BMB

[Guest guest]

Hey guys,

Just got a call yesterday from the nurse at my new onc. Don't love the new onc

BTW but he's close to home and I can use my local PCP who I love so I'll deal.

Anyway, the nurse said my BMB came back and that, 'the results were perfect' and

that, 'there were no leukemic cells' so does that mean that I would be part of

the zero club now? I asked her what my last PCR was but she didn't have the

info. The new onc just says things are 'going good' each time I see him. I

still have the awful side effects, BAD diareah, severe fatigue, sometimes

insomina, very bad bone/muscle/joint pain, nausia, etc. which I tell the doc of

but he just says these are normal...which is what I heard, so I'm OK with that.

I'm alive and kicking and I'm hanging in there.

:}

[Guest guest]

Thanks Zavie! There's my happy thing for today!!!

:}

[ ] BMB

Hey guys,

Just got a call yesterday from the nurse at my new onc. Don't love the new

onc BTW but he's close to home and I can use my local PCP who I love so I'll

deal. Anyway, the nurse said my BMB came back and that, 'the results were

perfect' and that, 'there were no leukemic cells' so does that mean that I

would be part of the zero club now? I asked her what my last PCR was but she

didn't have the info. The new onc just says things are 'going good' each

time I see him. I still have the awful side effects, BAD diareah, severe

fatigue, sometimes insomina, very bad bone/muscle/ joint pain, nausia, etc.

which I tell the doc of but he just says these are normal...which is what I

heard, so I'm OK with that. I'm alive and kicking and I'm hanging in there.

:}

[Guest guest]

Lottie,

All very good questions..I added them to my list of qustions to

see.Sorry I don't have the answers yet but I will sure get them..

Thanks

SharonS

In , " Lottie Duthu " <lotajam@...> wrote:

>

> Dear Sharon S,

> I would certainly want to know why he doesn't do BMB's. That's

how they can tell if there is cellularity in your marrow, and where

you are in your disease. Is he a CML specialist? I certainly hope

the Gleevec brings your wbc down, but that's only part of the story,

I would want to know it all. I know there is a lot going through

your mind at this time and it's wise to have your questions before

you, or even a tape recorder, but ask first, he may be edgy about

being recorded on tape, it could come back to bite him in the butt.

> Blessings and peace of mind,

> Lottie

>

>