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Re: AMN 107

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He is my sibling donor match and wanted to inquire about freezing his bone

marrow. But yes, I got a nice birthday dinner out of it and much comic

relief. In fact, he had the receptionist in stitches at Leukemia East as he

was

blowing me kisses (I was pacing after my not so pleasant BMB) as I walked by.

In a message dated 3/14/2007 10:45:18 P.M. Eastern Daylight Time,

deh12@... writes:

Hey there, Matt. I'm glad your brother was there to provide moral

support . . . and entertainment.

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email to everyone. Find out more about what's free from AOL at

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Playing with rubber gloves is one thing, but watch out

if he reaches for the Auger!

--- mtmaynor@... wrote:

> Dear All:

>

> I just returned from my most recent visit to MD

> in Houston, Texas.

> According to them, AMN 107 should be approved in a

> " few months from now " .

> They seemed to think that AMN 107 had less severe

> side effects than Sprycel

> and counseled me that if I opted to switch to

> Sprycel to closely monitor the

> build up of fluid in the lungs. (I am considering

> switching from Gleevec

> because I work 60+ hours per week and the fatigue

> and side effects wear me down.)

> They strongly counseled me to no switch and that as

> long as my numbers

> continue to come back strong, to stay the course as

> long as I can put up with it.

> Then they gave me a litany of reasons to stay on

> Gleevec and not switch.

>

> BTW, the person who normally does my BMB was on

> vacation and the newbie that

> was doing it only started four days previously.

> Youch.

>

> And if is reading this, my brother did come

> with me and yes he

> constantly introduced himself as my " life partner " .

> Don't even get me started on

> him playing with the rubber gloves in clinic room.

> I think you attorneys all

> have really warped senses of humor.

>

> Peace to all.

>

> Matt

> ville, FL

> Dx January 2005

>

<BR><BR><BR>**************************************<BR>

> AOL now offers free

> email to everyone. Find out more about what's free

> from AOL at

> http://www.aol.com.

>

>

> [Non-text portions of this message have been

> removed]

>

>

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Guest guest

Hey there, Matt. I'm glad your brother was there to provide moral

support . . . and entertainment.

>

> Dear All:

>

> I just returned from my most recent visit to MD in

Houston, Texas.

> According to them, AMN 107 should be approved in a " few months

from now " .

> They seemed to think that AMN 107 had less severe side effects

than Sprycel

> and counseled me that if I opted to switch to Sprycel to closely

monitor the

> build up of fluid in the lungs. (I am considering switching from

Gleevec

> because I work 60+ hours per week and the fatigue and side

effects wear me down.)

> They strongly counseled me to no switch and that as long as my

numbers

> continue to come back strong, to stay the course as long as I can

put up with it.

> Then they gave me a litany of reasons to stay on Gleevec and not

switch.

>

> BTW, the person who normally does my BMB was on vacation and the

newbie that

> was doing it only started four days previously. Youch.

>

> And if is reading this, my brother did come with me and yes

he

> constantly introduced himself as my " life partner " . Don't even

get me started on

> him playing with the rubber gloves in clinic room. I think you

attorneys all

> have really warped senses of humor.

>

> Peace to all.

>

> Matt

> ville, FL

> Dx January 2005

> <BR><BR><BR>**************************************<BR> AOL now

offers free

> email to everyone. Find out more about what's free from AOL at

> http://www.aol.com.

>

>

>

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Skip:

That is great to hear. I am glad you are doing well.

Sincerely,

Matt

ville, Florida

Dx January of 2005

Gleevec since March of 2005

Treated at MD

Father of 3

In a message dated 3/15/2007 8:14:01 A.M. Eastern Standard Time,

skipd_2002@... writes:

Been on AMN107 (Nilotinib) for about 18 weeks

almost no side effect not like Gleevec.

SkipD

DX'ed 29 years ago.

_http://easyskip.http://eas_ (http://easyskip.tripod.com/)

my blog about AMN107

--- _mtmaynor@..._ (mailto:mtmaynor@...) wrote:

> Dear All:

>

> I just returned from my most recent visit to MD

> in Houston, Texas.

> According to them, AMN 107 should be approved in a

> " few months from now " .

> They seemed to think that AMN 107 had less severe

> side effects than Sprycel

> and counseled me that if I opted to switch to

> Sprycel to closely monitor the

> build up of fluid in the lungs. (I am considering

> switching from Gleevec

> because I work 60+ hours per week and the fatigue

> and side effects wear me down.)

> They strongly counseled me to no switch and that as

> long as my numbers

> continue to come back strong, to stay the course as

> long as I can put up with it.

> Then they gave me a litany of reasons to stay on

> Gleevec and not switch.

>

> BTW, the person who normally does my BMB was on

> vacation and the newbie that

> was doing it only started four days previously.

> Youch.

>

> And if is reading this, my brother did come

> with me and yes he

> constantly introduced himself as my " life partner " .

> Don't even get me started on

> him playing with the rubber gloves in clinic room.

> I think you attorneys all

> have really warped senses of humor.

>

> Peace to all.

>

> Matt

> ville, FL

> Dx January 2005

>

<BR><BR><BR><WBR>****<WBR>****<WBR>****<WBR>****<W<BR>

> AOL now offers free

> email to everyone. Find out more about what's free

> from AOL at

> _http://www.aol.http_ (http://www.aol.com./)

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

TV dinner still cooling?

Check out " Tonight's Picks " on TV.

_http://tv..http_ (http://tv./)

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

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Been on AMN107 (Nilotinib) for about 18 weeks

almost no side effect not like Gleevec.

SkipD

DX'ed 29 years ago.

http://easyskip.tripod.com

my blog about AMN107

--- mtmaynor@... wrote:

> Dear All:

>

> I just returned from my most recent visit to MD

> in Houston, Texas.

> According to them, AMN 107 should be approved in a

> " few months from now " .

> They seemed to think that AMN 107 had less severe

> side effects than Sprycel

> and counseled me that if I opted to switch to

> Sprycel to closely monitor the

> build up of fluid in the lungs. (I am considering

> switching from Gleevec

> because I work 60+ hours per week and the fatigue

> and side effects wear me down.)

> They strongly counseled me to no switch and that as

> long as my numbers

> continue to come back strong, to stay the course as

> long as I can put up with it.

> Then they gave me a litany of reasons to stay on

> Gleevec and not switch.

>

> BTW, the person who normally does my BMB was on

> vacation and the newbie that

> was doing it only started four days previously.

> Youch.

>

> And if is reading this, my brother did come

> with me and yes he

> constantly introduced himself as my " life partner " .

> Don't even get me started on

> him playing with the rubber gloves in clinic room.

> I think you attorneys all

> have really warped senses of humor.

>

> Peace to all.

>

> Matt

> ville, FL

> Dx January 2005

>

<BR><BR><BR>**************************************<BR>

> AOL now offers free

> email to everyone. Find out more about what's free

> from AOL at

> http://www.aol.com.

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

TV dinner still cooling?

Check out " Tonight's Picks " on TV.

http://tv./

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Guest guest

Hahahaha. Thanks for the laugh Matt. Your brother sounds like a great

guy.

Tracey

> my brother did come with me and yes he

> constantly introduced himself as my " life partner " . Don't even get

me started on

> him playing with the rubber gloves in clinic room.

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