Re: ssdisablility

[Guest guest]

Hi

I have been on disability for about 1 1/2 years now due to my CML. I

did not have a problem getting disability-but apparently is depends

some on where you live.

All the best.

>

> Dear Group,

>

> I was approved for disablilty last year. It was not a long process

for me but I have heard this was an exception. I was approved

because of CML and liver function failure due to Gleevec (function

has returned and I am now on Sprycel and doing well. The interview

was done over the phone and the Doctor had to send in a report. It

took a couple months and then I was approved on the first try. I

have heard you may have to apply several times. I understand I will

probably have to be reviewed in the future. I hope they don't take

it away from me because I am feeling much better. Maybe they

approved it becauce I am 61 and close to getting SS.

> Any other questions don't hesitate to ask.

> carolyn_kuptz@...

>

>

>

>

______________________________________________________________________

______________

> Need a vacation? Get great deals

> to amazing places on Travel.

> http://travel./

>

>

[Guest guest]

Hi ne,

Could you explain how your CML manifests itself to the point that you cannot

work and have to go on social security?

I am puzzled because you are currently training and planning to climb Mt.

Kilimanjaro later this year. You must be in excellent physical shape.

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

_____

From: [mailto: ] On Behalf Of

sassysus06

Sent: July 8, 2007 9:57 AM

Subject: [ ] Re: ssdisablility

Hi

I have been on disability for about 1 1/2 years now due to my CML. I

did not have a problem getting disability-but apparently is depends

some on where you live.

All the best.

>

> Dear Group,

>

> I was approved for disablilty last year. It was not a long process

for me but I have heard this was an exception. I was approved

because of CML and liver function failure due to Gleevec (function

has returned and I am now on Sprycel and doing well. The interview

was done over the phone and the Doctor had to send in a report. It

took a couple months and then I was approved on the first try. I

have heard you may have to apply several times. I understand I will

probably have to be reviewed in the future. I hope they don't take

it away from me because I am feeling much better. Maybe they

approved it becauce I am 61 and close to getting SS.

> Any other questions don't hesitate to ask.

> carolyn_kuptz@...

>

>

>

>

__________________________________________________________

______________

> Need a vacation? Get great deals

> to amazing places on Travel.

> http://travel. <http://travel./> /

>

>

[Guest guest]

It took me about 3 years to get SS disability. I had a desk job, but due to

fatigue,bone pain, and my loss of concentration ability I was unable to

function as a credit card fraud investigator, and honestly cannot stand for

long periods of time. I use to be a vocalist and played rock music but I

really do not even have the energy level for that.

Allsup Inc. was hired by Aetna to get disabiltiy for me(They did not want to

have to pay the full amount they were contracted to pay me until 2031) and

what they explained to me is that the first atempts go across peoples desk

that are basically paper pushers and when they see " remission " they dismiss

the claim without bothering to look at the fact I can't work due to side

effects of the medication that keeps me alive. But once it went before a

judge he signed off on it and I am to be reviewed in a year. I am not

concerned because my condition has not worsened or improved since 04 and so

I do not see how things will change(unless I win the lottery..lol) Trust me

when I say I would much rather be able to work. I was making twice as much

money, and loved my job.

On the subject of the person that is doing all this training to climb a

mountain...becareful if they catch you doing something like that they will

yank your disability faster than congressman can change his mind on an

issue..lol.

Terry

On 7/8/07, Zavie miller <zmiller@...> wrote:

>

> Hi ne,

>

> Could you explain how your CML manifests itself to the point that you

> cannot

> work and have to go on social security?

>

> I am puzzled because you are currently training and planning to climb Mt.

> Kilimanjaro later this year. You must be in excellent physical shape.

>

> Zavie

>

> Zavie (age 69)

> 67 Shoreham Avenue

> Ottawa, Canada, K2G 3X3

> dxd AUG/99

> INF OCT/99 to FEB/00, CHF

> No meds FEB/00 to JAN/01

> Gleevec since MAR/27/01 (400 mg)

> CCR SEP/01. #102 in Zero Club

> 2.8 log reduction Sep/05

> 3.0 log reduction Jan/06

> 2.9 log reduction Feb/07

> e-mail: zmiller@... <zmiller%40sympatico.ca>

> Tel: 613-726-1117

> Fax: 309-296-0807

> Cell: 613-202-0204

> ID: zaviem

> _____

>

> From: <%40> [mailto:

> <%40>] On Behalf Of

> sassysus06

> Sent: July 8, 2007 9:57 AM

> <%40>

> Subject: [ ] Re: ssdisablility

>

>

> Hi

>

> I have been on disability for about 1 1/2 years now due to my CML. I

> did not have a problem getting disability-but apparently is depends

> some on where you live.

> All the best.

>

>

> >

> > Dear Group,

> >

> > I was approved for disablilty last year. It was not a long process

> for me but I have heard this was an exception. I was approved

> because of CML and liver function failure due to Gleevec (function

> has returned and I am now on Sprycel and doing well. The interview

> was done over the phone and the Doctor had to send in a report. It

> took a couple months and then I was approved on the first try. I

> have heard you may have to apply several times. I understand I will

> probably have to be reviewed in the future. I hope they don't take

> it away from me because I am feeling much better. Maybe they

> approved it becauce I am 61 and close to getting SS.

> > Any other questions don't hesitate to ask.

> > carolyn_kuptz@...

> >

> >

> >

> >

> __________________________________________________________

> ______________

> > Need a vacation? Get great deals

> > to amazing places on Travel.

> > http://travel. <http://travel./> /

> >

> >

[Guest guest]

Oh I also forgot to mention the $27,000 I received from SS as back

pay...Aetna took all of it but $300 because of the fact they were paying me

Long term disability because it was a benefit from my former job. And in

their agreement they only have to make partial payments if I have other

income. So they took the money since if SS would have been paying me what

they do now they would have not had to make the full payments.

So now I get my SS check and a partial check from Aetna to make the amount

each month that Aetna was contracted to pay me. So it sucked big time to not

get that back money because I really wanted to purchase a home.

Terry

On 7/8/07, Terry Dailey <terrydailey@...> wrote:

>

> It took me about 3 years to get SS disability. I had a desk job, but due

> to fatigue,bone pain, and my loss of concentration ability I was unable to

> function as a credit card fraud investigator, and honestly cannot stand for

> long periods of time. I use to be a vocalist and played rock music but I

> really do not even have the energy level for that.

>

> Allsup Inc. was hired by Aetna to get disabiltiy for me(They did not want

> to have to pay the full amount they were contracted to pay me until 2031)

> and what they explained to me is that the first atempts go across peoples

> desk that are basically paper pushers and when they see " remission " they

> dismiss the claim without bothering to look at the fact I can't work due to

> side effects of the medication that keeps me alive. But once it went before

> a judge he signed off on it and I am to be reviewed in a year. I am not

> concerned because my condition has not worsened or improved since 04 and so

> I do not see how things will change(unless I win the lottery..lol) Trust me

> when I say I would much rather be able to work. I was making twice as much

> money, and loved my job.

>

> On the subject of the person that is doing all this training to climb a

> mountain...becareful if they catch you doing something like that they will

> yank your disability faster than congressman can change his mind on an

> issue..lol.

>

> Terry

>

>

> On 7/8/07, Zavie miller <zmiller@...> wrote:

> >

> > Hi ne,

> >

> > Could you explain how your CML manifests itself to the point that you

> > cannot

> > work and have to go on social security?

> >

> > I am puzzled because you are currently training and planning to climb

> > Mt.

> > Kilimanjaro later this year. You must be in excellent physical shape.

> >

> > Zavie

> >

> > Zavie (age 69)

> > 67 Shoreham Avenue

> > Ottawa, Canada, K2G 3X3

> > dxd AUG/99

> > INF OCT/99 to FEB/00, CHF

> > No meds FEB/00 to JAN/01

> > Gleevec since MAR/27/01 (400 mg)

> > CCR SEP/01. #102 in Zero Club

> > 2.8 log reduction Sep/05

> > 3.0 log reduction Jan/06

> > 2.9 log reduction Feb/07

> > e-mail: zmiller@... <zmiller%40sympatico.ca>

> > Tel: 613-726-1117

> > Fax: 309-296-0807

> > Cell: 613-202-0204

> > ID: zaviem

> > _____

> >

> > From: <%40> [mailto:

> > <%40>] On Behalf Of

> > sassysus06

> > Sent: July 8, 2007 9:57 AM

> > <%40>

> > Subject: [ ] Re: ssdisablility

> >

> >

> > Hi

> >

> > I have been on disability for about 1 1/2 years now due to my CML. I

> > did not have a problem getting disability-but apparently is depends

> > some on where you live.

> > All the best.

> >

> >

> > >

> > > Dear Group,

> > >

> > > I was approved for disablilty last year. It was not a long process

> > for me but I have heard this was an exception. I was approved

> > because of CML and liver function failure due to Gleevec (function

> > has returned and I am now on Sprycel and doing well. The interview

> > was done over the phone and the Doctor had to send in a report. It

> > took a couple months and then I was approved on the first try. I

> > have heard you may have to apply several times. I understand I will

> > probably have to be reviewed in the future. I hope they don't take

> > it away from me because I am feeling much better. Maybe they

> > approved it becauce I am 61 and close to getting SS.

> > > Any other questions don't hesitate to ask.

> > > carolyn_kuptz@...

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > ______________

> > > Need a vacation? Get great deals

> > > to amazing places on Travel.

> > > http://travel. <http://travel./> /

> > >

> > >

[Guest guest]

Hey:

If what Zavie says is true, and I believe him, all I can say is shame on you.

So many on this site are unable to get the financial assistance they need and

don't have the physical capabilities to go out and work. We are all dealing

with physical limitations due to this disease. Apparently, some less than

others.

I just got approved for SS Disability with my first application but with

recovery from a BMT I have been told I won't go back to work for at least a

year. The recovery is going ok, it is just a long, long process. I am almost 5

months post transplant. It is six months to the date of the disability before I

will see a check, so around September. I also love my job and look forward to

the day I will go back healthy.

How is it you can afford to go to Mt.Kilimanjaro being on SS Disability? I

can't pay my bills with what they are going to give me. I don't like people

that take advantage of the system. It makes it hard on the rest of the honest

population.

Therese Stone

sassysus06 <no_reply > wrote:

Hi

I have been on disability for about 1 1/2 years now due to my CML. I

did not have a problem getting disability-but apparently is depends

some on where you live.

All the best.

>

> Dear Group,

>

> I was approved for disablilty last year. It was not a long process

for me but I have heard this was an exception. I was approved

because of CML and liver function failure due to Gleevec (function

has returned and I am now on Sprycel and doing well. The interview

was done over the phone and the Doctor had to send in a report. It

took a couple months and then I was approved on the first try. I

have heard you may have to apply several times. I understand I will

probably have to be reviewed in the future. I hope they don't take

it away from me because I am feeling much better. Maybe they

approved it becauce I am 61 and close to getting SS.

> Any other questions don't hesitate to ask.

> carolyn_kuptz@...

>

>

>

>

__________________________________________________________

______________

> Need a vacation? Get great deals

> to amazing places on Travel.

> http://travel./

>

>

[Guest guest]

Hey Terry:

Are you on SSI or Social Security Disability? I haven't heard of any type of a

retro check back to my disability date. It would sure help me right now to

financially get through this. I didn't qualify for my company disability due to

a pre-existing condition clause. Thanks

Therese

Terry Dailey <terrydailey@...> wrote: Oh

I also forgot to mention the $27,000 I received from SS as back

pay...Aetna took all of it but $300 because of the fact they were paying me

Long term disability because it was a benefit from my former job. And in

their agreement they only have to make partial payments if I have other

income. So they took the money since if SS would have been paying me what

they do now they would have not had to make the full payments.

So now I get my SS check and a partial check from Aetna to make the amount

each month that Aetna was contracted to pay me. So it sucked big time to not

get that back money because I really wanted to purchase a home.

Terry

On 7/8/07, Terry Dailey <terrydailey@...> wrote:

>

> It took me about 3 years to get SS disability. I had a desk job, but due

> to fatigue,bone pain, and my loss of concentration ability I was unable to

> function as a credit card fraud investigator, and honestly cannot stand for

> long periods of time. I use to be a vocalist and played rock music but I

> really do not even have the energy level for that.

>

> Allsup Inc. was hired by Aetna to get disabiltiy for me(They did not want

> to have to pay the full amount they were contracted to pay me until 2031)

> and what they explained to me is that the first atempts go across peoples

> desk that are basically paper pushers and when they see " remission " they

> dismiss the claim without bothering to look at the fact I can't work due to

> side effects of the medication that keeps me alive. But once it went before

> a judge he signed off on it and I am to be reviewed in a year. I am not

> concerned because my condition has not worsened or improved since 04 and so

> I do not see how things will change(unless I win the lottery..lol) Trust me

> when I say I would much rather be able to work. I was making twice as much

> money, and loved my job.

>

> On the subject of the person that is doing all this training to climb a

> mountain...becareful if they catch you doing something like that they will

> yank your disability faster than congressman can change his mind on an

> issue..lol.

>

> Terry

>

>

> On 7/8/07, Zavie miller <zmiller@...> wrote:

> >

> > Hi ne,

> >

> > Could you explain how your CML manifests itself to the point that you

> > cannot

> > work and have to go on social security?

> >

> > I am puzzled because you are currently training and planning to climb

> > Mt.

> > Kilimanjaro later this year. You must be in excellent physical shape.

> >

> > Zavie

> >

> > Zavie (age 69)

> > 67 Shoreham Avenue

> > Ottawa, Canada, K2G 3X3

> > dxd AUG/99

> > INF OCT/99 to FEB/00, CHF

> > No meds FEB/00 to JAN/01

> > Gleevec since MAR/27/01 (400 mg)

> > CCR SEP/01. #102 in Zero Club

> > 2.8 log reduction Sep/05

> > 3.0 log reduction Jan/06

> > 2.9 log reduction Feb/07

> > e-mail: zmiller@... <zmiller%40sympatico.ca>

> > Tel: 613-726-1117

> > Fax: 309-296-0807

> > Cell: 613-202-0204

> > ID: zaviem

> > _____

> >

> > From: <%40> [mailto:

> > <%40>] On Behalf Of

> > sassysus06

> > Sent: July 8, 2007 9:57 AM

> > <%40>

> > Subject: [ ] Re: ssdisablility

> >

> >

> > Hi

> >

> > I have been on disability for about 1 1/2 years now due to my CML. I

> > did not have a problem getting disability-but apparently is depends

> > some on where you live.

> > All the best.

> >

> >

> > >

> > > Dear Group,

> > >

> > > I was approved for disablilty last year. It was not a long process

> > for me but I have heard this was an exception. I was approved

> > because of CML and liver function failure due to Gleevec (function

> > has returned and I am now on Sprycel and doing well. The interview

> > was done over the phone and the Doctor had to send in a report. It

> > took a couple months and then I was approved on the first try. I

> > have heard you may have to apply several times. I understand I will

> > probably have to be reviewed in the future. I hope they don't take

> > it away from me because I am feeling much better. Maybe they

> > approved it becauce I am 61 and close to getting SS.

> > > Any other questions don't hesitate to ask.

> > > carolyn_kuptz@...

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > ______________

> > > Need a vacation? Get great deals

> > > to amazing places on Travel.

> > > http://travel. <http://travel./> /

> > >

> > >

[Guest guest]

Therese,

I am on Social Security Disability. I got retro pay back to Dec of 05. Like

I said Aetna took it but I do understand their reasoning, even though I do

not like it..lol. If I am wrong someone please correct me, but in my case I

had a six month waiting period and at least one unsuccessful attempt to go

back to work.(I am not sure if that is mandatory or not) As I mentioned it

is sad but a fact it might take a while to get SSD because if your in

remission the people looking at your claim at first see " remission " and do

not take anything else into account and move it along the appeal process. In

my case it was at the hearing stage but the judge signed off on it without

me having to go to court. Hope this info helps if you need more feel free to

contact me via email as well as within the group:)

Terry

On 7/8/07, Therese Stone <kidme2003@...> wrote:

>

> Hey Terry:

>

> Are you on SSI or Social Security Disability? I haven't heard of any type

> of a retro check back to my disability date. It would sure help me right now

> to financially get through this. I didn't qualify for my company disability

> due to a pre-existing condition clause. Thanks

>

> Therese

>

> Terry Dailey <terrydailey@... <terrydailey%40gmail.com>> wrote: Oh I

> also forgot to mention the $27,000 I received from SS as back

> pay...Aetna took all of it but $300 because of the fact they were paying

> me

> Long term disability because it was a benefit from my former job. And in

> their agreement they only have to make partial payments if I have other

> income. So they took the money since if SS would have been paying me what

> they do now they would have not had to make the full payments.

> So now I get my SS check and a partial check from Aetna to make the amount

> each month that Aetna was contracted to pay me. So it sucked big time to

> not

> get that back money because I really wanted to purchase a home.

>

> Terry

>

> On 7/8/07, Terry Dailey <terrydailey@... <terrydailey%40gmail.com>>

> wrote:

> >

> > It took me about 3 years to get SS disability. I had a desk job, but due

> > to fatigue,bone pain, and my loss of concentration ability I was unable

> to

> > function as a credit card fraud investigator, and honestly cannot stand

> for

> > long periods of time. I use to be a vocalist and played rock music but I

> > really do not even have the energy level for that.

> >

> > Allsup Inc. was hired by Aetna to get disabiltiy for me(They did not

> want

> > to have to pay the full amount they were contracted to pay me until

> 2031)

> > and what they explained to me is that the first atempts go across

> peoples

> > desk that are basically paper pushers and when they see " remission " they

> > dismiss the claim without bothering to look at the fact I can't work due

> to

> > side effects of the medication that keeps me alive. But once it went

> before

> > a judge he signed off on it and I am to be reviewed in a year. I am not

> > concerned because my condition has not worsened or improved since 04 and

> so

> > I do not see how things will change(unless I win the lottery..lol) Trust

> me

> > when I say I would much rather be able to work. I was making twice as

> much

> > money, and loved my job.

> >

> > On the subject of the person that is doing all this training to climb a

> > mountain...becareful if they catch you doing something like that they

> will

> > yank your disability faster than congressman can change his mind on an

> > issue..lol.

> >

> > Terry

> >

> >

> > On 7/8/07, Zavie miller <zmiller@... <zmiller%40sympatico.ca>>

> wrote:

> > >

> > > Hi ne,

> > >

> > > Could you explain how your CML manifests itself to the point that you

> > > cannot

> > > work and have to go on social security?

> > >

> > > I am puzzled because you are currently training and planning to climb

> > > Mt.

> > > Kilimanjaro later this year. You must be in excellent physical shape.

> > >

> > > Zavie

> > >

> > > Zavie (age 69)

> > > 67 Shoreham Avenue

> > > Ottawa, Canada, K2G 3X3

> > > dxd AUG/99

> > > INF OCT/99 to FEB/00, CHF

> > > No meds FEB/00 to JAN/01

> > > Gleevec since MAR/27/01 (400 mg)

> > > CCR SEP/01. #102 in Zero Club

> > > 2.8 log reduction Sep/05

> > > 3.0 log reduction Jan/06

> > > 2.9 log reduction Feb/07

> > > e-mail: zmiller@... <zmiller%40sympatico.ca><zmiller%40sympatic

> o.ca>

> > > Tel: 613-726-1117

> > > Fax: 309-296-0807

> > > Cell: 613-202-0204

> > > ID: zaviem

> > > _____

> > >

> > > From:

<%40><%40> [mailto:

> > > <%40><%40>] On

Behalf Of

> > > sassysus06

> > > Sent: July 8, 2007 9:57 AM

> > > <%40><%40>

> > > Subject: [ ] Re: ssdisablility

> > >

> > >

> > > Hi

> > >

> > > I have been on disability for about 1 1/2 years now due to my CML. I

> > > did not have a problem getting disability-but apparently is depends

> > > some on where you live.

> > > All the best.

> > >

> > >

> > > >

> > > > Dear Group,

> > > >

> > > > I was approved for disablilty last year. It was not a long process

> > > for me but I have heard this was an exception. I was approved

> > > because of CML and liver function failure due to Gleevec (function

> > > has returned and I am now on Sprycel and doing well. The interview

> > > was done over the phone and the Doctor had to send in a report. It

> > > took a couple months and then I was approved on the first try. I

> > > have heard you may have to apply several times. I understand I will

> > > probably have to be reviewed in the future. I hope they don't take

> > > it away from me because I am feeling much better. Maybe they

> > > approved it becauce I am 61 and close to getting SS.

> > > > Any other questions don't hesitate to ask.

> > > > carolyn_kuptz@...

> > > >

> > > >

> > > >

> > > >

> > > __________________________________________________________

> > > ______________

> > > > Need a vacation? Get great deals

> > > > to amazing places on Travel.

> > > > http://travel. <http://travel./> /

> > > >

> > > >

[Guest guest]

Hey Terry:

I have been approved for Social Security Disability. I was told at the hospital

by the staff that helped me that it is all in how you word your application.

That is what the attorneys are getting the big money for doing the reapplication

process for those who are turned down.

Social Security is a Federal program isn't it? I am going to go read the info I

got from them. It would be nice to see a check dated back to when I had to go

out of work. Thanks for the info. Take care.

Therese

Terry Dailey <terrydailey@...> wrote:

Therese,

I am on Social Security Disability. I got retro pay back to Dec of 05. Like

I said Aetna took it but I do understand their reasoning, even though I do

not like it..lol. If I am wrong someone please correct me, but in my case I

had a six month waiting period and at least one unsuccessful attempt to go

back to work.(I am not sure if that is mandatory or not) As I mentioned it

is sad but a fact it might take a while to get SSD because if your in

remission the people looking at your claim at first see " remission " and do

not take anything else into account and move it along the appeal process. In

my case it was at the hearing stage but the judge signed off on it without

me having to go to court. Hope this info helps if you need more feel free to

contact me via email as well as within the group:)

Terry

On 7/8/07, Therese Stone <kidme2003@...> wrote:

>

> Hey Terry:

>

> Are you on SSI or Social Security Disability? I haven't heard of any type

> of a retro check back to my disability date. It would sure help me right now

> to financially get through this. I didn't qualify for my company disability

> due to a pre-existing condition clause. Thanks

>

> Therese

>

> Terry Dailey <terrydailey@... <terrydailey%40gmail.com>> wrote: Oh I

> also forgot to mention the $27,000 I received from SS as back

> pay...Aetna took all of it but $300 because of the fact they were paying

> me

> Long term disability because it was a benefit from my former job. And in

> their agreement they only have to make partial payments if I have other

> income. So they took the money since if SS would have been paying me what

> they do now they would have not had to make the full payments.

> So now I get my SS check and a partial check from Aetna to make the amount

> each month that Aetna was contracted to pay me. So it sucked big time to

> not

> get that back money because I really wanted to purchase a home.

>

> Terry

>

> On 7/8/07, Terry Dailey <terrydailey@... <terrydailey%40gmail.com>>

> wrote:

> >

> > It took me about 3 years to get SS disability. I had a desk job, but due

> > to fatigue,bone pain, and my loss of concentration ability I was unable

> to

> > function as a credit card fraud investigator, and honestly cannot stand

> for

> > long periods of time. I use to be a vocalist and played rock music but I

> > really do not even have the energy level for that.

> >

> > Allsup Inc. was hired by Aetna to get disabiltiy for me(They did not

> want

> > to have to pay the full amount they were contracted to pay me until

> 2031)

> > and what they explained to me is that the first atempts go across

> peoples

> > desk that are basically paper pushers and when they see " remission " they

> > dismiss the claim without bothering to look at the fact I can't work due

> to

> > side effects of the medication that keeps me alive. But once it went

> before

> > a judge he signed off on it and I am to be reviewed in a year. I am not

> > concerned because my condition has not worsened or improved since 04 and

> so

> > I do not see how things will change(unless I win the lottery..lol) Trust

> me

> > when I say I would much rather be able to work. I was making twice as

> much

> > money, and loved my job.

> >

> > On the subject of the person that is doing all this training to climb a

> > mountain...becareful if they catch you doing something like that they

> will

> > yank your disability faster than congressman can change his mind on an

> > issue..lol.

> >

> > Terry

> >

> >

> > On 7/8/07, Zavie miller <zmiller@... <zmiller%40sympatico.ca>>

> wrote:

> > >

> > > Hi ne,

> > >

> > > Could you explain how your CML manifests itself to the point that you

> > > cannot

> > > work and have to go on social security?

> > >

> > > I am puzzled because you are currently training and planning to climb

> > > Mt.

> > > Kilimanjaro later this year. You must be in excellent physical shape.

> > >

> > > Zavie

> > >

> > > Zavie (age 69)

> > > 67 Shoreham Avenue

> > > Ottawa, Canada, K2G 3X3

> > > dxd AUG/99

> > > INF OCT/99 to FEB/00, CHF

> > > No meds FEB/00 to JAN/01

> > > Gleevec since MAR/27/01 (400 mg)

> > > CCR SEP/01. #102 in Zero Club

> > > 2.8 log reduction Sep/05

> > > 3.0 log reduction Jan/06

> > > 2.9 log reduction Feb/07

> > > e-mail: zmiller@... <zmiller%40sympatico.ca><zmiller%40sympatic

> o.ca>

> > > Tel: 613-726-1117

> > > Fax: 309-296-0807

> > > Cell: 613-202-0204

> > > ID: zaviem

> > > _____

> > >

> > > From:

<%40><%40> [mailto:

> > > <%40><%40>] On

Behalf Of

> > > sassysus06

> > > Sent: July 8, 2007 9:57 AM

> > > <%40><%40>

> > > Subject: [ ] Re: ssdisablility

> > >

> > >

> > > Hi

> > >

> > > I have been on disability for about 1 1/2 years now due to my CML. I

> > > did not have a problem getting disability-but apparently is depends

> > > some on where you live.

> > > All the best.

> > >

> > >

> > > >

> > > > Dear Group,

> > > >

> > > > I was approved for disablilty last year. It was not a long process

> > > for me but I have heard this was an exception. I was approved

> > > because of CML and liver function failure due to Gleevec (function

> > > has returned and I am now on Sprycel and doing well. The interview

> > > was done over the phone and the Doctor had to send in a report. It

> > > took a couple months and then I was approved on the first try. I

> > > have heard you may have to apply several times. I understand I will

> > > probably have to be reviewed in the future. I hope they don't take

> > > it away from me because I am feeling much better. Maybe they

> > > approved it becauce I am 61 and close to getting SS.

> > > > Any other questions don't hesitate to ask.

> > > > carolyn_kuptz@...

> > > >

> > > >

> > > >

> > > >

> > > __________________________________________________________

> > > ______________

> > > > Need a vacation? Get great deals

> > > > to amazing places on Travel.

> > > > http://travel. <http://travel./> /

> > > >

> > > >

[Guest guest]

Therese,

Your absolutely right it is a federal program and in fact everyone that

works and is not paid under the table pays into it, so for those of us that

need it, we should be able to get it. Your also right about it is how things

are worded. You should receive retro pay, as I said in my case they went

back to Dec of 05. But I only saw $300 of it. It was cool having 27 grand in

my account for one day though..rotfl

Terry

On 7/8/07, Therese Stone <kidme2003@...> wrote:

>

> Hey Terry:

>

> I have been approved for Social Security Disability. I was told at the

> hospital by the staff that helped me that it is all in how you word your

> application. That is what the attorneys are getting the big money for doing

> the reapplication process for those who are turned down.

>

> Social Security is a Federal program isn't it? I am going to go read the

> info I got from them. It would be nice to see a check dated back to when I

> had to go out of work. Thanks for the info. Take care.

>

> Therese

>

> Terry Dailey <terrydailey@... <terrydailey%40gmail.com>> wrote:

> Therese,

> I am on Social Security Disability. I got retro pay back to Dec of 05.

> Like

> I said Aetna took it but I do understand their reasoning, even though I do

> not like it..lol. If I am wrong someone please correct me, but in my case

> I

> had a six month waiting period and at least one unsuccessful attempt to go

> back to work.(I am not sure if that is mandatory or not) As I mentioned it

> is sad but a fact it might take a while to get SSD because if your in

> remission the people looking at your claim at first see " remission " and do

> not take anything else into account and move it along the appeal process.

> In

> my case it was at the hearing stage but the judge signed off on it without

> me having to go to court. Hope this info helps if you need more feel free

> to

> contact me via email as well as within the group:)

>

> Terry

>

> On 7/8/07, Therese Stone <kidme2003@... <kidme2003%40>>

> wrote:

> >

> > Hey Terry:

> >

> > Are you on SSI or Social Security Disability? I haven't heard of any

> type

> > of a retro check back to my disability date. It would sure help me right

> now

> > to financially get through this. I didn't qualify for my company

> disability

> > due to a pre-existing condition clause. Thanks

> >

> > Therese

> >

> > Terry Dailey <terrydailey@... <terrydailey%40gmail.com><terrydailey%

> 40gmail.com>> wrote: Oh I

> > also forgot to mention the $27,000 I received from SS as back

> > pay...Aetna took all of it but $300 because of the fact they were paying

> > me

> > Long term disability because it was a benefit from my former job. And in

> > their agreement they only have to make partial payments if I have other

> > income. So they took the money since if SS would have been paying me

> what

> > they do now they would have not had to make the full payments.

> > So now I get my SS check and a partial check from Aetna to make the

> amount

> > each month that Aetna was contracted to pay me. So it sucked big time to

> > not

> > get that back money because I really wanted to purchase a home.

> >

> > Terry

> >

> > On 7/8/07, Terry Dailey <terrydailey@...

<terrydailey%40gmail.com><terrydailey%

> 40gmail.com>>

> > wrote:

> > >

> > > It took me about 3 years to get SS disability. I had a desk job, but

> due

> > > to fatigue,bone pain, and my loss of concentration ability I was

> unable

> > to

> > > function as a credit card fraud investigator, and honestly cannot

> stand

> > for

> > > long periods of time. I use to be a vocalist and played rock music but

> I

> > > really do not even have the energy level for that.

> > >

> > > Allsup Inc. was hired by Aetna to get disabiltiy for me(They did not

> > want

> > > to have to pay the full amount they were contracted to pay me until

> > 2031)

> > > and what they explained to me is that the first atempts go across

> > peoples

> > > desk that are basically paper pushers and when they see " remission "

> they

> > > dismiss the claim without bothering to look at the fact I can't work

> due

> > to

> > > side effects of the medication that keeps me alive. But once it went

> > before

> > > a judge he signed off on it and I am to be reviewed in a year. I am

> not

> > > concerned because my condition has not worsened or improved since 04

> and

> > so

> > > I do not see how things will change(unless I win the lottery..lol)

> Trust

> > me

> > > when I say I would much rather be able to work. I was making twice as

> > much

> > > money, and loved my job.

> > >

> > > On the subject of the person that is doing all this training to climb

> a

> > > mountain...becareful if they catch you doing something like that they

> > will

> > > yank your disability faster than congressman can change his mind on an

> > > issue..lol.

> > >

> > > Terry

> > >

> > >

> > > On 7/8/07, Zavie miller <zmiller@...

<zmiller%40sympatico.ca><zmiller%40sympatic

> o.ca>>

> > wrote:

> > > >

> > > > Hi ne,

> > > >

> > > > Could you explain how your CML manifests itself to the point that

> you

> > > > cannot

> > > > work and have to go on social security?

> > > >

> > > > I am puzzled because you are currently training and planning to

> climb

> > > > Mt.

> > > > Kilimanjaro later this year. You must be in excellent physical

> shape.

> > > >

> > > > Zavie

> > > >

> > > > Zavie (age 69)

> > > > 67 Shoreham Avenue

> > > > Ottawa, Canada, K2G 3X3

> > > > dxd AUG/99

> > > > INF OCT/99 to FEB/00, CHF

> > > > No meds FEB/00 to JAN/01

> > > > Gleevec since MAR/27/01 (400 mg)

> > > > CCR SEP/01. #102 in Zero Club

> > > > 2.8 log reduction Sep/05

> > > > 3.0 log reduction Jan/06

> > > > 2.9 log reduction Feb/07

> > > > e-mail: zmiller@... <zmiller%40sympatico.ca><zmiller%40sympatic

> o.ca><zmiller%40sympatic

> > o.ca>

> > > > Tel: 613-726-1117

> > > > Fax: 309-296-0807

> > > > Cell: 613-202-0204

> > > > ID: zaviem

> > > > _____

> > > >

> > > > From:

<%40><%40><%40>

[mailto:

> > > >

<%40><%40><%40>] On

Behalf Of

> > > > sassysus06

> > > > Sent: July 8, 2007 9:57 AM

> > > >

<%40><%40><%40>

> > > > Subject: [ ] Re: ssdisablility

> > > >

> > > >

> > > > Hi

> > > >

> > > > I have been on disability for about 1 1/2 years now due to my CML. I

> > > > did not have a problem getting disability-but apparently is depends

> > > > some on where you live.

> > > > All the best.

> > > >

> > > >

> > > > >

> > > > > Dear Group,

> > > > >

> > > > > I was approved for disablilty last year. It was not a long process

> > > > for me but I have heard this was an exception. I was approved

> > > > because of CML and liver function failure due to Gleevec (function

> > > > has returned and I am now on Sprycel and doing well. The interview

> > > > was done over the phone and the Doctor had to send in a report. It

> > > > took a couple months and then I was approved on the first try. I

> > > > have heard you may have to apply several times. I understand I will

> > > > probably have to be reviewed in the future. I hope they don't take

> > > > it away from me because I am feeling much better. Maybe they

> > > > approved it becauce I am 61 and close to getting SS.

> > > > > Any other questions don't hesitate to ask.

> > > > > carolyn_kuptz@...

> > > > >

> > > > >

> > > > >

> > > > >

> > > > __________________________________________________________

> > > > ______________

> > > > > Need a vacation? Get great deals

> > > > > to amazing places on Travel.

> > > > > http://travel. <http://travel./> /

> > > > >

> > > > >

[Guest guest]

Zavie:

I do not need to explain to you or anyone else why I am on disability

as it is between me, my doctor and disability. The fact that I am

training to climb mount kilimanjaro -for the CML Society- and I am on

disability is also none of your concern Zavie. You do not know the

type of work that I do, or my situation. Once again, as in the past

Zavie, you speak about others without thought for them or what others

may think when reading your posts. This post was not directed to you,

it was to the person inquiring about SSI/Disability.

I do not ask the personal issues of people that have CML and how

their CML manifests unless they want to offer that information. I

suggest you do the same and mind your own CML not mine.

> >

> > Dear Group,

> >

> > I was approved for disablilty last year. It was not a long

process

> for me but I have heard this was an exception. I was approved

> because of CML and liver function failure due to Gleevec (function

> has returned and I am now on Sprycel and doing well. The interview

> was done over the phone and the Doctor had to send in a report. It

> took a couple months and then I was approved on the first try. I

> have heard you may have to apply several times. I understand I will

> probably have to be reviewed in the future. I hope they don't take

> it away from me because I am feeling much better. Maybe they

> approved it becauce I am 61 and close to getting SS.

> > Any other questions don't hesitate to ask.

> > carolyn_kuptz@

> >

> >

> >

> >

> __________________________________________________________

> ______________

> > Need a vacation? Get great deals

> > to amazing places on Travel.

> > http://travel. <http://travel./> /

> >

> >

[Guest guest]

Theresa

Unfortunately once again this is a case of someone speaking

aboutsomething they know nothing about. My trip is being funded

through family and friends-this is a trip to raise awareness for

CML. My being on disability has nothing to do with this, and

unfortunately as in the past this person just wants to cause trouble

for others. Sorry you have been misinformed. I have not taken

advantage of the system, whether you believe th

at or not.[

> >

> > Dear Group,

> >

> > I was approved for disablilty last year. It was not a long

process

> for me but I have heard this was an exception. I was approved

> because of CML and liver function failure due to Gleevec (function

> has returned and I am now on Sprycel and doing well. The

interview

> was done over the phone and the Doctor had to send in a report.

It

> took a couple months and then I was approved on the first try. I

> have heard you may have to apply several times. I understand I

will

> probably have to be reviewed in the future. I hope they don't

take

> it away from me because I am feeling much better. Maybe they

> approved it becauce I am 61 and close to getting SS.

> > Any other questions don't hesitate to ask.

> > carolyn_kuptz@

> >

> >

> >

> >

> __________________________________________________________

> ______________

> > Need a vacation? Get great deals

> > to amazing places on Travel.

> > http://travel./

> >

> >

[Guest guest]

Terry:

Yeah, I would love to see that figure in my bank account right now! Hang in

there. I started to panic, a couple of months ago when I realized I was taking

the year off to do this BMT with no income. A good friend of mine told me that

it would be ok and things would work out. She was right. I have had doors open

and angels fly in. As hard as this has been, I feel like I am getting my life

back. I spent too many years suffering from the effects of Gleevec and Sprycel

used to treat my CML. I hope I chose the right path. Only time will tell. So

far, no regrets. You have my best wishes and prayers.

Therese

Terry Dailey <terrydailey@...> wrote:

Therese,

Your absolutely right it is a federal program and in fact everyone that

works and is not paid under the table pays into it, so for those of us that

need it, we should be able to get it. Your also right about it is how things

are worded. You should receive retro pay, as I said in my case they went

back to Dec of 05. But I only saw $300 of it. It was cool having 27 grand in

my account for one day though..rotfl

Terry

On 7/8/07, Therese Stone <kidme2003@...> wrote:

>

> Hey Terry:

>

> I have been approved for Social Security Disability. I was told at the

> hospital by the staff that helped me that it is all in how you word your

> application. That is what the attorneys are getting the big money for doing

> the reapplication process for those who are turned down.

>

> Social Security is a Federal program isn't it? I am going to go read the

> info I got from them. It would be nice to see a check dated back to when I

> had to go out of work. Thanks for the info. Take care.

>

> Therese

>

> Terry Dailey <terrydailey@... <terrydailey%40gmail.com>> wrote:

> Therese,

> I am on Social Security Disability. I got retro pay back to Dec of 05.

> Like

> I said Aetna took it but I do understand their reasoning, even though I do

> not like it..lol. If I am wrong someone please correct me, but in my case

> I

> had a six month waiting period and at least one unsuccessful attempt to go

> back to work.(I am not sure if that is mandatory or not) As I mentioned it

> is sad but a fact it might take a while to get SSD because if your in

> remission the people looking at your claim at first see " remission " and do

> not take anything else into account and move it along the appeal process.

> In

> my case it was at the hearing stage but the judge signed off on it without

> me having to go to court. Hope this info helps if you need more feel free

> to

> contact me via email as well as within the group:)

>

> Terry

>

> On 7/8/07, Therese Stone <kidme2003@... <kidme2003%40>>

> wrote:

> >

> > Hey Terry:

> >

> > Are you on SSI or Social Security Disability? I haven't heard of any

> type

> > of a retro check back to my disability date. It would sure help me right

> now

> > to financially get through this. I didn't qualify for my company

> disability

> > due to a pre-existing condition clause. Thanks

> >

> > Therese

> >

> > Terry Dailey <terrydailey@... <terrydailey%40gmail.com><terrydailey%

> 40gmail.com>> wrote: Oh I

> > also forgot to mention the $27,000 I received from SS as back

> > pay...Aetna took all of it but $300 because of the fact they were paying

> > me

> > Long term disability because it was a benefit from my former job. And in

> > their agreement they only have to make partial payments if I have other

> > income. So they took the money since if SS would have been paying me

> what

> > they do now they would have not had to make the full payments.

> > So now I get my SS check and a partial check from Aetna to make the

> amount

> > each month that Aetna was contracted to pay me. So it sucked big time to

> > not

> > get that back money because I really wanted to purchase a home.

> >

> > Terry

> >

> > On 7/8/07, Terry Dailey <terrydailey@...

<terrydailey%40gmail.com><terrydailey%

> 40gmail.com>>

> > wrote:

> > >

> > > It took me about 3 years to get SS disability. I had a desk job, but

> due

> > > to fatigue,bone pain, and my loss of concentration ability I was

> unable

> > to

> > > function as a credit card fraud investigator, and honestly cannot

> stand

> > for

> > > long periods of time. I use to be a vocalist and played rock music but

> I

> > > really do not even have the energy level for that.

> > >

> > > Allsup Inc. was hired by Aetna to get disabiltiy for me(They did not

> > want

> > > to have to pay the full amount they were contracted to pay me until

> > 2031)

> > > and what they explained to me is that the first atempts go across

> > peoples

> > > desk that are basically paper pushers and when they see " remission "

> they

> > > dismiss the claim without bothering to look at the fact I can't work

> due

> > to

> > > side effects of the medication that keeps me alive. But once it went

> > before

> > > a judge he signed off on it and I am to be reviewed in a year. I am

> not

> > > concerned because my condition has not worsened or improved since 04

> and

> > so

> > > I do not see how things will change(unless I win the lottery..lol)

> Trust

> > me

> > > when I say I would much rather be able to work. I was making twice as

> > much

> > > money, and loved my job.

> > >

> > > On the subject of the person that is doing all this training to climb

> a

> > > mountain...becareful if they catch you doing something like that they

> > will

> > > yank your disability faster than congressman can change his mind on an

> > > issue..lol.

> > >

> > > Terry

> > >

> > >

> > > On 7/8/07, Zavie miller <zmiller@...

<zmiller%40sympatico.ca><zmiller%40sympatic

> o.ca>>

> > wrote:

> > > >

> > > > Hi ne,

> > > >

> > > > Could you explain how your CML manifests itself to the point that

> you

> > > > cannot

> > > > work and have to go on social security?

> > > >

> > > > I am puzzled because you are currently training and planning to

> climb

> > > > Mt.

> > > > Kilimanjaro later this year. You must be in excellent physical

> shape.

> > > >

> > > > Zavie

> > > >

> > > > Zavie (age 69)

> > > > 67 Shoreham Avenue

> > > > Ottawa, Canada, K2G 3X3

> > > > dxd AUG/99

> > > > INF OCT/99 to FEB/00, CHF

> > > > No meds FEB/00 to JAN/01

> > > > Gleevec since MAR/27/01 (400 mg)

> > > > CCR SEP/01. #102 in Zero Club

> > > > 2.8 log reduction Sep/05

> > > > 3.0 log reduction Jan/06

> > > > 2.9 log reduction Feb/07

> > > > e-mail: zmiller@...

<zmiller%40sympatico.ca><zmiller%40sympatic

> o.ca><zmiller%40sympatic

> > o.ca>

> > > > Tel: 613-726-1117

> > > > Fax: 309-296-0807

> > > > Cell: 613-202-0204

> > > > ID: zaviem

> > > > _____

> > > >

> > > > From:

<%40><%40><%40>

[mailto:

> > > >

<%40><%40><%40>] On

Behalf Of

> > > > sassysus06

> > > > Sent: July 8, 2007 9:57 AM

> > > >

<%40><%40><%40>

> > > > Subject: [ ] Re: ssdisablility

> > > >

> > > >

> > > > Hi

> > > >

> > > > I have been on disability for about 1 1/2 years now due to my CML. I

> > > > did not have a problem getting disability-but apparently is depends

> > > > some on where you live.

> > > > All the best.

> > > >

> > > >

> > > > >

> > > > > Dear Group,

> > > > >

> > > > > I was approved for disablilty last year. It was not a long process

> > > > for me but I have heard this was an exception. I was approved

> > > > because of CML and liver function failure due to Gleevec (function

> > > > has returned and I am now on Sprycel and doing well. The interview

> > > > was done over the phone and the Doctor had to send in a report. It

> > > > took a couple months and then I was approved on the first try. I

> > > > have heard you may have to apply several times. I understand I will

> > > > probably have to be reviewed in the future. I hope they don't take

> > > > it away from me because I am feeling much better. Maybe they

> > > > approved it becauce I am 61 and close to getting SS.

> > > > > Any other questions don't hesitate to ask.

> > > > > carolyn_kuptz@...

> > > > >

> > > > >

> > > > >

> > > > >

> > > > __________________________________________________________

> > > > ______________

> > > > > Need a vacation? Get great deals

> > > > > to amazing places on Travel.

> > > > > http://travel. <http://travel./> /

> > > > >

> > > > >

[Guest guest]

Hello!

I am more of a lurker on here but have a SSD question.. I am on to

transplant at the end of this month, and have been hassling with

disability since last october.. Well i talked to my case worker

today, and she said that she had a made a decision but had sent it

off to make sure she had made the right one (she wouldn't tell me

what was decided)... Well anyways i got a check in the mail from

them today, but have yet to recieve an approval letter.. Has any one

had this happen to them?? I'm holding on to the check until i know

for sure what is going on! Thanks in advance!

gill

> >

> > sassysus06 <no_reply >

> wrote:

> > Hi

> >

> > I have been on disability for about 1 1/2 years now due to my

> CML. I

> > did not have a problem getting disability-but apparently is

> depends

> > some on where you live.

> > All the best.

> >

> > --- In , carolyn kuptz <carolyn_kuptz@>

wrote:

> > >

> > > Dear Group,

> > >

> > > I was approved for disablilty last year. It was not a long

> process

> > for me but I have heard this was an exception. I was approved

> > because of CML and liver function failure due to Gleevec

(function

> > has returned and I am now on Sprycel and doing well. The

> interview

> > was done over the phone and the Doctor had to send in a

report.

> It

> > took a couple months and then I was approved on the first

try. I

> > have heard you may have to apply several times. I understand I

> will

> > probably have to be reviewed in the future. I hope they don't

> take

> > it away from me because I am feeling much better. Maybe they

> > approved it becauce I am 61 and close to getting SS.

> > > Any other questions don't hesitate to ask.

> > > carolyn_kuptz@

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > ______________

> > > Need a vacation? Get great deals

> > > to amazing places on Travel.

> > > http://travel./

> > >

> > >

[Guest guest]

I think it is very unfortunate when people make maligning remarks in regard to a

situation they know nothing about. It is even more unfortunate when they

convince others to have the same mind set. As was mentioned in previous posts,

none of us know all the circumstances of anothers life and it is not fair to

pass judgement. I think we have enough to worry about with a CML diagnosis and

all that it brings without worrying about if someone else is getting or doing

something we are not.

Let's be positive and support each other in all our endeavours.

Coralee

On Mon, 09 Jul 2007 18:24:17 -0000, sassysus06 <no_reply > wrote:

>

>

> Theresa

>

> Unfortunately once again this is a case of someone speaking

> aboutsomething they know nothing about. My trip is being funded

> through family and friends-this is a trip to raise awareness for

> CML. My being on disability has nothing to do with this, and

> unfortunately as in the past this person just wants to cause trouble

> for others. Sorry you have been misinformed. I have not taken

> advantage of the system, whether you believe th

>

>

> at or not.[

>> >

>> > Dear Group,

>> >

>> > I was approved for disablilty last year. It was not a long

> process

>> for me but I have heard this was an exception. I was approved

>> because of CML and liver function failure due to Gleevec (function

>> has returned and I am now on Sprycel and doing well. The

> interview

>> was done over the phone and the Doctor had to send in a report.

> It

>> took a couple months and then I was approved on the first try. I

>> have heard you may have to apply several times. I understand I

> will

>> probably have to be reviewed in the future. I hope they don't

> take

>> it away from me because I am feeling much better. Maybe they

>> approved it becauce I am 61 and close to getting SS.

>> > Any other questions don't hesitate to ask.

>> > carolyn_kuptz@

>> >

>> >

>> >

>> >

>> __________________________________________________________

>> ______________

>> > Need a vacation? Get great deals

>> > to amazing places on Travel.

>> > http://travel./

>> >

>> >

[Guest guest]

I usually look forward to this group to get solid information about CML and it's

treatment. Lately it's become a chat line. I'm not interested in reading

personal opinions or maligning remarks about others.

What is the purpose of the group? Since we are all coping with the same

disease, don't we need more serious deliberation about our health and wellness?

Not interested in bickering,

Margaret

coralee.williams@... wrote:

I think it is very unfortunate when people make maligning remarks in

regard to a situation they know nothing about. It is even more unfortunate when

they convince others to have the same mind set. As was mentioned in previous

posts, none of us know all the circumstances of anothers life and it is not fair

to pass judgement. I think we have enough to worry about with a CML diagnosis

and all that it brings without worrying about if someone else is getting or

doing something we are not.

Let's be positive and support each other in all our endeavours.

Coralee

On Mon, 09 Jul 2007 18:24:17 -0000, sassysus06 <no_reply > wrote:

>

>

> Theresa

>

> Unfortunately once again this is a case of someone speaking

> aboutsomething they know nothing about. My trip is being funded

> through family and friends-this is a trip to raise awareness for

> CML. My being on disability has nothing to do with this, and

> unfortunately as in the past this person just wants to cause trouble

> for others. Sorry you have been misinformed. I have not taken

> advantage of the system, whether you believe th

>

>

> at or not.[

>> >

>> > Dear Group,

>> >

>> > I was approved for disablilty last year. It was not a long

> process

>> for me but I have heard this was an exception. I was approved

>> because of CML and liver function failure due to Gleevec (function

>> has returned and I am now on Sprycel and doing well. The

> interview

>> was done over the phone and the Doctor had to send in a report.

> It

>> took a couple months and then I was approved on the first try. I

>> have heard you may have to apply several times. I understand I

> will

>> probably have to be reviewed in the future. I hope they don't

> take

>> it away from me because I am feeling much better. Maybe they

>> approved it becauce I am 61 and close to getting SS.

>> > Any other questions don't hesitate to ask.

>> > carolyn_kuptz@

>> >

>> >

>> >

>> >

>> __________________________________________________________

>> ______________

>> > Need a vacation? Get great deals

>> > to amazing places on Travel.

>> > http://travel./

>> >

>> >

[Guest guest]

Gill:

I got someone elses Social Security letter in my mail last week. Unfortunately

it wasn't yours! I sent it back to the Social Security Office. You can call

the main number for Social Security and they should be able to confirm your

status. The letter was probably sent elsewhere like the one I received.

I am curious about your BMT. I am 150 days post transplant. I went to

transplant because Gleevec and Sprycel were no longer working to stop the CML.

Do you have a unrelated or related donor? I hope for the best for you. The

process is long so hang in there and know that your not alone.

Therese

Gilfish_15 <gilfish_15@...> wrote: Hello!

I am more of a lurker on here but have a SSD question.. I am on to

transplant at the end of this month, and have been hassling with

disability since last october.. Well i talked to my case worker

today, and she said that she had a made a decision but had sent it

off to make sure she had made the right one (she wouldn't tell me

what was decided)... Well anyways i got a check in the mail from

them today, but have yet to recieve an approval letter.. Has any one

had this happen to them?? I'm holding on to the check until i know

for sure what is going on! Thanks in advance!

gill

> >

> > sassysus06 <no_reply >

> wrote:

> > Hi

> >

> > I have been on disability for about 1 1/2 years now due to my

> CML. I

> > did not have a problem getting disability-but apparently is

> depends

> > some on where you live.

> > All the best.

> >

> >

> > >

> > > Dear Group,

> > >

> > > I was approved for disablilty last year. It was not a long

> process

> > for me but I have heard this was an exception. I was approved

> > because of CML and liver function failure due to Gleevec

(function

> > has returned and I am now on Sprycel and doing well. The

> interview

> > was done over the phone and the Doctor had to send in a

report.

> It

> > took a couple months and then I was approved on the first

try. I

> > have heard you may have to apply several times. I understand I

> will

> > probably have to be reviewed in the future. I hope they don't

> take

> > it away from me because I am feeling much better. Maybe they

> > approved it becauce I am 61 and close to getting SS.

> > > Any other questions don't hesitate to ask.

> > > carolyn_kuptz@

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > ______________

> > > Need a vacation? Get great deals

> > > to amazing places on Travel.

> > > http://travel./

> > >

> > >

[Guest guest]

Gill,

It is very possible as Therese said they screwed up.(Imagine our goverment

doing that??? rotfl) When I started the process the company that was helping

me get SSD had me give them a vioded check so my SSD payments would be

direct deposit, well I got my letter saying I should have had my payment two

days before I got the letter and after checking it turned out someone at

Social Security had left off a number on my account number..lol. So after

calling SS I sure enough they had the money returned to them from my bank

and were setting on it. So after I explained to them they had left a number

off of my account number two days later it was in my account, and then the

next day it was gone to repay Aetna. So I would do what Therese says and

give them a call. Also I am curious why you went for the BMT? Were you

resistant to the drugs available for treatment? I know my docs have ruled

out a BMT for me because the Gleevec is working great for me(aside for the

side effects) and because of the risk involved. Due to my age I have about a

50% survival rate, according to my docs. Anyway good luck with your SSD but

to me it sounds like you got it:)

On the subject of Zavie's post, I must admit I was taken aback a bit at

first by your post ne but then I realized if you looked at me and did

not know I had CML you would not think I was ill. I mean I am a bit pale and

have dark circles under my eyes, but of course my having long black hair I

am sure doesn't help..lol.

What I am saying is I understand why it might have triggered a response like

the one posted by Zavie, but at the same time I agree it is none of our

business why people are getting what we get or what we don't. Yes, there is

a person I know of that was granted SSD who never really worked a full week

in his life and is just a total drug addict. I know that is not your case

ne, so please do not think I am putting you in with the scumbags that

play the system. If your like me you were making allot more money

working...lol.

In fact I think it is cool your doing something to bring awareness and help

the CML society. But let's not be to hard on Zavie over his post. Let's just

drop it and get back to why we are all here.(or at least why I rejoined) And

that is to help each other and those new to our disease that are scared to

death and need someone to talk to and get information from.

On 7/10/07, Therese Stone <kidme2003@...> wrote:

>

> Gill:

>

> I got someone elses Social Security letter in my mail last week.

> Unfortunately it wasn't yours! I sent it back to the Social Security Office.

> You can call the main number for Social Security and they should be able to

> confirm your status. The letter was probably sent elsewhere like the one I

> received.

>

> I am curious about your BMT. I am 150 days post transplant. I went to

> transplant because Gleevec and Sprycel were no longer working to stop the

> CML. Do you have a unrelated or related donor? I hope for the best for you.

> The process is long so hang in there and know that your not alone.

>

> Therese

>

> Gilfish_15 <gilfish_15@... <gilfish_15%40>> wrote: Hello!

>

> I am more of a lurker on here but have a SSD question.. I am on to

> transplant at the end of this month, and have been hassling with

> disability since last october.. Well i talked to my case worker

> today, and she said that she had a made a decision but had sent it

> off to make sure she had made the right one (she wouldn't tell me

> what was decided)... Well anyways i got a check in the mail from

> them today, but have yet to recieve an approval letter.. Has any one

> had this happen to them?? I'm holding on to the check until i know

> for sure what is going on! Thanks in advance!

>

> gill

> > >

> > > sassysus06 <no_reply <no_reply%40>>

> > wrote:

> > > Hi

> > >

> > > I have been on disability for about 1 1/2 years now due to my

> > CML. I

> > > did not have a problem getting disability-but apparently is

> > depends

> > > some on where you live.

> > > All the best.

> > >

> > >

> > > >

> > > > Dear Group,

> > > >

> > > > I was approved for disablilty last year. It was not a long

> > process

> > > for me but I have heard this was an exception. I was approved

> > > because of CML and liver function failure due to Gleevec

> (function

> > > has returned and I am now on Sprycel and doing well. The

> > interview

> > > was done over the phone and the Doctor had to send in a

> report.

> > It

> > > took a couple months and then I was approved on the first

> try. I

> > > have heard you may have to apply several times. I understand I

> > will

> > > probably have to be reviewed in the future. I hope they don't

> > take

> > > it away from me because I am feeling much better. Maybe they

> > > approved it becauce I am 61 and close to getting SS.

> > > > Any other questions don't hesitate to ask.

> > > > carolyn_kuptz@

> > > >

> > > >

> > > >

> > > >

> > > __________________________________________________________

> > > ______________

> > > > Need a vacation? Get great deals

> > > > to amazing places on Travel.

> > > > http://travel./

> > > >

> > > >

[Guest guest]

Hey!

Thank you guys so much for your responses. OK here is my

background.. I was diagnosed at 21 with CML, and i was also pregnant

with twins.. I ended up holding of medication until the girls were

born.. I started Gleevec in Oct 05, and ended up failing it by

August 06, I ended up becoming resistant to the Gleevec.. I started

Sprycel September 06 and i fought low blood counts the whole

time,and eventually became resistant to it also.. I have been off of

Sprycel since last month.. I have all of my pre-transplant test

done, and now i am just waiting for my admit date on the 23rd of

July.. I have a perfect match with my sister! Which we are so happy

about.. So basically I have failed two medications, I am young (24

now), and have a perfect match, so i have decided that transplant is

best for me! My doctor's have given me 80% chance of survival! I

will try to keep you guys updated on everything! I actually just had

a BMB today, so i am off to rest!!

Terry why did all of your money go to Aetna? That just doesn't sound

fair to me!

Thank you so much!

gill

> > > > >

> > > > > Dear Group,

> > > > >

> > > > > I was approved for disablilty last year. It was not a long

> > > process

> > > > for me but I have heard this was an exception. I was approved

> > > > because of CML and liver function failure due to Gleevec

> > (function

> > > > has returned and I am now on Sprycel and doing well. The

> > > interview

> > > > was done over the phone and the Doctor had to send in a

> > report.

> > > It

> > > > took a couple months and then I was approved on the first

> > try. I

> > > > have heard you may have to apply several times. I understand

I

> > > will

> > > > probably have to be reviewed in the future. I hope they don't

> > > take

> > > > it away from me because I am feeling much better. Maybe they

> > > > approved it becauce I am 61 and close to getting SS.

> > > > > Any other questions don't hesitate to ask.

> > > > > carolyn_kuptz@

> > > > >

> > > > >

> > > > >

> > > > >

> > > > __________________________________________________________

> > > > ______________

> > > > > Need a vacation? Get great deals

> > > > > to amazing places on Travel.

> > > > > http://travel./

> > > > >

> > > > >

[Guest guest]

Sassy,

You mention that you were replying to the person inquiring about

SSI/Disability benefits. Are you on SSI/Disablity or Disability of

another country?

M

> > >

> > > Dear Group,

> > >

> > > I was approved for disablilty last year. It was not a long

> process

> > for me but I have heard this was an exception. I was approved

> > because of CML and liver function failure due to Gleevec

(function

> > has returned and I am now on Sprycel and doing well. The

interview

> > was done over the phone and the Doctor had to send in a report.

It

> > took a couple months and then I was approved on the first try. I

> > have heard you may have to apply several times. I understand I

will

> > probably have to be reviewed in the future. I hope they don't

take

> > it away from me because I am feeling much better. Maybe they

> > approved it becauce I am 61 and close to getting SS.

> > > Any other questions don't hesitate to ask.

> > > carolyn_kuptz@

> > >

> > >

> > >

> > >

> > __________________________________________________________

> > ______________

> > > Need a vacation? Get great deals

> > > to amazing places on Travel.

> > > http://travel. <http://travel./> /

> > >

> > >

[Guest guest]

I receive disability through CPP in Canada(government-it comes off my

pension). Why do you ask?

ne

> > > >

> > > > Dear Group,

> > > >

> > > > I was approved for disablilty last year. It was not a long

> > process

> > > for me but I have heard this was an exception. I was approved

> > > because of CML and liver function failure due to Gleevec

> (function

> > > has returned and I am now on Sprycel and doing well. The

> interview

> > > was done over the phone and the Doctor had to send in a report.

> It

> > > took a couple months and then I was approved on the first try.

I

> > > have heard you may have to apply several times. I understand I

> will

> > > probably have to be reviewed in the future. I hope they don't

> take

> > > it away from me because I am feeling much better. Maybe they

> > > approved it becauce I am 61 and close to getting SS.

> > > > Any other questions don't hesitate to ask.

> > > > carolyn_kuptz@

> > > >

> > > >

> > > >

> > > >

> > > __________________________________________________________

> > > ______________

> > > > Need a vacation? Get great deals

> > > > to amazing places on Travel.

> > > > http://travel. <http://travel./> /

> > > >

> > > >

[Guest guest]

ne,

I ask because SSI/Disablity is hard for most folks to get. It has

very strict financial guidelines to follow (low income) and the

disabled person is under constant scrutiny to see that he or she does

not have too much money. You are fortunate CPP allows for foreign

travel and to be employed.

The SSA/Disability program does allow a person to work limited hours

and still collect disability in certain cases. SSA/Disability is not

easy to qualify for most people and is meant for those who are

genuinely unable to work.

I think it unwise to tell people how easy it was for you to qualify

and then tell them you are going mountain climbing. This may be ok

for your system but it is not for ours. In the future you should let

people know you are on the Canadian system as things seem to be quite

different there.

> > > > >

> > > > > Dear Group,

> > > > >

> > > > > I was approved for disablilty last year. It was not a long

> > > process

> > > > for me but I have heard this was an exception. I was approved

> > > > because of CML and liver function failure due to Gleevec

> > (function

> > > > has returned and I am now on Sprycel and doing well. The

> > interview

> > > > was done over the phone and the Doctor had to send in a

report.

> > It

> > > > took a couple months and then I was approved on the first

try.

> I

> > > > have heard you may have to apply several times. I understand

I

> > will

> > > > probably have to be reviewed in the future. I hope they don't

> > take

> > > > it away from me because I am feeling much better. Maybe they

> > > > approved it becauce I am 61 and close to getting SS.

> > > > > Any other questions don't hesitate to ask.

> > > > > carolyn_kuptz@

> > > > >

> > > > >

> > > > >

> > > > >

> > > > __________________________________________________________

> > > > ______________

> > > > > Need a vacation? Get great deals

> > > > > to amazing places on Travel.

> > > > > http://travel. <http://travel./> /

> > > > >

> > > > >

[Guest guest]

:

While I do not feel the need to explain myself to you or anyone else

I do feel the need to clarify things so that people do not get the

wrong idea about me, which is unfortunate that some have made me feel

that I need to do this.

Firstly, I am aware that CPP and SSI/Disability are different-we are

in different countries, and I have no control over the strictness of

their policies. I do not make the policy, I am only following what I

am allowed to do. You seem to be under the impression that I am

collecting something to which I am not entitled to. This money is

coming from my pension-it is something I have paid into for many

years, and will be reduced when and if I reach the age to collect

it. I am on long-term disability from my work which is why I can

collect this-it is to substidize the long-term disability payments.

I did not say that I had an easy time qualifying and then go on to

say I am climbing a mountain. In fact I in no time have ever offered

the fact that I am climbing Mount Kili. Zavie felt the need to

mention that, after he found out that information while in Germany at

a CML meeting, and for some reason felt the need to share that on

here. Maybe you should ask Zavie how the Zero Club was reacted to at

the meeting-I am sure he would love for that information to be on

this site. Yes, I did say that I did not have a hard time

qualifying, but as I mentioned, it depends on where you live. I was

not making light of those that have had to struggle to get assistance

that they need, only trying to say that it is possible in some

instances. Unfortunately I cannot change the US way of

SSI/disability.

I am hoping like others that I will be able to return to work at some

point. It is sad that one has to justify everything that is said on

this site, and that one person's comments can cause so much hurt and

frustration.

> > > > > >

> > > > > > Dear Group,

> > > > > >

> > > > > > I was approved for disablilty last year. It was not a

long

> > > > process

> > > > > for me but I have heard this was an exception. I was

approved

> > > > > because of CML and liver function failure due to Gleevec

> > > (function

> > > > > has returned and I am now on Sprycel and doing well. The

> > > interview

> > > > > was done over the phone and the Doctor had to send in a

> report.

> > > It

> > > > > took a couple months and then I was approved on the first

> try.

> > I

> > > > > have heard you may have to apply several times. I

understand

> I

> > > will

> > > > > probably have to be reviewed in the future. I hope they

don't

> > > take

> > > > > it away from me because I am feeling much better. Maybe

they

> > > > > approved it becauce I am 61 and close to getting SS.

> > > > > > Any other questions don't hesitate to ask.

> > > > > > carolyn_kuptz@

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > __________________________________________________________

> > > > > ______________

> > > > > > Need a vacation? Get great deals

> > > > > > to amazing places on Travel.

> > > > > > http://travel. <http://travel./> /

> > > > > >

> > > > > >

[Guest guest]

ne,

The point I was trying to make; why make a statement of the ease in

obtaining disability when it has nothing to do with the problems the

person you responded to had. I am not interested in how or why you

are disabled and you have nothing to prove to me.

I also belong to most of the CML groups and have read on CML Society

site about you and the climb. There is also information in your bio

as of a member of the Board that you are currently employed. I now

understand, after your explanation that it is ok in CPP system.

You mention something about a CML meeting in Germany. Is this the

Novartis sponsored meeting? I assume you went, as you mention

something about the Zero Club. The way you word it, there seems to be

something negative was said. Since you brought this up, would you

like to share it with the rest of us?

On a positive note, I hope the Expedtion goes well, everyone is safe

and you raise lots of awareness for the CML Society.

> > > > > > >

> > > > > > > Dear Group,

> > > > > > >

> > > > > > > I was approved for disablilty last year. It was not a

> long

> > > > > process

> > > > > > for me but I have heard this was an exception. I was

> approved

> > > > > > because of CML and liver function failure due to Gleevec

> > > > (function

> > > > > > has returned and I am now on Sprycel and doing well. The

> > > > interview

> > > > > > was done over the phone and the Doctor had to send in a

> > report.

> > > > It

> > > > > > took a couple months and then I was approved on the first

> > try.

> > > I

> > > > > > have heard you may have to apply several times. I

> understand

> > I

> > > > will

> > > > > > probably have to be reviewed in the future. I hope they

> don't

> > > > take

> > > > > > it away from me because I am feeling much better. Maybe

> they

> > > > > > approved it becauce I am 61 and close to getting SS.

> > > > > > > Any other questions don't hesitate to ask.

> > > > > > > carolyn_kuptz@

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > __________________________________________________________

> > > > > > ______________

> > > > > > > Need a vacation? Get great deals

> > > > > > > to amazing places on Travel.

> > > > > > > http://travel. <http://travel./> /

> > > > > > >

> > > > > > >

[Guest guest]

Thank you, I hope the expedition goes well too, I am looking forward

to it.

> > > > > > > >

> > > > > > > > Dear Group,

> > > > > > > >

> > > > > > > > I was approved for disablilty last year. It was not a

> > long

> > > > > > process

> > > > > > > for me but I have heard this was an exception. I was

> > approved

> > > > > > > because of CML and liver function failure due to

Gleevec

> > > > > (function

> > > > > > > has returned and I am now on Sprycel and doing well.

The

> > > > > interview

> > > > > > > was done over the phone and the Doctor had to send in a

> > > report.

> > > > > It

> > > > > > > took a couple months and then I was approved on the

first

> > > try.

> > > > I

> > > > > > > have heard you may have to apply several times. I

> > understand

> > > I

> > > > > will

> > > > > > > probably have to be reviewed in the future. I hope they

> > don't

> > > > > take

> > > > > > > it away from me because I am feeling much better. Maybe

> > they

> > > > > > > approved it becauce I am 61 and close to getting SS.

> > > > > > > > Any other questions don't hesitate to ask.

> > > > > > > > carolyn_kuptz@

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

__________________________________________________________

> > > > > > > ______________

> > > > > > > > Need a vacation? Get great deals

> > > > > > > > to amazing places on Travel.

> > > > > > > > http://travel. <http://travel./> /

> > > > > > > >

> > > > > > > >

[Guest guest]

Gill,

I will keep you in my thoughts and hope that your BMT goes extremely well.

:}

[ ] Re: ssdisablility

Hey!

Thank you guys so much for your responses. OK here is my

background.. I was diagnosed at 21 with CML, and i was also pregnant

with twins.. I ended up holding of medication until the girls were

born.. I started Gleevec in Oct 05, and ended up failing it by

August 06, I ended up becoming resistant to the Gleevec.. I started

Sprycel September 06 and i fought low blood counts the whole

time,and eventually became resistant to it also.. I have been off of

Sprycel since last month.. I have all of my pre-transplant test

done, and now i am just waiting for my admit date on the 23rd of

July.. I have a perfect match with my sister! Which we are so happy

about.. So basically I have failed two medications, I am young (24

now), and have a perfect match, so i have decided that transplant is

best for me! My doctor's have given me 80% chance of survival! I

will try to keep you guys updated on everything! I actually just had

a BMB today, so i am off to rest!!

Terry why did all of your money go to Aetna? That just doesn't sound

fair to me!

Thank you so much!

gill

> > > > >

> > > > > Dear Group,

> > > > >

> > > > > I was approved for disablilty last year. It was not a long

> > > process

> > > > for me but I have heard this was an exception. I was approved

> > > > because of CML and liver function failure due to Gleevec

> > (function

> > > > has returned and I am now on Sprycel and doing well. The

> > > interview

> > > > was done over the phone and the Doctor had to send in a

> > report.

> > > It

> > > > took a couple months and then I was approved on the first

> > try. I

> > > > have heard you may have to apply several times. I understand

I

> > > will

> > > > probably have to be reviewed in the future. I hope they don't

> > > take

> > > > it away from me because I am feeling much better. Maybe they

> > > > approved it becauce I am 61 and close to getting SS.

> > > > > Any other questions don't hesitate to ask.

> > > > > carolyn_kuptz@

> > > > >

> > > > >

> > > > >

> > > > >

> > > > ____________ _________ _________ _________ _________ _________ _

> > > > ____________ __

> > > > > Need a vacation? Get great deals

> > > > > to amazing places on Travel.

> > > > > http://travel. /

> > > > >

> > > > >