bone marrow biopsy discussion

[Guest guest]

i just came back from seeing Dr. Mauro. After traveling 3,000 miles, he said

that I didn't need a BMB this trip. Of course, I told him no way was I leaving

without my crutch of a biopsy, as I had all ready workied my way up to haivng

it. Is anyone else's Doctors telling them that if their blood PCR's are

undetectable, that they don't have to have a biopsy every year? If this is so,

I may not travel the 3,000 miles evey year. It does bvecome costly between

plane fare, hotel and meals.

I would like to hear back from others. You may e mail me privately at :

ornurse954@....

thanks in advance

Dx: 9/1999

inf/ara-c until Gleevec approved.

combo of IM/ inf for 1 1/2 years

IM only for past 3 1/2 years and undetectable

---------------------------------

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

,

I have been PCR undetectable for almost 6 years except for one peripheral

PCR that showed a temporary increase. I get peripheral PCR's every 3 months

(through blood draw) and until this year have had annual bone marrow

biopsies. My doctor is now recommending I can wait for 2 years before my

next BMB. I'm comfortable with that recommendation as peripheral PCR is a

sensitive BCR/ABL measure and I'm most concerned about those leukemia

counts. BMB's are done to detect other abnormalities that might develop. I'm

happy to wait 2 years before the next BMB. I hope this helps.

Fran

[Guest guest]

Hi Fran,

Thank you for your post.

Fran and I go way back to the early days of the CML lists. She is number 23

in the Zero Club and one of those people who gave me the HOPE and confidence

that I too would reach Zero.

Thank you Fran,

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.2 log reduction Jun/07

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

_____

From: [mailto: ] On Behalf Of Fran

and Carl

Sent: July 26, 2007 2:20 AM

Subject: [ ] Re:bone marrow biopsy discussion

,

I have been PCR undetectable for almost 6 years except for one peripheral

PCR that showed a temporary increase. I get peripheral PCR's every 3 months

(through blood draw) and until this year have had annual bone marrow

biopsies. My doctor is now recommending I can wait for 2 years before my

next BMB. I'm comfortable with that recommendation as peripheral PCR is a

sensitive BCR/ABL measure and I'm most concerned about those leukemia

counts. BMB's are done to detect other abnormalities that might develop. I'm

happy to wait 2 years before the next BMB. I hope this helps.

Fran