Re: Re: Getting back into regular life, socially -/LISA

[Guest guest]

-

I too, love your posts and think you offer great support to people.

Remember this... God never gives us more then he thinks we can carry.

I feel this is the reason I have CML. As the strong one in my family, I

feel I was best suited to live this life.

Hugs-

35

CML 5/13/05

Gleevec 800mg PCRU

Wife and mother of 3 (11,8,6)

************************************** See what's free at http://www.aol.com.

[Guest guest]

Congrates, Good Luck

--- Willingham <mustache_dave@...> wrote:

> i know god never gives us more than we can carry and

> that what don't kill ya makes ya stronger. But yes

> But i was dig. with cml fathers day 06 (great gift)

> and MS for my birthday 07 (march 10th) I'm beginning

> to wonder what i did to tick god off at me ha ha. as

> i write this tonight i have now lost what i thought

> was the love of my life of 6 years. she says she has

> lost herself in my illnesses i keep our 3 year old

> daughter most of the time since i seem to have a lot

> of time on my hands. if the symptoms from the cml

> are doing well the ms ones seem to be flaring up or

> vice verses. can't work sometimes it seems just not

> worth it anymore but i have my children and good

> days and bad so i just hope from one day to the next

> to keep going. Waiting on disability is a pain but

> such is life i guess. i have started engraving on

> glasses and selling on eBay to try and get by for

> now and relaying on Friends to help with bills until

> dis. comes Thu.If i had just one or the other i

> could

> work but with both days are rough and nights just

> as bad. i don't post much just read. i have been

> told by my lawyer that i was denied for SSI because

> i wasn't set up for BMT which with all the info i

> can find isn't needed for me levels all great for

> me. there needs someway to change the system. OK

> sorry my rant is over thanks to all for there

> support and well wishes.

> willingham

> 400mg gleevec

>

>

> ---------------------------------

> Food fight? Enjoy some healthy debate

> in the Answers Food & Drink Q & A.

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

if you are willing to give it another shot, I have a very close friend

whose law practice focuses entirley on helpig folks get onto SSI and SSDI

and her track record is excellent. If you are interested I will put you in

touch. Do feel good about the medical care you're getting?

I have now had CML for a bit more than two years. The first year was wow --

pretty rough. But now things have leveled out a lot, except for occasional

weird flare-ups, usually viral. But I work, I work out, I have a life. I may

sleep more than most people (10 to 12 hours) and I can't walk uphill or up

stairs anymore but life is OK. I am wondering if your CML will do the same

(we're on the same dose) and lighten up enough that you can just concentrate

on mitigating the effects of MS.

Hang in there my friend and be in touch.

Rosen, San Francisco

>From: Willingham <mustache_dave@...>

>Reply-

>

>Subject: [ ] Re: Getting back into regular life, socially

>-/LISA

>Date: Sat, 2 Jun 2007 01:21:55 -0700 (PDT)

>

>i know god never gives us more than we can carry and that what don't kill

>ya makes ya stronger. But yes But i was dig. with cml fathers day 06 (great

>gift) and MS for my birthday 07 (march 10th) I'm beginning to wonder what i

>did to tick god off at me ha ha. as i write this tonight i have now lost

>what i thought was the love of my life of 6 years. she says she has lost

>herself in my illnesses i keep our 3 year old daughter most of the time

>since i seem to have a lot of time on my hands. if the symptoms from the

>cml are doing well the ms ones seem to be flaring up or vice verses. can't

>work sometimes it seems just not worth it anymore but i have my children

>and good days and bad so i just hope from one day to the next to keep

>going. Waiting on disability is a pain but such is life i guess. i have

>started engraving on glasses and selling on eBay to try and get by for now

>and relaying on Friends to help with bills until dis. comes Thu.If i had

>just one or the other i could

> work but with both days are rough and nights just as bad. i don't post

>much just read. i have been told by my lawyer that i was denied for SSI

>because i wasn't set up for BMT which with all the info i can find isn't

>needed for me levels all great for me. there needs someway to change the

>system. OK sorry my rant is over thanks to all for there support and well

>wishes.

> willingham

> 400mg gleevec

>

>

>---------------------------------

>Food fight? Enjoy some healthy debate

>in the Answers Food & Drink Q & A.

>

>