Guest guest Posted April 29, 2007 Report Share Posted April 29, 2007 I was diagnosed with cml in ll-05. After 3 months on Gleevec I had liver function failure due to Gleevec. After many stressful months of waithing for the liver counts to come back within normal range meanwhile the cml counts were soaring, the FDA approved sprycel and I was put on the recommended dose of 70 mg twice a day. That proved way to strong and again I had to have tranfussion and wait for count to come back with normal range before they could restart Sprycel. Since then I have been on only 20mg twice a day. My last bone marrow showed remission with only .5 cancer cells in the marrow. Has anyone else had experience with sprycel. I sometimes feel like I am a testing ground since it is so new Dr don't know the long term results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2007 Report Share Posted July 27, 2007 My son is starting it tomorrow. What is your situation? He has developed secondary resistance to Gleevec after doing well on it for eight years. >From: " stephenraymoore " <stephenraymoore@...> >Reply- > >Subject: [ ] sprycel >Date: Fri, 27 Jul 2007 14:06:08 -0000 > >is anyone else on this new drug called sprycel? let me know please. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2007 Report Share Posted July 27, 2007 i take 140 mg a day, 70mg 12hrs apart. 1 pill is 50mg and another pill is 20mg. i take one of each twice a day. other people in the study im in got different doses, im on the high end of the dose study. ive experienced no side effects at all. all i know is it works for me. my last bmb which was july 16th in omaha, was .05%. thats good enough for me considering when first diagnosed i was 97.0% i feel great. --------------------------------- Luggage? GPS? Comic books? Check out fitting gifts for grads at Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2007 Report Share Posted July 27, 2007 When were you diagnosed? >From: <stephenraymoore@...> >Reply- > >Subject: RE: [ ] sprycel >Date: Fri, 27 Jul 2007 09:02:18 -0700 (PDT) > >i take 140 mg a day, 70mg 12hrs apart. 1 pill is 50mg and another pill is >20mg. i take one of each twice a day. other people in the study im in got >different doses, im on the high end of the dose study. ive experienced no >side effects at all. all i know is it works for me. my last bmb which was >july 16th in omaha, was .05%. thats good enough for me considering when >first diagnosed i was 97.0% i feel great. > >--------------------------------- >Luggage? GPS? Comic books? >Check out fitting gifts for grads at Search. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2007 Report Share Posted July 27, 2007 Hi , Welcome to the Sprycel club. There are quite a few of us on this drug, and quite a few people from this list. There is good information here, but also on the www.newcmldrug.com list of Jerry Mayfield. Check it out and read through the archives if you have any particular questions... There may be some answers there. > > is anyone else on this new drug called sprycel? let me know please. > Quote Link to comment Share on other sites More sharing options...
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