Guest guest Posted August 20, 2007 Report Share Posted August 20, 2007 Don- I was diagnosed in May 05 and I still have ongoing pain. The pain was more intense after initially starting Gleevec but I still have the need to take Ibuprofen almost daily and Percocet occasionally for the pain. Mine is in my lower back and lower legs (calves). Worse on standing still or sitting for long periods of time. I have found that hot soaks in the tub help relieve the pain and I also take the Gleevec at bedtime so that I sleep through a majority of the pain. I am on 800mg of Gleevec. I am have a stem cell harvest in 2 weeks and then I plan on having a reduction of my dose. I have currently been off my " Gold " for 4 days now which is very scary as I don't miss doses but I guess you have to stop it prior to the collection. I wish you pain free days ahead. Stay healthy and keep your spirits up. Hugs 35 CML 5/13/05 Gleevec 800mg Wife and mother of 3 (11,8,6) ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
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