Guest guest Posted March 14, 2007 Report Share Posted March 14, 2007 Hi and welcome to the group. As you've already found out, CML is indeed a roller coaster ride and I'm not sure that ever changes. With every test and every milestone, we have worries and doubts in the back of our heads. The dreaded " what if's " can be vicious but we need to remind ourselves that there is every reason to be hopeful no matter what a test shows. There are so many options and things to try now, it's not like it was just 5 or 6 years ago. Your husband's FISH didn't go up that much and FISH tests do have a margine of error so I'm not sure how significant the change is (if at all) but it's wise to re-do the test anyway. Let us know how the next one goes. Tracey dx Jan 2002 > > Hello, I am new to this message board. My husband was diagnosed with > CML in July of 2006. He was put on Gleevec and has responded > tremendously. His FISH levels initially were 189. His FISH at 3 > months was 124 and at 5 months was 14. Last month the FISH was > repeated and the level rose to 22. The dr. wants to repeat the test > but of course we are concerned. Has anyone else has wavering levels. > This is such a roller coaster ride and I have not had anyone else to > ask. Thank you for any help or advice. > Quote Link to comment Share on other sites More sharing options...
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