HELP! CML and the Liver

[Guest guest]

Hi all--

I posted last week about my husband's growing (more noticeable) fatigue with

Gleevec--400mg/day. He was diagnosed last July. Has hardly any side affects

but last week or so has been alot more noticeably tired. THEN, 3 days ago,

we ended up in the ER because he felt " tingly all over, tired, and nervous. "

I must add that when my husband was diagnosed it was only due to the fact

that he was experiencing " tingling and numbness " on his hands and

face...after blood tests revealed his WBC of 449,000, they determined it was

CML, and then found out he had a blood clot in his brain and that it was

causing him to have a stroke. 3 brain surgeries later, blood clot was

removed, he recovered from that, then we started the Gleevec ride. All in

all, has been pretty OK.

So, my husband called 9-1-1 Sat night cuz of the tingliness...it scared him

because of his past neurological experiences. All in all, after 5 hours at

the ER they chalked it up to a Panic Attack....all his vitals were fine, his

blood counts all normal (WBC was 4.2 even - usually lingers around 3.5 or

so). We even did new brain scans (CT Scans), those, too...all normal.

He had a routine appt today with his onc...he asked about running Iron

tests--I mentioned to him that some of you stated that deficiencies in iron

are sometimes Gleevec related and cause more fatigue. So, she is doing that

but also noted (and the reason for immediate call back), was his " liver

numbers " . I dont know what that means as of yet--but he is driving back

right now to get more tests.

So--MY QUESTION---havent many of you had problems with your liver? What came

of it? More meds? How does Gleevec affect the liver? Does any of this sound

familiar to any of you?

Any help would be great--sorry--also--this email is written in what I feel

like is an " emergency situation " ...

Thanks,

Cervera

wife of Cervera, age 33.

Diagnosed July 2007, 400mg/Gleevec daily

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