Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 Lea, Yes, please send away. =o) Write, write and write again. Just so you know, the additions were senators lack, balboni and goodman. Also, bruno was a late addition that not everyone may have gotten. addresses below. Names on the list might be added, taken away, etc. based on feedback gets in Albany. =o) Cheryl Hon. ph Bruno, Senate Majority Leader Room 909 LOB, Albany, NY 12247 Hon. A.L. Balboni Room 803 LOB, Albany, NY 12247 J. Lack, New York Senate Room 413 State Capitol, Albany, NY 12247 Hon. Roy M. Goodman, New York State Senate Room 913 LOB, Albany, NY 12247 <<<Hi Ellen Actually, I 've never started on her list; I find it hard to figure out if she has different people on her list then the list that was originally out. Rather than trying to figure that out, I was wondering if it would be alright if anyone would receive duplicates. thanks to all who responded hugs, lea << Lea, Your post about sending repeat letters to legislators floored me. It never occured to me that anyone would have finished all their letters already. If you have already sent all your letters to the people listed on 's faim page (http://www.faim.org/lymefight.htm)>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2000 Report Share Posted February 12, 2000 Hi Cheryl Thank you so much. It is so helpfull that you wrote this info. My brain is so foggy and I am so sick that I don't know how long it would have taken me to figure this out. My family will try to get more names of friends etc. because I am aware the more the better. thank you hugs, lea << Lea, Yes, please send away. =o) Write, write and write again. Just so you know, the additions were senators lack, balboni and goodman. Also, bruno was a late addition that not everyone may have gotten. addresses below. Names on the list might be added, taken away, etc. based on feedback gets in Albany. =o) Cheryl >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 I dont think Geoff is helping ......if he is offering an herb on a site that is for antibiotic therapy and it is his company(and Im sure Non-profit does not mean no one gets paid there)... And within a few hours I was able to find a chinese herbalist that could make it for less then half of what his price is where is the help here except for Geoff Its not ethical to use another groups (for ones own benefit)site witout asking and when it clearly states that June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 Hello everyone! Geoff Crenshaw here. First - to anyone new to this list who has not been exposed to the recent spat - please disregard this post. It will be of little benefit to you. Like all groups of people, everyone has an opinion and some are more forward and some more brutish than others. --- To the existing family: Wow. What a difference a day makes. For whatever reason, it seems my e-mail provider failed to deliver Digest 1016. I shall count that as a wonderful blessing. Indeed, ignorance may be bliss - at least it keeps the BP in check. FIRST: If you have an issue for which you feel particularly " inflamed, " why on shout it out in public? Please communicate it privately. Bringing issues to the list in this fashion is destructive. Once you start it, the other party is virtually bound to respond in public as well, and many people join the maelstrom. It causes stress to you and to everyone else; And as we all know, stress is unhealthy for us all. SECOND: healingyou.org has had a link up to rheumatic.org since May 9th, 2000 under Corporate Partners. There have been no complaints about said link in all that time. The link was placed without ANY input from Chris or Ethel because we (healingyou.org) felt rheumatic.org would get a better plug and more traffic from it that way. It was justified as follows: Corporate - meaning many people working in concert Partner - someone who shares or helps you achieve your goals The link is NOT a " legal definition of partnership for tax purposes " and rheumatic.org is not " partnered " with healingyou.org under any " legal " definition. There is in fact, rather an extensive treatment and disclaimer about external links under healingyou's privacy policy. THIRD: The link to rheumatic.org has been downgraded from " partners " to a new section, " links. " Whether or not it will reduce or improve the impact of the link is a matter of speculation, but regardless it's done. FOURTH: healingyou.org is a nonprofit and I am deeply involved in it, as you know from reading the about pages, etc. It is there for your benefit, not to be a punching bag -- and neither am I. FIFTH: I have now seen the posts that I missed, having gone through them at egroups. To say they were distressing is rather mild, vitriolic is more like it. My sig line used on this list carries now three links, the first to a nonprofit... healingyou.org, the second to a way even you, yes you, can put a few dollars in your own pocket from the burgeoning travel industry, and the third to the site which I rely on for food and shelter. I do not use the same sig line for all correspondence for a variety of reasons not the least of which is that I would like to make a living, not to be " boycotted " because I am considered too ill to service my clients. That has already happened to me and it cost me dearly. Those of you trying to work know exactly what I mean as suddenly jobs and contracts and consultancies all dry up. SIXTH: I have no more intention of removing links to my sites in my sig line than of asking to remove the links to her pages which generate 15% from Amazon. (Which is 50% more than we make from most travel products, BTW.) As far as I am concerned this is a tough world and it's hard enough to get by without trying to keep your livelihood a secret when you sell something, be it books or cruises. SEVENTH: Product costs. The about page at HYO is very straightforward about costs. HYO is a very small outfit. It cannot order tens of thousands of dollars worth of product at a time and thus does not enjoy the lower wholesale costs of some larger companies. The object of HYO was to help people, not get kicked in the face for the effort. Finally, if you have any more vitriol for me, please -- send it to me. It does not help even one person on this list get better when you vent -- not even you. Regards, Geoff Why do I have hope? Because I am under the blood of the Passover Lamb. EXO 12:7-3 / MAR 14:24 / REV 12:11 http://www.healingyou.org nonprofit Herbals, Homeopathics & Supplements http://www.800-800-cruise.com/index-aff.html Make money from travel! http://www.800-800-cruise.com 100,000+ travel deals in real-time Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 Well spoken Geoff. Personally I don't know what we would have done without your help and input to this list. RA Spes. did it for me. Only because you put forth the time and effort for the rest of us to reap the benefits. Thanks a bunch, Skip Re: rheumatic Digest Number 1017 > Hello everyone! Geoff Crenshaw here. > > First - to anyone new to this list who has not been exposed to the > recent spat - please disregard this post. It will be of little benefit > to you. Like all groups of people, everyone has an opinion and some are > more forward and some more brutish than others. > > --- > > To the existing family: > > Wow. What a difference a day makes. For whatever reason, it seems my > e-mail provider failed to deliver Digest 1016. I shall count that as a > wonderful blessing. Indeed, ignorance may be bliss - at least it keeps > the BP in check. > > FIRST: If you have an issue for which you feel particularly " inflamed, " > why on shout it out in public? Please communicate it privately. Bringing > issues to the list in this fashion is destructive. Once you start it, > the other party is virtually bound to respond in public as well, and > many people join the maelstrom. It causes stress to you and to everyone > else; And as we all know, stress is unhealthy for us all. > > SECOND: healingyou.org has had a link up to rheumatic.org since May 9th, > 2000 under Corporate Partners. There have been no complaints about said > link in all that time. The link was placed without ANY input from Chris > or Ethel because we (healingyou.org) felt rheumatic.org would get a > better plug and more traffic from it that way. It was justified as > follows: > Corporate - meaning many people working in concert > Partner - someone who shares or helps you achieve your goals > > The link is NOT a " legal definition of partnership for tax purposes " and > rheumatic.org is not " partnered " with healingyou.org under any " legal " > definition. There is in fact, rather an extensive treatment and > disclaimer about external links under healingyou's privacy policy. > THIRD: The link to rheumatic.org has been downgraded from " partners " to > a new section, " links. " Whether or not it will reduce or improve the > impact of the link is a matter of speculation, but regardless it's done. > > FOURTH: healingyou.org is a nonprofit and I am deeply involved in it, as > you know from reading the about pages, etc. It is there for your > benefit, not to be a punching bag -- and neither am I. > > FIFTH: I have now seen the posts that I missed, having gone through them > at egroups. To say they were distressing is rather mild, vitriolic is > more like it. My sig line used on this list carries now three links, the > first to a nonprofit... healingyou.org, the second to a way even you, > yes you, can put a few dollars in your own pocket from the burgeoning > travel industry, and the third to the site which I rely on for food and > shelter. I do not use the same sig line for all correspondence for a > variety of reasons not the least of which is that I would like to make a > living, not to be " boycotted " because I am considered too ill to service > my clients. That has already happened to me and it cost me dearly. Those > of you trying to work know exactly what I mean as suddenly jobs and > contracts and consultancies all dry up. > > SIXTH: I have no more intention of removing links to my sites in my sig > line than of asking to remove the links to her pages which > generate 15% from Amazon. (Which is 50% more than we make from most > travel products, BTW.) As far as I am concerned this is a tough world > and it's hard enough to get by without trying to keep your livelihood a > secret when you sell something, be it books or cruises. > > SEVENTH: Product costs. The about page at HYO is very straightforward > about costs. HYO is a very small outfit. It cannot order tens of > thousands of dollars worth of product at a time and thus does not enjoy > the lower wholesale costs of some larger companies. The object of HYO > was to help people, not get kicked in the face for the effort. > > Finally, if you have any more vitriol for me, please -- send it to me. > It does not help even one person on this list get better when you > vent -- not even you. > > > Regards, > Geoff > > Why do I have hope? > Because I am under the blood of the Passover Lamb. > EXO 12:7-3 / MAR 14:24 / REV 12:11 > > http://www.healingyou.org nonprofit Herbals, Homeopathics & Supplements > > http://www.800-800-cruise.com/index-aff.html Make money from travel! > http://www.800-800-cruise.com 100,000+ travel deals in real-time > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 Geoff, Thank you. It needed to be said. Some people just don't know more than one definition of a word. Carol/Piney Re: rheumatic Digest Number 1017 > Hello everyone! Geoff Crenshaw here. > > First - to anyone new to this list who has not been exposed to the > recent spat - please disregard this post. It will be of little benefit > to you. Like all groups of people, everyone has an opinion and some are > more forward and some more brutish than others. > > --- > > To the existing family: > > Wow. What a difference a day makes. For whatever reason, it seems my > e-mail provider failed to deliver Digest 1016. I shall count that as a > wonderful blessing. Indeed, ignorance may be bliss - at least it keeps > the BP in check. > > FIRST: If you have an issue for which you feel particularly " inflamed, " > why on shout it out in public? Please communicate it privately. Bringing > issues to the list in this fashion is destructive. Once you start it, > the other party is virtually bound to respond in public as well, and > many people join the maelstrom. It causes stress to you and to everyone > else; And as we all know, stress is unhealthy for us all. > > SECOND: healingyou.org has had a link up to rheumatic.org since May 9th, > 2000 under Corporate Partners. There have been no complaints about said > link in all that time. The link was placed without ANY input from Chris > or Ethel because we (healingyou.org) felt rheumatic.org would get a > better plug and more traffic from it that way. It was justified as > follows: > Corporate - meaning many people working in concert > Partner - someone who shares or helps you achieve your goals > > The link is NOT a " legal definition of partnership for tax purposes " and > rheumatic.org is not " partnered " with healingyou.org under any " legal " > definition. There is in fact, rather an extensive treatment and > disclaimer about external links under healingyou's privacy policy. > THIRD: The link to rheumatic.org has been downgraded from " partners " to > a new section, " links. " Whether or not it will reduce or improve the > impact of the link is a matter of speculation, but regardless it's done. > > FOURTH: healingyou.org is a nonprofit and I am deeply involved in it, as > you know from reading the about pages, etc. It is there for your > benefit, not to be a punching bag -- and neither am I. > > FIFTH: I have now seen the posts that I missed, having gone through them > at egroups. To say they were distressing is rather mild, vitriolic is > more like it. My sig line used on this list carries now three links, the > first to a nonprofit... healingyou.org, the second to a way even you, > yes you, can put a few dollars in your own pocket from the burgeoning > travel industry, and the third to the site which I rely on for food and > shelter. I do not use the same sig line for all correspondence for a > variety of reasons not the least of which is that I would like to make a > living, not to be " boycotted " because I am considered too ill to service > my clients. That has already happened to me and it cost me dearly. Those > of you trying to work know exactly what I mean as suddenly jobs and > contracts and consultancies all dry up. > > SIXTH: I have no more intention of removing links to my sites in my sig > line than of asking to remove the links to her pages which > generate 15% from Amazon. (Which is 50% more than we make from most > travel products, BTW.) As far as I am concerned this is a tough world > and it's hard enough to get by without trying to keep your livelihood a > secret when you sell something, be it books or cruises. > > SEVENTH: Product costs. The about page at HYO is very straightforward > about costs. HYO is a very small outfit. It cannot order tens of > thousands of dollars worth of product at a time and thus does not enjoy > the lower wholesale costs of some larger companies. The object of HYO > was to help people, not get kicked in the face for the effort. > > Finally, if you have any more vitriol for me, please -- send it to me. > It does not help even one person on this list get better when you > vent -- not even you. > > > Regards, > Geoff > > Why do I have hope? > Because I am under the blood of the Passover Lamb. > EXO 12:7-3 / MAR 14:24 / REV 12:11 > > http://www.healingyou.org nonprofit Herbals, Homeopathics & Supplements > > http://www.800-800-cruise.com/index-aff.html Make money from travel! > http://www.800-800-cruise.com 100,000+ travel deals in real-time > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 Well said Geoff...... Ana in Alaska Re: rheumatic Digest Number 1017 > > > > Hello everyone! Geoff Crenshaw here. > > > > First - to anyone new to this list who has not been exposed to the > > recent spat - please disregard this post. It will be of little benefit > > to you. Like all groups of people, everyone has an opinion and some are > > more forward and some more brutish than others. > > > > --- > > > > To the existing family: > > > > Wow. What a difference a day makes. For whatever reason, it seems my > > e-mail provider failed to deliver Digest 1016. I shall count that as a > > wonderful blessing. Indeed, ignorance may be bliss - at least it keeps > > the BP in check. > > > > FIRST: If you have an issue for which you feel particularly " inflamed, " > > why on shout it out in public? Please communicate it privately. Bringing > > issues to the list in this fashion is destructive. Once you start it, > > the other party is virtually bound to respond in public as well, and > > many people join the maelstrom. It causes stress to you and to everyone > > else; And as we all know, stress is unhealthy for us all. > > > > SECOND: healingyou.org has had a link up to rheumatic.org since May 9th, > > 2000 under Corporate Partners. There have been no complaints about said > > link in all that time. The link was placed without ANY input from Chris > > or Ethel because we (healingyou.org) felt rheumatic.org would get a > > better plug and more traffic from it that way. It was justified as > > follows: > > Corporate - meaning many people working in concert > > Partner - someone who shares or helps you achieve your goals > > > > The link is NOT a " legal definition of partnership for tax purposes " and > > rheumatic.org is not " partnered " with healingyou.org under any " legal " > > definition. There is in fact, rather an extensive treatment and > > disclaimer about external links under healingyou's privacy policy. > > THIRD: The link to rheumatic.org has been downgraded from " partners " to > > a new section, " links. " Whether or not it will reduce or improve the > > impact of the link is a matter of speculation, but regardless it's done. > > > > FOURTH: healingyou.org is a nonprofit and I am deeply involved in it, as > > you know from reading the about pages, etc. It is there for your > > benefit, not to be a punching bag -- and neither am I. > > > > FIFTH: I have now seen the posts that I missed, having gone through them > > at egroups. To say they were distressing is rather mild, vitriolic is > > more like it. My sig line used on this list carries now three links, the > > first to a nonprofit... healingyou.org, the second to a way even you, > > yes you, can put a few dollars in your own pocket from the burgeoning > > travel industry, and the third to the site which I rely on for food and > > shelter. I do not use the same sig line for all correspondence for a > > variety of reasons not the least of which is that I would like to make a > > living, not to be " boycotted " because I am considered too ill to service > > my clients. That has already happened to me and it cost me dearly. Those > > of you trying to work know exactly what I mean as suddenly jobs and > > contracts and consultancies all dry up. > > > > SIXTH: I have no more intention of removing links to my sites in my sig > > line than of asking to remove the links to her pages which > > generate 15% from Amazon. (Which is 50% more than we make from most > > travel products, BTW.) As far as I am concerned this is a tough world > > and it's hard enough to get by without trying to keep your livelihood a > > secret when you sell something, be it books or cruises. > > > > SEVENTH: Product costs. The about page at HYO is very straightforward > > about costs. HYO is a very small outfit. It cannot order tens of > > thousands of dollars worth of product at a time and thus does not enjoy > > the lower wholesale costs of some larger companies. The object of HYO > > was to help people, not get kicked in the face for the effort. > > > > Finally, if you have any more vitriol for me, please -- send it to me. > > It does not help even one person on this list get better when you > > vent -- not even you. > > > > > > Regards, > > Geoff > > > > Why do I have hope? > > Because I am under the blood of the Passover Lamb. > > EXO 12:7-3 / MAR 14:24 / REV 12:11 > > > > http://www.healingyou.org nonprofit Herbals, Homeopathics & Supplements > > > > http://www.800-800-cruise.com/index-aff.html Make money from travel! > > http://www.800-800-cruise.com 100,000+ travel deals in real-time > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2000 Report Share Posted October 20, 2000 Ill make this short because Im not as winded and full of myself as you are Geoff ( one email from me as opposed to four from you) For your information I used neither methotrexate or prednisone ... and I do know what a herx is and have had one at different degrees for about six months and have used many useful alternatives with MiNOCIN . Where do you get off talking to me that way and what are your credentials offering medical information the way you do? .............Are You a doctor? For your information I have a few degrees one of them is in psychology (hence my screen name) along with one in horticulture, and art. I made a simple point ......And my point was honest and true A few months ago I felt concerned about a price for some simple herbs ( because I am a horticulturist)and I explored it and found that my concern was valid. I asked a chinese herbalist that I know in LA and trust and I emailed the info to this group so that they could get it cheaper ... more than 50% cheaper then you offered it.. I had no idea it was you You know Geoff if you really have good intentions why dont you get in touch with him and see for yourself instead of attacking me.... I simply will say that the herbalist that makes the formula that I found and that some other members are using just happens to be in La California(I believe you are close arent you) I have heard nothing to the effect that it isnt as good And I will again say what you did was not ethical ... and I have a right to say that You used and organizations name in a certain way without their permission Since all of this you have changed it ... Good for you Now instead of attacking me why dont you take responsibility for it and get on with it I hope this will be the end of this because I only have the best of intentions for this group And I dont need this and noone else does either June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2000 Report Share Posted October 20, 2000 Hello all. I tried to get this " issue " taken private. I was not successful. I have answered June's (PSY333CHE@...) post privately but there are some issues that should be cleared up publicly. Accusations do that. After this, I am done. Yell into the wind if you wish. I shall respond no more on this subject. June wrote: > I dont think Geoff is helping ......if he is offering an herb on a > site that is for antibiotic therapy Penetration of the antibiotics into joint areas is impeded by swelling of tissues and a worsening of symptoms know as flares. Additionally, when successful the antibiotic therapy itself sometimes results in flares know as Herxheimer reactions. Flares are known to be present and ongoing at a variety of other times as well. Using an herb to control pain and return functionality is preferrable to such cytotoxic drugs as Methotrexate and steroids such as Prednisone, although there are times when such drugs may be the only course available due to a number of circumstances including availability, cost, severity, etc. These alternative are well-used also in conjunction with the antibiotic protocol for the same reasons. There are numerous herbs that people have used and discussed on this list for that purpose, but only one that seems to have such widespread and overwhelming success, RA Spes. > and it is his company(and Im sure Non-profit does > not mean no one gets paid there)... Non-profit should NOT mean no one gets paid as that is illegal. Where we are they call that slavery. Unfortunately in this case it does mean that and has since HYO was started in May. We however, call it " donated labor. " We hope to be able to pay at least one person part time before all of our free labor dries up, but such is not the case today. How much longer fuding will continue is always a question for any nonprofit dependant upon the goodwill of others. > And within a few hours I was able to find a chinese herbalist that > could make it for less then half of what his price is A bit of history is called for here... (dates approximate) FEB 1998: Ray Barrett first presents RA Spes to the list. It was so expensive that, although it sounded promising no one would try it. APR 1998: I joined the list in desparate straits. The details are unimportant here. I missed out on the posts about RAS and it was not discussed while I was on the list. Had it been I would not have tried it either. JUL 1998: My Homeopath in Las Vegas (one of the AP doc's) starts me on RA Spes during a visit. The herb works so well that immediately upon my return I inquire of the list's herbalists if they can reproduce it, hoping to reduce my costs; It's so expensive (it cost me $60/bottle) I don't think I'll be able to continue it. No luck. Turns out we are 'herbal amateurs,' well-meaning but not well tutored. Shift to plan B - a substantial discount is arranged for RA Spes at roughly $44/btl if memory serves me, vs $60/btl. Still high but not nearly as bad. FEB 2000: We suffer a price increase. Much behind-the scenes wrangling is going on to maintain our discount and do something about shipping costs. Alternative measures, considered a year prior, once again come under discussion. APR 2000: Due to irreconcileable differences, our discount dries up. MAY 2000: I join with some other folks to form a nonprofit, HealingYou.org, with the express purpose of making remedies that are known to work available for the lowest price we can and stay solvent. Initial donations include cash (used to buy existing stocks from our previous discount source), manpower, programming, legal services, etc. OCT 2000: I am able to rejoin the discussions at rheumatic.org and finally get around to posting a condition update. This update has been requested of me on average every 4 months since starting RA Spes. I have only posted a couple since July of 98 and am well past due. This time I am able by virtues of personal experience to relate not only " progress " but also a very rough cost-benefit analysis and an opinion as to how we are best aided by this remedy. The following day I get kicked in the face, multiple times, by a small cybermob. Welcome back. Yeah. Thanks. > Its not ethical to use another groups (for ones own benefit)site > witout asking and when it clearly states that > June I agree - it " is " unethical and I don't do it. But then, I don't count rendering a solicited update of my progress as using the site for my own benefit. However, the site does exist for our _mutual_ benefit of support and sharing of information about the AP, etc. I do use it in that fashion and have since joining it back in early 98. My sig line clearly carries one notation specifically and exclusively for my benefit - the very last one. As you go above that, the next line is " mutually " beneficial and above that any personal gain disappears. Common business sense dictates I have these in the wrong order and lines 1-6 should not be there at all. Perhaps. But there are things that are more important than profit. Let's take a look at items past my name, so-called " sig lines " : Line 1: what value is it if you gain all the world and lose your soul? Line 2: ditto Line 3: ditto / references Line 4: a link where you may order or buy healing remedies cheap from a nonprofit company Line 6: a link to a way *you* can make some money yourself without having to learn any new skills or go out and " sell " anything Line 7: a link to my " for profit " site that specifically benefits ME. I am told anything past Line 3 above usually goes unread, so I put there what I deem to be most important. I continue that routine, most important to least important all the way to the bottom. Do I need to make a living? Yes. Can I get insurance? No. Can I get Social Security benefits? No - I waited too long and am inelligible. Am I worried about from whence my next meal will come? No. The God of the universe says He will ensure my sustinence just as certainly as He does the birds of the air. Your belief or disbelief in Him lessens that not one whit, anymore than your belief or disbelief in me lessens the fact that I am here. He is here, even if you are blind. I am done. Regards, Geoff Why do I have hope? Because I am under the blood of the Passover Lamb. EXO 12:7-3 / MAR 14:24 / REV 12:11 http://www.healingyou.org nonprofit Herbals, Homeopathics & Supplements http://www.800-800-cruise.com 100,000+ travel deals in real-time http://www.800-800-cruise.com/index-aff.html Make money from travel! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2000 Report Share Posted October 20, 2000 In a message dated 10/20/2000 11:47:44 AM Pacific Daylight Time, geoff@... writes: << I shall respond no more on this subject. >> Good cause I worry about all the deaths you may cause by offering a treatment here which is not the one way I know we have saved lives. PS I don't believe you I think you will keep on attempting to sell your snake oil to desperately ill people. I however will keep a promise never to mention RASpecs again on this list even if it means I choose unsubscribe and quit offering it as a place for the ill to find results. I am sure those of us who resent selling an untested treatment would be more than willing to build another site with the AP information sans the sales pitch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 Boy, oh Boy, All this negativity is really beginning to affect my health....I'm truly considering unsuscribing because of it....Can't we just let it be? Ana from Alaska Re: rheumatic Digest Number 1017 > In a message dated 10/20/2000 11:47:44 AM Pacific Daylight Time, > geoff@... writes: > > << I shall respond no more > on this subject. >> > > Good cause I worry about all the deaths you may cause by offering a treatment > here which is not the one way I know we have saved lives. PS I don't believe > you I think you will keep on attempting to sell your snake oil to desperately > ill people. > I however will keep a promise never to mention RASpecs again on this list > even if it means I choose unsubscribe and quit offering it as a place for the > ill to find results. I am sure those of us who resent selling an untested > treatment would be more than willing to build another site with the AP > information sans the sales pitch. > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 Ana- DON'T unsubscribe!! Just ignore the neg. It'll go away. But we all really, really need each other. I truly think this group is the best thing I've found. Having this disease makes us so isolated and alone - the old saying of how people don't know how ya feel until they walk a mile in your moccasins - well, we have all walked that mile, and even our own families cannot understand what we go thru. So stick around - we need you!! Lyn ========== >Boy, oh Boy, >All this negativity is really beginning to affect my health....I'm truly >considering unsuscribing because of it....Can't we just let it be? >Ana from Alaska > > Re: rheumatic Digest Number 1017 > > > > In a message dated 10/20/2000 11:47:44 AM Pacific Daylight Time, > > geoff@... writes: > > > > << I shall respond no more > > on this subject. >> > > > > Good cause I worry about all the deaths you may cause by offering a >treatment > > here which is not the one way I know we have saved lives. PS I don't >believe > > you I think you will keep on attempting to sell your snake oil to >desperately > > ill people. > > I however will keep a promise never to mention RASpecs again on this >list > > even if it means I choose unsubscribe and quit offering it as a place >for >the > > ill to find results. I am sure those of us who resent selling an >untested > > treatment would be more than willing to build another site with the AP > > information sans the sales pitch. > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > > > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 Look, haven't we all had enough of this????? Keep it private!!!!!! Re: rheumatic Digest Number 1017 > In a message dated 10/20/2000 11:47:44 AM Pacific Daylight Time, > geoff@... writes: > > << I shall respond no more > on this subject. >> > > Good cause I worry about all the deaths you may cause by offering a treatment > here which is not the one way I know we have saved lives. PS I don't believe > you I think you will keep on attempting to sell your snake oil to desperately > ill people. > I however will keep a promise never to mention RASpecs again on this list > even if it means I choose unsubscribe and quit offering it as a place for the > ill to find results. I am sure those of us who resent selling an untested > treatment would be more than willing to build another site with the AP > information sans the sales pitch. > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 'oxyplus ' wrote: ==== - - OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other ....' > Take a look to the attachment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2001 Report Share Posted July 16, 2001 Welcome aboard Theresa! Theresa is one of my co-horts in KY!!!! You will love this E-group!!! and ........you just know we love your gift for gab so keep it up! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2001 Report Share Posted July 17, 2001 faces1999, Donna! You Know I will! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Greetings to all, There has been discussion about preservatives and for those of you looking for a 'natural' preservative Grapefruit Seed Extract is the one. It is totally safe and is used at 1% of the total. The 'Paraben' presevatives (such as Germall) are known carcinogens). Rosemary extract is a powerful antioxidant and only .02% is needed. It's used in conjunction with GSE for the best effect. >>I have a niece, whom my dog > >scratch on her face and now it looks as they she may get a scar from it. Just vit E oil sqeezed out from a capsule will do it. It needs applying several times a day. she wants to sell all her oils. I was > just wondering what you think. Do they have a shelf life? Yes, they do have a shelf life as oils oxidise but this life can be extended by incuding .02% rosemary extract (not eo) and/or 5-10% wheatgerm oil (very good for the skin as well as being an antioxidant) Blessings, Ravenna Herb_Power The price of knowledge is the responsibility to share it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Sorry to burst your bubble, Ravenna, but if you search the archives, you'll find several references to clinical studies that showed that GSE is NOT an effective preservative UNLESS it has been adulterated with synthetic antimicrobials such as triclosan and benzalkonium chloride, to name two. The paraben preservatives are NOT " known carcinogens " to the best of my knowledge - if you have any double-blind clinical studies to the contrary or a bulletin from the CIR that I've missed, please post the abstracts. Jules in Vancouver > Greetings to all, > > There has been discussion about preservatives and for those of you looking > for a 'natural' preservative Grapefruit Seed Extract is the one. It is > totally safe and is used at 1% of the total. The 'Paraben' presevatives > (such as Germall) are known carcinogens). Rosemary extract is a powerful > antioxidant and only .02% is needed. It's used in conjunction with GSE for > the best effect. > > >>I have a niece, whom my dog > > >scratch on her face and now it looks as they she may get a scar from it. > > Just vit E oil sqeezed out from a capsule will do it. It needs applying > several times a day. > > she wants to sell all her oils. I was > > just wondering what you think. Do they have a shelf life? > > Yes, they do have a shelf life as oils oxidise but this life can be extended > by incuding .02% rosemary extract (not eo) and/or 5-10% wheatgerm oil (very > good for the skin as well as being an antioxidant) > > Blessings, > > Ravenna > Herb_Power > The price of knowledge is > the responsibility to share it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 I bought them from the site I listed in my email. You had to mix 1 cup of room temp water (or diet fruit juice) with 1 -2 Tbsp Bentonite, 1/2 to 1 Tbsp Capryllic Acid (oil) 2 capsules of probiotics and 1 - 2 tsp psyllium. It had no taste & a grainy texture. I was also taking Cats Claw all month. The kit cost around $80 and I finished it in a month with psyllium left over. I think it really helped me but I ma still on my own plan to make sure. Now I am taking Grapefruit seed Extract, Diflucan for a month, prescription vaginal cream, hot water with lemon & as much garlic as I can get in. I figure I will rotate supplements for another couple of months to make sure. The diet is no problem for me because I was already eating low carb to lose weight. You may want to check out some lowcarb clubs for support. My favorite is www.trulylowcarb.com I eat chocolate!! Russel Stovers sugar free nut toffee sticks (in a box) or Twist chocolate spread!! You can get Twist at Carbsmart.com angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2003 Report Share Posted August 1, 2003 Hi All, My fiance, with severe Hemophilia A since birth, and acquired Hep C and HIV since 1984 and I have begun an aggressive treatment protocol - at present to attack the Hep C virus, which actively had his viral load doubling every six months of late (doubling for 2 years, stable numbers before that) We began with: April 25th, 2003 1- labs - complete liver, complete metabolic panel, HIV and HCV loads 2 - a liver/gallbladder flush: 32 oz fresh juiced organic apples and lemons for three days, eating regular meals, epsom salt with distilled water laxative, then grapefruit juice and olive oil at bedtime on night three (full details and other healing body recipes available at www.curezone.org) 3 - holding our hand held ProGen 4050 wave packs pre-programmed zapping (Rifing) for parasites, roundworms, and candida twice through while waiting for our adavanced Rife unit to arrive. Rifing, briefly, is sending controlled, pulsed grounded frequency through the body, matching the mortal oscillating rate of such harmful energies we host such as parasites, candida, mold, fungus....It is an experimental therapy in its pioneering stages. That is to say, many people looking for an alternative or adjunct to traditional, invasive or western experimental therapies (in our case Hep C) have researched and found Rife technology. It is suppressed therapy - for 70 years. We chose to try it. MRIs and ultrsounds are this therapy. What could be as bad as Interferon side effects, or mixed success rates? From our research, not much. Especially given we are working with a co-infection here. We were encouraged by many people in the same boat as us. Rifing for the parasites and candida convinced us. 4 - four more liver/gallbladder flushes throughout this time had significant results in his flushes, moving an estimated 450-550 pea sized, emerald green stones just on the fifth flush alone. These seemed to be from the liver (we could tell from the color.) He noticed a huge pressure release from his liver. The pressure has not returned. We each drink distilled water, take daily liquid Complete - a vitamin/mineral supplement. I do nightly massage (with essential oils for de-toxing) and Reiki (hands on energy medicine) work with him to accelerate healing and de-toxing. 5 -July 12, 2003 full labs done again 6- July 12th - we (he) began Rifing universal Hep C program pre-programmed frequencies. We will run labs again August 12th. To see what four weeks of Hep C rifing does for labs. We will also add organic herbal anti-oxidants, de-toxers, and re-building agents to our regime on that date too. Documented results so far: a 75% drop in his Hep C viral load! A 75% viral load drop in a 7 week period is amazing. Side-effects, otherwise known has die-off, can sometimes mimick the thing you are clearing. So he has had some flu like symptoms, fatigue etc. His general color, mood, emotional clarity/strength have definetely improved. Both of us bi-passed allergy season symptoms. Two years ago we did a liver flush and had full labs done before and after. There was a noticeable (albeit slight) improvement in liver function/numbers. Just as his liver function and overall health is being improved, and his body is being healed - another 'healing' side effect is rapid, accelerated movement of time released pain and HIV meds - before they are active in his system. We have begun to separate the time between Rifing and meds. Just wanted to give some support to anyone dealing with big, or multiple healing crisis ...take responsibility, educate yourself, then take action. Any Hep C people wanting info or updates, or to share Hep C protocols - please email. We'll keep you posted as to next lab results. We have been documenting and journalling all of this journey as well. Thanks all, best health! Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2005 Report Share Posted January 24, 2005 In a message dated 1/24/2005 2:39:08 PM Eastern Standard Time, writes: 3) Ask " What are my options? " I'm in Georgia. Thanks! Blessings, Holly Hi Holly, I'm in Ga. also. (Decatur) Where did you go to sitting clinic? I go to Emory, thru the MDA clinic and they are great there. They won't stop working with you until it's the way you want and need. Write me off list if you want and I'll give you the email add. of one of (THE BEST) p.t.'s there and maybe she can help you out. Peace and love to all, Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Hey Group. . . I hope that the 'Newbies' igged the posts that Marcos (Stanford U & Paris) sent and Zavie & Tracey answered; I certainly did. Brother & Sister Survivors have to know that the FISH Test examines 200 cells and the PCR Test examines 1,000; 10,000; 100,000 and 1,000,000 cells for Philly Chromosomes at diagnosis/BMT (we have 3Trillion cells in our body). All we really have to know is that once we reach '0'/Negative on the FISH Test; they are virtually obsolete for us and we begin the PCR Test. Yes, Tracey~~GF he's comparing apples to oranges, etc. THANX for posting, ; I am updating my prayers for you Sweetie. Take care, ALL are in my prayers. . .HAVE A FANTASTIC WEEKEND ! ! ! " WE ARE SURVIVORS ~ ~ WE AIN'T FINISHED YET ! ! ! " K " " I AIN'T FINISHED YET " !!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 For the occasion I gave myself an extra 30mn in my h/week rule. We have a molecular biologist working at my lab who used to do PCR analysis in her previous lab, and I asked her to comment on our discussion. Result, well, I dunno, maybe yes maybe no, depends. Is it apples versus oranges or something like counting apples versus weighting them and dividing by the average apple weight ? I may need a few weeks at 2h/week to figure that out And I am not a biologist, my field is statistics and data modeling, although I work mainly with physiological data. One last point before hitting the road for diving, the quality of the observation may change with the observer, not the object itself. You can count or weight apples, they still are apples, and you can estimate their number with both methods. That it may difficult to do is another matter. BMB cytogenetics, FISH and PCR are all 3 measuring the number of ph+ cells. I had at dx about 100% (it doesn't matter if it's 99.999% or 95%) of ph+cells, both in my blood and bone marrow, whatever the method of measurement. From the 20/20 ph+ of the first BMB cytogenetics it's possible to compute the probability of having more than 95% ph+ cells, and it is unlikely that I had less than 95%. The 100% ph+ with the FISH confirms that. I am not trying to compare FISH with PCR, but comparing how much ph+ cell are in my body now (what the PCR is supposed to predict), to how much I had at dx. The question is : does the PCR gives an estimation of the fraction of ph+ cells in my blood ? I read in various places that it does, but how good an estimation I don't know. Precision doesn't necessarily implies accuracy. Everybody have a good weekend, Marcos. On 6/7/07, IAintFinishedYet <kttweety@...> wrote: > > Hey Group. . . > I hope that the 'Newbies' igged the posts that Marcos (Stanford U & Paris) > sent and Zavie & Tracey answered; I certainly did. Brother & Sister > Survivors have to know that the FISH Test examines 200 cells and the PCR > Test examines 1,000; 10,000; 100,000 and 1,000,000 cells for Philly > Chromosomes at diagnosis/BMT (we have 3Trillion cells in our body). All we > really have to know is that once we reach '0'/Negative on the FISH Test; > they are virtually obsolete for us and we begin the PCR Test. Yes, > Tracey~~GF he's comparing apples to oranges, etc. > THANX for posting, ; I am updating my prayers for you Sweetie. > > Take care, ALL are in my prayers. . .HAVE A FANTASTIC WEEKEND ! ! ! > " WE ARE SURVIVORS ~ ~ WE AIN'T FINISHED YET ! ! ! > > " K " > " I AIN'T FINISHED YET " !!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 > > I am not trying to compare FISH with PCR, but comparing how much ph+ cell > are in my body now (what the PCR is supposed to predict), to how much I had > at dx. ****************************************** Hi Marcos, The problem with your theory is that if you take your cytogenetic and FISH tests from diagnosis to assume that 100% of your cells are leukemic, you'd obviously be making a mistake. With 3 trillion cells in your body, you can be sure that you had SOME normal cells in there, which is contrary to what the cytogenetics and FISH test would have you believe. This is why I say that you can't compare them with the PCR test. Happy diving, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 I am saying more than 95%. I don't think that's a wrong assumption. Marcos. On 6/7/07, Tracey <traceyincanada@...> wrote: > > > > > > I am not trying to compare FISH with PCR, but comparing how much > ph+ cell > > are in my body now (what the PCR is supposed to predict), to how > much I had > > at dx. > > ****************************************** > > Hi Marcos, > > The problem with your theory is that if you take your cytogenetic and > FISH tests from diagnosis to assume that 100% of your cells are > leukemic, you'd obviously be making a mistake. > > With 3 trillion cells in your body, you can be sure that you had SOME > normal cells in there, which is contrary to what the cytogenetics and > FISH test would have you believe. This is why I say that you can't > compare them with the PCR test. > > Happy diving, > Tracey > > > -- Marcos Perreau Guimaraes Suppes Brain Lab Ventura Hall - CSLI Stanford University 220 Panama street Stanford CA 94305-4101 650 329 9920 x 305 650 630 5015 (cell) marcospg@... montereyunderwater@... www.stanford.edu/~marcospg/ Quote Link to comment Share on other sites More sharing options...
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