re: going off Gleevec

[Guest guest]

Hi ,

Sorry is not able to tolerate Gleevec as it seems but prior to Gleevec

many of us didn't tolerate Interferon very well either. Then came Gleevec

the miracle drug!

Now who's to say that sprycel isn't going to be 's miracle drug and the

miracle drug for all of us in the future for that matter.

The great thing here is that there is an alternative now.

Thank God!

And please let us know how does on the new drug. Believe me were all

anxious to hear about it.

ez

[Guest guest]

Dear :

What a bummer. I know you and must be worried about making the change to

Sprycel. So I hope that you will also take time to meditate on the " good news. "

Sprycel, while new is working well for lots of people and many tolerate it

better than Gleevec. And you are going to see the Grand Wizard of CML who by

all accounts on CML sites is a wonderful compassionate man. I know the thoughts

and prayers of our whole CML community are with you both during this time.

Thanks for keeping us abreast of 's on going story.

Kathie in Florida

[Guest guest]

wrote:

We have an appt July 26th with Dr.

Druker, and until then, will just follow the directions of 's

oncologist....He was only on Gleevec about 9 months all together and he felt

quite well, so we are disappointed that he is in the less than 5% of people

who have to go OFF of it due to these liver issues.

___________________

Hi ,

Well, it seems like you now have the clear indication that does not

tolerate Gleevec. Because he is scheduled for a consult with Dr. Druker

soon......I would suggest that his local onc. contact Dr. Druker and ask

for a plan for starting Sprycel. The preferred dose (and maybe not what is

written on the drug insert) is 100mg taken all at once, one time a day

(this has fewer complications and just as good of a treatment response).

Many others who have had to go off of Gleevec for liver toxicity problems

have done great on Sprycel.....so it may just be the 'right' drug for .

Best wishes,

C.