Guest guest Posted May 3, 2005 Report Share Posted May 3, 2005 Dear Forum, I could not resist the temptation of taking sides with Subir Kole. This is not to say that India does not have to do more work. I was happy when India's Prime Minister could tell the world that we can handle the tsunami rehabilitation ourselves. I believe India could have handled the AIDS epidemic if not for the distortions introduced by funding HIV/AIDS programme. If in the past we had taken efforts to strengthen India's culture ratehr than promoting liberality I believe the story could have been different. I have tried a cultural approach in rural Tamilandu and it works. There are pockets where different strategies are needed. I do not want offend those who take a differing stand, however without any doubt India needs to know the numbers as people are questioning every number presented. Yours sincerely, Abel E-mail: <rajaratnamabel@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Dear Forum, Well I was interested indeed to read this analysis by Subir K. Kole because it reflects opinions generally held in the various factional groupings of political decision makers who still believe that HIV will go away if we just stop listening to the people whose lives have been dedicated to the eradication of the pandemic by sharing accurate and well researched information about HIV and the modes of transmission. Many of the people including myself have been invited to come and examine what evidence is there and make up a kind of score card which addresses facts and behaviour change mechanisms that have been proven to work. In responding to the castigation message I have placed the honourable ex pat Indian’s comments in quotes and reflected on what I understand the text to say in my reply. The places in India where the transmission rates appear to be declining are places where overall country numbers of HIV +ve people are not considered relevant. What counts is the mobilising of community action to identify the problems and find indian solutions to what they find. Of necessity that means local action and not national policy arguments. I know that this works because as an indian story teller I have been there, looked and listened. I still maintain that national indian numbers are not able to be determined with any degree of accuracy and there are good and solid reasons why they can’t, so arguing about how many is not worth the energy. If India really wanted to know how many are really there they would pass anti discrimination legislation and actually enforce it and then offer treatment options which in some cases would involve ART’s but not always. Good consistent and thorough management of opportunistic illness would manage most of the detected cases and interrupt the sero conversions that are still on the increase. Argue with that if you must but if it is happening then actions need to be taken to address it and there are many options, most of which are not being actioned or even considered. One of these is teaching sexual health and safety messages to young Indians before the average age of infection that is 14 yrs of age. Argue with that if you must but it is a fact that can be demonstrated by Indians. “In a relationship of master-servant, domination-subordination, coloniser -colonised, donor-recipient, many of us are only left with two options: either we shrink our minds and intellect, or else we shut down our million-dollar AIDS industry the next day.” I am not sure I understand this statement. What I do know is that India is a country with its own masters and its own servants. The structure of Indian society is very similar to the Raj except that Indians are sitting where the British used to be sitting. Global funding is being sought by and offered to India. It is being recognised as being necessary because of a realisation that a once low prevalence series of States are fast changing their status to high prevalence and I hasten to add that this bitter pill is an indian pill prescribed by various SACS committees, not by me. India is not a third world country. It is a developing nation with wealth in the hands of a relative few and poverty affecting more than a third of its 1.2 billion citizens. It is no longer colonised. ”First let me make clear a few assertions. I assert that the actual potential of HIV/AIDS epidemic in the Indian subcontinent is more of a " construct " than a " reality. " The " truth " about HIV/AIDS in the third world that has been propagated over the years is a first world's " construct " to maintain the vested interests of multinational and transnational NGOs joined by a band of recipient NGOs in those countries.” If this means that the numbers are wrong because multinational and transnational NGO’s are looking for somewhere to hang their hat then I can’t accept that because I don’t work with any of them. I only move around infected and affected communities and listen to what they are telling me. My auspice is an Indian NGO that grew out of activist HIV+ve Indians. Some global networking has been happening and most of it has been well intergrated into solutions. The third world (not India) has already realised the reality and is working damned hard to reverse the damage; albeit Africa is having the most difficult path for a range of reasons much of which is the rampant corruption of the bureaucracy and brain drain of competency in health and poverty allieviation coupled with a failure to embrace sexual risk management with sound education on the grounds that it will affect the morals of the community. Well the writing on that wall, not written by me, filters into my email in-box on a daily basis. A recent decision regarding patent law in India has in fact pandered to global drug companies but this was done for reasons that did not resonate with the Indian infected and affected community and the many other countries who depend on Indian generic medicines for survival. ”What is the basis of saying that India is approaching 8-10 million mark in HIV infection?” The basis is the gradual realisation that the sentinel surveillance figures have been wrong and the migration of once low prevalence States to moderate to High prevalence States indicates that the disease spreads more rapidly in the early infection stages before symptoms develop and sickness becomes apparent. Fear stops many from seeking a test because there are no protections and no incentives to test. The numbers of people who have been tested and the instances of positivity in those numbers compared to population of post pubescent sexually active Indians suggests that the numbers will be higher than the official estimates. These are not my assertions. They come from a range of local Indian NGO’s and CBO’s whose experience reflects a more accurate figure. Unlike my country where 85% of the epidemic centres on the same sex attracted community India has a heterosexist epidemic which is much more difficult to influence for a range of well known reasons like gender equality and an unsafe sex work industry and high proportions of infidelity. I hasten to add that these reasons are not Indian per se, they are common wherever the epidemic is heterosexist, lest it be concluded that Indians behave differently to other cultures where the figures are high. “And should we swallow it just because a western " expert " is saying so?” This particular western “expert” is only expert in care issues, support issues, treatment issues, drug toxicity issues and treatment advocacy principles. The figures are all Indian projections and they come from very reliable grass roots Indian agencies including government hospitals and private clinics and the increasing activist projects that get funded (unreliably) from time to time. My email in box has a hit every 60 secs of every week day and less on weekends. The information contained there is relevant to understanding and managing this predominantly sexually transmitted disease. “What is the basis of presuming that those who are undetected will have HIV? “ The basis of this comment has to do with universal precautions to prevent disease and is not a comment on the sexual behaviour of Indians or anyone else for that matter. Just talk to the number of women who became infected by their spouses on their wedding night and then look at what universal precautions might have been able to be utilised to avoid this mostly unintended but occasionally deliberate infection rate. Argue with that if you like but before you do, go and talk to the Indian Network of Positive Women and listen to their stories. I do and they are not nice stories. Ask about women infected by their husbands and then being cast out of the family home usually owned by the husband’s family after the husband dies. Anyone proposing to have sex without protection in India should be submitting to sexual health and safety principles. This includes the franchised couples (ie heterosexual marrieds) but should also include the bi sexual partners and the homosexual partners of which there are statistically 100 million Indians, many of whom no longer live in India. I wonder if Subir K. Kole has examined the GIMP sites that exist globally and number thousands of hits per day. The principle is that any post pubescent person who has had a risk exposure should, after 30 days of said risk, obtain a confidential HIV test. Of course that presumes that every such Indian (or any other nationality of course) would need to know what a risk exposure is. Most of the people I lecture to in India don’t. Argue with that if you like but it is a fact that the level of knowledge is low and the reasons are clear. No one is given opportunities to find out. It is also not common sense as is evidenced by the numbers of otherwise intelligent people who are HIV +ve. In this class are doctors, lawyers, accountants, police officers, peace keeping forces, teachers, students, politicians, academics, drivers, building workers, public servants, and of course sex workers and poor people of identifiable caste status. Once people become aware of their status they need to know how to either maintain their sero negative status if they are lucky enough to be negative, and most people over 60 who are negative will probably remain so. Far too many between 14 and 16 are testing positive. That’s not a ‘western opinion’ by the way but if we don’t HIV- proof the next generation we are in a lot of trouble. It is the place where I would start but let me share a story of just how impossible that is with the current moral mind set. An Indian NGO designed and prepared a very valuable and timely sexual health and safety study and then sought to find the best place to start using it. They selected a well known school in a major City and the statistical predictor was that this co educational school had had the most unintended pregnancies amongst female students. It seemed an ideal place to start. This story teller was only an observer. No western influences. Well the presentation was made to the Principal and staff and immediately there was shock and horror at the content as being too explicit and parents would not approve or agree. Parents were consulted in due course, particularly those parents whose daughter had had to leave their education. Overwhelming support was intimated by the parents and a further report was made to the school community. In the end the teachers just said that they would not be prepared to teach it because it was too difficult and too embarrassing. Of course such teachers could not have taught this material. In fact the level of incompetency suggests that this is a job for specially trained teachers of which the State of Kanataka has trained 100’s through a local NGO that was initially funded by the Ford Foundation and then unsuccessfully sought funding from NACO when the sunset clause was activated by the Foundation to continue the program. Very soon we should see a national association of such teachers and then we will see on a grander scale what has been doing well in small rural and tribal communities thus far. “Presuming that Indians are " consuming " good sex like westerners? “ Well the only comment I can make is the evidence I gathered from four years and 22 States. I saw street girls who were expected to make a living selling flowers realise that they could make more money for less time selling their bodies. I met the boys who cared for them. I later saw them become a couple and produce street children and become a street family. I also noted that live births number just under 30 million per year. Some are obviously doing good sex better than most western countries. I also saw kids getting condoms and not being able to afford the proper lubrication to make the condom use safe. I also saw evidence of plastic food wrap being used in emergency situations with slippage creating problems. I saw evidence of girls being lured to employment prospects from poor rural villages only to be abandoned into the field of sex work with no follow up by parents who presumed that the offers were genuine. ”I even question these exercises as part of the same process of " constructing the orient. " Let us have a debate over numbers because numbers are important to win the war! Let us question the very 5.1 million NACO-figure as we neither believe that this is closer to real - the actual infection and its potential is much lesser than what is estimated. If NACO claims that " the process " is certified by WHO and UNAIDS, then the question still remains, that it runs the risk of being a " construct " rather than a " reality. " There is no time left to count the numbers. What is needed is proactive prevention delivered in age appropriate settings for all those who are not yet sexually active. We need to offer PEP to victims of crime not just to valuable hospital personnel. We need to counsel couples about ensuring that their relationship is HIV free before engaging in unprotected sex. It should not worry those who have never had a risk exposure. We need to train doctors and patients that being HIV+ve does not inevitably lead to getting AIDS disease and then say how and what and why. Risk exposure needs to be properly understood. The old days of saying beware of all body fluids is past. Those scientists that have been working on vaccine trials have taught many of us that risk is not as high in this millennium as it was feared in the last one. Risk is specifically unprotected anal or vaginal intercourse and recent survey shows that these practices are common within heterosexual as well as bi sexual partnerships. My case notes will prove that to any sceptics but a recent edition of India Today documented some rare research on that very subject. The next risk factor is sharing injecting equipment either deliberately in illicit drug activity or in a medical setting where used syringes get re-used without proper sterilisation. Far too common I am reliably informed. Finally, the use of blood or blood products from the myriad of private blood banks in India. This new knowledge has to be assimilated into the Indian community so that the deliberately induced terror of the early prevention messages can be assuaged. ”What is the rationale of " constructing " Indore, Jabalpur and Ujjain as the epicentres of the epidemic? Just because the " expert in question " managed to fly-off there and had a couple of tea-gossips with some young kids? What the hell such a construction mean? “ The “expert in question” was directed to that State of M.P. by the auspice agency , an Indian NGO comprising mainly positive Indian activists. This was also at the behest of the C.M. of the State. The ‘tea-gossip’ was a State SACS sponsored symposium convened in Bhopal and gathering all the active HIV service agencies in Madhya Pradesh. The lectures were being delivered in Hindi with English powerpoint presentations. The details of the epi-centres of known infection was provided by these agencies in response to a question. It was surprising to the ‘expert’ that Bhopal the State capital was under represented but a collection of agencies that have invited me back will show me where and possibly why in a future visit. The big lament was that despite the size of their population, their low prevalence status ensured that AIDS funding was minimal and it was a very real dilemma for many outlying villages where migration of bread winners to Mahrashtra, Punjab, Jkarkhand, Bihar and Uttar Pradesh seemed to be ringing alarm bells. If this is a ‘construction’ then it better be well understood or M.P. will soon become a higher prevalence State and they can go about shutting the gates after the horse has bolted. “That young people in MP have started prostituting in exchange of study notes and bed? (I have seen this happening in US and Europe though!).” That young people have to do that anywhere is a sad indictment. Don’t think for a moment that this is an M.P. phenomenon. I just know about the approaches that were made there in Bhopal but I have seen advertisements in many other parts of India and the diaspora that students studying at home and abroad with insufficient means are not going without. ”Sick! If not they, but certainly the way you think! The argument that is being put forth by saying that " the knowledge of sexual risk management is extremely poor, " " I am safe, " or " kidding themselves " inherently implies that young people in India are having multi partner sex, or having rampant sex with sex workers, or all other sexual variants as in the west -- in short Indians are sexually promiscuous!” Well based on my many encounters with urban, rural and tribal communities in India the knowledge of sexual risk management is poor because there is no tuition and 15 to 18 years between puberty and marriage leave people open to the trial and error approach and just hope you don’t get caught or get pregnant. Now I also work in Thailand, Indonesia, Malaysia and the countries of East Africa and the level of ignorance and the blind dependence on abstinence is rampant there as well. It is just not the best way to deal with a sexually transmitted pandemic. I am 62 years old this year. I have lived and worked through the ravages of HIV infection in my country where I was involved in the funerals of 4 young people every week until 1996. I have learned that there is no substitute for accurate information and frank discussion. In my country now that is all done by sophisticated peer education programs and we all know that peer influences are high in effectiveness in adolescent behavioural studies. ”This is another effort to demolish the national pride around sexual morality that many South Asian countries still maintain. From a social constructivist perspective, the denial of numbers means that Indians want to keep their moral standards higher than that of the west.” What I see and hear from young people throughout the South Asian countries is that sexual behaviour is common to all of them. Information varies from country to country. Harm minimisation is achieving better outcomes than zero tolerance. Accurate information and frank discussion is not making young people more promiscuous. Irrespective of perceptions of moral standards that filter down from older to younger adults, sexual behaviour is constant and varied. It is not only younger citizens of those countries but their parents as well whose lives fall well outside the parameters of expectation. The problem with these expectations is that they close the door to timely and accurate information being available and understood. It also prevents disclosure should a variant orientation occur. I have lost count of the number of Indian weddings I have attended where a gay or bisexually active indian man has been pressured into marrying a woman or where bisexual or lesbian women in India have been coerced into marrying men. One of the unfortunate vectors of HIV is where a man is in love with another man but also has sex with the wife he has been married to. The grammar in the last sentence is intentional because it is so very different to the way that marriage occurs in my country but I am only reporting it as I see it. ”The west feels frustrated/ discriminated against and to prove that " you are as immoral as us, " there is a systematic attempt to construct India as sexually promiscuous. It is NOT the CM of Delhi or Goa or people of India with their wilful ignorance and moral and cultural righteousness worsening the epidemic.” Sir, the west couldn’t care less about the sexual mores of Indians or Africans or the muslim majorities of south asia. It never enters their mind. The only time they are ever likely to know about it is if they come or get involved in sexual health science and psychology. I have never ever seen in Australian media any reference to India’s sexual behaviour. I only know what I see and hear and read and the counselling I do and the essays I frequently write to answer frequently asked questions from my internet clinic and the many linkages I have in India, Bangladesh, Pakistan, SriLanka, Singapore, Malaysia and the East African countries. I noted in an earlier comment the GIMP web addresses. If you really want to know about modern sexual mores then read the sites my friend. The I in GIMP is Indian. There are no similar sites of such magnitude for Arabs, Israelis, or Africans or Russians. Remember that there are many millions of Indians who don’t identify as heterosexual but there is no place at the table, apart from a lucky few, and they are also part of our families. The same can be said for all the other countries I just mentioned as well but the sheer numbers make the epidemic large. The sex work industry is one of the largest in the world in India and it is amongst the most unsafe and unregulated. It is a growth industry of rich and poor middle aged and young, male and female. The actions of the CM in Goa and Delhi worsened what were very carefully crafted education campaigns that had been funded by SACS and worsened the situation in both of those cities. That is not my opinion. I don’t work in either project but I am part of the network of sex workers as a resource person and I am merely reporting the facts. The education departments enjoy considerable financial benefit from the industry as do the food vendors. I am not asking you to believe me I am simply reporting the facts. It would not be allowed in West Bengal or Kerala or even in Assam or Tamil Nadu or even Kanataka. ”Whatever damage has been done to the epidemic is because of the highhandedness of western institutions, ideologies, modes of prevention, delivering programme component, and their interference in constructing programmes and policies; pressurising NACO to change its National AIDS Control Policy of 1989; or applying other pressure tactics that best removes the differences in sexual moral standards between the east and the west.” The reason the epidemic has not been controlled in india has nothing to do with western institutions or ideologies. It is largely bad and getting worse because of a continuing culture of stigma and discrimination towards positive people. It is bad because it took 20 years to consider anti-discrimination legislation. It is bad because of the culture of fear manufactured and generated out of the health and allied professions by people who should have known better. It has become worse because of an inappropriate focus on prevention that should have been preceded by care, support and treatment. Instead almost every crore of rupees for the first ten years was spend on building the AIDS industry infrastructure. The tide is turning however. Pockets of best practice are emerging. They are Indian not western and I can’t claim any credit but I continue to laud the best practice initiatives of Indian professionals. I participate in continuing medical education programs for doctors. It is exciting to see the changes beginning to bear fruit. ”And by changing its policy, NACO has done a historical blunder that can never be undone. I attribute today's 5.1 million-figure only due to the adoption of a liberal policy that World Bank put down our throat as a loan condition for the National AIDS Control Programme -Phase I. Can we undo what we have done to all these 5.1 million Indians? “ I don’t understand exactly what this statement means in terms of ‘an historical blunder’ unless it is the points I made in the preceding paragraphs. I do need to remind readers of the verse that my grandmother taught me and that is – “ he who pays the piper calls the tune.” So little of the Phase one funding goals were achieved anyway so it suggests that India had the capacity to make up its own mind and it did. ”Why the hell every Indian should think that they are potentially positive to HIV? And act accordingly? “ As explained earlier only those who have had a risk exposure need to become concerned about their status. Any woman has an obligation to herself to ensure that the man she is having sex with is free of disease. Every man has an obligation to himself to ensure that the woman he is having sex with is free of disease. In fact unless we do that systematically we won’t stop the spread. You can’t do it by looking at a person. You can only tell by couples practicing safe sex until they have both had two negative HIV antibody tests measured over 30 days and no risk exposures in between. 20 years ago this didn’t matter. Many woman are wishing that they knew then what they know now. That’s why the presumption should be made. I have loads of case notes of examples to reinforce this principle. “It is something like saying that every western should think that they are a potential homosexual and act accordingly!” In India this is not a pressing analogy because the numbers of gays who are infected is low by comparison to the bulk of the population. A person’s sexual orientation has very little to do with risk anyway. The risk factors are much more easily explained and understood. One that stands out is that the more partners you have the greater the risk. That is what changed in Uganda to effect the radical shift in statistics. 'Grazing' stopped fairly rapidly after education campaigns highlighted the risk you take with every unprotected sex act that happens with multiple partners. The less partners you have the less risk you are being exposed to. Based on the work I do in Australia I would encourage every woman there to imagine that the man they marry could be bi sexual and act accordingly. It could minimise risk and avoid much misery. ” I am sick of listening this in every forum that " let us not talk about morality in AIDS. " Why not talk about it? A society without moral is at peril... And the acronym of IAS that you love is NOT " I am Safe, " BUT it is, " Indians Are Safe. " HIV is sexually transmitted in the majority of cases. There is evidence a plenty that sometimes this happened between a married man and his wife who were moral as far as their marriage is concerned. I am sick of people assuming that the epidemic will stop with abstinence and faithfulness. It will only stop when people stop infecting others. Behaviour change not morality will give the best results. People get infected by what they do and the fact that they do it without being sure of the status of their partner. Indians are only safe if they are sure of the status of their sexual partner. This is not the norm and therefore statistically Indians are not safe. Australians are not safe, British are not safe. Americans are not safe, Russians are not safe and so on. It has nothing to do with morality it has everything to do with the serostatus of your partner and the type of sex you do. Risk management and accurate knowledge is critical to controlling the epidemic. Probably 90% of Indians have nothing to worry about. Certainly 80% of Indians have nothing to worry about unless they chose the wrong partner and the wrong sexual behaviour. Why is this so difficult to understand. ” They are safe because they have a sexual and moral culture that best protects its individuals.” India has never had a sexual and moral culture that fits your description nor has any other national group. My country is only 200 years old and this is true of Australia that it has never had a moral culture that supposedly exists in India. The evidence I have seen carved in stone and the many museums that I have visited suggests that before, during and after the ‘occupation’ sexual mores have been the same with the same fluidity and the same disregard for gender rights as persist today. If it were not so then India would have no pandemic and we would not be having this conversation. ”What is a society without morals? And to remind you Sir! if we act " accordingly, " you will be nowhere! Your billion-dollar-industry will be nowhere! Because for us " accordingly " means acting contextually, culturally and situaltionally, which have been systematically destroyed over the past 10 years with the power of money.” There are many gems in this paragraph. We do need to have a healthy regard for everyone and this may well be seen as being moral. It is not evident in many of the places I have been. It is not being moral to turf a Positive person who is sick out of a hospital. It is not moral to stone someone to death who has AIDS. It is not moral to start someone on antiretroviral medicine and then fail to produce the medicine at an affordable price in a reliable way. There is growing evidence of the likelihood that many enrolled patients may well develop drug resistance and thereafter spread a super bug to unsuspecting partners for whom medicine that should work will not be useful. We did it in India with TB medicine. We should try to avoid it with HIV medicine if we are being moral. We deny PEP to victims of crime and thereafter the victims become patients in HIV wards. There is nothing moral about that. We provide food for people who can’t produce their own food and people die of starvation waiting for the program to kick in. That is not moral. It is not moral to prescribe anti retroviral medicine and not monitor the patient whilst he or she is taking the medicine. We have no idea of how many patients on ART’s die of lactic acidosis caused by medicinally induced adverse side effects. Very immoral for a country that has such a high ratio of doctors to citizens. It is not moral to offer to pay an orphaned child’s school fees in exchange for sexual favours. It is not moral to make destitute widows of positive men who die before their wives and children but my files are copious with examples. The most valid of the assertions in the paragraph is the part that Indian society has been ‘contextually, culturally, situationally, and systematically destroyed over the past 10 years with the power of money.’ But my situational analysis is that this has occurred by and large by the ruling class of India. I would like to conclude with a quote from an eminent Indian who served as an IAS officer with distinction and he writes it like this – “ There is an unspoken conspiracy that India belongs exclusively to the ruling class with the middle class being the beneficiaries of the left overs. All policy initiatives and development actions are taken by the top half of the population for their own benefit. All the moves are driven by the group interests of the major players – the politicians, bureaucrats, businessmen, professionals and the judiciary. The bottom third of the population is invisible when the curtains are drawn, counted out in all calculations. They do not exist in India for all practical purposes. This is the post independence dharma of India. India’s society had its loyalties to family, caste, clan and faith and furthermore the ground reality was that of a deeply hierarchical society with skewed distribution of wealth and privileges, an inheritance from many centuries. Even now in the fifty odd years since independence the kinds of checks and balances and accountability to anchor a modern administration within a democratic framework are still not yet in place.” I found this extract from his recent book in which he gives example after example of just what this looked like to be so helpful and refreshing. THEN ALONG CAME HIV/AIDS ” It is high time that we assert our moral-right that what we need for our country, let that not be decided by the colonisers from the west. Let us reclaim what we lost to these colonizers over the last decade.” I think the quite above says it all in a way that most Indians will agree is the situational analysis. Colonisers left 50 odd years ago and their place was taken by the elite ruling class. Nothing from my observations and attempts to invoke District collectors in matters pertinent to their duties makes me disagree with anything that this eminent Indian has said. ” Your conclusion tells us everything. That " the writing is on the wall but the problem is, not enough people are reading the right wall. " Do you think people are fools? And they can not decide what is " right " for themselves? “ I don’t think that people are fools. I am sure that many people have decided what is right for themselves. I have been hearing it in one way or another for the four years I have been an honorary Indian. What I would like to see is a policy that unskewes the distribution of wealth and privilege for the moral good of the whole nation. Indians are definitely not fools and you have 1.2 billion of them to look after adding at the rate of 28 million each and every year. Come back to India and take a look for yourself my friend. Talk to the Indians who are here. Read the newspapers. I do everyday even from Australia where I am writing at present. “ You wrote the wall because you think " this is what is right for the people. " And the result is obvious -- this is NOT what they want! Yet you keep on writing the wall because you have your own agenda to complete. People are not reading the wall because, they think, this is not their need. You are still writing the wall because you believe this is how a need should be " constructed " that maintains your own best interest. And even if people read, deciding its priority and acting accordingly, let that be at their absolute disposal. Why this hue and cry from the west that we are not doing the " right thing " that the west wants us to do? Sir I am not writing the wall. My only interest is in using the hard won skills and knowledge about HIV/AIDS to ensure that this scourge disappears from the south asian and east african landscape. It can be done in a generation. If the powers that be in this generation don’t act it will take two generations. The HIV virus is as smart as it is ever going to be unless of course it is allowed to mutate. What we thought we knew about HIV before 1996 we now understand differently. What this new millennium is telling us is that we are having even more answers and more potential solutions. Much of this information is gathered and paid for in the west. What the whole world realises is that this is a global problem and the best minds and the most compassionate of souls want to see a level playing field where the best practices are followed to eliminate the scourge before it destroys whole communities. That they keep coming back and spending time and money evidences their commitment. I would be fascinated to understand where you think India’s priorities and practices should be focussed because you are obviously an Indian and it is your civilisation that is at stake. I have been applying my knowledge and behavioural skills to ensure that Indians are safer in their sexual practices and skilled in the art of risk management. They in turn of course become local ambassadors for their peers. Those who are not infected are being given enough information to stay negative. Those that are having HIV infection are being taught how to prevent their viral infection progressing to AIDS. Not all are able to afford the means to that end unfortunately. Also not all medical practitioners are skilled enough to be able to help in the process but that is improving constantly. Please share what you consider should be India’s priorities for Indians. They are doing a great job for Ugandans and Kenyans and Tanzanians and many other countries of Africa and elsewhere but what should the response be to Indians. Geoffrey E-mail: <gheaviside@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 Dear Forum, In the midst of hundreds other commitments for all of us, we are taking the time out to read this conversation because we believe that there is a difference in opinion about how a problem as HIV/AIDS need to be addressed. Let me quickly respond to Geoffrey Heaviside's last message in response to my argument. I will go point by point: " Well I was interested indeed to read this analysis ... because it reflects opinions generally held in the various factional groupings of political decision makers who still believe that HIV will go away if we just stop listening to the people whose lives have been dedicated to the eradication of the pandemic.... " Wrong! Immediately after posting the message, I received 107 personal e-mail messages from people in India and abroad describing it as " the best ever rejoinder to a holistically constructed evil. " Out of 107 e- mails, 22 e-mail messages were from Executive Directors of some of the prominent Indian NGOs and Foundations working on HIV; 17 messages were from Secretaries of some organisations or Presidents (again working on HIV); 37 were from researchers, academicians, NGO workers (list readers of this forum); and rest of them were anonymous or those who did not want to be identified (again list readers). Do you still think that this kind of opinion is held in the factional groupings of political decision makers? People feel it - we, the Indians feel it. What I argued is also believed by a wide segment of NGO-heads, workers, activists, academicians, researchers, policy makers and of course political decision makers working on HIV. Yet, they can not take such a position in public forum (as is evident from their personal e-mail messages to me instead of posting it in the e-forum). The reasons are primarily two, besides personal choice: first, by taking such a position in public, nobody wants to lose their potential funding (this is what seems to guide their present action about implementing HIV/AIDS programmes). And second, taking an opposite stand has become so much stigmatised within the NGO-world that nobody wants to be ridiculed or make fun of themselves by questioning even if they feel it otherwise. This is a " construction " - the ways " truths " about HIV are " constructed " and diffused through the process of socialisation so that they come to appear as " natural order of things. " Hence questioning what others believe is a stigma. Come, talk to these 107 NGO leaders and activists in privacy. You would wonder whom you are working with today, many of them are just nice to you on your face (or they are just nice to me on my face? I don't work with a funding agency either!). When you realise that the " evil lies within, " then you would think that there must be something wrong in the approach that you adopted. With money, you could well change the agenda and the way the agenda to be handled. But you could not change the ideology. And that is where the failure lies. And I believe, the ideology will finally win, because it is the ideas that move the world. Let me answer your last question first before I take your other points one by one. " Please share what you consider should be India's priorities for Indians. They are doing a great job for Ugandans and Kenyans and Tanzanians and many other countries of Africa and elsewhere but what should the response be to Indians. " In response to this question, I present you the following statistics, which I presented to this forum in my earlier posting. We will decide the priority based on the following facts compiled from published reports by WHO/SEARO, UNAIDS, UN Demographic Yearbook, World Health Report, Census of India, MOHFW among others. As of end 2004, about 5.1 million Indians were living with HIV/AIDS (estimated) as compared to about 15 million people living with cancer of various kinds (includes lung, liver and other kinds of cancer). The adult prevalence rate of HIV in general population is 0.8 percent compared to tuberculosis, 2.5 percent (this is NOT co-infection). Estimated AIDS death since its inception (1986-2000) in the Indian subcontinent is about two million (while reported figure is only 62,000) and currently stands at less than 3,100 per year, compared to more than 10 million deaths in the last decade, almost a million per year due to common fever, dengue and malaria. Diarrhoea alone contributes to about 4 million deaths per year in the subcontinent. Nearly 10 million children die of vaccine preventable diseases every year as opposed to 1 lakh children infected and orphaned by AIDS so far (no correct estimate is available). The life expectancy after being HIV infected remains 6-8 years on the average, unlike killer diseases, during which a person remain engaged in economic activities and contributes to the national income. Both the drugs for HIV and dengue, cholera or diarrhoea still remain inaccessible and unaffordable for the majority of the poor. Leprosy or TB still carries the same level of stigma and discrimination in the Indian society, no less than a HIV positive person. There are nearly 30 million homeless people who live on the streets, footpaths, railway stations, flyover-sheds, under the shed of parked vehicles, and more than 200 million Indians do not have basic amenities like safe drinking water, electricity and toilet. Another 200 million do not have access to basic/ primary health care facilities. There are 350 million " sheer illiterates. " And yet, the money that is being pumped into tackling the HIV/AIDS problem " alone " ($350 million/ 1999-2004)constitutes the sum of all the investments made in the above sectors ($380 million/ 1999-2004) both by the government and donors/NGOs in the country. Let us be rational and by applying any sense of logic let me know what the priorities stand for India under such a circumstance. Doesn't it become clear that the priorities for development are " distorted? " How this distortion took place precisely after 1991? That is, after adopting IMF sponsored Structural Adjustment Programme? The research project I am currently engaged in analyses all this data and I would like to present an excerpt here only for your reference: ....During the year 1990-91, India experienced one of the worst years in its economic, social and political history. It was marked by political instability (frequent change of governments), with shooting rate of stagflation up to 20 percent per year, a stagnant growth of the economy of less than 2 percent, and a billion dollar of balance of payment problem. (You can read the special issue on India's Economic Liberalisation and Economic Development in the " Journal of Asian Economics, " Vol. 7, 1996). The IMF agreed to extend its " generous " help to rescue the government out of this economic crisis provided India accepts its structural adjustment programme (SAP) of promoting free trade and free market regime. Ravaged by economic depression, devaluation of Indian currency in the international market, the Parliamentary Standing Committee recommended the government to open up the economy and adopt a structural adjustment programme. By adopting such a historic measure, India tried to take the advantage of economic globalisation by promoting free trade and deregulation of market. On the contrary, the giant players in the global economy tried to take advantage of the vast unexplored Indian market. Thus with multinational and trans-national corporations (such as LG, Samsung, Pepsi, Mcs) came the multinational and trans- national NGOs. (I call these NGOs multinational and trans-national because of two reasons: first, their presence in most of the developing countries taking advantage of a free market regime; and second, maintaining a huge corporate infrastructure with high staff- salary and excessive administrative and travel cost; and to sustain this corporate structure and comfort, mobilising resources from the global economic market). I have a countless list of NGOs who came to India after 1991 say FHI, Population Council, Project Concern, HIV/AIDS Alliance, CEDPA, ICRW, Bill Gates, Packard Foundation and hundreds others). They came like locusts- probably the last decade (1991-2001) would mark the greatest invasion of Indian territory by the multinational and trans-national NGOs to take advantage of the virgin Indian land and society. Compiling data from several NGO Directories published both by the Government of India and NGOs, I can find the largest number of AIDS-NGOs were ever registered between 1993-2001. Some of these NGOs were " exclusively " registered keeping in mind the donor agenda (for example NGOs exclusively registered on sexuality/ HIV/AIDS). We have the evidence that the donor-agenda changed the NGO agenda and most of the earlier established NGOs started working on sexuality and AIDS prevention, albeit their mission was to promote education or working on environment, and forestry (I have countless examples of both national and international NGOs changing their agenda from poverty reduction, sustainable livelihood, diversified agriculture, forestry, watershed management and fishing to HIV/AIDS). Do we need to talk more on how this " distortion " in the development agenda took place? I am calling the agenda as " distorted " because based on the facts presented above, I believe that the priorities for the country should be different. And that is how I label HIV/AIDS agenda as a " construct. " Why don't we just take the example of 30 million homeless population (in addition to another 30 million migrant workers who do not live in any formal residence unit) who, I think, should be given top priority in the development programmes? Because of their homelessness, they could not bring their families whom they leave at village and have sexual relations outside. Families are a well-documented " protective factor " in HIV transmission. Once you address the " homelessness " the HIV prevention is automatically addressed. Or why don't you just talk about 350 million " sheer illiterates " of the country? What makes HIV a bigger problem than illiteracy in the 21st century? You have made your point clear that you do not believe that western ideologies or institutions have anything to do with shaping the national policies and programmes. Let me remind you the Indian economic and political history that we just talked above. Under the prolonged economic depression in the 1990s, as the IMF took the advantage of an economic crisis by pushing it's agenda of SAP, World Bank used the same opportunity for providing loan to the Indian government to implement its national AIDS control programme in 1994. As with SAP, the loan came with " conditions " -- the foremost was to withdraw the National AIDS Control Policy of 1989 and adopt a liberal, rights based perspective of prevention and control of AIDS. For developing this new rights-based policy, technical support would be imported from abroad and organisations like WHO and UNAIDS would help India developing such a policy. We accepted the money and we did the blunder. I wonder whether I can call this as " exploitation " simply because the policy that was foisted upon by the World Bank was NOT sensitive to the social and cultural context of the country. Sorry for the distraction, but let me come back to your argument again: " What counts is the mobilising of community action to identify the problems and find Indian solutions to what they find... " Do you think that with regard to HIV, whatever solution has been found so far or we have been adopting are Indian? In almost all the cases, the entire programme inputs have been imported from far across the sea. Toolkits, handbooks, guidelines, strategic plan, resource materials, virtually every " truths and norms " about HIV/AIDS programme is imported from the donor's home country. In the name of providing technical support and capacity building, a gospel of western truths and norms about development is pumped into the NGO programmes. This is what is available in US and this is how Americans do, so we must do this in India. The LGBT community in US have their rights, so we must advocate for the same in India. The HIV prevention programme in US recognise the rights of sex-workers, homosexuals and others, so India must do the same. Have we been able to mitigate the new infection in US by giving information and adopting such an approach? In USA 100 percent population are aware about " risk exposure " and modes of transmission of HIV. Have we been able to stop new infection still now? " If India really wanted to know how many are really there they would pass anti discrimination legislation and actually enforce it ... " I don't see any logical connection between the numbers and the legislation. Also this is where I have the major contestation with you. Take the example of the case against IPC 377. Only because of the influence of the western funding agencies, the case made upto the Delhi High Court. You do not seem to understand what is applicable in the western social and cultural context can not be made applicable everywhere. Legislation emerges out of social and cultural contexts. Sexual tolerance in the west is due to a host of contextual factors in the society that are not present in the countries of South Asia. I use the term " sexual tolerance " to indicate tolerance to a wide range of sexual behaviour (exhibitionism, nudism, orgy, swapping, etc.); sexual preferences and orientation (lesbian, gay, bisexual, transgender); sexual products (toys, pornography both print and electronic, peep-shows/ live sex-shows); and sexual ideologies (a feeling that all these are okay and a part of our culture!). Hence the same concept of sexual tolerance can not be applied to the Indian social and cultural context. Thus challenging the constitutional validity of IPC 377 was wrong. Let us examine why other countries in the west are sensitive to LGBT issues. I will just show example from US. In a society, where 64 percent of total marriages end in divorce; where 28 percent of total children under 18 are single parent; where 50 percent of total youth by age 30 see their families breaking down or become single parent; where 32% of total birth occur to unmarried women; where 4 percent of total children are parentless due to divorce; and where 1 million children become involved in divorce every year, extending support structure to the sexually minority groups become a state responsibility. In am not arguing that all the LGBT communities in US are single parent. But what my fundamental contention is that since single parent homes account for 90% of homeless and runaway children, 85% of children with behaviour problems, 71% of high school dropouts, 85% of youths in prison, and well over 50% of teenage mothers, parentless children are more likely to be LGBT than children living in a family (These figures are from US Census Bureau and National Center for Health Statistics reported in Divorce Magazine. See, US Divorce Statistics, http://www.divorcemagazine.com/statistics/statsUS.shtml). Thus marriage and family as an institution have a strong influence on people's sexual identities and in majority of the cases, people living in families can not become a homosexual. (You would argue, that it is because of the familial pressure: the sexual identity is imposed upon by the family, which is against individual liberty and rights (see Khan 1994). My question is then, do we break the family- institution and take someone out of it to declare himself as homosexual? Or should we promote more divorce as programme strategy to let people develop their sexual identity independent of the familial control?) Since it is well established that a person's sexual identity is formed during the late adolescent age, and well over 30 percent of total adolescents become single parent, the familial factors can not influence in developing their sexual identities. It is no wonder that such a society would be more tolerant about LGBT rights where large number of parents see their own children as a homosexual. Thus LGBT Activism in US has a structural context where family and marriage is a decaying institution. The same activism does not apply to India until it reaches that stage. Are we by any means trying to be equal to US in this regard to let people develop their sexual identities outside a familial institution and hence promote more divorce? " In a relationship of master-servant, domination-subordination, coloniser-colonised, donor-recipient..., I am not sure I understand this statement. " Yes you misunderstood, particularly when you say India is no longer colonised. Can we define the process of colonisation, particularly neo-colonialism in the age of globalisation? Look at the contemporary world economic and social order and tell me whether it is hierarchical or anarchical? My analysis of using an economic depression and imposing SAP; taking opportunities of an economic depression to change the policies of a nation; using a free trade regime to invade the society of a nation and imposing one's own social and cultural construct; carrying out donor-driven research and programme agenda; and dictating the way it needs to be implemented are all examples of the above relationship. " If this means that the numbers are wrong because multinational and transnational NGO's are looking for somewhere to hang their hat then I can't accept that because I don't work with any of them... " I don't work with them either, but I have already demonstrated where and how multinational and transnational NGOs hang their hat. " Anyone proposing to have sex without protection in India should be submitting to sexual health and safety principles. " I beg to differ on the statement simply because it inherently presumes that someone is having multi partner sex or is sexually promiscuous. " Of course that presumes that every such Indian (or any other nationality of course) would need to know what a risk exposure is. Most of the people I lecture to in India don't. It is also not common sense as is evidenced by the numbers of otherwise intelligent people who are HIV +ve. In this class are doctors, lawyers, accountants, police officers, peace keeping forces, teachers, students, politicians, academics, drivers, building workers, public servants, and of course sex workers and poor people of identifiable caste status. " I have already made my position clear on this. Take examples from America. Almost 100 percent people know the modes of transmission and what a " risk exposure " is. What difference has it made there? Have you been able to stop the new infection among high-risk groups as well as in general population? Check these statistics from CDC and NCHS and you would find that the HIV infections rose more than 7% from 2001 to 2002, with an overall increase of almost 18% since 1999 among gay and bisexual men. There is also absolutely no evidence that " intelligent " people in US or Western Europe who knows what a " risk exposure " is have been able to prevent being infected by HIV. Check this website yourself that lists about a hundred famous people including athletes, entertainer, artists, writers, musicians, politicians, singers and porn stars in US who have been infected by HIV. http://en.wikipedia.org/wiki/List_of_HIV-positive_individuals. Did they not know what a risk exposure is? " Far too many between 14 and 16 are testing positive. That's not a 'western opinion' by the way but if we don't HIV- proof the next generation we are in a lot of trouble. " I challenge this statement and say that this is statistically not supported. Projections, simulation and modelling of age sex structure (that is done in the west for example USAID, or that I am doing) " with " and " without " HIV suggests that the current or even the moderate rate of HIV infection in the developing countries will not have any significant impact on the age-sex structure simply because every year 30 million live births are added to the total population base. Thus the size of the cohort who enters the reproductive age group every year is far greater than the cohort who is infected. With a moderate level of HIV infection, India's age-sex structure will not " substantially change " at least in next 30 years. You can check these projections yourself for other countries that are done by USAID 2004. " I have learned that there is no substitute for accurate information and frank discussion... " I do not buy this argument, as this is NOT the only variable that affects the probability of getting infected with STDs/ HIV/AIDS. Again taking examples from the West, it emerges statistically that other contextual factors in the society play more important role than " just accurate information and frank discussion. " Among these are, physical quality of life, per capita income, standard of living, education and health and treatment seeking behaviour. I strongly believe that we need to be careful before suggesting something as " the magic formula " that would work for a nation. " I have lost count of the number of Indian weddings I have attended where a gay or bisexually active Indian man has been pressured into marrying a woman or where bisexual or lesbian women in India have been coerced into marrying men.... " I have already made my point clear on this and argued that the activism for LGBT rights in India must be viewed in relation to the structural and contextual factors in the society. The liberal policies towards sexual minorities in US have been developed out of its existing social realities. Although it required certain level of activism, State clearly recognised the need for a policy under the changing social structure (divorce rate, single parent adolescents etc., mentioned earlier). Where no one is available to extend the support, it becomes obligatory for the State to extend the support structure and protect the rights of sexually minority groups. In contrast, India has a handful of self-proclaimed LGBTs living outside the family. Even if there are millions of them hiding in the society, they are already living with their families. Why the hell we take them out of an institution to promote individual liberty and rights? In the name of promoting an institution of liberty and rights, are we not breaking down another important institution of marriage and family? " Sexual tolerance " in US needs to be juxtaposed with other contextual factors within American society. A country that produces 4,000 pornographic films earning over 13 billion dollars per year (The Observer, April 18, New York); a country where people choose 'porn star' as a career option without any social stigma (being a " Play Boy Playmate " or a " Penthouse Pet " still remains glamour in American society); a country where a " female porn star " contests for the governor of a state (Famous Porn Star Carey who performed in more than 30 hardcore porn movies as of 2004, contested for the post of Governor of California in 2003. Out of 135 candidates, she came in 10th place); a country where well over 1,200 female " porn stars " enter the adult industry every year (Only in 2004, 1,231 new female porn stars entered in the adult industry in California. See Cyberspace Adult Video Review, CAVR List of Newbies 2004, http://cavr.com/hots2004.htm); a country where sexual products such as sex shops and live sex shows is a part of culture in every city (I don't know of any city where there is no such shops); a country where prominent stars and celebrities often get AIDS (see List of HIV positive people, http://en.wikipedia.org/wiki/List_of_HIV- positive_individuals); tolerance to LGBTs likely to be higher as such society already tolerates a wide range of sexual ideologies. Contrary to this, a country where all these are stigmatised, LGBTs are also likely to be a part of the wider sexual stigma. For example, even after two decades of HIV epidemic in India, no celebrities have yet been infected by HIV/AIDS (even if they are, they have not yet boasted of having the virus publicly). Indian porn industry is negligible, still limited within the sex workers and the law prohibits both adult industry and sex work. Since there is no concept of 'porn stars' in India, such stars do not enjoy any social status too. You would probably argue, it is because of the high level of stigma prevalent in Indian society. Hence, we must fight to reduce sexual stigma so that people can enjoy their sexual freedom in the name of individual liberty and rights. But look, we are structurally so different...! What if we do not want this sexual freedom? Let the people of this country decide what they want... let us have a national debate whether we would promote our sexual freedom in the name of individual liberty and rights. This rights based approach seems to be so contradictory and self-defeating that the very concept of " individual freedom and rights " are being " imposed " on people forgetting their rights to decide what they want for themselves! " The sex work industry is one of the largest in the world in India and it is amongst the most unsafe and unregulated. It is a growth industry of rich and poor middle aged and young, male and female... " So what do you suggest? Instead of saying that we need a proper legislation that is implemented correctly at the ground level and taking necessary steps to correct the policemen who implement it, do you want to argue that the Immoral Trafficking and Prevention Act be withdrawn? I again beg to differ. Legislating sex work has done no good to other countries. Tell me concretely what good it has done (other than promoting individual liberty and rights) to other countries and to the epidemic? And I am sorry to say, that I do not want to see my sister as a " Porn Star " as an easy fallout of such legislation. You have already mentioned that young people in MP have started prostituting even under the presence of an Act. Can you imagine the magnitude of sex work without any barriers? I am sorry Sir! I do not want to perceive such a country for my own. " The reason the epidemic has not been controlled in india has nothing to do with western institutions or ideologies. " I have already made my point clear on this. We have never tried our approach. The time was too short since the virus was discovered till NACO was established and World Bank foisted its policy upon us. We do not even know whether an Indian approach to the epidemic would do any good. Pleased refer to the message from Mr Abel in Tamil Nadu, who also feels in the same way and trying out a cultural approach in the community he works. His message clearly says that " it works. " But is does not fit the " standards " of the western institutions or funding agencies. I attribute today's 5.1 million figure only due to the approach to the epidemic that we adopted under donor pressure forgetting the structural context of our country. " So little of the Phase one funding goals were achieved anyway... " It was obvious. Picking up something from somewhere and fitting it in another context would always result in such disaster. I do not worry why Phase I goals were not achieved. " I am sick of people assuming that the epidemic will stop with abstinence and faithfulness. It will only stop when people stop infecting others. Behaviour change not morality will give the best results.... " It is just we are different varieties of people who are sick of listening different things. I am sick of what you say. Morality guides action - argue if you can but thousands of youth I interact with do not go to the sex workers even if they want to only because of a high level of stigma attached to sex work and constructing a moral standard that this is wrong! Of course epidemic will stop when people stop infecting others. And people stop infecting others only when they " abstain " or " remain faithful " to their partners. Your behaviour change argument reminds me of the famous argument one Indian journalist once made in Pioneer -- that behaviour change and safe sex is something like saying that when there is pollution, use mask because mask manages the risk of being exposed to allergens. You do not seem to say that, well, the root cause of pollution needs to be tackled, say using clean fuel, planting more trees, using public transport instead of using one's own vehicle and so on. And to my analogy, you are actually arguing that OK, you can take the bribe, but before you take it, wear a set of gloves. It no more remains immoral. Let us ask ourselves what guides our action and so called behaviour change? Morality or something else? " India has never had a sexual and moral culture that fits your description nor has any other national group... " Are you still not convinced whether we have a sexual and moral culture even after presenting such hard facts about sexual culture in the west? I have presented data from US porn industry, porn stars, sexual toys, shops, sexual ideologies, sexual tolerance, preferences, and some sexual characteristics that define every US city, and the like. What else best describes the west, I do not understand. If you want, I would present these figures for Western Europe and Scandinavian countries later, but let that keep outside this argument as it is already presented for US. You do not seem to find any reference to India's sexual behaviour in Australian media. But just to give you an example, here is one " A Lesbian Film Idyll and the Movie Theatres Surrender, " New York Times, December 24, 1998, other than hundreds other research papers in peer reviewed journals published from the west. What is a society without morals? It is no moral to engage in divorce and leave the children single parent (30%) or neither parent (4%). It is no moral to separate the children as soon as they become adult. It is no moral just to preserve one's own individual freedom and liberty, leaving the parents on the road during their old age, which we do under poverty and the west do under affluence. There are differences between East and West that we must acknowledge- we have it with HIV and you have it with everyone in the society. Let me conclude by just showing you an example of how " situation assessment " or the " community needs assessment " is done in a power relation of donor vs. recipient. This is my own experience that I would like to share with you and an excerpt from my paper. ....The situation assessment or the CNAs are one of the most " biased " and " questionable " exercise of programme implementation as in all the cases, CNAs are done by the NGOs themselves. Thus for conducting the needs assessment, NGO workers go on searching for HIV positive individuals and other vulnerable groups such as homosexuals, gays and eunuchs. (I have reported this in one of my earlier study with particular reference to injecting drug users in Delhi). Such an exercise puts two interest groups at stake: first, if a threshold population of HIV positive individuals, gays and eunuchs were not found, the outreach workers lose their job! And second, if the " need " is not reflected from such an exercise, the NGOs lose their potential funding. Hence " construction " of an agenda and inflation in reporting was inevitable. I started my career as a need assessment worker in Delhi, Mumbai, Surat, Guwahati, Pune, Lucknow, and other cities. Sir, believe me, I have no conspiracy against anybody. But whatever is going on, worries me a lot as I see that things have gone totally worst in certain pockets. We are arguing only because of a difference in opinion about what would work in India. Any other argument that you provide would strengthen our viewpoints about what we believe. And finally, I would beg apologies of the readers that since I am travelling, I can not reply to these debates immediately. Let me join my office after a week, and I would love to supplement what I feel. Sincerely Subir K. Kole Research Fellow, East West Center Director, Research and Training Development Experts International Honolulu, Hawaii, USA E-mail: subir@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 Dear Forum: I agree with Mr. Kole-- that in the middle of hundreds of commitments in our busy lives we have to waste our time reading his long comments especially when he is contradicting himself-- at one place he is saying " in majority of the cases, people living in families can not become a homosexual " but he also says " Even if there are millions of them hiding in the society, they are already living with their families " (in India). Basically-- he is coming from a position where divorce is immoral-- well that is his opinion which he should keep to himself. Also from where did get the information that 100% of population in the US has HIV transmission awareness? It looks like he has lots of time in his hand to ramble about his opinion and comments which he should keep to hoimself. Sathi Dasgupta. E-mail: <sathi_dasgupta@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 Dear Forum readers, I must say I was saddened by Mr.Suber Kole and the incredible hotch-potch of dialogic and didactic discourse that mixes public health issues, epidemiology and even " morality and tradition " among other things in the battle of figures started by Feecham. What is horrifying is that he justifies this chauldron of wild Western constructions by saying he got over a 100 emails supporting him. A majority just results in " majoritarianism " and does not signify either the truth behind an agrument and nor does it justify attacking minorities who may not be in a position to reply to blatant homophobic statements juxtaposing tradition versus liberty and human rights. The fact is that this forum is to discuss HIV/AIDS. The fact is that a lot of us activists and NGOs are caught in between the " reality " and the way " truths regarding HIV are constructed " . But to mock the whole national HIV/AIDS/STI intervention program shows a cruel refusal to face the hard " reality " that we are facing a grave epidemic of massive proportions. I speak more as a one of the " handful of self-proclaimed LGBTs " living very much within the family and not " outside " as he insists.. Kole's next two sentences: " Even if there are millions of them hiding in the society, they are already living with their families. Why the hell we take them out of an institution to promote individual liberty and rights? " need not necessarily be truthful to the first. I shall explain the false discourse he tries to impose on us LGBT people. Firstly, may I strongly protest a " Research Fellow " in Hawai writing in such derogatory language about emerging communities in India in a totally ignorant manner. It's the usual NRI complex (Na Raha Indian, as Amir Khan says in the infamous Cocacola Ad). Preach from afar. I shall not talk about Mr. Kole's " disgust " with NGOs and his disillusionment while studying in Mumbai. But firstly! No LGBT activist in India wishes to be taken " out of an institution (like marriage) " to " promote individual liberty and rights " . In fact we not just insist on freedom to be within our families but to be respected as such within familial structures. I'm horrified that he thinks Indian LGBT rights are something.new in contrast to tradition which is supposed to reside within families alone. Ironically, Section 377 of the IPC itself is new and remains a colonial imposition in Indian criminal law. The research book " Same-Sex Love in India -- Readings from Literature and History " by Prof Ruth Vanitha and Saleem Kidwai makes it very clear. Their observation: " Our study suggests that at most times and places in pre-nineteenth-century India, love between women and between men, even when disaproved of, was not actively persecuted. As far as we know, no one has ever been executed for homosexuality in India " . (Pages xviii in the Preface). Compare that to Kole's present home in Hawaii where Christian missionaries burnt to death ancient berdache (homosexual) medicine men in the late 19th century and you know where this homophobia is coming from. Yet people like Kole actively maintain that homophobia is part of Indian tradition. In every sensitisation workshop on " Sex,Sexuality and Gender " , which I conduct at the Tata Institute of Social Sciences and the Clinical Psychology Faculty of Mumbai University,(which I have been doing over the last five years) this startling fact -- of the deep understanding of the pluralistic sexual identity constructs within our tradition -- are clear 'reality' contrary to what Kole and his " Research Fellow " ilk wish to impose on modern India. I dare say that from his perch in picturesque Hawaii, Kole is as guilty as the MNCs he accuses, of imposing his own agenda. I too wish I could go point by point in replying to his arguments but some of us have to work very hard for a living. Yes! Many of us activists were agittating for our rights long before the HIV/AIDS " crisis " in India started. I, for example, am drawing a salary today from my NGO which I was drawing as a journalist 17 years ago in Mumbai in 1989. So it's not as if all of us are making a living (or otherwise) out of HIV/AIDS. What must be understood is the discourse surrounding HIV/AIDS is being confused willfully on purpose. It is not that homelessness, malaria, TB are divorced from the health issues around HIV/AIDS prevention; it is why they are not being integrated into the HIV/AIDS programs which have become a bugbear for public health professionals unable to deal with the stark " reality' that HIV/AIDS has a more immediate impact on the whole socio-economic landscape unlike TB/Malaria/Polio, which require more managerial political mandates. Many of us have been insisting that the HIV/AIDS crisis is compounded by illiteracy, homelessness and general paucity of lack of access to health facilities for the poor. Hence, it is not which disease must get priority but how the holistic health package must be programmed into our overall health strategy. Who, for example, does one blame for the fact that the government which talks of the socialistic mode of production and property rights is witness to increasing levels of disparity between the rich and poor? Who does one blame for the fact that malaria, TB, polio still exist in a country where spending on health has actually decreased to reach an abysmal 0.7 per cent of the development expenditures by the state?. Surely the Five Year Plans were made by well-meaning people not really influenced by the World Bank or IMF. Yet Kole will start his tirade starting only from 1991, propagating a general amnesia regarding the gruelling reality pre-1991. Why is he starting from 1991 and, say, not from 1947? What fascinates me as an Indian, always accused as being rooted in Indian " tradition " , is that Kole has all his facts about America in place, but his facts regarding India are woefully lacking. Why does he not check with the Family Planning Association of India (FPAI), one of the oldest NGOs in India, whose dossiers stated long before the HIV/AIDS crisis began, that divorce rates were much higher in rural India than in the cities! Why not state the stark reality that 80 per cent of the women infected by HIV in India had only one partner -- their husbands! Surely sir, that is a telling commentary on your " family and tradition " ? I would heartily recommend to him the research paper by indigenous researchers about the rates of male-male sexual activity in rural Indian men (please read Research letters -AIDS 2004 18:1845-56 by Ravi Verma and e Collumbien) where the rates for male-male sex are THE SAME as reported by Alfred Kinsey in the USA ie 10 per cent of single and 3 per cent of married men had unprotected anal sex with a man in the past year. In other words, whatever be the " cultural " or other context of a population, we human beings are all the same inhabiting every corner on this planet. HIV/AIDS, even today in America, is still mostly restricted to the gay population where it has been rising again. However, can Kole please explain why 15 years into the " epidemic " , nearly 80 per cent of the infections are still among males in India? Is it possible that his " cultural context " fails to see what happens when homosexuality is driven underground?. If he wishes to protect " tradition " then why not bring back child marriage and sati, as even luminaries like Dr.Rajendra Prasad did in the momentous arguments over the Hindu Marriage Act in the 1950s, where the Hindu progresssives won? Why not bring back the Varna-Ashrama itself because it was a " tradition " in our " cultural context " defended by no less a person than Mohandas Karamchand Gandhi! Kole's playing arouind with figures even as he takes potshots at UN agencies, international funding agencies and governmental priorities are for these individuals entities to defend and I hold no brief for them but the following statement must be challenged on its very merit. " I don't see any logical connection between the numbers and the legislation. Also this is where I have the major contestation with you. Take the example of the case against IPC 377. Only because of the influence of the western funding agencies, the case made upto the Delhi High Court. You do not seem to understand what is applicable in the western social and cultural context can not be made applicable everywhere. Legislation emerges out of social and cultural contexts. " . As a represenatative of the Indian homosexual community, I strongly object to his linking up the case against Section 377 with foreign funding. In fact the case against Section 377 has been building up for a long time now. It was challenged by a Trotskyite group, the AIDS Bhedbhav Virodhi Andolan (ABVA), in the late 1980s. The ABVA actually made a virtue out of NOT taking any funding whatsoever. Every lawyer fighting the case has refused to charge anything for taking up the matter.Our organisation has been collecting field data of harassment and violence against sexual minorities without any funding till date. Not a single foreign funding agency, starting with USAID, contributes even one rupee inthe fight against Section 377. In fact, many of them are particularly hostile to the word 'homosexual " wence has come the obsession to turn us alll into simple " MSM " . However, I must warn Kole that if asking for assistance from wherever it comes is taken as an anti-nationaal act, then very many human rights issues neglected on purpose by the Indian political class will fall by the wayside. But the self-righteous tone in Kole's statement " You do not seem to understand what is applicable in the western social and cultural context can not be made applicable everywhere " must be challenged straightaway. Pray inform us why " what is applicable in the western social and cultural context cannot be made applicable everywhere? " Democracy itself as we have it is a " Western construct " .So why not reject it! Why, even the language we are having this discourse in is a foreign western language! Why and who are you to accept and reject what is western and what is oriental? Please pray tell us! The unfortunate truth is that I too tend to agree with Mr. Kole on very many statements regarding the funding agencies imposing their agendas. Very many of us are in situations where we try to maintain a delicate balance between running our own agendas and compromising with the funders' agenda. But being an NGO which got India's first pilot project from public money (our first grant was the from the Directorate of Health Services,Maharashtra), I must ask Kole to explain what his tirade is really about. Is it about numbers? If it is, then I can say that NACO itself comprehends that its estimates are guestimates at best. With a sentinel survellance network that has been in place for hardly a decade compared to survellance of other infectious/contagageous diseases which have been quietly chugging away for nearly a century (the Bombay Plague Act was enacted in 1929, for example), let me inform Kole that it is not numbers that reflect any reality but what those numbers may actually mean in affecting communities at peace till now and who face disruption due to both State and international intervention. For example, India has always recognised a " Third Sex " ,(Tritiya-panthis)so much so that there have been Male Temple Prostitutes called Jogtas and Jogappas since time memorial. Mr. Kole forgets that the greatest playback singer of our times comes from the Devdasi tradition and is today ashamed of the institution which led to so much exploitation in years gone by. The " cultural context " of this reality is that temple prostitution as an institution have been recorded in ancient Jewish history, Pre-Islamic Arabia and in earlier times Before the Common Era (BCE). Yet,today the whole institution has collapsed like a house of cards. Not only are Jogappas on the streets but have got into prostitution at truck spots, on highways and are displacing women in prostitution. Could Kole and his kind please inform me what we shall do with this " tradition " ridden group who are now reaching infection levels of 50 per cent or more.And this is a hard 'fact'. The first sentinel survillance done among hijras in 2004-2005 at Mumbai's Sion Hospital gives HIV prevalence at 49.5 per cent. The very 'reality' of their high HIV prevalence shows that there is same-sex activity going on within " traditional " society. How are you going to engage it without throwing out a British Law enacted in 1869, could you please tell me without bringing in your precious " family " into the picture? In a famous Marathi play, 'Julva', the forlorn ostracised Jogta pleads for a mouthful of rice " even if you all fuck me dry " . Do not try to do that to us for we will fight back with all our might to avoid marginalisation. By throwing in a whole mix of epidemiological props, gross xenophobia, clever manipulation of figures, neo-con philosophy and plain disinformation together, Mr. Kole should not be allowed to get away with pandering to the most vile of pompous passions -- cultural nationalism. There is much to what Mr. Kole says, But there is much more he is trying to hide through a profuse display of data from a western civilisation that is the most transparent of modern societies. This is startling compared to the hidden " cultural " realities within a closed highly hierarchal society like modern India, where the basic " right to information " laws are still being stone-walled by the ruling political class. Finally a word of caution: Let us not ride roughshod over the existence of silent oppressed segments of society who have found a voice in a rapidly globalising world. If you cannot reverse the tide, please also do not live on islands of precocious pretences. History has a habit of repeating itself not only as farce but as tragedy too. Ashok Row Kavi Humsafar Trust Mumbai Metro. E-mail:<humsafar@...> Quote Link to comment Share on other sites More sharing options...
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