Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Hello Survivors! I want to thank all that replied with helpful hints for my problem. Of course, that only encourages me to ask for more. 8-) I have just found small, white spots, mainly on my arms and hands, that are very itchy. I have not have this problem before and have only noticed it since starting the trial. Thanks for any help. Terry Dx'd 10/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Hi Terry, Of course you should always check with your doctor first but I've found that anytime I have anything itchy, Hydrocortisone does the trick nicely. You could also try soaking your arms and hands in oatmeal. Good luck, Tracey > > Hello Survivors! > > I want to thank all that replied with helpful hints for my problem. > Of course, that only encourages me to ask for more. 8-) > I have just found small, white spots, mainly on my arms and hands, > that are very itchy. > I have not have this problem before and have only noticed it since > starting the trial. > Thanks for any help. > Terry > Dx'd 10/03 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Hello Terry When I first went on Glevec I read the stuff they gave me, and of the the things on it was about some red or purple spots called Petechia, and another was itchy spots it recommended Aveeno, With natural colloidal oatmeal which relieves itch and dry skin, believe it or not I found that it worked..it has a dark blue cap, the other was Aveeno and it has soothing oat essance and natural shea butter I found this one works as well it has a light blue cap..This was in the reading material for Gleevec and AMN107 takes a few days but it does do the job for ME at least. Skipd my diary http://easyskip.tripod.com of my blood counts while on AMN107 --- Terry Whelan <terryjeanw@...> wrote: > Hello Survivors! > > I want to thank all that replied with helpful hints > for my problem. > Of course, that only encourages me to ask for more. > 8-) > I have just found small, white spots, mainly on my > arms and hands, > that are very itchy. > I have not have this problem before and have only > noticed it since > starting the trial. > Thanks for any help. > Terry > Dx'd 10/03 > > SkipD Dx'ed Dec 1978 on Myleran(busulfan) 26 yrs on Hydroxyurea for about 1 year on Gleevec for approx 1.5 years on AMN107(Nilotinib) to now ________________________________________________________________________________\ ____ TV dinner still cooling? Check out " Tonight's Picks " on TV. http://tv./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 Terry, Hello, I am also on AMN. for about 3 months. No side effects really. I was wondering, were are you on trial? Missymel > > From: " Terry Whelan " <terryjeanw@...> > Date: 2007/08/20 Mon PM 08:07:33 EDT > > Subject: [ ] AMN107 > > Hello everyone, > > I have been on the AMN107 trial for about 90 days. > All seems to be going well so far. > I have a very sore shoulder joint and it seems to go down my whole > left are. The elbow is almost as sore as the shoulder. > Has anyone else run into this and if so what worked for you? > I am seeing my Dr. on Thursday and want to bring in some ideas for him > to try. > Any help gratefully appreciated. > Regards, > Terry > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 Hi Terry you did not say the amount of drug your on I have been on the trial for almost 9 months or so and I had a lot of pain when they increases my drug to 800mg a day... it turned out to be a problem with the drug and my pancreas... the pain I had was located in my middle back and went up and down arm and leg.. after they did a cat scan saw what the problem was they had me go into med day every day for 10 days, stopped the drug, hooked me up to something and flushed me out lowered my amn107 to 400 , and all is well now.. still get lots of cramps in hands and feet but that is something else. so just ask about your pancreas.. I know of a few other who had Pancreatis while on AMN107... SkipD my diary http://easyskip.tripod.com --- Terry Whelan <terryjeanw@...> wrote: > Hello everyone, > > I have been on the AMN107 trial for about 90 days. > All seems to be going well so far. > I have a very sore shoulder joint and it seems to go > down my whole > left are. The elbow is almost as sore as the > shoulder. > Has anyone else run into this and if so what worked > for you? > I am seeing my Dr. on Thursday and want to bring in > some ideas for him > to try. > Any help gratefully appreciated. > Regards, > Terry > > SkipD Dx'ed Dec 1978 on Myleran(busulfan) 26 yrs on Hydroxyurea for about 1 year on Gleevec for approx 1.5 years on AMN107(Nilotinib) to now ________________________________________________________________________________\ ____ Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545433 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Hi Skip, Thanks for the info. I am on 400mg/day and have had 2 Cat Scans, neither of which was conclusive. I did have stomach pain which was thought to be pancreatis but that has settled, I hope, for good. They cut the dosage in half when they first checked and haven't raised it since my counts are good. Good luck to all, Terry --- Skip Duffie <skipd_2002@...> wrote: > Hi Terry you did not say the amount of drug your on > I have been on the trial for almost 9 months or so > and > I had a lot of pain when they increases my drug to > 800mg a day... it turned out to be a problem with > the > drug and my pancreas... the pain I had was located > in > my middle back and went up and down arm and leg.. > after they did a cat scan saw what the problem was > they had me go into med day every day for 10 days, > stopped the drug, hooked me up to something and > flushed me out lowered my amn107 to 400 , and all is > well now.. still get lots of cramps in hands and > feet > but that is something else. so just ask about your > pancreas.. I know of a few other who had Pancreatis > while on AMN107... > SkipD > my diary > http://easyskip.tripod.com > > > --- Terry Whelan <terryjeanw@...> wrote: > > > Hello everyone, > > > > I have been on the AMN107 trial for about 90 days. > > All seems to be going well so far. > > I have a very sore shoulder joint and it seems to > go > > down my whole > > left are. The elbow is almost as sore as the > > shoulder. > > Has anyone else run into this and if so what > worked > > for you? > > I am seeing my Dr. on Thursday and want to bring > in > > some ideas for him > > to try. > > Any help gratefully appreciated. > > Regards, > > Terry > > > > > > > SkipD > Dx'ed Dec 1978 > on Myleran(busulfan) 26 yrs > on Hydroxyurea for about 1 year > on Gleevec for approx 1.5 years > on AMN107(Nilotinib) to now > > > > ________________________________________________________________________________\ ____ > Be a better Heartthrob. Get better relationship > answers from someone who knows. Answers - > Check it out. > http://answers./dir/?link=list & sid=396545433 > To the best of my recollection....I don't remember! Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new at http://mrd.mail./try_beta?.intl=ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Hi Missymel, I am in Mount Pearl, Newfoundland, Canada. We think this is God's country...because I'm pretty sure He wouldn't have thrown all these rocks at property He didn't own! Hope you keep up the no side effects, that would be great. Good Luck, Terry --- g8trdoc81@... wrote: > Terry, > > Hello, I am also on AMN. for about 3 months. > No side effects really. I was wondering, were are > you on trial? > > Missymel > > > > From: " Terry Whelan " <terryjeanw@...> > > Date: 2007/08/20 Mon PM 08:07:33 EDT > > > > Subject: [ ] AMN107 > > > > Hello everyone, > > > > I have been on the AMN107 trial for about 90 days. > > All seems to be going well so far. > > I have a very sore shoulder joint and it seems to > go down my whole > > left are. The elbow is almost as sore as the > shoulder. > > Has anyone else run into this and if so what > worked for you? > > I am seeing my Dr. on Thursday and want to bring > in some ideas for him > > to try. > > Any help gratefully appreciated. > > Regards, > > Terry > > > > > > > > To the best of my recollection....I don't remember! Ask a question on any topic and get answers from real people. Go to Answers and share what you know at http://ca.answers. Quote Link to comment Share on other sites More sharing options...
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