Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 When I was diagnosed a little over two years ago, My RA factor was 170. Normal at that lab was <20. So I think mine could be considered pretty high. But my RA is controlled very well now, so there is hope. It is very important to have a good rheumatologist who will keep at it until he finds the right meds for you. Enbrel is working very well for me. My fingers are almost back to normal size, and I have very little pain. I consider myself very lucky. Sue On Tuesday, October 28, 2003, at 10:52 PM, Kathe Sabetzadeh wrote: > I am not sure what is high for a RA factor - my test > was positive, not really high, but definately > elevated, can't recall what it was - I am sure that > a or can help with that. RA factor can > sometimes indicate how severe the disease can be, but > everybody's case and disease course is different so > there are really no hard and true facts to give you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Hey Amy, Did you call Steve about it? Not sure how often he checks his email. And, if you're anything like me, I hate waiting. Hope he can give you some insight as to what's going on... maybe the guy that actually made both of yours was having a bad day! Let me know! **oh, I found a pack of stickers (rubber ducks, right?) and I will leave them for you with Kim, if she'll keep them. I will also check at s tomorrow for you** Kim --- In Plagiocephaly , " Ski Chick " <skisum88@h...> wrote: > Ann, > My Jaden has a loose cap too where it does not stay centered, and > now I am noticing his eyes are getting swollen from wearing it all > the time because it's pushing down and giving him the " wrinkly-dog " > effect. I emailed my ortho w/ pics to show him because we live a > distance away. He hasn't responded just yet. He also shaved > Jaden's cap where the velcro closure is it give it more of a snug > fit, but it's still sliding and not staying centered. I am hoping > he will grow into it shortly, just like Kim's little Jax did. I > know this doesn't help, but I wanted you to know I am going thru > something similiar. I also asked the ortho to call me to explain > exactly how the cap is supposed to work and where the pressure > points should be and so forth. Once he gives me a better > explanation, I will post it for you. > > ~Amy, mommy to Jaden MN, plagio/mild tort, started CranioCap 4/23/04 > > > > --- In Plagiocephaly , " Ann " <myhushpuppy@y...> wrote: > > Has anyone noticed that after just a few wks the cranio cap gets > > loose? I figured it was from the foam compressing thus making the > > helmet loose. I had our ortho slice off a little where you open > and > > close helmet just so we could snug it up. That worked great to > make > > it tighter but now she has a HUGE red mark all the way along > > forhead. So I was told to not tighten all the way-well now I am > back > > to square one...LOL. When I was in office another lady was having > > the EXACT same trouble and she just couldn't get her sons cranio > > tight enough either. I mean we are not talking about sucking to > > their head-just so it doesn't slide down to their eyes every time > > they move. > > > > Can anyone comment or offer ideas? Thanx > > Ann > > > > Hope-10 months today Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Hello Amy , welcome to the group, interesting about the herbs, and I wouldn't disagree with the view that most health problems stem from the gut. Probiotics can be double edged, too much & the IS can be compromised they are after all alien microbes & the IS will produce antibodies against them ..I have read that Celiac disease has been linked with fungi! .. I hope you will look at controlling inflammation as per , it is one of the biggest advances in medicine in recent times in my estimation, its important to address the causes of inflammation before you treat with ARB's .treating while the drivers of inflammation are still in place is not going to see good results, Its early days but it's fairly clear that treating your infection as effectively as possible is a necessary step before embarking on ARB therapy . http://www.journal-inflammation.com/content/1/1/3 [infections] Re: I wonder ,, " Bacteroides fragilis " yes, I agree wiht you that the gut is the key. I am new to the group and just want to let everyone know I ahve done long term anitbiotics for 1 1/2 years, wiht no results. so I am not exactly against them, as I did try them. RE the gut, it makes me all the more curious about aryuvedic medicine (india) I had a consult wiht an ayurvedic doc who is also a US MD. they feel the gut is the root of everything. their simple diet and herbal tea fixed my digestion in 2 days, prieviously IBS. if I devieate to the standard american diet the IBS is back. they do not use regular supplement, only herbals. she was against probioitcs. not sure why, perhaps not natural enough. they are into real food mostly. in my case mostly cooked as malabsoption and gut problems from raw. I also wonder about celiac disease wheat intoleracne disease- and the gut, and immune results from this. amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 , I see has started a company. Good for him. What kinds of recommendations is he making for reducing inflammation other than ACE inhibitors and ARBS? penny > > Hello Amy , welcome to the group, interesting about the herbs, and I > wouldn't disagree with the view that most health problems stem from the gut. > Probiotics can be double edged, too much & the IS can be compromised they > are after all alien microbes & the IS will produce antibodies against them > .I have read that Celiac disease has been linked with fungi! .. > I hope you will look at controlling inflammation as per , it is > one of the biggest advances in medicine in recent times in my estimation, > its important to address the causes of inflammation before you treat with > ARB's .treating while the drivers of inflammation are still in place is not > going to see good results, Its early days but it's fairly clear that > treating your infection as effectively as possible is a necessary step > before embarking on ARB therapy . > > http://www.journal-inflammation.com/content/1/1/3 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006  Amy, Mould & fungi are the same , Die off is unlikely to be your problem , it's fairly clear like most on this group you are extensively infected .low dose treatment is not doing the job. Your gut symptoms are familiar to me I have a good friend who knows where the freshest chickens are on any day of the week. Any food with an increased bacterial load causes a flare of gut symptoms ..It's a symptom of a gut dysbiosis , your gut flora/IS is not dealing with introduced microbes .Probiotics can help but consider the amount you take .They are double edged, although friendly they are still introduced bacteria and your IS will power up against them . too many and you overwhelm the IS and its clear that you are a candidate for that ..... -----Original Message-----From: infections [mailto:infections ]On Behalf Of ColourbleuSent: 15 May 2006 20:31infections Subject: Re: [infections] moldConsider lamisil AND nystatin or fungizone.bleuOn 15 May 2006, at 01:10, amy dent wrote: can anyone comment about mold meds? are they the same as fungi meds?I am on nizoral nasal spray and the dieoff is huge and this after 1 year on a very low dose.is there anything to help wiht this dieoff? it is making my so called fibromyalgia muscle pains worse. I conclude that it is really infectious arthritis. and hope the fact that its getting worse is just a temporary die off effect.are you doing the special diets?I am still getting sick from many foods, if not super fresh and cooked.amy_________________________________________________________________Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2007 Report Share Posted May 7, 2007 Amy: Welcome and glad you are here. You certainly do have your hands full with two toddlers, I don't know how you keep up. I hope they get you diagnosed soon and get you on some good meds. Me, I am on Remicade Infusion monthly, Methotrexate weekly and zyrtec and tagament 7 days a month and that is it for my RA drugs, oops I forgot Folic Acid. The rest of the meds I am on are synthroid, premarin, and atenolol. I consider myself very lucky to be on so little for RA. My heart goes out to all that I have read about that are on so many different pain meds, sleep aids, and steroids. na <http://geo./serv?s=97359714/grpId=101478/grpspId=1705061498/msgId= 101254/stime=1178499042/nc1=4299904/nc2=4025325/nc3=3> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2007 Report Share Posted May 7, 2007 > > Amy: > > Welcome and glad you are here. You certainly do have your hands full with > two toddlers, I don't know how you keep up. I hope they get you diagnosed > soon and get you on some good meds. Me, I am on Remicade Infusion monthly, > Methotrexate weekly and zyrtec and tagament 7 days a month and that is it > for my RA drugs, oops I forgot Folic Acid. The rest of the meds I am on are > synthroid, premarin, and atenolol. I consider myself very lucky to be on so > little for RA. My heart goes out to all that I have read about that are on > so many different pain meds, sleep aids, and steroids. > > na > > > <http://geo./serv? s=97359714/grpId=101478/grpspId=1705061498/msgId= > 101254/stime=1178499042/nc1=4299904/nc2=4025325/nc3=3> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2007 Report Share Posted June 21, 2007 Has anyone heard from Amy. How she is doing? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2008 Report Share Posted July 26, 2008 For those of us new to all this could you please explain? What do you mean by itchies? Also why are some of you say you are staying away from sugar etc? thanks > > > > Hopefully someone else will answer too, because I get the itchies > even > > without antibiotics. In case it helps, I have been able to fix my > > itchies with probiotics. > > Amy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Out of curiousity how many Billion CFUs are in everyones probiotics? I purchased Nutrition Now because it has 14 Billion per a servering which is 2 capsules. Also it had the biggest variety of acidophilus. I have been taking 2 a day as my gut gets gassy from the pills, guess I'm getting used to them. > > > > For those of us new to all this could you please explain? What do > > you mean by itchies? Also why are some of you say you are staying > > away from sugar etc? > > > > thanks > > - > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 On this note something I have been wanting to ask everyone is.... Since the AP jacks with our stomachs so much shouldn't we all be trying to get the anitbiotics injected into us? Why does everyone use the pills? Is it because it's so hard to find a doctor willing to do the injections? > > > > For those of us new to all this could you please explain? What do > > you mean by itchies? Also why are some of you say you are staying > > away from sugar etc? > > > > thanks > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2008 Report Share Posted September 12, 2008 think it's important to add here that it's best to take MMS 1-2 h after meals. don't take less than 1h after eating or the MMS works on the anti-oxidants in the food rather than the bacteria etc. if you take on empty stomach it can make you feel awfully nauseous. m Yeah i've heard of HP therapy. I take MMS an hour or so after meals, sometimes sooner. It's the kind of therapy you have to do very slowly and steadily to get results... a bit like AP. it's small increments of improvement every day. and you have to slowly increase the drops, waiting to see what you can tolerate and always adjusting. they can hit you big time if you overdose! L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2008 Report Share Posted September 12, 2008 Oh! Thank you for letting me know. What about vitamins.. like my calcium/magnesium combo that I take. Should I keep it more than 1 hr away from that too. , have you liked using MMS? Amy Sauve wrote: > > think it's important to add here that it's best to take MMS 1-2 h after > meals. don't take less than 1h after eating or the MMS works on the > anti-oxidants in the food rather than the bacteria etc. if you take on > empty stomach it can make you feel awfully nauseous. > > m > > Yeah i've heard of HP therapy. I take MMS an hour or so after meals, > sometimes sooner. It's the kind of therapy you have to do very > slowly and steadily to get results... a bit like AP. it's small > increments of improvement every day. and you have to slowly increase > the drops, waiting to see what you can tolerate and always > adjusting. they can hit you big time if you overdose! > L > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2008 Report Share Posted September 13, 2008 hi amy i would take any other supplmts at least 4h away from MMS. so if you take MMS in am and pm take supplmts with lunch. i am working up very slowly with MMS. i reacted - die-off at 1/2 d. i am now at 3 d 2x a day. my plan is to work up to 15 d 2x a day. the die-off for me hasn't been too bad - major fatigue, slight headache, TMJ for a few days, stomachache a few days. i'd also encourage everyone, like ethel did, make sure you understand how to use it by reading both bk 1 and bk 2 BEFORE you use it. it's strong stuff so you don't want to mess up. m Oh! Thank you for letting me know. What about vitamins.. like my calcium/magnesium combo that I take. Should I keep it more than 1 hr away from that too. , have you liked using MMS? Amy Quote Link to comment Share on other sites More sharing options...
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