society website has been removed

> from

> > this site a few days after it was put on. Unfortunately a

> disagreement

> > between members on this board was what caused this to be

removed.

> Do

> > you think it is fair to remove a link to a site that is meant to

> > educate people, especially those newly diagnosed? This is a real

> > disservice to those genuinely looking for information and maybe

to

> find

> > some comfort and hope with what they find there. It is in no

> > way " competition " for this site-its main purpose is not a

> discussion

> > forum, but somewhere to find answers to some questions CML'ers

may

> have.

> >

> > It is sad to see that on a site that is supposed to offer support

> to

> > those of us diagnosed with CML and our caregivers and supporters,

> that

> > such things have to go on. Of course this post may be removed

and

> I

> > may no longer be able to post here due to my opinions as well,

but

> i in

> > all sincerity hope that doesn't happen.

> >

> > If anyone would like to check out the CML Societys webpage please

> go to

> >

> > www.cmlsociety.org

> >

> > I think you will find it to be very informative and you may just

> learn

> > something new.

> >

> > ne

> >

>

[Guest guest]

-I am not sure what happened to your last message, it has vanished,

maybe you had second thoughts;

I was not trying to cause problems by pointing this out-I thought the

point of this site is to help one another... maybe i was wrong. we

both know that a member has been banned , and this is pathetic.

this is supposed to be a support site, not somewhere to air ones

dirty laundry, or hold grudges. I mearly wanted to ensure that

information is available to those that want it. This is not a

popularity contest....

-- In , sassysus06 <no_reply@...> wrote:

>

> Well, Tracey, I am not mistaken, and it has been gone for most of

> the day today, funny how as soon as I posted the link was back...

> Anyways thanks..

>

>

>

> > >

> > > All

> > >

> > > Apparently the link for the CML Society website has been

removed

> > from

> > > this site a few days after it was put on. Unfortunately a

> > disagreement

> > > between members on this board was what caused this to be

> removed.

> > Do

> > > you think it is fair to remove a link to a site that is meant

to

> > > educate people, especially those newly diagnosed? This is a

real

> > > disservice to those genuinely looking for information and maybe

> to

> > find

> > > some comfort and hope with what they find there. It is in no

> > > way " competition " for this site-its main purpose is not a

> > discussion

> > > forum, but somewhere to find answers to some questions CML'ers

> may

> > have.

> > >

> > > It is sad to see that on a site that is supposed to offer

support

> > to

> > > those of us diagnosed with CML and our caregivers and

supporters,

> > that

> > > such things have to go on. Of course this post may be removed

> and

> > I

> > > may no longer be able to post here due to my opinions as well,

> but

> > i in

> > > all sincerity hope that doesn't happen.

> > >

> > > If anyone would like to check out the CML Societys webpage

please

> > go to

> > >

> > > www.cmlsociety.org

> > >

> > > I think you will find it to be very informative and you may

just

> > learn

> > > something new.

> > >

> > > ne

> > >

> >

>

[Guest guest]

> this is supposed to be a support site, not somewhere to air ones

> dirty laundry, or hold grudges.

Could you please tell us who is airing their dirty laundry and holding

grudges?

Tracey

[Guest guest]

Is it possible the link you refered to, was for a conference to a

Canadian University that was two years old and no longer worked? I

did send a note to Tracey to see if it could be removed. It is

confusing enough for the newly diagnosed to find information and

there is no need for non working links to remain listed. The link in

question was removed about the same time you say the CML link was

removed, and is still unlisted. I know this to be true as I checked

to see if it had been removed and at no time did I notice the CML

Society link to be removed.

M

-- In , sassysus06 <no_reply@...> wrote:

>

> All

>

> Apparently the link for the CML Society website has been removed

from

> this site a few days after it was put on. Unfortunately a

disagreement

> between members on this board was what caused this to be removed.

Do

> you think it is fair to remove a link to a site that is meant to

> educate people, especially those newly diagnosed? This is a real

> disservice to those genuinely looking for information and maybe to

find

> some comfort and hope with what they find there. It is in no

> way " competition " for this site-its main purpose is not a

discussion

> forum, but somewhere to find answers to some questions CML'ers may

have.

>

> It is sad to see that on a site that is supposed to offer support

to

> those of us diagnosed with CML and our caregivers and supporters,

that

> such things have to go on. Of course this post may be removed and

I

> may no longer be able to post here due to my opinions as well, but

i in

> all sincerity hope that doesn't happen.

>

> If anyone would like to check out the CML Societys webpage please

go to

>

> www.cmlsociety.org

>

> I think you will find it to be very informative and you may just

learn

> something new.

>

> ne

>

[Guest guest]

Hi

ThankYou

Peggy

[ ] Re: CML link

Is it possible the link you refered to, was for a conference to a

Canadian University that was two years old and no longer worked? I

did send a note to Tracey to see if it could be removed. It is

confusing enough for the newly diagnosed to find information and

there is no need for non working links to remain listed. The link in

question was removed about the same time you say the CML link was

removed, and is still unlisted. I know this to be true as I checked

to see if it had been removed and at no time did I notice the CML

Society link to be removed.

M

-- In , sassysus06 <no_reply@...> wrote:

>

> All

>

> Apparently the link for the CML Society website has been removed

from

> this site a few days after it was put on. Unfortunately a

disagreement

> between members on this board was what caused this to be removed.

Do

> you think it is fair to remove a link to a site that is meant to

> educate people, especially those newly diagnosed? This is a real

> disservice to those genuinely looking for information and maybe to

find

> some comfort and hope with what they find there. It is in no

> way " competition " for this site-its main purpose is not a

discussion

> forum, but somewhere to find answers to some questions CML'ers may

have.

>

> It is sad to see that on a site that is supposed to offer support

to

> those of us diagnosed with CML and our caregivers and supporters,

that

> such things have to go on. Of course this post may be removed and

I

> may no longer be able to post here due to my opinions as well, but

i in

> all sincerity hope that doesn't happen.

>

> If anyone would like to check out the CML Societys webpage please

go to

>

> www.cmlsociety.org

>

> I think you will find it to be very informative and you may just

learn

> something new.

>

> ne

>