Guest guest Posted June 19, 2007 Report Share Posted June 19, 2007 Once again---all of you out there are so amazing and uplifting with your responses - thanks so much! We feel that everything happens for a reason, so we are ready to walk down the Spyrcel path. And many of you " old timers " are right...I know many of you probably would like to say " Stop your complaining - you have options these days!!! " And, you all have every right to say that...so once in a while--you should say that to us newbies!!!! We cannot imagine what you all went through before the Gleevec days....you all are very strong, and it is always so great to hear from you seasoned veterans. and I had it in our heads that CML is all about buying time...since new drugs are in trials and coming out frequently it seems. We had it in our heads that we would maximize the time on Gleevec (hopefully years), then switch to Sprycel if need be...then....hmm...AMN-107...then the latest and greatest new drug. So, here we sit... couldnt get even 1 year out of Gleevec, but we now know there have been many others who couldnt even get 5 months out of it. We are already heading down the Sprycel path...and hopefully that will last for a little while. I must admit (as I think I have stated before), takes all of this in stride and always has a positive attitude and always has such a good perspective on all of this, and figures why worry about tomorrow, as long as we get through today! All in all, God has a plan for all of us, and this is his plan for ! And yes--we are seeing the Grand Daddy of CML on July 26th...so we are very excited. Thanks again for all of your encouragement---I hope each and every one of you knows how much I really truly mean that. Regards, >From: Cogan <ncogan@...> >Reply- > >Subject: [ ] Re: going off Gleevec >Date: Tue, 19 Jun 2007 10:27:05 -0700 > > > wrote: >We have an appt July 26th with Dr. >Druker, and until then, will just follow the directions of 's >oncologist....He was only on Gleevec about 9 months all together and he >felt >quite well, so we are disappointed that he is in the less than 5% of people >who have to go OFF of it due to these liver issues. >___________________ >Hi , >Well, it seems like you now have the clear indication that does not >tolerate Gleevec. Because he is scheduled for a consult with Dr. Druker >soon......I would suggest that his local onc. contact Dr. Druker and ask >for a plan for starting Sprycel. The preferred dose (and maybe not what is >written on the drug insert) is 100mg taken all at once, one time a day >(this has fewer complications and just as good of a treatment response). >Many others who have had to go off of Gleevec for liver toxicity problems >have done great on Sprycel.....so it may just be the 'right' drug for . >Best wishes, > C. > _________________________________________________________________ Make every IM count. Download Messenger and join the i’m Initiative now. It’s free. http://im.live.com/messenger/im/home/?source=TAGHM_June07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2007 Report Share Posted June 19, 2007 Hi , It is true that the rule of the game seems to be buying time but as far as having to switch from gleevec to another drug, I think you shouldn't be thinking lost some years to buy this time. Now, with more drugs, it is not a one size fits all and the essential is that gets a medication that fights CML while giving him a good quality of life. He should be able to enjoy the time he is buying. I hope Sprycel will be the right shoe for . Cheers, Marcos. On 6/19/07, Cervera <weez_555@...> wrote: > Once again---all of you out there are so amazing and uplifting with your > responses - thanks so much! We feel that everything happens for a reason, so > we are ready to walk down the Spyrcel path. And many of you " old timers " are > right...I know many of you probably would like to say " Stop your complaining > - you have options these days!!! " And, you all have every right to say > that...so once in a while--you should say that to us newbies!!!! We cannot > imagine what you all went through before the Gleevec days....you all are > very strong, and it is always so great to hear from you seasoned veterans. > > and I had it in our heads that CML is all about buying time...since new > drugs are in trials and coming out frequently it seems. We had it in our > heads that we would maximize the time on Gleevec (hopefully years), then > switch to Sprycel if need be...then....hmm...AMN-107...then the latest and > greatest new drug. So, here we sit... couldnt get even 1 year out of > Gleevec, but we now know there have been many others who couldnt even get 5 > months out of it. We are already heading down the Sprycel path...and > hopefully that will last for a little while. I must admit (as I think I have > stated before), takes all of this in stride and always has a positive > attitude and always has such a good perspective on all of this, and figures > why worry about tomorrow, as long as we get through today! > > All in all, God has a plan for all of us, and this is his plan for ! And > yes--we are seeing the Grand Daddy of CML on July 26th...so we are very > excited. > > Thanks again for all of your encouragement---I hope each and every one of > you knows how much I really truly mean that. > > Regards, > > > > >From: Cogan <ncogan@...> > >Reply- > > > >Subject: [ ] Re: going off Gleevec > >Date: Tue, 19 Jun 2007 10:27:05 -0700 > > > > > > wrote: > >We have an appt July 26th with Dr. > >Druker, and until then, will just follow the directions of 's > >oncologist....He was only on Gleevec about 9 months all together and he > >felt > >quite well, so we are disappointed that he is in the less than 5% of people > >who have to go OFF of it due to these liver issues. > >___________________ > >Hi , > >Well, it seems like you now have the clear indication that does not > >tolerate Gleevec. Because he is scheduled for a consult with Dr. Druker > >soon......I would suggest that his local onc. contact Dr. Druker and ask > >for a plan for starting Sprycel. The preferred dose (and maybe not what is > >written on the drug insert) is 100mg taken all at once, one time a day > >(this has fewer complications and just as good of a treatment response). > >Many others who have had to go off of Gleevec for liver toxicity problems > >have done great on Sprycel.....so it may just be the 'right' drug for . > >Best wishes, > > C. > > > > _________________________________________________________________ > Make every IM count. Download Messenger and join the i'm Initiative now. > It's free. http://im.live.com/messenger/im/home/?source=TAGHM_June07 > > > > > Quote Link to comment Share on other sites More sharing options...
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