side effects

[Guest guest]

I am not on Sprycel (100 mg day) and have many fewer side effects than when on

Gleevec. Will have a BMT in a few weeks to see how effectively its working but

it's so nice to have lost many of the conditions of gleevec (fuzzy thinking,

bone aches, blurry vision, nausau, etc.) It might be worth a try for some who

are having such difficulty with Gleevec.

Margaret

barbara <barb521@...> wrote:

I have 40 years of corporate experience in the Human Resources and

Finance

arenas, a college degree and have owned 2 retail businesses. Of course,

those barely high school grads in the SS Office who have volumes of

knowledge about CML say my condition is controlled by my treatment and

although I may have some " discomfort " I should be able to work a normal job.

My problem is not my experience or knowledge but the limitations brought on

by Gleevec side effects. They are tolerable as far as severity; however, do

not allow me to be a very productive employee working on someone else's

schedule and requirements. That's why I'm trying to find things that would

allow flexible hours controlled by me. Since I'm eligible for early SS

benefits in the next few months, I would gladly accept SSDI until I could

get my business income up to the maximum level and then convert over to

regular SS benefits. It really angers me that it takes an attorney plus

valuable time out of my life to get something that was set up to help those

of us unable to work in a regular workforce. It is so unfair that CML

seems to be lumped in with the other types of leukemia that have some

history of cure or longevity.

Sorry, had to vent a little here.

Barbara Hundley

My Personal Assistant

Fayetteville, GA

Tel: 678-817-6805

Fax: 678-884-8186

<http://www.my-personal-assist.com> www.my-personal-assist.com

_____

From: [mailto: ] On Behalf Of

Loewenkamp

Sent: Saturday, April 21, 2007 12:04 PM

Subject: Re: [ ] SSDI -- Jobs-Barbaa

Hi Barbara,

Sounds like we're thinking along the same lines --just different kind of

business. Freelance writing is really not a way to make a living. Unless

you're Dominick Dunne or another famous writer the pay is paltry. I wrote

for a group of community papers in Connecticut while I was there for over a

year in a clinical trial. 1500 words per article for $100 and I got one

assignment per month. I felt like I was paying them! If I can figure out

other services to ofer in addition to that then it would possibly be

worthwhile.

Best of luck to you!

L

Re: [ ] SSDI -- Jobs

Hi ,

Good luck! It's the same in Houston. " Citizens With Disabilities " told me

not to lie.

(omit yes, lie no)

I applied for a job which I was overqualified for and was turned down

because I didn't fill out

an application, which was not given to me when I gave them my resume.

EEOC checked and said this was a usual way to get around hiring someone over

60 or

with disabilities, and there was nothing they could do.

Sorry I don't have better news.

Denice

Loewenkamp <loewen1cox (DOT) <mailto:loewen1%40cox.net> net> wrote:

Hi,

Is anyone else job hunting in an attempt to get off SSDI and make a living

wage? I've been consistently job hunting for three years in Washington, DC

and Northern Virginia and have had no luck at all. Instead I have had some

luck getting part-time temp work of various sorts to supplement my paltry

disability check. However, when I can't find a temp job my family has to

chip in because the monthly check is way under the poverty level. I've sent

out hundreds of resumes for fulltime work but to no avail. I send to jobs

thaat really exist from a few websites. Today, Monster.com sent out an

article about how difficult it is to find a job with a disability. They said

that we are a large part of the people in this country living in poverty.

Any ideas? Any comments or experiences? My chronological background is such

that the gap right after I was diagnosed is impossible to completely cover

unless I just plain lie. It's starting to look like a good idea. Also, I'm

61 and though I don't look really old I do look my age which is supposedly

the " new middle age. "

Again, comments please?

L