Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Hi , Do you mind me asking where in SoCal you are and who your husband's oncologist is? I was diagnosed in May and live near San Diego. I am trying to get opinions on different oncologists in the area. Thanks! Merissa > > Hi -- > What great news! I have spoken to Dr. Shah via email in regards to my > husband and his CML. My husband had to stop Gleevec to start Sprycel due to > liver intolerance. We went and saw Dr. Druker in Oregon 3 weeks ago...also > very informative and impressive! We told Dr. Druker that we are thinking of > moving to Northern Cal in the next coming months, and asked if he could > recommend any CML specialist up there and of course he said Dr. Shah. We, > too, have Kaiser...do you mind me asking where you live? We will be moving > to Santa , and are hoping we find an onc up there we like (we love our > onc down here in Southern Cal!), that can work with Dr. Shah the way you are > suggesting... > > Thanks for any info! > Regards, > Cervera > > > >From: " Israel " <peisrael@...> > >Reply- > > > >Subject: [ ] Dr. Neil Shah > >Date: Tue, 14 Aug 2007 18:58:18 -0000 > > > >I had my meeting with Dr. Shah at UCSF last week. He is very > >knowledgeable about CML and spent about 90 minutes with my wife and > >me. He is very encouraging about drug therapies for CML--so much so > >that he said that if he were diagnosed today, he wouldn't opt for a BMT > >even with a match. He was pretty pleased with what Kaiser had done, > >except they hadn't yet done a PCR to get a baseline, so he asked if I > >would let him get one. It wasn't clear to me whether the lab is at > >UCSF or he sends out to another lab, but he was very clear that he > >likes the lab he uses. I found him very compassionate, informative, > >and look forward to seeing him again after my next BMB. He and my onc > >at Kaiser will be working together, with the Kaiser onc (Dr. Hui-- whom > >I can't say enough good things about) being my main contact and Dr. > >Shah providing consultation. In short, I would highly recommend him to > >anyone seeking a CML expert in CA.-- > > > > _________________________________________________________________ > Now you can see trouble…before he arrives > http://newlivehotmail.com/? ocid=TXT_TAGHM_migration_HM_viral_protection_0507 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2007 Report Share Posted August 18, 2007 We live in Long Beach, CA--we have an oncologist here, but we have Kaiser, so you also must have Kaiser. There are few CML specialists, as it is a rare form of leukemia. We just flew up to Portland, OR to OHSU to see the leading CML specialist--Dr. Druker. We paid out of pocket $505 for the visit with him...that is with no insurance coverage, as Kaiser would not cover the visit. So, we paid for our travel..airfare, hotel, etc. and the consult fee of $505. If you can afford it, WELL worth the money--Dr. Druker is a wealth of knowledge.... Regards Cervera >From: " mommy22goughs " <mgough1@...> >Reply- > >Subject: Re: [ ] Dr. Neil Shah-WENDY >Date: Fri, 17 Aug 2007 21:53:58 -0000 > >Hi , >Do you mind me asking where in SoCal you are and who your husband's >oncologist is? I was diagnosed in May and live near San Diego. I am >trying to get opinions on different oncologists in the area. Thanks! >Merissa > > > > > > Hi -- > > What great news! I have spoken to Dr. Shah via email in regards to >my > > husband and his CML. My husband had to stop Gleevec to start >Sprycel due to > > liver intolerance. We went and saw Dr. Druker in Oregon 3 weeks >ago...also > > very informative and impressive! We told Dr. Druker that we are >thinking of > > moving to Northern Cal in the next coming months, and asked if he >could > > recommend any CML specialist up there and of course he said Dr. >Shah. We, > > too, have Kaiser...do you mind me asking where you live? We will be >moving > > to Santa , and are hoping we find an onc up there we like (we >love our > > onc down here in Southern Cal!), that can work with Dr. Shah the >way you are > > suggesting... > > > > Thanks for any info! > > Regards, > > Cervera > > > > > > >From: " Israel " <peisrael@...> > > >Reply- > > > > > >Subject: [ ] Dr. Neil Shah > > >Date: Tue, 14 Aug 2007 18:58:18 -0000 > > > > > >I had my meeting with Dr. Shah at UCSF last week. He is very > > >knowledgeable about CML and spent about 90 minutes with my wife and > > >me. He is very encouraging about drug therapies for CML--so much >so > > >that he said that if he were diagnosed today, he wouldn't opt for >a BMT > > >even with a match. He was pretty pleased with what Kaiser had >done, > > >except they hadn't yet done a PCR to get a baseline, so he asked >if I > > >would let him get one. It wasn't clear to me whether the lab is at > > >UCSF or he sends out to another lab, but he was very clear that he > > >likes the lab he uses. I found him very compassionate, >informative, > > >and look forward to seeing him again after my next BMB. He and my >onc > > >at Kaiser will be working together, with the Kaiser onc (Dr. Hui-- >whom > > >I can't say enough good things about) being my main contact and Dr. > > >Shah providing consultation. In short, I would highly recommend >him to > > >anyone seeking a CML expert in CA.-- > > > > > > > _________________________________________________________________ > > Now you can see trouble…before he arrives > > http://newlivehotmail.com/? >ocid=TXT_TAGHM_migration_HM_viral_protection_0507 > > > > _________________________________________________________________ Learn.Laugh.Share. Reallivemoms is right place! http://www.reallivemoms.com?ocid=TXT_TAGHM & loc=us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2007 Report Share Posted August 19, 2007 I have contacted Dr. Druker and am planning on scheduling a visit. My insurance will pay for one visit with him as they consider it a second opinion. I was planning on trying to see him in November but have decided that I will probably wait until I have been on Gleevec for a year and have a few PCR's for him to look at. That way, he can hopefully tell me that I am on track. I was just diagnosed this past May and so far the Gleevec seems to be working. Thanks for getting back to me Merissa > > > > > > Hi -- > > > What great news! I have spoken to Dr. Shah via email in regards to > >my > > > husband and his CML. My husband had to stop Gleevec to start > >Sprycel due to > > > liver intolerance. We went and saw Dr. Druker in Oregon 3 weeks > >ago...also > > > very informative and impressive! We told Dr. Druker that we are > >thinking of > > > moving to Northern Cal in the next coming months, and asked if he > >could > > > recommend any CML specialist up there and of course he said Dr. > >Shah. We, > > > too, have Kaiser...do you mind me asking where you live? We will be > >moving > > > to Santa , and are hoping we find an onc up there we like (we > >love our > > > onc down here in Southern Cal!), that can work with Dr. Shah the > >way you are > > > suggesting... > > > > > > Thanks for any info! > > > Regards, > > > Cervera > > > > > > > > > >From: " Israel " <peisrael@> > > > >Reply- > > > > > > > >Subject: [ ] Dr. Neil Shah > > > >Date: Tue, 14 Aug 2007 18:58:18 -0000 > > > > > > > >I had my meeting with Dr. Shah at UCSF last week. He is very > > > >knowledgeable about CML and spent about 90 minutes with my wife and > > > >me. He is very encouraging about drug therapies for CML--so much > >so > > > >that he said that if he were diagnosed today, he wouldn't opt for > >a BMT > > > >even with a match. He was pretty pleased with what Kaiser had > >done, > > > >except they hadn't yet done a PCR to get a baseline, so he asked > >if I > > > >would let him get one. It wasn't clear to me whether the lab is at > > > >UCSF or he sends out to another lab, but he was very clear that he > > > >likes the lab he uses. I found him very compassionate, > >informative, > > > >and look forward to seeing him again after my next BMB. He and my > >onc > > > >at Kaiser will be working together, with the Kaiser onc (Dr. Hui-- > >whom > > > >I can't say enough good things about) being my main contact and Dr. > > > >Shah providing consultation. In short, I would highly recommend > >him to > > > >anyone seeking a CML expert in CA.-- > > > > > > > > > > _________________________________________________________________ > > > Now you can see trouble…before he arrives > > > http://newlivehotmail.com/? > >ocid=TXT_TAGHM_migration_HM_viral_protection_0507 > > > > > > > > > _________________________________________________________________ > Learn.Laugh.Share. Reallivemoms is right place! > http://www.reallivemoms.com?ocid=TXT_TAGHM & loc=us > Quote Link to comment Share on other sites More sharing options...
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