Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 -Avoid him like the plague. There is a little girl who goes to the same therapy place that my child goes to. The little girl is soooo much worse now then she was. I go to Maureen Durkin at Nubasx. She has been great. Good luck. Rhonda -- In @y..., jrsygrl4670@a... wrote: > HI...I'm looking for some feedback on a Dr. B. Edelson in > Atlanta, Georgia. I hear He is doing good work with autistic > children. Has anyone out there gone to see him? Please get back to > me with your experience. > > Thank you > Ma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 Isn't Dr. Edelson the guy who charges $80,000 for FGF2 treatments? I could be wrong, but I seem to remember someone mentioning his name when asked about Dr. Aguilar and his seemingly high fee of $2500. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 We looked into him as well for about a week. I think he is somewhat of a quack. He charges very high fees for helping those who are desparate--us. He seems to market himself for whatever illness is getting the most press at the time. I spoke to a women who went to him and actually had an article written about her and her son. He helped somewhat but she thinks it was more by luck than intention and can not stand the man!! His credentials are suspect as well. goodluck Janine [ ] new diagnosis > HI...I'm looking for some feedback on a Dr. B. Edelson in > Atlanta, Georgia. I hear He is doing good work with autistic > children. Has anyone out there gone to see him? Please get back to > me with your experience. > > Thank you > Ma > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 > Hi All..... > I have a child newly diagnosed with autism. We are looking into going > to Dr. B. Edelson in Atlanta Georgia. I hear he is doin great > things with autistic children. I would appreciate any feedback! Dr. Edelson claims a high cure rate. Other physicians I have talked to who have seen some of his patients claim his cure rate is much lower than stated. Having talked to a few of his patients, he does appear to prescribe a few things that won't agree with everyone, so at least some patients would reasonably be expected to have trouble. He is also a no-insurance doc and quite expensive. Everyone I know who got a lot better found that a judicioius combination of insurance plan docs, " alternative " cash only docs, and nice buddy doc's who would Rx and order tests because they asked nicely to be what it took. Nobody I know of got well by depending on a single doc to do most of the work. Andy > th Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2006 Report Share Posted April 10, 2006 - Hi Cat, welcome. we are trying to get a web site up to answer these kinds questions but it takes a while. but hopefully someone will e- mail you with some help and info. doctor contacts, exc. and Im sure you will get some posts here. hang in there, one site you might check into is mold-help.org, down on the left hand side there is symptoms,illnesses and test that you may find interesting. a great article was posted just yesterday here by Carl Grimes on MCS. you can go to previous and find it. or hold on and i will post a link to it. you came to the right place.-- In , " cat082574 " <crmorrone@...> wrote: > > Hi All. I have just discovered this website group and am glad to know > that there are others who have delt with this kind of stuff and I am > not crazy. I was recently diagnosed with MCS. I'm not sure if it is > from just mold exposure or what. I am looking for any resources in > the way of doctors, etc in the Chicago area. Have you heard of > Chelation therapy? The one doctor I am seeing now is just giving me > Seratonin level raising supplements and they do not seem to be > helping. I have had my house remediated (only contained a small amt) > and am currently on unpaid leave from work (the place I beleive I have > been exposed to mold & whatever else they have there). My workplace, > of course has been unwilling to do any type of testing (air or > otherwise) to substantiate my claims and said that since I am the only > one complaining they shouldn't have to " re-do their entire builing " > for one person. My symptoms range from lightheadedness, feverishness, > joint pain, and numbness in my extremeties. Any info, advise, would > be greatly appreciated. God Bless. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 I live in the Chicago area. There are a few good environmental/alternative mds in the area. There's an excellent dr in Wheaton, another in Geneva, one in Elgin and a branch of Dr. Rea's clinic in Hoffman Estates. Email me and I'll give you any contact info I have. SW In , " cat082574 " <crmorrone@...> wrote: > > Hi All. I have just discovered this website group and am glad to know > that there are others who have delt with this kind of stuff and I am > not crazy. I was recently diagnosed with MCS. I'm not sure if it is > from just mold exposure or what. I am looking for any resources in > the way of doctors, etc in the Chicago area. Have you heard of > Chelation therapy? The one doctor I am seeing now is just giving me > Seratonin level raising supplements and they do not seem to be > helping. I have had my house remediated (only contained a small amt) > and am currently on unpaid leave from work (the place I beleive I have > been exposed to mold & whatever else they have there). My workplace, > of course has been unwilling to do any type of testing (air or > otherwise) to substantiate my claims and said that since I am the only > one complaining they shouldn't have to " re-do their entire builing " > for one person. My symptoms range from lightheadedness, feverishness, > joint pain, and numbness in my extremeties. Any info, advise, would > be greatly appreciated. God Bless. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 There are a lot of chelation therapys from oral to iv's. A lot are using for removal of mercury. Always must take them very slow becuase too fast removal will/does create their own additional set of problems. http://www.healingdaily.com/oral-chelation/oral-chelation-or-iv-chelation.htm There is a very simple way to START on a programof chelation that is ENTIRELY under your control. That starts to remove SOME heavy metal toxicity. Chew until its a pulpy/mashy texture a bunch of cilantro then SPIT it out do not swallow and rinse your mouth with distilled water. Of course, the cilatnro should be organic. there are other versions that require injestion of cilatnro andother additives that are a bit harder on the system if you have a heavy metalproblem. Best bet....have your hair analysis done to see just what you are loaded up with. On Mon, 10 Apr 2006, cat082574 wrote: > Date: Mon, 10 Apr 2006 21:19:09 -0000 > From: cat082574 <crmorrone@...> > Reply- > > Subject: [] New diagnosis > > Hi All. I have just discovered this website group and am glad to know > that there are others who have delt with this kind of stuff and I am > not crazy. I was recently diagnosed with MCS. I'm not sure if it is > from just mold exposure or what. I am looking for any resources in > the way of doctors, etc in the Chicago area. Have you heard of > Chelation therapy? The one doctor I am seeing now is just giving me > Seratonin level raising supplements and they do not seem to be > helping. I have had my house remediated (only contained a small amt) > and am currently on unpaid leave from work (the place I beleive I have > been exposed to mold & whatever else they have there). My workplace, > of course has been unwilling to do any type of testing (air or > otherwise) to substantiate my claims and said that since I am the only > one complaining they shouldn't have to " re-do their entire builing " > for one person. My symptoms range from lightheadedness, feverishness, > joint pain, and numbness in my extremeties. Any info, advise, would > be greatly appreciated. God Bless. > > > > > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 Hello, I've been discovering all of these website for support for CML! I may be a new diagnosis from some blood work my family doctor did, and I'm going to see Dr. Moshe Talpaz at the University of Michigan tomorrow. I'm reallly getting nervous, especially reading about a bone marrow biopsy. Is Dr. Talpaz good at them or should I ask for someone in particular? What does everyone think about requesting sedation? I've been hearing good things about Dr. talpaz, but would love more opinions about him or the University of Michigan? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 Hi Jane, As others have pointed out, Dr. Talpaz is one of the leading experts in CML so you have nothing to worry about there. I've never had any sedation with any of my bone marrow biopsies and I've never had any issues with them either. I know some people have horror stories to tell but mine have all been fine. It all depends on the person doing it I guess. The worst of it is when they actually draw the marrow out. If they pull too fast on the needle, it feels like they're sucking the marrow up from the toes but it's all over in 30 seconds. I'd rather have 20 bone marrow biopsies than go through another labour and delivery Let us know how your appointment goes tomorrow, Tracey dx Jan 2002 > > Hello, I've been discovering all of these website for support for CML! > I may be a new diagnosis from some blood work my family doctor did, and > I'm going to see Dr. Moshe Talpaz at the University of Michigan > tomorrow. I'm reallly getting nervous, especially reading about a bone > marrow biopsy. Is Dr. Talpaz good at them or should I ask for someone > in particular? What does everyone think about requesting sedation? > I've been hearing good things about Dr. talpaz, but would love more > opinions about him or the University of Michigan? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2007 Report Share Posted April 24, 2007 Tracey, BMB are better than labor and deliver........geeee THANKS!!!!! <smile> Amy 10 weeks pregnant, off Gleevec 6 weeks WBC 10.5 Quote Link to comment Share on other sites More sharing options...
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