Re: cease the day every day!

[Guest guest]

very nice thing to read on a very nice day in NJ.

Thanks!

--- mdcfam3 <mdcfam3@...> wrote:

> Im new to this group I was diognosed in 2002 since

> then ive had a

> beutiful baby girl. I live every day hoping for a

> cure I try and get

> involved in every clinical trial that comes along.If

> not for me then

> for those who come after me especiliy the children I

> encurage everyone

> out there to get involved in one way or

> another.Please be a part of the

> cure & live your life to the fullest every day tell

> the ones close to

> you what they mean to you daliy. God bless you all,

> Chris

>

>

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[Guest guest]

Hi

I just replied to your kind message with information that can help me survive,

I'm glad to read this message, too. If you go to www.cmlsupport.com and find

the list of newsletters and click on one that lists an article about clinical

trials back in 3004 I think. I wrote an article about the importance of trials

(I was in one at the time) and completely agree with you about their importance.

It's an important part of research--the last step before approval for the FDA.

Did you just start posting? started a thread and some of us have been

talking about what it was like a few years ago when everyone on the site was new

and we stumbled forware together until we learned more and more from each other

and our docs and became stronger and more knowledgeable about side effects, how

to treat them, etc.

Best to you,

L

[ ] cease the day every day!

Im new to this group I was diognosed in 2002 since then ive had a

beutiful baby girl. I live every day hoping for a cure I try and get

involved in every clinical trial that comes along.If not for me then

for those who come after me especiliy the children I encurage everyone

out there to get involved in one way or another.Please be a part of the

cure & live your life to the fullest every day tell the ones close to

you what they mean to you daliy. God bless you all, Chris

[Guest guest]

Yes Iam new to this site.and I have been very lucky .I have been involved in

four clinical trials and have had little or no side effects.My only problem is I

develop imunitys to every drug Ive tested so far.

[ ] cease the day every day!

Im new to this group I was diognosed in 2002 since then ive had a

beutiful baby girl. I live every day hoping for a cure I try and get

involved in every clinical trial that comes along.If not for me then

for those who come after me especiliy the children I encurage everyone

out there to get involved in one way or another.Please be a part of the

cure & live your life to the fullest every day tell the ones close to

you what they mean to you daliy. God bless you all, Chris

[Guest guest]

Well, that's quite a problem, Chris. What drugs have you tried?

[ ] cease the day every day!

Im new to this group I was diognosed in 2002 since then ive had a

beutiful baby girl. I live every day hoping for a cure I try and get

involved in every clinical trial that comes along.If not for me then

for those who come after me especiliy the children I encurage everyone

out there to get involved in one way or another.Please be a part of the

cure & live your life to the fullest every day tell the ones close to

you what they mean to you daliy. God bless you all, Chris

[Guest guest]

I was in the original gleevec trials, disatinib,sprycel or amn157

[ ] cease the day every day!

Im new to this group I was diognosed in 2002 since then ive had a

beutiful baby girl. I live every day hoping for a cure I try and get

involved in every clinical trial that comes along.If not for me then

for those who come after me especiliy the children I encurage everyone

out there to get involved in one way or another.Please be a part of the

cure & live your life to the fullest every day tell the ones close to

you what they mean to you daliy. God bless you all, Chris

[Guest guest]

What are you taking now and what are you trying next? Also, what are your

counts now?

L

[ ] cease the day every day!

Im new to this group I was diognosed in 2002 since then ive had a

beutiful baby girl. I live every day hoping for a cure I try and get

involved in every clinical trial that comes along.If not for me then

for those who come after me especiliy the children I encurage everyone

out there to get involved in one way or another.Please be a part of the

cure & live your life to the fullest every day tell the ones close to

you what they mean to you daliy. God bless you all, Chris

[Guest guest]

Hi

What have the doctors said your next option is as you seem to have

immunity to most current medications?

Do you have a particular mutation(s) that they have said are making

you immune to these?

I understand there are a couple of trials coming out or are already

started one of which is an injection method.

Let me know how you get on and God Bless.

Bill in the UK

>

> I was in the original gleevec trials, disatinib,sprycel or amn157

>

> [ ] cease the day every day!

>

> Im new to this group I was diognosed in 2002 since then ive had a

> beutiful baby girl. I live every day hoping for a cure I try and

get

> involved in every clinical trial that comes along.If not for me

then

> for those who come after me especiliy the children I encurage

everyone

> out there to get involved in one way or another.Please be a part of

the

> cure & live your life to the fullest every day tell the ones close

to

> you what they mean to you daliy. God bless you all, Chris

>

>