Guest guest Posted November 24, 2000 Report Share Posted November 24, 2000 , they do, they get a ton!!! People are told the vaccines are SAFE and the parents don't question it. At 02:22 PM 11/24/00 -0500, you wrote: >http://www.centerwatch.com/patient/studies/cat372.html (links are provided >for each state at the above web site) > >Clinical Trials: Vaccines > > >Arizona >Mesa; Mesa Center for Clinical Research (MCCR) >Are you or a loved one interested in participating in a clinical trial for >Vaccines? > >Phoenix; Phoenix Center for Clinical Research (PCCR) >Are you or a loved one interested in participating in a clinical trial for >Vaccines? > >California >San Francisco; ViRx, Inc. >Experimental Tetanus/Diphtheria Booster Vaccine Study > >Illinois >Chicago; Chicago Center for Clinical Research (CCCR) >Are you or a loved one interested in participating in a clinical trial for >Vaccines? > >Texas >San ; San Center for Clinical Research (SACCR) >Are you or a loved one interested in participating in a clinical trial for >Vaccines? > > >I sure hope they don't get many volunteers. > > >___________________________________________________________________________ __________ >Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2000 Report Share Posted November 24, 2000 , I had no idea people were so willing to volunteer for these things. Maybe those living in the areas mentioned can write a letter to the editor of their local newspaper with some basic vaccine information. It may not thwart the efforts of the vaccine trials, but may save at least one child from being offered up. Just a thought. >From: <moira@...> >Reply-Vaccinationsegroups >Vaccinationsegroups >Subject: Re: vaccine trials >Date: Fri, 24 Nov 2000 11:30:30 -0800 > >, they do, they get a ton!!! > >People are told the vaccines are SAFE and the parents don't question it. > >At 02:22 PM 11/24/00 -0500, you wrote: > >http://www.centerwatch.com/patient/studies/cat372.html (links are >provided > >for each state at the above web site) > > > >Clinical Trials: Vaccines > > > > > >Arizona > >Mesa; Mesa Center for Clinical Research (MCCR) > >Are you or a loved one interested in participating in a clinical trial >for > >Vaccines? > > > >Phoenix; Phoenix Center for Clinical Research (PCCR) > >Are you or a loved one interested in participating in a clinical trial >for > >Vaccines? > > > >California > >San Francisco; ViRx, Inc. > >Experimental Tetanus/Diphtheria Booster Vaccine Study > > > >Illinois > >Chicago; Chicago Center for Clinical Research (CCCR) > >Are you or a loved one interested in participating in a clinical trial >for > >Vaccines? > > > >Texas > >San ; San Center for Clinical Research (SACCR) > >Are you or a loved one interested in participating in a clinical trial >for > >Vaccines? > > > > > >I sure hope they don't get many volunteers. > > > > > >___________________________________________________________________________ >__________ > >Get more from the Web. FREE MSN Explorer download : >http://explorer.msn.com > > > > > > > > > > > > > ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 I wonder if they will let the 'volunteers' know that they will be hiv positive after taking the vaccine... I doubt it... > > Glaxo to begin trials of HIV vaccine in humans > > By Ransdell Pierson > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 From: Jordan's mom <shoebootie@...> Subject: Re: VACCINE CLINICAL TRIALS Ah, dang! And I really wanted to do this. ;o)~~~ erinrmos@... wrote: > Not be pregnant, or breastfeeding > Not have children under one year of age Contact:Alejandra Gurtman, M.D. I KNEW THERE WOULD BE SEVERAL US LINING UP! I COULD BELIEVE THE NUMBER OF TRIALS(THESE ARE JUST A FEW)AND THE TAKING INTO CONSIDERATION THE TOPICS, I AM WONDERING WHY DO THE STUDIES AFTER THE FACT. SHOULD THEY BE CONDUCTING THEM PRIOR TO MAKING THEM MANDATORY? I GUESS THAT'S JUST MY IGNORANCE! ERIN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 I find this interesting~~~ has JRA, she has a cousin with Type 1 diabetes (diagnosed at 6) and another cousin with Hashimoto's, which is also an autoimmune disease. The grandmother that they share has polymyositis. There's gotta be a link somewhere........... Liz (, 12, poly) vaccine trials Hi All, this story's doing the news rounds in Australia- it has implications for JRA, apparently... FYI- Bayly's Rheumy says it's not uncommon for a child with Type 1 Diabetes to have a close relative with JRA- my 9 y.o. niece has recently been diagnosed with Juvie Diabetes! Jo (Bayly, 2, Extended Oligo) " Doctors trial diabetes vaccine " By National medical reporter Sophie Australian doctors are close to perfecting a vaccine which could prevent children from developing type one diabetes. Children with a close relative with diabetes are being given insulin which they inhale to stop themselves developing the illness. Even though she is not a diabetic, 14-year-old Aitken takes a regular dose of insulin. Her mother has type one or insulin dependent diabetes. And tests on have shown the first signs of the disease in her blood, putting her at high risk. " I wanted to take part in this trial to have a bigger chance of not getting diabetes, " said. But instead of injecting the substance, doctors at Melbourne's Walter and Eliza Hall Institute (WEHI) are giving children such as inhaled insulin. Initial trials have shown that inhaling the substance is even more powerful than injections in stopping the body's attack on itself, which leads to diabetes. " The people we have given the insulin to have demonstrated both immune and metabolic responses that indicate this treatment might be working, " Prof Len on, from WEHI said. " It feels a little bit ticklish. Its a lot better than the thought of having to have needles, " said. Doctors say the insulin works like a vaccine, boosting the patient's immunity for several years. " We are very hopeful. The initial results are very, very promising and the next trial is going to take us forward and gets us the definitive answer, " Associate Professor Colman, from the Royal Melbourne Hospital, said. More than 100,000 Australians suffer from type one diabetes, and the incidence of the disease is increasing. Doctors are hopeful this approach will work not only for diabetes but a range of other diseases. " If we can prevent type one diabetes by this approach, which is a relatively safe form of vaccination, then it will be a model for other auto immune diseases, like multiple sclerosis, rheumatoid arthritis, " Professor on said. One hundred patients will receive the treatment for one year, doctors will follow their progress for a further five years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hi Jo, Cincinnati Childrens have been doing the same research studies. s uncle,grandfather and great grandfather all had type 1 JD and on my moms side a great aunt and 2 second cousins.My husband's side doesn't have any JD but they have the arthritis.It realy upsets me that we can't join the sib pair registry because has a sister not a brother within the proper age differance. Hugs Becki and 5 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hey I just wanted to chime in that I have dd is 3 with poly jra and her paternal uncle is diabetes type 1. Of course dad and mil are type 2 and I also have poly... So who knows what that all means but I found this to be interesting for several reasons! > Hi Jo, > Cincinnati Childrens have been doing the same research studies. > s uncle,grandfather and great grandfather all had type 1 JD and on my > moms side a great aunt and 2 second cousins.My husband's side doesn't have any > JD but they have the arthritis.It realy upsets me that we can't join the sib > pair registry because has a sister not a brother within the proper age > differance. > Hugs > Becki and 5 systemic > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 Hi Everyone, While browsing all the new drugs that are being developed for CML, it occurred to me to look at the different vaccines that are also being used in trials right now. I know that several of the top doctors have hypothesized that the cure will come from some sort of vaccine so these are very important to watch. If anyone is able to participate in one of the trials, I urge you to do so. It's only with patient participation that we'll know what works and what doesn't. 1) PR-1 Vaccine + Gleevec. This is being done at MDAACC and is for patients who are in CCR but who haven't had a 3 log reduction. Anyone interested can see Study Summary here: http://tinyurl.com/3dj5c2 2)TALL-104 + Gleevec. This is also being done at MDACC and is for patients who haven't achieved CCR or who have lost their response to Gleevec. More information is available here: http://tinyurl.com/2nbamz 3)WR 1 and PR 1 Peptide Vaccine. This one is being done at the NCI in land. It's for patients who have either lost their response or have never achieved one. You can read more here: http://clinicaltrials.gov/ct/show/NCT00433745?order=18 4)GM-K562 cell Vaccine. This one is being done at Dana Farber and is for patients who have a complete hematological response but less than a 2 log reduction. You can read more here: http://clinicaltrials.gov/ct/show/NCT00301093?order=50 5)Bcr-abl peptide Vaccine. This one is being done at OHSU and is for patients in CCR but still PCR+. There are others that aren't yet recruiting patients and I'm sure there are some that I've missed but I urge you to talk to your doctors about participating in clinical trials. The more information we get, the closer we'll all be to a cure. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2007 Report Share Posted August 25, 2007 Hi Tracey, I have been in the CMLVAX trial at MDACC in the HLA-A2 arm since February 2007. It has been, and continues to be, a grueling travel schedule. For three months I traveled to Houston once every two weeks for vaccine mixed with Montanide ISA-51 VG adjuvant as well as leukine injections, examination and blood tests. Since April I have only needed to go to Houston once per month. This particular trial is closed. I understand that two other arms at MSKCC and OHSU are ongoing, but maybe not recruiting. They have had some promising initial results from two out of three patients at MDACC who completed the trial. My PCR has decreased since I started. But I'm a " wobbler. " My PCR goes up and down, and even becomes undetectable. I had a BMA when I was in Houston last week, along with all the usual tests. I agree that a vaccine does offer the best hope for a cure for CML, MDS and many blood diseases. It has minimal discomforts, and little risk. If you are near a center, or willing to travel, these trials are worth a second look. All best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2007 Report Share Posted August 25, 2007 Hi , Happy to see your name on the roster. Any treatments at that distance are grueling but you know you have an excellent center when you go to MDACC. I'm waaiting for my newest results from University of land where I'm in Sprycel trial. Last time I dropped 3 logs so I feel very good about that. I'm very close to nondetectable. Very glad to hear your news because it's nice to keep track of our original crew. But also to know that they really are working on a cure. Thanks for passing this along. Best wishes, Loewenkamp [ ] Re:Vaccine Trials Hi Tracey, I have been in the CMLVAX trial at MDACC in the HLA-A2 arm since February 2007. It has been, and continues to be, a grueling travel schedule. For three months I traveled to Houston once every two weeks for vaccine mixed with Montanide ISA-51 VG adjuvant as well as leukine injections, examination and blood tests. Since April I have only needed to go to Houston once per month. This particular trial is closed. I understand that two other arms at MSKCC and OHSU are ongoing, but maybe not recruiting. They have had some promising initial results from two out of three patients at MDACC who completed the trial. My PCR has decreased since I started. But I'm a " wobbler. " My PCR goes up and down, and even becomes undetectable. I had a BMA when I was in Houston last week, along with all the usual tests. I agree that a vaccine does offer the best hope for a cure for CML, MDS and many blood diseases. It has minimal discomforts, and little risk. If you are near a center, or willing to travel, these trials are worth a second look. All best, Quote Link to comment Share on other sites More sharing options...
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