Thyroid problems

[Guest guest]

and keep me filled in on your treatement! Iam so excited for you, I am on cytomel t3, levoxyl, (T4) as I tried armour for over a year and it did not owrk at all for me, Although is it promising to many women! But not everyone is the same, and it can be a test of treaments of trial and error before you fel your best. I also had my hormones tested by a reputable saliva company. (as the thyroid being out of whack can throw many hormoes out of sync and implants are very estrogenic) I now balance it with a little natural progesterone every month. I feel so much better since going on this new therapy!

Once you have your metabolism up to parr, your body can detox more effectily and also have the stregth to repair! So, I believe your health has a better chance, once you get that thyroid gland, the master galnd working more efffeciently with proper treamtent. Keep me posted gal!

>From: "goingtolunch" <goingtolunch@...> >Reply- > >Subject: THYROID PROBLEMS >Date: Thu, 11 Nov 2004 02:11:36 -0000 > > > >Dear - > >My comments were not directed at you or anyone in particular. I was >just sharing the information I recently read in several articles and >books with everyone. I was thankful that had posted some links >to help me find a good endocrinologist -- a rare find it seems (and I >have been seeing these "specialists" for at least 25 yrs (once my >ob/gyn stopped trying to handle it after the first 10+ yrs of >treatment for my underactive thyroid and referred me). For anyone >who has been told they have had a temporary problem -- I sincerely >hope yours is truly temporary and that you will do everything in your >power to prevent a recurrance -- it is not a problem you want to have >hanging around your neck. It starts out just as an annoyance -- >becomes a lot more than that with time. The relationship between >chronic thyroid problems, other gynecological problems and implants >needs to be studied. > >Regards, > > > > > > >

[Guest guest]

Hi Everyone,

Last week I had extra blood work done to measure my lithium level which I also

take. My psychiatrist called today after receiving the lab results and said I

needed to see an endocrinologist right away because my thyroid numbers were off

the chart. Well, after I got the appointment for next week, of course I started

looking up thyroid on the web. Big mistake. About a jillion things can go

wrong with it from cancer to medication interaction to who knows? I walked away

from the internet and am putting this out of my mind until I get some kind of

answers that make sense. It was just a shock after being in such good shape

with Sprycel for less than a year. It does answer why I have to take naps and

I'm more tired than I used to be. I guess one reason I'm writing this is not

just for a little support which comes just by writing it and knowing there are

people there who care. But, also perhaps it would be good to ask your onc if

you should have your thyroid checked.

L

[Guest guest]

Good luck !

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[ ] Thyroid problems

Hi Everyone,

Last week I had extra blood work done to measure my lithium level which I also

take. My psychiatrist called today after receiving the lab results and said I

needed to see an endocrinologist right away because my thyroid numbers were off

the chart. Well, after I got the appointment for next week, of course I started

looking up thyroid on the web. Big mistake. About a jillion things can go wrong

with it from cancer to medication interaction to who knows? I walked away from

the internet and am putting this out of my mind until I get some kind of answers

that make sense. It was just a shock after being in such good shape with Sprycel

for less than a year. It does answer why I have to take naps and I'm more tired

than I used to be. I guess one reason I'm writing this is not just for a little

support which comes just by writing it and knowing there are people there who

care. But, also perhaps it would be good to ask your onc if you should have your

thyroid checked.

L

[Guest guest]

,

Sorry to hear about your thryoid! Keep us posted. I have hypothyroid and am

on medication for it. My dr. acted like it was no big deal though. They found

the thyroid problem through the blood work when I was diagnosed with CML! So, I

have a double whammy! Is your hyper or hypo thyroid?

B

loewen1 <loewen1@...> wrote:

Hi Everyone,

Last week I had extra blood work done to measure my lithium level which I also

take. My psychiatrist called today after receiving the lab results and said I

needed to see an endocrinologist right away because my thyroid numbers were off

the chart. Well, after I got the appointment for next week, of course I started

looking up thyroid on the web. Big mistake. About a jillion things can go wrong

with it from cancer to medication interaction to who knows? I walked away from

the internet and am putting this out of my mind until I get some kind of answers

that make sense. It was just a shock after being in such good shape with Sprycel

for less than a year. It does answer why I have to take naps and I'm more tired

than I used to be. I guess one reason I'm writing this is not just for a little

support which comes just by writing it and knowing there are people there who

care. But, also perhaps it would be good to ask your onc if you should have your

thyroid checked.

L

[Guest guest]

Hi ,

Thanks for writing. I have no idea. I see my onc tomorrow but still may not

know anything until next week when I see the endocrinologist.Glad yours is

handled with medication. Any side effects?

Re: [ ] Thyroid problems

,

Sorry to hear about your thryoid! Keep us posted. I have hypothyroid and am on

medication for it. My dr. acted like it was no big deal though. They found the

thyroid problem through the blood work when I was diagnosed with CML! So, I have

a double whammy! Is your hyper or hypo thyroid?

B

loewen1 <loewen1@...> wrote:

Hi Everyone,

Last week I had extra blood work done to measure my lithium level which I also

take. My psychiatrist called today after receiving the lab results and said I

needed to see an endocrinologist right away because my thyroid numbers were off

the chart. Well, after I got the appointment for next week, of course I started

looking up thyroid on the web. Big mistake. About a jillion things can go wrong

with it from cancer to medication interaction to who knows? I walked away from

the internet and am putting this out of my mind until I get some kind of answers

that make sense. It was just a shock after being in such good shape with Sprycel

for less than a year. It does answer why I have to take naps and I'm more tired

than I used to be. I guess one reason I'm writing this is not just for a little

support which comes just by writing it and knowing there are people there who

care. But, also perhaps it would be good to ask your onc if you should have your

thyroid checked.

L

[Guest guest]

Welcome Cathie, I'm thrilled to see you found your way to the group! . . . You've found some of the most wonderful ladies in the world! . . . We understand how mysterious this mess is. - with symptoms out the gazoo - with few answers - at least from the medical field. Ladies . . . I met Cathie years ago when we went to D.C. . . 1994? At that time, I think she was about where Lynda was years ago . . . Thankfully Lynda has improved dramatically. . . Let's pray Cathie can too. . . I think Lynda was in D.C. at that time too . . . but we never met Lynda. Cathie has a very, very difficult time . . . Hopefully we can help her can find solutions for some of her many health issues! . . . She's been through hell and back - As you can tell, she's a survivor! Hugs and prayers, Rogene

[Guest guest]

Hi ,

I had a suspicious FNA of an enlarged right lobe last month and it was recommended I have it removed. The lobe was over 3.5cm It was a tough decision for me, as I don't do well with surgery or medications. But the cancer suspicion was serious enough that I felt I had very little choice. I had the right lobe removed a few weeks ago. I did fairly well with the surgery but did need a betablocker during recovery. My levels will be tested again in June. Besides Synthroid, there is Armour thyroid, and a few others you can try.

I have a friend who did have thyroid cancer, and she has undergone the radioactive iodine treatment. Her tsh levels are at 87 right now, and it will be another week before she can start medication. She is in her 30s and physically very exhausted going through this.

The reason I had my lobe removed was because it contained a cold nodule, and that increases the cancer risk. So the first question I would ask is whether there is a cold nodule, and if not, would it be possible to monitor the thyroid, and perhaps have another FNA in 6 months. Very rarely do people die from thyroid cancer. The cure rate is typically around 90%. The death rate is higher in older males.

By the way, I have neurological problems, and they are much worse after surgery. I hope this helps,

hugs,Beth

>> Hi there:> > I am a friend of Rogene's and am new to the group. I am having a> little trouble figuring out how to get around here, but hope to get> that worked out soon. Please bear with me.> > I have autoimmune issues, vasculitis and neuropathy and have been> unable to work now since the early '90's. I have severe neurological pain.> > I am having trouble with my thyroid. In addition to a 17 year history> of leaking and ruptured silicone implants (removed in '92) I also had> nasal radium treatments as a child. Some of these people are> developing cancers of the head, neck, brain and thyroid as older> adults. Boy, I got used as a guinea pig at both ends of my life...> > Anyway, a CT scan, various ultrasounds, a radioactive scan and 2 fine> needle aspirations have been unable to determine whether nodules> present in both sides of my thyroid gland are cancerous or not. This> means the whole gland has to come out.> > I am really concerned, because I am on Prednisone, cannot get off of> it, and it doesn't take much to get a nasty flareup of my autoimmune> problems going big time. I don't know how in the world I will be able> to adjust Prednisone AND Synthroid to this situation. Obviously, I am> not the most desirable candidate for surgery. I had aneurysm repair> surgery several years back and the flareup from that was really rough. > > Is there anyone here who has gone through this surgery and who is on> steroids or immunosuppressants? I would appreciate any input.> > Thanks a lot. I look forward to reading more here and getting to know> people.> > Cathie>

[Guest guest]

Rogene,

Was it 94? I was there so many times I cannot remember. The FDA

testimony on silicone was in 91 and 92. Then the saline hearings

were after that. If you were there in 92 you would have seen me go

up and hand the congresswoman (who was testifying that she could not

be a whole woman because she had a mastectomy and could not get a

silicone breast implant) my prosthesis and tell her I was a whole

woman and I wear a prosthesis. The women pulled me out of the room,

laughing hysterically, and said they did not know why I did not get

thrown out. Threw that congresswoman for a loop.

Cathie,

What are you doing to detox? What meds are you on? Was your entire

scar capsule removed?

Lynda

At 11:36 PM 5/16/2007, you wrote:

>Welcome Cathie,

>

>I'm thrilled to see you found your way to the group! . . . You've

>found some of the most wonderful ladies in the world! . . . We

>understand how mysterious this mess is. - with symptoms out the

>gazoo - with few answers - at least from the medical field.

>

>Ladies . . . I met Cathie years ago when we went to D.C. . . 1994?

>At that time, I think she was about where Lynda was years ago . . .

>Thankfully Lynda has improved dramatically. . . Let's pray Cathie

>can too. . . I think Lynda was in D.C. at that time too . . . but we

>never met Lynda.

>

>Cathie has a very, very difficult time . . . Hopefully we can help

>her can find solutions for some of her many health issues! . . .

>She's been through hell and back - As you can tell, she's a survivor!

>

>Hugs and prayers,

>

>Rogene

>

>

>

>

[Guest guest]

Cathie, I think it was '94 . . . We didn't testify . . . There was an outdoor rally - former FDA head, Kessler spoke on the dangers of breast implants . . . along with some other speakers. I still see videos segments taken at the rally from time to time. Some of visited congressmen's offices . . . That's where I saw some of the smoothest talkers I've ever seen. . . They could talk up a storm without saying anything! . . . Rogene Lynda <coss@...> wrote: Rogene,Was it 94? I was there so many times I cannot remember. The FDA testimony on silicone was in 91 and 92. Then the saline hearings were after that. If you were there in 92 you would have seen me go up and hand the congresswoman (who was testifying that she could not be a whole woman because she had a mastectomy and could not get a silicone breast implant) my prosthesis and tell her I was a whole woman and I wear a prosthesis. The women pulled me out of the room, laughing hysterically, and said they did not know why I did not get thrown out. Threw that congresswoman for a loop.Cathie,What are you doing to detox? What meds are you on? Was your entire scar capsule removed?LyndaAt 11:36 PM 5/16/2007, you wrote:>Welcome Cathie,>>I'm thrilled to see you found your way to the group! .

.. . You've >found some of the most wonderful ladies in the world! . . . We >understand how mysterious this mess is. - with symptoms out the >gazoo - with few answers - at least from the medical field.>>Ladies . . . I met Cathie years ago when we went to D.C. . . 1994? >At that time, I think she was about where Lynda was years ago . . . >Thankfully Lynda has improved dramatically. . . Let's pray Cathie >can too. . . I think Lynda was in D.C. at that time too . . . but we >never met Lynda.>>Cathie has a very, very difficult time . . . Hopefully we can help >her can find solutions for some of her many health issues! . . . >She's been through hell and back - As you can tell, she's a survivor!>>Hugs and prayers,>>Rogene>>>>

[Guest guest]

Oh, yes, I remember that. I was sick for 6 weeks from the heat and humidity.

I had vertigo walking through the Building.

Did you meet Ralph Nader?

Lynda

At 10:45 AM 5/17/2007, you wrote:

>Cathie,

>

>I think it was '94 . . . We didn't testify . . .

>There was an outdoor rally - former FDA head,

>Kessler spoke on the dangers of breast implants

>. . . along with some other speakers. I still

>see videos segments taken at the rally from time to time.

>

>Some of visited congressmen's offices . . .

>That's where I saw some of the smoothest talkers

>I've ever seen. . . They could talk up a storm without saying anything! . . .

>

>Rogene

>

>

>

>Lynda <coss@...> wrote:

>Rogene,

>

>Was it 94? I was there so many times I cannot remember. The FDA

>testimony on silicone was in 91 and 92. Then the saline hearings

>were after that. If you were there in 92 you would have seen me go

>up and hand the congresswoman (who was testifying that she could not

>be a whole woman because she had a mastectomy and could not get a

>silicone breast implant) my prosthesis and tell her I was a whole

>woman and I wear a prosthesis. The women pulled me out of the room,

>laughing hysterically, and said they did not know why I did not get

>thrown out. Threw that congresswoman for a loop.

>

>Cathie,

>

>What are you doing to detox? What meds are you on? Was your entire

>scar capsule removed?

>

>Lynda

>

>At 11:36 PM 5/16/2007, you wrote:

>

> >Welcome Cathie,

> >

> >I'm thrilled to see you found your way to the group! . . . You've

> >found some of the most wonderful ladies in the world! . . . We

> >understand how mysterious this mess is. - with symptoms out the

> >gazoo - with few answers - at least from the medical field.

> >

> >Ladies . . . I met Cathie years ago when we went to D.C. . . 1994?

> >At that time, I think she was about where Lynda was years ago . . .

> >Thankfully Lynda has improved dramatically. . . Let's pray Cathie

> >can too. . . I think Lynda was in D.C. at that time too . . . but we

> >never met Lynda.

> >

> >Cathie has a very, very difficult time . . . Hopefully we can help

> >her can find solutions for some of her many health issues! . . .

> >She's been through hell and back - As you can tell, she's a survivor!

> >

> >Hugs and prayers,

> >

> >Rogene

> >

> >

> >

> >

>

>

>

[Guest guest]

No , I didn't meet Ralph Nader . . . If you did, what did you think of him? Did you meet the man sitting on a rock wall by the sidewalk? . . . He said he had a testicle implant and was having the same problems as we were. He nearby a woman who ripped off her shirt off to show off her plastic boobs! There was another man there who, because of a somewhat peculiar appearance, would stand out in most crowds. He wore a sign saying that his mother had breast implants before he was born. I wish I had talked to him! Rogene Lynda <coss@...> wrote: Oh, yes, I remember that. I was sick for 6 weeks from the heat and humidity.I had vertigo walking through the Building.Did you meet Ralph Nader?LyndaAt 10:45 AM 5/17/2007, you wrote:>Cathie,>>I think it was '94 . . . We didn't testify . . . >There was an outdoor rally - former FDA head, >Kessler spoke on the dangers of breast implants >. . . along with some other speakers. I still >see videos segments taken at the rally from time to time.>>Some of visited congressmen's offices . . . >That's where I saw some of the smoothest talkers >I've ever seen. . . They could talk up a storm without saying anything! . .

..>>Rogene>>>>Lynda <cossprivatei> wrote:>Rogene,>>Was it 94? I was there so many times I cannot remember. The FDA>testimony on silicone was in 91 and 92. Then the saline hearings>were after that. If you were there in 92 you would have seen me go>up and hand the congresswoman (who was testifying that she could not>be a whole woman because she had a mastectomy and could not get a>silicone breast implant) my prosthesis and tell her I was a whole>woman and I wear a prosthesis. The women pulled me out of the room,>laughing hysterically, and said they did not know why I did not get>thrown out. Threw that congresswoman for a loop.>>Cathie,>>What are you doing to detox? What meds are you on? Was your entire>scar capsule removed?>>Lynda>>At 11:36

PM 5/16/2007, you wrote:>> >Welcome Cathie,> >> >I'm thrilled to see you found your way to the group! . . . You've> >found some of the most wonderful ladies in the world! . . . We> >understand how mysterious this mess is. - with symptoms out the> >gazoo - with few answers - at least from the medical field.> >> >Ladies . . . I met Cathie years ago when we went to D.C. . . 1994?> >At that time, I think she was about where Lynda was years ago . . .> >Thankfully Lynda has improved dramatically. . . Let's pray Cathie> >can too. . . I think Lynda was in D.C. at that time too . . . but we> >never met Lynda.> >> >Cathie has a very, very difficult time . . . Hopefully we can help> >her can find solutions for some of her many health issues! . . .> >She's been through hell and back - As you can tell, she's a

survivor!> >> >Hugs and prayers,> >> >Rogene> >> >> >> >>>>

[Guest guest]

WElcome Cathie! I hope we can help shed some light on your situation. It is so hard to balance these things, especially when you are on drugs like prednisone. Stay with us and I am sure you will be able to collect new information that is useful to you! PattyCathie <Scarlett6@...> wrote: Hi there:I am a friend of Rogene's and am new to the group. I am having alittle trouble figuring out how to get around here, but hope to getthat worked out soon. Please bear with

me.I have autoimmune issues, vasculitis and neuropathy and have beenunable to work now since the early '90's. I have severe neurological pain.I am having trouble with my thyroid. In addition to a 17 year historyof leaking and ruptured silicone implants (removed in '92) I also hadnasal radium treatments as a child. Some of these people aredeveloping cancers of the head, neck, brain and thyroid as olderadults. Boy, I got used as a guinea pig at both ends of my life...Anyway, a CT scan, various ultrasounds, a radioactive scan and 2 fineneedle aspirations have been unable to determine whether nodulespresent in both sides of my thyroid gland are cancerous or not. Thismeans the whole gland has to come out.I am really concerned, because I am on Prednisone, cannot get off ofit, and it doesn't take much to get a nasty flareup of my autoimmuneproblems going big time. I don't know how in the world I will be

ableto adjust Prednisone AND Synthroid to this situation. Obviously, I amnot the most desirable candidate for surgery. I had aneurysm repairsurgery several years back and the flareup from that was really rough. Is there anyone here who has gone through this surgery and who is onsteroids or immunosuppressants? I would appreciate any input.Thanks a lot. I look forward to reading more here and getting to knowpeople.Cathie

Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when.

[Guest guest]

Yes, I met the man who had the testicular

implant. I know who the women is who ripped off her shirt.

Nader is a strange dude. I would not vote for

him. He is great in consumer affaris, but politics is not his bailiwick.

That was quite a gathering. There were lots of

us there. We marched down to the White House area with signs.

Lynda

At 03:28 PM 5/17/2007, you wrote:

>No , I didn't meet Ralph Nader . . .

>

>If you did, what did you think of him?

>

>Did you meet the man sitting on a rock wall by

>the sidewalk? . . . He said he had a testicle

>implant and was having the same problems as we

>were. He nearby a woman who ripped off her shirt

>off to show off her plastic boobs!

>

>There was another man there who, because of a

>somewhat peculiar appearance, would stand out in

>most crowds. He wore a sign saying that his

>mother had breast implants before he was born. I wish I had talked to him!

>

>Rogene

>

>

>

>Lynda <coss@...> wrote:

>Oh, yes, I remember that. I was sick for 6 weeks from the heat and humidity.

>

>I had vertigo walking through the Building.

>

>Did you meet Ralph Nader?

>

>Lynda

>

>At 10:45 AM 5/17/2007, you wrote:

>

> >Cathie,

> >

> >I think it was '94 . . . We didn't testify . . .

> >There was an outdoor rally - former FDA head,

> >Kessler spoke on the dangers of breast implants

> >. . . along with some other speakers. I still

> >see videos segments taken at the rally from time to time.

> >

> >Some of visited congressmen's offices . . .

> >That's where I saw some of the smoothest talkers

> >I've ever seen. . . They could talk up a storm

> without saying anything! . . .

> >

> >Rogene

> >

> >

> >

> >Lynda <<mailto:coss%40privatei.com>coss@...> wrote:

> >Rogene,

> >

> >Was it 94? I was there so many times I cannot remember. The FDA

> >testimony on silicone was in 91 and 92. Then the saline hearings

> >were after that. If you were there in 92 you would have seen me go

> >up and hand the congresswoman (who was testifying that she could not

> >be a whole woman because she had a mastectomy and could not get a

> >silicone breast implant) my prosthesis and tell her I was a whole

> >woman and I wear a prosthesis. The women pulled me out of the room,

> >laughing hysterically, and said they did not know why I did not get

> >thrown out. Threw that congresswoman for a loop.

> >

> >Cathie,

> >

> >What are you doing to detox? What meds are you on? Was your entire

> >scar capsule removed?

> >

> >Lynda

> >

> >At 11:36 PM 5/16/2007, you wrote:

> >

> > >Welcome Cathie,

> > >

> > >I'm thrilled to see you found your way to the group! . . . You've

> > >found some of the most wonderful ladies in the world! . . . We

> > >understand how mysterious this mess is. - with symptoms out the

> > >gazoo - with few answers - at least from the medical field.

> > >

> > >Ladies . . . I met Cathie years ago when we went to D.C. . . 1994?

> > >At that time, I think she was about where Lynda was years ago . . .

> > >Thankfully Lynda has improved dramatically. . . Let's pray Cathie

> > >can too. . . I think Lynda was in D.C. at that time too . . . but we

> > >never met Lynda.

> > >

> > >Cathie has a very, very difficult time . . . Hopefully we can help

> > >her can find solutions for some of her many health issues! . . .

> > >She's been through hell and back - As you can tell, she's a survivor!

> > >

> > >Hugs and prayers,

> > >

> > >Rogene

> > >

> > >

> > >

> > >

> >

> >

> >

>

>

>

[Guest guest]

What was the deal with that woman? . . . Was she sick, or was that a publicity stunt? I wish I could have met you then! We had to be within feet of each other! Rogene Lynda <coss@...> wrote: Yes, I met the man who had the testicular implant. I know who the women is who ripped off her shirt.Nader is a strange dude. I would not vote for him. He is great in consumer affaris, but politics is not his bailiwick.That

was quite a gathering. There were lots of us there. We marched down to the White House area with signs.LyndaAt 03:28 PM 5/17/2007, you wrote:>No , I didn't meet Ralph Nader . . .>>If you did, what did you think of him?>>Did you meet the man sitting on a rock wall by >the sidewalk? . . . He said he had a testicle >implant and was having the same problems as we >were. He nearby a woman who ripped off her shirt >off to show off her plastic boobs!>>There was another man there who, because of a >somewhat peculiar appearance, would stand out in >most crowds. He wore a sign saying that his >mother had breast implants before he was born. I wish I had talked to him!>>Rogene>>>>Lynda <cossprivatei> wrote:>Oh, yes, I remember that. I was sick for 6 weeks

from the heat and humidity.>>I had vertigo walking through the Building.>>Did you meet Ralph Nader?>>Lynda>>At 10:45 AM 5/17/2007, you wrote:>> >Cathie,> >> >I think it was '94 . . . We didn't testify . . .> >There was an outdoor rally - former FDA head,> >Kessler spoke on the dangers of breast implants> >. . . along with some other speakers. I still> >see videos segments taken at the rally from time to time.> >> >Some of visited congressmen's offices . . .> >That's where I saw some of the smoothest talkers> >I've ever seen. . . They could talk up a storm > without saying anything! . . .> >> >Rogene> >> >> >> >Lynda <<mailto:coss%40privatei.com>cossprivatei> wrote:> >Rogene,> >> >Was it 94? I was there so many times I cannot remember. The FDA> >testimony on silicone was in 91 and 92. Then the saline hearings> >were after that. If you were there in 92 you would have seen me go> >up and hand the congresswoman (who was testifying that she could not> >be a whole woman because she had a mastectomy and could not get a> >silicone breast implant) my prosthesis and tell her I was a whole> >woman and I wear a prosthesis. The women pulled me out of the room,> >laughing hysterically, and said they did not know why I did not get> >thrown out. Threw that congresswoman for a loop.> >> >Cathie,> >> >What are you doing to detox? What meds are you on? Was your entire> >scar capsule removed?> >>

>Lynda> >> >At 11:36 PM 5/16/2007, you wrote:> >> > >Welcome Cathie,> > >> > >I'm thrilled to see you found your way to the group! . . . You've> > >found some of the most wonderful ladies in the world! . . . We> > >understand how mysterious this mess is. - with symptoms out the> > >gazoo - with few answers - at least from the medical field.> > >> > >Ladies . . . I met Cathie years ago when we went to D.C. . . 1994?> > >At that time, I think she was about where Lynda was years ago . . .> > >Thankfully Lynda has improved dramatically. . . Let's pray Cathie> > >can too. . . I think Lynda was in D.C. at that time too . . . but we> > >never met Lynda.> > >> > >Cathie has a very, very difficult time . . . Hopefully we can help> > >her can find solutions

for some of her many health issues! . . .> > >She's been through hell and back - As you can tell, she's a survivor!> > >> > >Hugs and prayers,> > >> > >Rogene> > >> > >> > >> > >> >> >> >>>>

[Guest guest]

Cathie ~

I was in a whirlwind of steroids and pain meds in the 90's, and it was horrible ! ! The steroids caused really bad osteoporosis, and the pain meds horrible constipation and hemrrhoids, I always felt I was in a fog, and all the steroids made all my labwork test out incorrectly. At one time I was on valium, neurontin, plaquinil, vicodan, xanax, bentyl, tons of steroids (injections, pills, and trigger point injections) and they wanted me to wear a pain patch ! At the time I was driving 29 miles to work ! ! I finally decided that what they were doing to me was medicating me to keep me sick and they werent getting to any root cause of anything. I had a couple thousand dollars of labwork done a month, saw a rheumatologist, neurologist, eye doctor, and gyn and surgeon once a month, I was only living to work to pay to go to doctors, my quality of life just didnt exist ! ! ! I took a leap of faith, and I just stopped all medications, at first, I got worse, I had to detox off of that toxic crap, I found none of those meds did anything for me anyway, besides keep me sick and give me side effects only to have another pill to help the side effects, one big cycle of pills ! ! Once my body adjusted to my God given state, I was the actually better than on the meds, I did not have the stomach aches, constipation or hemrrhoids, and my mind was much clearer. Boy was that the right decision that I made. I then started meditating, and reading everything I could get my hands on about relaxation methods, and meditating. Then my parents gave me this book and these tapes on the Silva method of mind control. Since insomnia was something I was plagued with as well, I trained myself to go to sleep through Silva's methods. Finally I began to see the light again and have hope. I could tell for sure that what I was doing was the right thing. Another thing that is a good tool, is learning to just be, and to breathe. Breathing is something some of us forget to do sometimes, especially when we dont feel good, or even when we do ! It not only feeds your body needed oxygen, it helps in your relaxation.

When I read your posts of all your challenges, my heart goes out to you, for your pain, and for your courage and your strength. I have found that most women in our group are very strong, careing, kind, supportive and loveing.

I now drink kefir everyday, and for some reason, it gives me energy ! I know that it is doing something wonderful for me !

God Bless You ~ Hugs ~ Dede

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In a message dated 5/19/07 10:44:35 AM, DGRAHAMA@... writes:

Cathie ~

I was in a whirlwind of steroids and pain meds in the 90's, and it was horrible ! ! 

Thanks Dede. Sorry you went through all of this. I cannot get off of these !*#%@ steriods. I have been on them now for 15 years. I am unable to stop them, probably because my adrenals no longer function on their own. I have tried repeatedly to get off and at one point was down to one milligram, just prior to aneurysm surgery. That squeched that quickly. The flareup after the insult of surgery required an increase in the steriods and I have never been able to get back down. Currently, I am at 7mg, but I am still giving it a fighting try to get the dose back down.

Current labs reveal almost constant C-Reactive Protein. I suspect that the thyroid removal will cause a much worse reaction than the aneurysm surgery did, because: 1. I found out I could get the aneurysm repair done laprascopically at the Cleveland Clinic-rather than having a large surgical incision, so it wasn't as bad as conventional surgery 2. this time, they are removing something from my body. I cannot imagine trying to adjust the Synthroid dose, recover from the flareup due to surgery and try to get the steroids adjusted properly.

My surgeon is concerned about this too and would like me to wait and have repeat imaging done. The larger mass had increased in less than a month though. I am to see another Endocrinologist next week, then most likely an Endocrine surgeon...

Cathie

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[Guest guest]

Cathie ~

My heart goes out to you. I was on the steroids for 10 years. It wasnt til after I got myself off of them then had a kenalog shot 3 years later that I had such a horrible reaction to it, which was a 2 year stent of being out of remission with my lupus. It was a rough 2 years, but when it passed, I was great til my heart attack, then 8 mos later all my organs started shutting down. Then had steroids IV in the hospital during that, then again when I had my pacemaker/defib put in, and then had a rough 19 mos, but coming out of it right now. I know I will have steroids when I have these implants out, but it will be the very last time I will ever allow them. A matter of fact I am gonna ask the PS if she can use something else, if there is anything. I know blueberries is a great natural anti-imflammatory as well as are other berries............

You are one brave and strong woman ! !

Hugs and Prayers ! !

DedeSee what's free at AOL.com.

[Guest guest]

Cathie, I forgot to ask, where are your anuersyms? my daughter had a cerebral one, and they put a coil in. So far she is doing well, we almost lost her though. She is 32, and a wife and mother. God Bless you ! ! DedeSee what's free at AOL.com.

[Guest guest]

Rogene !

It is a platinum coil they went in her groin and all the way up to her brain

and put in. This was in feb 2004. She had gotten bells palsey too but it went away. She was in ICU for 8 days ! !

Treatment of Brain Aneurysms by Endovascular Coiling - Aneurysm Treatment

Hugs N PraYers ~ Dede See what's free at AOL.com.

[Guest guest]

Rogene ~

She had a slow leak in it, and she had a 2 week migrane that was totally debilitating, then she woke up and her right eye was pointing towards the floor.

The doctors said it was congenital, so it was considered pre-existing, and so they ( insurance company) would not cover much on it. It was over 500 thousand dollars. So she endured much stress over it on top of it all ! ! !

Hugs ~ DedeSee what's free at AOL.com.

[Guest guest]

Dede, What is a coil, and what does it do for an aneurysm? Rogene

[Guest guest]

Wow! . . . What a wonderful solution . . . A relative had an aneurysm years ago . . . The surgery left him disabled. Very sad situation. Did they find it before it ruptured? Rogene DGRAHAMA@... wrote: Rogene

! It is a platinum coil they went in her groin and all the way up to her brain and put in. This was in feb 2004. She had gotten bells palsey too but it went away. She was in ICU for 8

days ! ! Treatment of Brain Aneurysms by Endovascular Coiling - Aneurysm Treatment Hugs N PraYers ~

Dede See what's free at AOL.com.

[Guest guest]

You've got to be kidding !!! . . . Pre-existing . . .that she knew nothing about? or had no control over? . . . what about genetics? . . . That would make a host of diseases pre-existing! . . . Sounds like something worth suing over! . . . Or at least bringing the media in on . . . Insurance companies like that should be put out of business! Rogene

[Guest guest]

In a message dated 5/19/07 3:45:38 PM, DGRAHAMA@... writes:

Cathie, I forgot to ask, where are your anuersyms?  my daughter had a cerebral one, and they put a coil in. 

My aneurysm was in the left renal artery. I knew I would have a terrible time with such an open surgery. I got on the Internet and found a researcher at the Cleveland Clinic, who was doing research work repairing aneurysms laprascopically in pigs. Yes, pigs... I called him up and asked if he would try to repair mine in this manner. He told me to come on up. Actually, it made medical history as a first. It was pretty exciting and much easier than conventional surgery. I was in the hospital only 2 days.

Cathie************************************** See what's free at http://www.aol.com.

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Cathie ~

Wow ! That is amazing ! ! I cannot believe all you have been through ! How did you find out you had a renal artery anuerism? What symptoms did you have? I am so glad that you were able to take care of it so easily ! Now you are a medical hero ! !

So kewl ! ~Hugs ~ DedeSee what's free at AOL.com.