Re: How to tell your children

July 12, 2007

I would suggest taking him with you. My son was only 2 but he went with us so

he could help the nurses check Mommy's blood. He would always hold my hand to

make me feel better. He doesn't go now because he doesn't like to sit still for

that long but as he gets older I plan on including him in my appointments when

appropriate. I think with kids it is important to keep them involved and allow

them to do something that they think is helping if you can find something.

Maybe have your son remind 'dad' to take his pills or have him do a report in

school about Gleevec and the revolution it has caused in the CML community.

Just have something that he can do that will help him feel like he has some

control. I hope he is able to get through this. I hope you are all doing well

and continue to progress along.

:}

[ ] How to tell your children

My husband was dx in Nov of 06. I have two boys (ages 12 and 5). The

5 year old does not understand what's going on but my 12 year old was

really upset about it. We told him that everything was going to be

fine but he his constantly asking (my husband) if he feels ok. I

know he is going to worry about, we all do. I just don't want him to

worry himself silly. I have thought about taking him to one of

Chris's appointments that way it may reassure him. Any suggestions? ?

Thanks

July 12, 2007

Thanks . Now if I can only get him to go. I have asked him

before and he siad no. They will not let my 5 year go. You have to

be a least 12 years old to visit M D unless you are a

patient. My 5 year does remind to take his medecine and

reminds him that he is not suppose to drink any beer. But my 12

year old just does not know what to do. He use to always ask him to

go outside and throw the ball or ride the four wheeler with him.

All of that has stopped. My husband will ask him and he will say

no. I just don't know how to make him understand that his dad is

going to fine.

--- In , " lunaemica@... " <lunaemica@...>

wrote:

>

> I would suggest taking him with you. My son was only 2 but he

went with us so he could help the nurses check Mommy's blood. He

would always hold my hand to make me feel better. He doesn't go now

because he doesn't like to sit still for that long but as he gets

older I plan on including him in my appointments when appropriate.

I think with kids it is important to keep them involved and allow

them to do something that they think is helping if you can find

something.

> Maybe have your son remind 'dad' to take his pills or have him do

a report in school about Gleevec and the revolution it has caused in

the CML community. Just have something that he can do that will

help him feel like he has some control. I hope he is able to get

through this. I hope you are all doing well and continue to

progress along.

> :}

>

> [ ] How to tell your children

>

> My husband was dx in Nov of 06. I have two boys (ages 12 and 5).

The

> 5 year old does not understand what's going on but my 12 year old

was

> really upset about it. We told him that everything was going to be

> fine but he his constantly asking (my husband) if he feels

ok. I

> know he is going to worry about, we all do. I just don't want him

to

> worry himself silly. I have thought about taking him to one of

> Chris's appointments that way it may reassure him. Any

suggestions? ?

>

> Thanks

>

July 12, 2007

,

I have a 13 year old soon that was 10 when I was dx'ed. My wife at the time

totally changed from

the woman I feel in love with and married, and actually told my son and

step-son that they were

going to cause their father to die!! I was sick and my body was getting used

to the gleevec, and I was

going through allot mentally so she was doing things like that when I was

laying down and I was not aware of

it. It caused my son to want to go live back with his mother.(I at that

point had my son Nick since he was 5)

Recently my son has came back to live with me(for good) nd my new wife. He

has been scared to death of me dying. So what I did was take him in with me

and had him talk with the doctor I saw on one of the appointments where I

saw a doctor.(At present I have blood work done each month and on the third

month I see the doctor) It helped him tremendously, because my doctor

explained to him that even though his dad might be sick and have a major

disease the gleevec is working great and I would be around for a long time,

even to see my grandkids.(He threw in a joke to Nick that better not happen

to soon..hehe) So YES!! Take your 12 year old in to talk to the doctor, and

even the 5 year old if he wonders why the 12 year old gets to go and he

doesn't.

It broke my heart to find out later what my ex-wife had said to my son. I

did not find out the things she was saying until much later after she booted

me out of the house. I knew there were issues because the ex stopped going

to my doctor visits with me(my mother ended up going in her place) and she

even stopped asking what they had said.

She was supposedly Wiccan and thought through her practice of using crystals

and various Wiccan treatments she could cure me. I went along with this

stuff because I loved her and I was taking my gleevec so I figured if it

made her feel better It would not hurt me to go along with it. She

complained I spent to much time on the PC(I am a gamer, and I was also on

in this group) so, I cut my PC usage over half of what I used to spend. She

then ended up spending hours a day on the PC herself getting immersed into

some sort of Prophecy forum group that talked about the end of the world,

started storing gallon jugs in the basement, and looking at a web site that

showed where each day every little tremor or earthquake is reported. She

even at one point wanted us to move to some sort of commune in Tennessee. I

of course said no because I needed to be close to an Onco doctor, and I

could tell she seemed to be losing it a bit. Well when I had my second BMT

and it showed I still had CML she totally flipped out. She blamed me because

I did not have enough faith in her treatments. We then grew even further

apart and did not have sex for the last six months we were living in the

same household, she quit bathing on a normal basis and did not want to leave

the house, many days never changing out of her night gown. Well things came

to a head when my side effects lessened enough to just not take it anymore,

and I confronted her about the state of our marriage. Her response was for

me to get the hell out.

I know this seems to be to much info but it is leading up to this statement

I want to make to every spouse of a CML patient that is hanging in there.

You are great people who truly deserve some sort of award in my opinion,

because I know it is allot to have to deal with. Not knowing if or when the

bad news may come that treatment is not working, watching your husband or

wife go through side effects, and it some cases(like mine) having your

household income cut in half. I cannot speak for everyone here that has CML

but I know I did go on my own little pity party, and that can't be the best

thing in the world for a spouse to go through either. I applaud you

and all the other loved ones that are sticking it out with those that have

CML. Granted our disease is a long drawn out thing and we can live pretty

much a normal life span, but it brings happiness to me to see it when I see

women(or men) like you that are there for your husband. You and

other's like you(my new wife included) are the greatest gifts we CML'ers

could ask for. Take care sweety, with you at his side your husband, and your

kids will be just fine:)

Take care,

Terry

On 7/12/07, sarahschrade <no_reply > wrote:

>

> My husband was dx in Nov of 06. I have two boys (ages 12 and 5). The

> 5 year old does not understand what's going on but my 12 year old was

> really upset about it. We told him that everything was going to be

> fine but he his constantly asking (my husband) if he feels ok. I

> know he is going to worry about, we all do. I just don't want him to

> worry himself silly. I have thought about taking him to one of

> Chris's appointments that way it may reassure him. Any suggestions??

>

> Thanks

>

July 12, 2007

Thank you so much Terry. Me and my husband have been married for 11

years in August. But we have been dating since we were in the 9th

grade. He is 30 and I am 29. We had our first son when we were in

11th grade. We both had to grow up really fast. He is not just my

husband he is also my best friend. We have been through so much

together. But him getting CML has been the worst. He is the type of

man that does not show any emotion. When we found out the news I

was devastated. It did not seem to bother him that much but I know

it did. It had too. I cried every night for about a month after

everybody went to bed, asking God why it did not happen to me

instead. did not deserve this. I finally snapped out of what

ever I was going threw. I never told my husband about it. I could

only imagine what he is going threw I did not want him to worry

about me too. It really hit me hard. Everything is fine now for me

except my 12 year old being distant from his dad. I am going to try

to talk him into going to his appointment in August. He also gets

blood work done once a month and every three months he see the

doctor. Again thank you so much. Take care

> >

> > My husband was dx in Nov of 06. I have two boys (ages 12 and

5). The

> > 5 year old does not understand what's going on but my 12 year

old was

> > really upset about it. We told him that everything was going to

be

> > fine but he his constantly asking (my husband) if he feels

ok. I

> > know he is going to worry about, we all do. I just don't want

him to

> > worry himself silly. I have thought about taking him to one of

> > Chris's appointments that way it may reassure him. Any

suggestions??

> >

> > Thanks

> >

>

July 12, 2007

Can you speak with any of his teachers and see what they could work into the

lesson plan? Maybe they could do something in the regular curriculum and your

son could 'happen' to get picked to work on a project that would easily lend

itself to studying CML or gleevec. The more he knows about it the better for

him if you can get him armed with good information. Being that you're near MD

Andersen maybe they would even be able to do some sort of thing in conjunction

with them? Or is there a coach or teacher that he is close to that you can make

aware of the issue and have them coax him to talk about his feelings? Maybe you

could contact your local cancer society and see if they have any special events

(day out with the local team) for cancer survivors. If it's a day out at his

favorite ball park or something he won't say no and maybe he'll meet some other

kids who are in the same situation as him. Hang in there...I'm sure you'll find

out what you can do for him. Big

hugs!!

:}

[ ] How to tell your children

>

> My husband was dx in Nov of 06. I have two boys (ages 12 and 5).

The

> 5 year old does not understand what's going on but my 12 year old

was

> really upset about it. We told him that everything was going to be

> fine but he his constantly asking (my husband) if he feels

ok. I

> know he is going to worry about, we all do. I just don't want him

to

> worry himself silly. I have thought about taking him to one of

> Chris's appointments that way it may reassure him. Any

suggestions? ?

>

> Thanks

>

July 12, 2007

Hi,

I realize this discussion is based on what to do after

you have told your children or after you decided to

tell them. I can't add anything on this.

But for those of you who are newly diagnosed my

suggestion is to not tell them!

I was diagnosed on 7/14/03. The first week I was a

nervous wreck, my wife was too as were my parents and

siblings. I told them as I had to plan on the

scenario that I would need a BMT. I did not then tell

my kids. My daughter was 7 and my son was 4.

In two weeks I could see that the Gleevec miracle was

in process. In 4 weeks I believed I had a long road

of " normal " life ahead of me. In 6 months was I CCR

and had a PCR of 0.007!

So, I waited and I saw how things were working out

for me. Almost 4 years later I am PCRU (most labs

anyway) and I thank Gleevec for providing me with 4

and more years of daily good old life! So, how do I

pay that forward?

Payment #1 is not to burden my kids with this scary

message and allow them 4 and many more years of worry

free good old life with Dad!

It was worked for me! I realize it might not work for

everybody! But I am so glad my kids can sleep at night

- even if its in our bed more nights than you would

expect!

All the best,

Chris

--- " lunaemica@... " <lunaemica@...> wrote:

> Can you speak with any of his teachers and see what

> they could work into the lesson plan? Maybe they

> could do something in the regular curriculum and

> your son could 'happen' to get picked to work on a

> project that would easily lend itself to studying

> CML or gleevec. The more he knows about it the

> better for him if you can get him armed with good

> information. Being that you're near MD Andersen

> maybe they would even be able to do some sort of

> thing in conjunction with them? Or is there a coach

> or teacher that he is close to that you can make

> aware of the issue and have them coax him to talk

> about his feelings? Maybe you could contact your

> local cancer society and see if they have any

> special events (day out with the local team) for

> cancer survivors. If it's a day out at his favorite

> ball park or something he won't say no and maybe

> he'll meet some other kids who are in the same

> situation as him. Hang in there...I'm sure you'll

> find out what you can do for him. Big

> hugs!!

> :}

>

> [ ] How to tell your children

> >

> > My husband was dx in Nov of 06. I have two boys

> (ages 12 and 5).

> The

> > 5 year old does not understand what's going on but

> my 12 year old

> was

> > really upset about it. We told him that everything

> was going to be

> > fine but he his constantly asking (my

> husband) if he feels

> ok. I

> > know he is going to worry about, we all do. I just

> don't want him

> to

> > worry himself silly. I have thought about taking

> him to one of

> > Chris's appointments that way it may reassure him.

> Any

> suggestions? ?

> >

> > Thanks

> >

> > [Non-text portions of this message have been

> removed]

> >

>

> [Non-text portions of this message have been

> removed]

>

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July 12, 2007

That's great that not telling your children worked for you. I just

don't think that I could have done that. Besides, my son knew

something was wrong because my husband hardly ever went to the

doctor and all of a sudden he is going all the time. My husband is

doing very well on Srycel, it is just getting my son to understand

and believe that. I hope everything continues to go well for you and

you family.

> > >

> > > I would suggest taking him with you. My son was

> > only 2 but he

> > went with us so he could help the nurses check

> > Mommy's blood. He

> > would always hold my hand to make me feel better. He

> > doesn't go now

> > because he doesn't like to sit still for that long

> > but as he gets

> > older I plan on including him in my appointments

> > when appropriate.

> > I think with kids it is important to keep them

> > involved and allow

> > them to do something that they think is helping if

> > you can find

> > something.

> > > Maybe have your son remind 'dad' to take his pills

> > or have him do

> > a report in school about Gleevec and the revolution

> > it has caused in

> > the CML community. Just have something that he can

> > do that will

> > help him feel like he has some control. I hope he is

> > able to get

> > through this. I hope you are all doing well and

> > continue to

> > progress along.

> > > :}

> > >

> > > [ ] How to tell your children

> > >

> > > My husband was dx in Nov of 06. I have two boys

> > (ages 12 and 5).

> > The

> > > 5 year old does not understand what's going on but

> > my 12 year old

> > was

> > > really upset about it. We told him that everything

> > was going to be

> > > fine but he his constantly asking (my

> > husband) if he feels

> > ok. I

> > > know he is going to worry about, we all do. I just

> > don't want him

> > to

> > > worry himself silly. I have thought about taking

> > him to one of

> > > Chris's appointments that way it may reassure him.

> > Any

> > suggestions? ?

> > >

> > > Thanks

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> > [Non-text portions of this message have been

> > removed]

> >

>

_____________________________________________________________________

_______________

> oneSearch: Finally, mobile search

> that gives answers, not web links.

> http://mobile./mobileweb/onesearch?refer=1ONXIC

>

July 12, 2007

Lets keep hubby and I running on empty (empty CML

tank) and hug your kids! If anything they might

wonder why I hug them 10 times a day!

Love and Mercy!

--- sarahschrade <no_reply > wrote:

> That's great that not telling your children worked

> for you. I just

> don't think that I could have done that. Besides, my

> son knew

> something was wrong because my husband hardly ever

> went to the

> doctor and all of a sudden he is going all the time.

> My husband is

> doing very well on Srycel, it is just getting my son

> to understand

> and believe that. I hope everything continues to go

> well for you and

> you family.

>

> > > >

> > > > I would suggest taking him with you. My son

> was

> > > only 2 but he

> > > went with us so he could help the nurses check

> > > Mommy's blood. He

> > > would always hold my hand to make me feel

> better. He

> > > doesn't go now

> > > because he doesn't like to sit still for that

> long

> > > but as he gets

> > > older I plan on including him in my appointments

> > > when appropriate.

> > > I think with kids it is important to keep them

> > > involved and allow

> > > them to do something that they think is helping

> if

> > > you can find

> > > something.

> > > > Maybe have your son remind 'dad' to take his

> pills

> > > or have him do

> > > a report in school about Gleevec and the

> revolution

> > > it has caused in

> > > the CML community. Just have something that he

> can

> > > do that will

> > > help him feel like he has some control. I hope

> he is

> > > able to get

> > > through this. I hope you are all doing well and

> > > continue to

> > > progress along.

> > > > :}

> > > >

> > > > [ ] How to tell your children

> > > >

> > > > My husband was dx in Nov of 06. I have two

> boys

> > > (ages 12 and 5).

> > > The

> > > > 5 year old does not understand what's going on

> but

> > > my 12 year old

> > > was

> > > > really upset about it. We told him that

> everything

>

=== message truncated ===

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July 12, 2007

Hi Everyone,

How and when to tell your kids is a very personal decision but for

me, the thought of not telling them, never even crossed my mind. I

just can't imagine keeping such important information from anyone I

love.

My kids were 7 and 9 at the time I was diagnosed and when I told

them, it was in a very " matter of fact " way. I showed no emotion

because I didn't want to freak them out by crying and carrying on but

on the other hand, I didn't want to keep any secrets from them either

so I explained everything. I even got a book at the library that was

geared to kids that explained the circulatory system and we discussed

exactly what leukemia was. It was more of a science lesson than a

pity party.

I told them to ask me anything they wanted and tell me whatever was

on their mind. It didn't take them long to ask " are you going to

die " which I expected them to ask. I didn't want to lie because of

course there was a possibility that I could die (and still can) so I

told them " yes, I could die but we could all get hit by a bus

tomorrow and die. You can't live your life worrying about when or if

you're going to die. Some things are just out of our control. All I

can do is go to my doctor's appointments, take my medication and hope

for the best. " My kids seemed satisfied with this answer and that

was the end of that.

Incidentally, I just asked my older daughter (who is now 15) about

this to see what she thought of the idea if I hadn't told her when I

was diagnosed. At first she laughed and said " I think I would have

figured it out even if you hadn't told me. All of a sudden you were

going to the doctor's all the time, you had blood tests all the time,

you were hobbling around from your bone marrow biopsy, I would have

figured that something was wrong, I'm not that stupid. " So I

said " what if I was able to hide it really well and didn't tell you

until years later " and she said " if that happened, I'd never be able

to trust you again. How could you lie to me about something so

serious and if you would have kept it a secret for so long, I would

have thought that cancer must be really bad, something to be very

fearful about and I think I'd be freaked out anytime I heard that

anyone had cancer but now whenever I hear that someone has cancer, I

don't think it's such a horrible thing because I know that it can be

managed " .

At one point (probably when she was 12 or 13), I gave her the the

book " The Magic Cancer Bullet " (the one that explains the development

of Gleevec) and she said she found it very interesting and enjoyed

reading it.

So there you have it from my perspective and my daughter's but I do

realize that not all kids are the same and what works for one, might

not work with another. I just didn't want to have any secrets from

my kids because I wouldn't want anyone that I love to keep secrets

from me.

Tracey

dx Jan 2002

July 13, 2007

Terry---

I just read your post and it really deeply upsets me that people's spouses

could " abandon " them due to an illness. I just cant believe it, but have

heard it before. It is weird to say, but I know that some of us have stated

in the past that CML has been a blessing to us. OK, I dont want my husband

to have CML, I wish he didnt. But he does, and it has brought us closer

and created a tighter bond between us, and our son. Our son is only 15

months old, but had not been diagnosed last year, right now we probably

would be extremely caught up in our overly busy lives, not spending much

time with one another, nor our son. Now, has become a stay-at-home

parent, I am the one who is now working, and besides seeing our son all the

time, also spends lots of days with his parents who come over to help

out with our son on the days that I work. often jokes that other

than some side affects (he is on Sprycel and having less side affects than

Gleevec thus far), that he is living a " dream life " . He has blood cancer,

but thanks God every day for instilling the wisdom and knowledge in

scientists and doctors to have turned this disease into a chronic disease

you can live with.

However, yes, there are times that we both go through the " what-ifs " , and as

a spouse to someone with CML (and the female!!), I do tend to go down the

" what-if " path more than he does. But I will continue to support as

best I can. Often I do have to take on more since he tires easier, but I

love him so much, and he didnt give himself CML!! This was meant to be, in

our eyes , and it is now a path that we are on together...

I am so sorry, Terry, that your wife at the time could not handle that you

had CML, and that could not give the support you needed.

Regards,

Cervera

>From: " Terry Dailey " <terrydailey@...>

>Reply-

>

>Subject: Re: [ ] How to tell your children

>Date: Thu, 12 Jul 2007 15:09:34 -0400

>

>,

>

>I have a 13 year old soon that was 10 when I was dx'ed. My wife at the time

>totally changed from

>the woman I feel in love with and married, and actually told my son and

>step-son that they were

>going to cause their father to die!! I was sick and my body was getting

>used

>to the gleevec, and I was

>going through allot mentally so she was doing things like that when I was

>laying down and I was not aware of

>it. It caused my son to want to go live back with his mother.(I at that

>point had my son Nick since he was 5)

>Recently my son has came back to live with me(for good) nd my new wife. He

>has been scared to death of me dying. So what I did was take him in with me

>and had him talk with the doctor I saw on one of the appointments where I

>saw a doctor.(At present I have blood work done each month and on the third

>month I see the doctor) It helped him tremendously, because my doctor

>explained to him that even though his dad might be sick and have a major

>disease the gleevec is working great and I would be around for a long time,

>even to see my grandkids.(He threw in a joke to Nick that better not happen

>to soon..hehe) So YES!! Take your 12 year old in to talk to the doctor, and

>even the 5 year old if he wonders why the 12 year old gets to go and he

>doesn't.

>It broke my heart to find out later what my ex-wife had said to my son. I

>did not find out the things she was saying until much later after she

>booted

>me out of the house. I knew there were issues because the ex stopped going

>to my doctor visits with me(my mother ended up going in her place) and she

>even stopped asking what they had said.

>She was supposedly Wiccan and thought through her practice of using

>crystals

>and various Wiccan treatments she could cure me. I went along with this

>stuff because I loved her and I was taking my gleevec so I figured if it

>made her feel better It would not hurt me to go along with it. She

>complained I spent to much time on the PC(I am a gamer, and I was also on

>in this group) so, I cut my PC usage over half of what I used to spend. She

>then ended up spending hours a day on the PC herself getting immersed into

>some sort of Prophecy forum group that talked about the end of the world,

>started storing gallon jugs in the basement, and looking at a web site that

>showed where each day every little tremor or earthquake is reported. She

>even at one point wanted us to move to some sort of commune in Tennessee. I

>of course said no because I needed to be close to an Onco doctor, and I

>could tell she seemed to be losing it a bit. Well when I had my second BMT

>and it showed I still had CML she totally flipped out. She blamed me

>because

>I did not have enough faith in her treatments. We then grew even further

>apart and did not have sex for the last six months we were living in the

>same household, she quit bathing on a normal basis and did not want to

>leave

>the house, many days never changing out of her night gown. Well things came

>to a head when my side effects lessened enough to just not take it anymore,

>and I confronted her about the state of our marriage. Her response was for

>me to get the hell out.

>I know this seems to be to much info but it is leading up to this statement

>I want to make to every spouse of a CML patient that is hanging in there.

>You are great people who truly deserve some sort of award in my opinion,

>because I know it is allot to have to deal with. Not knowing if or when the

>bad news may come that treatment is not working, watching your husband or

>wife go through side effects, and it some cases(like mine) having your

>household income cut in half. I cannot speak for everyone here that has CML

>but I know I did go on my own little pity party, and that can't be the best

>thing in the world for a spouse to go through either. I applaud you

>and all the other loved ones that are sticking it out with those that have

>CML. Granted our disease is a long drawn out thing and we can live pretty

>much a normal life span, but it brings happiness to me to see it when I see

>women(or men) like you that are there for your husband. You and

>other's like you(my new wife included) are the greatest gifts we CML'ers

>could ask for. Take care sweety, with you at his side your husband, and

>your

>kids will be just fine:)

>

>Take care,

>

>Terry

>

>On 7/12/07, sarahschrade <no_reply > wrote:

> >

> > My husband was dx in Nov of 06. I have two boys (ages 12 and 5). The

> > 5 year old does not understand what's going on but my 12 year old was

> > really upset about it. We told him that everything was going to be

> > fine but he his constantly asking (my husband) if he feels ok. I

> > know he is going to worry about, we all do. I just don't want him to

> > worry himself silly. I have thought about taking him to one of

> > Chris's appointments that way it may reassure him. Any suggestions??

> >

> > Thanks

> >

>

July 13, 2007

--

I think it is a great idea taking your 12-yr old to your husband's doc

visits. Both my parents had cancer, and although I was older (20 years old),

I started going to my mom's oncologist appointments with her, and it gave me

a sense of empowerment in that I started understand the cancer that she had.

Granted, your son is much younger, but it will probably put his mind at

ease.

I, too, can relate to the crying and devastation when you first got the news

about your husband. I remember that very well. For us, it was last July, and

our son was just 2 months old...I still hadnt " recovered " from having a

baby, then we got the triple-whammer news about my husband from the ER

doctors.... " Well........you might want to sit down...the reason you have

lost mobility on your left side is due to a stroke, caused by a blood clot

in your brain, we think caused by the fact that you have 449,000 white blood

cell count due to the fact that you have leukemia. " I remember standing in

the ER with my newborn, almost falling to the ground. The worst part for my

husband was that he felt like HE was causing me so much pain and grief...I

had already lost both my parents to cancer, now we were being told he has

cancer.

All of that happened one year ago this coming Sunday. And, I cant believe

HOW FAR we have come in 1 year---many thanks to this forum, 's team of

doctors, and Dr. Druker and Dr. Neil Shah! My husband was in the ICU for 2

weeks, after having multiple brain surgeries. They removed the blood clot,

his mobility started coming back, and it seemed like the leukemia was the

last thing on our mind. But, he started Gleevec....and slowly life started

returning to normal...well, as normal as it could be...which actually was

pretty darn normal. He recently developed a resistance to Gleevec and is now

on Sprycel.

I still have my nights once in a while when some tears come, But not because

this is " unfair " , not because " why us " ?, not even because " what if his

health changes " . Now the tears come in thanksgiving...to God...for how

blessed we are, and how blessed we have been in the last year. I felt so

hopeless only one year ago, and yes...things might still change in the

future...but we will deal with them if they do, and until then we enjoy

every day we have together...

Good luck with your son, I will keep your family in my thoughts...

Regards,

>From: sarahschrade <no_reply >

>Reply-

>

>Subject: Re: [ ] How to tell your children

>Date: Thu, 12 Jul 2007 19:49:28 -0000

>

>Thank you so much Terry. Me and my husband have been married for 11

>years in August. But we have been dating since we were in the 9th

>grade. He is 30 and I am 29. We had our first son when we were in

>11th grade. We both had to grow up really fast. He is not just my

>husband he is also my best friend. We have been through so much

>together. But him getting CML has been the worst. He is the type of

>man that does not show any emotion. When we found out the news I

>was devastated. It did not seem to bother him that much but I know

>it did. It had too. I cried every night for about a month after

>everybody went to bed, asking God why it did not happen to me

>instead. did not deserve this. I finally snapped out of what

>ever I was going threw. I never told my husband about it. I could

>only imagine what he is going threw I did not want him to worry

>about me too. It really hit me hard. Everything is fine now for me

>except my 12 year old being distant from his dad. I am going to try

>to talk him into going to his appointment in August. He also gets

>blood work done once a month and every three months he see the

>doctor. Again thank you so much. Take care

>

> > >

> > > My husband was dx in Nov of 06. I have two boys (ages 12 and

>5). The

> > > 5 year old does not understand what's going on but my 12 year

>old was

> > > really upset about it. We told him that everything was going to

>be

> > > fine but he his constantly asking (my husband) if he feels

>ok. I

> > > know he is going to worry about, we all do. I just don't want

>him to

> > > worry himself silly. I have thought about taking him to one of

> > > Chris's appointments that way it may reassure him. Any

>suggestions??

> > >

> > > Thanks

> > >

> >

July 13, 2007

I think when somebody says the word CANCER, you automatically think

the worst. My husband got diagnosed in Nov 06. Our life seems to be

back to normal.(somewhat) He hardly ever got sick before and now it

seems like he is always sick. And when he does get sick, it takes a

long time to get over it. He gets so upset. Remembering to take his

medicine was a big thing for him too. I was constantly reminding him

to take it. He has gotten better with that though. How long has

your husband been on Spycel? My husband started on Sprycel from the

very begining through a reseach study at MD in Texas. They

know it will work for patients that are coming off of Gleevec. They

are trying to see if it will work from the very begining.(chronic

stage) So far so good. He hasn't had any side effects. They told

him to go on living a normal life. I told the doctor that he bowls

and plays softball. He said don't stop. But I have noticed in

softball though if he gets a cut or something from sliding he bleeds

like crazy. I guess that is from the Luekemia. I hope everything

continues to go great for you and your family. Thank you and God

Bless

> > > >

> > > > My husband was dx in Nov of 06. I have two boys (ages 12

and

> >5). The

> > > > 5 year old does not understand what's going on but my 12 year

> >old was

> > > > really upset about it. We told him that everything was going

to

> >be

> > > > fine but he his constantly asking (my husband) if he

feels

> >ok. I

> > > > know he is going to worry about, we all do. I just don't want

> >him to

> > > > worry himself silly. I have thought about taking him to one

of

> > > > Chris's appointments that way it may reassure him. Any

> >suggestions??

> > > >

> > > > Thanks

> > > >

> > >

July 13, 2007

Yes, the word CANCER is so scary, though I think it is getting better...we

are lucky to live in this day and age. My husband, too, was never ever sick

before all of this. He was never " weak " . I think the hardest thing has

had to adjust to is feeling like he cant always " take care " of me. For a

while there (the early months of all of this), I was the one taking care of

him, and that had never happened before. He really doesnt like feeling

" weak " , and I dont mean weak physically in terms of strength. I mean weak in

the sense that he might not be able to do all the things he used to do, he

can no longer work in our yard 8 hours straight, he can no longer hike miles

into a great remote fishing spot, he can no longer drink a 6-pack while

hiking to that great remote fishing spot!!!! But, if nothing else, this CML

stuff is just a reminder that we are also not as young as we used to be!

And, the awesome thing is that he still CAN work in our yard...for 2 hours,

he still CAN go fishing...if it is a stroll around a lake, and he looks

forward to a beer every once in a while. For him, it is the fact that he now

has more limitations with CML, but that isnt necessarily a bad thing...it

has made him slow down and savor the things he can do that much more.

He has only been on Sprycel for 2 weeks. So far, so good...but we realize it

is early. Most people on Sprycel are on it due to Gleevec intolerance

('s liver was at a high toxicity level, so he had to stop Gleevec). That

is good to hear that your husband is one of the " newbies " who started out on

Sprycel, he never was on Gleevec, then? I was wondering about that. There is

alot of talk that in the near future Sprycel might become the front-line

treatment for CML. Gleevec wont go away, and many people might still have

better results with Gleevec. But the most important thing is that there are

options...what works for some might not work for others. So, that is

interesting to hear that there are people like your husband who have only

ever been on Sprycel..interesting. We see Dr. Druker the end of this

month, and I am interesting in hearing a few comments straight from his

mouth about the future treatment of CML, about some of the trials currently

happening, etc.

And, yes, a common side affect of Sprycel is the bleeding thing. How are

your husband's platelet counts? I know 's have already gone down some

even after being on Sprycel just 2 weeks...not anything to worry about yet,

but his docs keep a close eye on his counts. Platelet suppression is common

on Sprycel, and if you have low platelets, your blood cannot clot has

easily...and I think that is why the blood seems to flow more...

Well, thanks for sharing....good luck to you and your husband...

Cervera

>From: sarahschrade <no_reply >

>Reply-

>

>Subject: Re: [ ] How to tell your children

>Date: Fri, 13 Jul 2007 02:16:59 -0000

>

>I think when somebody says the word CANCER, you automatically think

>the worst. My husband got diagnosed in Nov 06. Our life seems to be

>back to normal.(somewhat) He hardly ever got sick before and now it

>seems like he is always sick. And when he does get sick, it takes a

>long time to get over it. He gets so upset. Remembering to take his

>medicine was a big thing for him too. I was constantly reminding him

>to take it. He has gotten better with that though. How long has

>your husband been on Spycel? My husband started on Sprycel from the

>very begining through a reseach study at MD in Texas. They

>know it will work for patients that are coming off of Gleevec. They

>are trying to see if it will work from the very begining.(chronic

>stage) So far so good. He hasn't had any side effects. They told

>him to go on living a normal life. I told the doctor that he bowls

>and plays softball. He said don't stop. But I have noticed in

>softball though if he gets a cut or something from sliding he bleeds

>like crazy. I guess that is from the Luekemia. I hope everything

>continues to go great for you and your family. Thank you and God

>Bless

>

> > > > >

> > > > > My husband was dx in Nov of 06. I have two boys (ages 12

>and

> > >5). The

> > > > > 5 year old does not understand what's going on but my 12 year

> > >old was

> > > > > really upset about it. We told him that everything was going

>to

> > >be

> > > > > fine but he his constantly asking (my husband) if he

>feels

> > >ok. I

> > > > > know he is going to worry about, we all do. I just don't want

> > >him to

> > > > > worry himself silly. I have thought about taking him to one

>of

> > > > > Chris's appointments that way it may reassure him. Any

> > >suggestions??

> > > > >

> > > > > Thanks

> > > > >

> > > >

July 13, 2007

No, he was never on Gleevec. If he decided not to do the research

study, his other option would have been Gleevec. He was ify about

doing the research study. The doctor let us think about it over

night. I told him that the doctors are going to keep a close eye on

you. (and they do) And you will be helping so many other people in

the same shoes you are in. So he decided to do it. They give us all

the medecine for free. We still have to pay for the Dr. visits and

blood tests and the bone marrow aspiration. When he went for his

appointment in January of this year (2 months after being on Srycel)

his red blood count and I think his platlets were low so they had to

give him some injections to bring those back up. loves to fish

and drink his beer also. But those two go hand and hand for him.

So he doesn't do either of them has much anymore. He just bought a

new boat so I guess he plans on doing more fishing. Were do ya'll

live? We live in Texas. Talk to you later.

> > > > > >

> > > > > > My husband was dx in Nov of 06. I have two boys (ages

12

> >and

> > > >5). The

> > > > > > 5 year old does not understand what's going on but my 12

year

> > > >old was

> > > > > > really upset about it. We told him that everything was

going

> >to

> > > >be

> > > > > > fine but he his constantly asking (my husband) if

he

> >feels

> > > >ok. I

> > > > > > know he is going to worry about, we all do. I just don't

want

> > > >him to

> > > > > > worry himself silly. I have thought about taking him to

one

> >of

> > > > > > Chris's appointments that way it may reassure him. Any

> > > >suggestions??

> > > > > >

> > > > > > Thanks

> > > > > >

> > > > >

July 13, 2007

,

You very welcome and your husband is very lucky to have you. I am newly

married

and my new wife is very understanding and takes great care of me.

I guess what causes me to be bitter toward my ex so much is she never once

thought

how my dx was effecting me mentally as well as physically. It seemed her

only concern

was now I was not bringing in as much money. I have been told by friends and

family that

if it had not been the CML she would have wigged out for some other reason.

I just wish it

would not have happened at the same time I was losing my job, and I wish she

would not have

caused my son to go live with his mother, but everything happens for a

reason. If it wasn't for my ex

I would not have met the woman I am married to now. Also I have my son back

and that is the most

important thing. Again you are a wonderful wife, and person, I would

take my hate off to you.

(but I never wear them..lol)

Take Care,

Terry

On 7/12/07, sarahschrade <no_reply > wrote:

>

> Thank you so much Terry. Me and my husband have been married for 11

> years in August. But we have been dating since we were in the 9th

> grade. He is 30 and I am 29. We had our first son when we were in

> 11th grade. We both had to grow up really fast. He is not just my

> husband he is also my best friend. We have been through so much

> together. But him getting CML has been the worst. He is the type of

> man that does not show any emotion. When we found out the news I

> was devastated. It did not seem to bother him that much but I know

> it did. It had too. I cried every night for about a month after

> everybody went to bed, asking God why it did not happen to me

> instead. did not deserve this. I finally snapped out of what

> ever I was going threw. I never told my husband about it. I could

> only imagine what he is going threw I did not want him to worry

> about me too. It really hit me hard. Everything is fine now for me

> except my 12 year old being distant from his dad. I am going to try

> to talk him into going to his appointment in August. He also gets

> blood work done once a month and every three months he see the

> doctor. Again thank you so much. Take care

>

> > >

> > > My husband was dx in Nov of 06. I have two boys (ages 12 and

> 5). The

> > > 5 year old does not understand what's going on but my 12 year

> old was

> > > really upset about it. We told him that everything was going to

> be

> > > fine but he his constantly asking (my husband) if he feels

> ok. I

> > > know he is going to worry about, we all do. I just don't want

> him to

> > > worry himself silly. I have thought about taking him to one of

> > > Chris's appointments that way it may reassure him. Any

> suggestions??

> > >

> > > Thanks

> > >

> >

July 13, 2007

,

I can tell you from my experience that the limitations are the worst for me

to handle, I was also

in good health, and very active before I was dx'ed. Fatigue and naseau were

the first big things to hit me, then the bone pain. I was nearly bed ridden

the first few months on Gleevec but now they side effects are managed. It

just takes time to realize I am not able to do the things I used to be able

to do.

I was wondering does anyone else have a problem with being out in the sun to

much or not being able to handle heat? I have noticed that I cannot handle

being out in the sun much at all, and heat just drains me big time.

Take care,

Terry

On 7/12/07, Cervera <weez_555@...> wrote:

>

> Yes, the word CANCER is so scary, though I think it is getting better...we

> are lucky to live in this day and age. My husband, too, was never ever

> sick

> before all of this. He was never " weak " . I think the hardest thing

> has

> had to adjust to is feeling like he cant always " take care " of me. For a

> while there (the early months of all of this), I was the one taking care

> of

> him, and that had never happened before. He really doesnt like feeling

> " weak " , and I dont mean weak physically in terms of strength. I mean weak

> in

> the sense that he might not be able to do all the things he used to do, he

> can no longer work in our yard 8 hours straight, he can no longer hike

> miles

> into a great remote fishing spot, he can no longer drink a 6-pack while

> hiking to that great remote fishing spot!!!! But, if nothing else, this

> CML

> stuff is just a reminder that we are also not as young as we used to be!

> And, the awesome thing is that he still CAN work in our yard...for 2

> hours,

> he still CAN go fishing...if it is a stroll around a lake, and he looks

> forward to a beer every once in a while. For him, it is the fact that he

> now

> has more limitations with CML, but that isnt necessarily a bad thing...it

> has made him slow down and savor the things he can do that much more.

>

> He has only been on Sprycel for 2 weeks. So far, so good...but we realize

> it

> is early. Most people on Sprycel are on it due to Gleevec intolerance

> ('s liver was at a high toxicity level, so he had to stop Gleevec).

> That

> is good to hear that your husband is one of the " newbies " who started out

> on

> Sprycel, he never was on Gleevec, then? I was wondering about that. There

> is

> alot of talk that in the near future Sprycel might become the front-line

> treatment for CML. Gleevec wont go away, and many people might still have

> better results with Gleevec. But the most important thing is that there

> are

> options...what works for some might not work for others. So, that is

> interesting to hear that there are people like your husband who have only

> ever been on Sprycel..interesting. We see Dr. Druker the end of this

> month, and I am interesting in hearing a few comments straight from his

> mouth about the future treatment of CML, about some of the trials

> currently

> happening, etc.

>

> And, yes, a common side affect of Sprycel is the bleeding thing. How are

> your husband's platelet counts? I know 's have already gone down some

> even after being on Sprycel just 2 weeks...not anything to worry about

> yet,

> but his docs keep a close eye on his counts. Platelet suppression is

> common

> on Sprycel, and if you have low platelets, your blood cannot clot has

> easily...and I think that is why the blood seems to flow more...

>

> Well, thanks for sharing....good luck to you and your husband...

> Cervera

>

> >From: sarahschrade <no_reply >

> >Reply-

> >

> >Subject: Re: [ ] How to tell your children

> >Date: Fri, 13 Jul 2007 02:16:59 -0000

> >

> >I think when somebody says the word CANCER, you automatically think

> >the worst. My husband got diagnosed in Nov 06. Our life seems to be

> >back to normal.(somewhat) He hardly ever got sick before and now it

> >seems like he is always sick. And when he does get sick, it takes a

> >long time to get over it. He gets so upset. Remembering to take his

> >medicine was a big thing for him too. I was constantly reminding him

> >to take it. He has gotten better with that though. How long has

> >your husband been on Spycel? My husband started on Sprycel from the

> >very begining through a reseach study at MD in Texas. They

> >know it will work for patients that are coming off of Gleevec. They

> >are trying to see if it will work from the very begining.(chronic

> >stage) So far so good. He hasn't had any side effects. They told

> >him to go on living a normal life. I told the doctor that he bowls

> >and plays softball. He said don't stop. But I have noticed in

> >softball though if he gets a cut or something from sliding he bleeds

> >like crazy. I guess that is from the Luekemia. I hope everything

> >continues to go great for you and your family. Thank you and God

> >Bless

> >

> > > > > >

> > > > > > My husband was dx in Nov of 06. I have two boys (ages 12

> >and

> > > >5). The

> > > > > > 5 year old does not understand what's going on but my 12 year

> > > >old was

> > > > > > really upset about it. We told him that everything was going

> >to

> > > >be

> > > > > > fine but he his constantly asking (my husband) if he

> >feels

> > > >ok. I

> > > > > > know he is going to worry about, we all do. I just don't want

> > > >him to

> > > > > > worry himself silly. I have thought about taking him to one

> >of

> > > > > > Chris's appointments that way it may reassure him. Any

> > > >suggestions??

> > > > > >

> > > > > > Thanks

> > > > > >

> > > > >

July 13, 2007

Terry,

I am clearly more sensitve to the sun. I get a burn

if I am out in the sun for more than 20 minutes. It

has made me more focused on using sun screen - which

is a good thing for everybody.

I also see that my skin on my shins, arms and fore

head seem to have " thinned " or rip esier.

Other than that, my side effects to gleevec have been

very minimal. I would blame any slow down on the fact

that I am getting older.

Hope things will always improve for you.

--- Terry Dailey <terrydailey@...> wrote:

> ,

> I can tell you from my experience that the

> limitations are the worst for me

> to handle, I was also

> in good health, and very active before I was dx'ed.

> Fatigue and naseau were

> the first big things to hit me, then the bone pain.

> I was nearly bed ridden

> the first few months on Gleevec but now they side

> effects are managed. It

> just takes time to realize I am not able to do the

> things I used to be able

> to do.

> I was wondering does anyone else have a problem with

> being out in the sun to

> much or not being able to handle heat? I have

> noticed that I cannot handle

> being out in the sun much at all, and heat just

> drains me big time.

> Take care,

>

> Terry

>

> On 7/12/07, Cervera <weez_555@...>

> wrote:

> >

> > Yes, the word CANCER is so scary, though I think

> it is getting better...we

> > are lucky to live in this day and age. My husband,

> too, was never ever

> > sick

> > before all of this. He was never " weak " . I think

> the hardest thing

> > has

> > had to adjust to is feeling like he cant always

> " take care " of me. For a

> > while there (the early months of all of this), I

> was the one taking care

> > of

> > him, and that had never happened before. He really

> doesnt like feeling

> > " weak " , and I dont mean weak physically in terms

> of strength. I mean weak

> > in

> > the sense that he might not be able to do all the

> things he used to do, he

> > can no longer work in our yard 8 hours straight,

> he can no longer hike

> > miles

> > into a great remote fishing spot, he can no longer

> drink a 6-pack while

> > hiking to that great remote fishing spot!!!! But,

> if nothing else, this

> > CML

> > stuff is just a reminder that we are also not as

> young as we used to be!

> > And, the awesome thing is that he still CAN work

> in our yard...for 2

> > hours,

> > he still CAN go fishing...if it is a stroll around

> a lake, and he looks

> > forward to a beer every once in a while. For him,

> it is the fact that he

> > now

> > has more limitations with CML, but that isnt

> necessarily a bad thing...it

> > has made him slow down and savor the things he can

> do that much more.

> >

> > He has only been on Sprycel for 2 weeks. So far,

> so good...but we realize

> > it

> > is early. Most people on Sprycel are on it due to

> Gleevec intolerance

> > ('s liver was at a high toxicity level, so he

> had to stop Gleevec).

> > That

> > is good to hear that your husband is one of the

> " newbies " who started out

> > on

> > Sprycel, he never was on Gleevec, then? I was

> wondering about that. There

> > is

> > alot of talk that in the near future Sprycel might

> become the front-line

> > treatment for CML. Gleevec wont go away, and many

> people might still have

> > better results with Gleevec. But the most

> important thing is that there

> > are

> > options...what works for some might not work for

> others. So, that is

> > interesting to hear that there are people like

> your husband who have only

> > ever been on Sprycel..interesting. We see Dr.

> Druker the end of this

> > month, and I am interesting in hearing a few

> comments straight from his

> > mouth about the future treatment of CML, about

> some of the trials

> > currently

> > happening, etc.

> >

> > And, yes, a common side affect of Sprycel is the

> bleeding thing. How are

> > your husband's platelet counts? I know 's have

> already gone down some

> > even after being on Sprycel just 2 weeks...not

> anything to worry about

> > yet,

> > but his docs keep a close eye on his counts.

> Platelet suppression is

> > common

> > on Sprycel, and if you have low platelets, your

> blood cannot clot has

> > easily...and I think that is why the blood seems

> to flow more...

> >

> > Well, thanks for sharing....good luck to you and

> your husband...

> > Cervera

> >

> > >From: sarahschrade <no_reply >

> > >Reply-

> > >

> > >Subject: Re: [ ] How to tell your children

> > >Date: Fri, 13 Jul 2007 02:16:59 -0000

> > >

> > >I think when somebody says the word CANCER, you

> automatically think

> > >the worst. My husband got diagnosed in Nov 06.

> Our life seems to be

> > >back to normal.(somewhat) He hardly ever got sick

> before and now it

> > >seems like he is always sick. And when he does

> get sick, it takes a

> > >long time to get over it. He gets so upset.

> Remembering to take his

> > >medicine was a big thing for him too. I was

> constantly reminding him

> > >to take it. He has gotten better with that

> though. How long has

> > >your husband been on Spycel? My husband started

> on Sprycel from the

> > >very begining through a reseach study at MD

> in Texas. They

> > >know it will work for patients that are coming

> off of Gleevec. They

> > >are trying to see if it will work from the very

> begining.(chronic

> > >stage) So far so good. He hasn't had any side

> effects. They told

> > >him to go on living a normal life. I told the

> doctor that he bowls

> > >and plays softball. He said don't stop. But I

> have noticed in

> > >softball though if he gets a cut or something

> from sliding he bleeds

> > >like crazy. I guess that is from the Luekemia. I

> hope everything

> > >continues to go great for you and your family.

> Thank you and God

> > >Bless

> > >

> > > --- In , "

> Cervera " <weez_555@...>

> > >wrote:

> > > >

> > > > --

> > > > I think it is a great idea taking your 12-yr

> old to your husband's

> > >doc

> > > > visits. Both my parents had cancer, and

> although I was older (20

> > >years old),

> > > > I started going to my mom's oncologist

> appointments with her, and

> > >it gave me

> > > > a sense of empowerment in that I started

> understand the cancer

> > >that she had.

> > > > Granted, your son is much younger, but it will

> probably put his

> > >mind at

> > > > ease.

> > > >

> > > > I, too, can relate to the crying and

> devastation when you first

> > >got the news

> > > > about your husband. I remember that very well.

> For us, it was last

> > >July, and

> > > > our son was just 2 months old...I still hadnt

> " recovered " from

> > >having a

> > > > baby, then we got the triple-whammer news

> about my husband from

> > >the ER

> > > > doctors.... " Well........you might want to

> sit down...the

>

=== message truncated ===

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July 13, 2007

Thanks

My eyes are very light sensitive and have been for a long time, as far as

the sun I tend to stay inside when it is hot and the sun is bright. It

literally feels like I am in a mircowave or something. After about 20

minutes in the heat I am worn out.

On 7/13/07, Mr Stickel <stick924@...> wrote:

>

> Terry,

>

> I am clearly more sensitve to the sun. I get a burn

> if I am out in the sun for more than 20 minutes. It

> has made me more focused on using sun screen - which

> is a good thing for everybody.

>

> I also see that my skin on my shins, arms and fore

> head seem to have " thinned " or rip esier.

>

> Other than that, my side effects to gleevec have been

> very minimal. I would blame any slow down on the fact

> that I am getting older.

>

> Hope things will always improve for you.

> --- Terry Dailey <terrydailey@... <terrydailey%40gmail.com>> wrote:

>

> > ,

> > I can tell you from my experience that the

> > limitations are the worst for me

> > to handle, I was also

> > in good health, and very active before I was dx'ed.

> > Fatigue and naseau were

> > the first big things to hit me, then the bone pain.

> > I was nearly bed ridden

> > the first few months on Gleevec but now they side

> > effects are managed. It

> > just takes time to realize I am not able to do the

> > things I used to be able

> > to do.

> > I was wondering does anyone else have a problem with

> > being out in the sun to

> > much or not being able to handle heat? I have

> > noticed that I cannot handle

> > being out in the sun much at all, and heat just

> > drains me big time.

> > Take care,

> >

> > Terry

> >

> > On 7/12/07, Cervera <weez_555@... <weez_555%40hotmail.com>

> >

> > wrote:

> > >

> > > Yes, the word CANCER is so scary, though I think

> > it is getting better...we

> > > are lucky to live in this day and age. My husband,

> > too, was never ever

> > > sick

> > > before all of this. He was never " weak " . I think

> > the hardest thing

> > > has

> > > had to adjust to is feeling like he cant always

> > " take care " of me. For a

> > > while there (the early months of all of this), I

> > was the one taking care

> > > of

> > > him, and that had never happened before. He really

> > doesnt like feeling

> > > " weak " , and I dont mean weak physically in terms

> > of strength. I mean weak

> > > in

> > > the sense that he might not be able to do all the

> > things he used to do, he

> > > can no longer work in our yard 8 hours straight,

> > he can no longer hike

> > > miles

> > > into a great remote fishing spot, he can no longer

> > drink a 6-pack while

> > > hiking to that great remote fishing spot!!!! But,

> > if nothing else, this

> > > CML

> > > stuff is just a reminder that we are also not as

> > young as we used to be!

> > > And, the awesome thing is that he still CAN work

> > in our yard...for 2

> > > hours,

> > > he still CAN go fishing...if it is a stroll around

> > a lake, and he looks

> > > forward to a beer every once in a while. For him,

> > it is the fact that he

> > > now

> > > has more limitations with CML, but that isnt

> > necessarily a bad thing...it

> > > has made him slow down and savor the things he can

> > do that much more.

> > >

> > > He has only been on Sprycel for 2 weeks. So far,

> > so good...but we realize

> > > it

> > > is early. Most people on Sprycel are on it due to

> > Gleevec intolerance

> > > ('s liver was at a high toxicity level, so he

> > had to stop Gleevec).

> > > That

> > > is good to hear that your husband is one of the

> > " newbies " who started out

> > > on

> > > Sprycel, he never was on Gleevec, then? I was

> > wondering about that. There

> > > is

> > > alot of talk that in the near future Sprycel might

> > become the front-line

> > > treatment for CML. Gleevec wont go away, and many

> > people might still have

> > > better results with Gleevec. But the most

> > important thing is that there

> > > are

> > > options...what works for some might not work for

> > others. So, that is

> > > interesting to hear that there are people like

> > your husband who have only

> > > ever been on Sprycel..interesting. We see Dr.

> > Druker the end of this

> > > month, and I am interesting in hearing a few

> > comments straight from his

> > > mouth about the future treatment of CML, about

> > some of the trials

> > > currently

> > > happening, etc.

> > >

> > > And, yes, a common side affect of Sprycel is the

> > bleeding thing. How are

> > > your husband's platelet counts? I know 's have

> > already gone down some

> > > even after being on Sprycel just 2 weeks...not

> > anything to worry about

> > > yet,

> > > but his docs keep a close eye on his counts.

> > Platelet suppression is

> > > common

> > > on Sprycel, and if you have low platelets, your

> > blood cannot clot has

> > > easily...and I think that is why the blood seems

> > to flow more...

> > >

> > > Well, thanks for sharing....good luck to you and

> > your husband...

> > > Cervera

> > >

> > > >From: sarahschrade <no_reply <no_reply%40>

> >

> > > >Reply- <%40>

> > > > <%40>

> > > >Subject: Re: [ ] How to tell your children

> > > >Date: Fri, 13 Jul 2007 02:16:59 -0000

> > > >

> > > >I think when somebody says the word CANCER, you

> > automatically think

> > > >the worst. My husband got diagnosed in Nov 06.

> > Our life seems to be

> > > >back to normal.(somewhat) He hardly ever got sick

> > before and now it

> > > >seems like he is always sick. And when he does

> > get sick, it takes a

> > > >long time to get over it. He gets so upset.

> > Remembering to take his

> > > >medicine was a big thing for him too. I was

> > constantly reminding him

> > > >to take it. He has gotten better with that

> > though. How long has

> > > >your husband been on Spycel? My husband started

> > on Sprycel from the

> > > >very begining through a reseach study at MD

> > in Texas. They

> > > >know it will work for patients that are coming

> > off of Gleevec. They

> > > >are trying to see if it will work from the very

> > begining.(chronic

> > > >stage) So far so good. He hasn't had any side

> > effects. They told

> > > >him to go on living a normal life. I told the

> > doctor that he bowls

> > > >and plays softball. He said don't stop. But I

> > have noticed in

> > > >softball though if he gets a cut or something

> > from sliding he bleeds

> > > >like crazy. I guess that is from the Luekemia. I

> > hope everything

> > > >continues to go great for you and your family.

> > Thank you and God

> > > >Bless

> > > >

> > > > --- In <%40>, "

> > Cervera " <weez_555@...>

> > > >wrote:

> > > > >

> > > > > --

> > > > > I think it is a great idea taking your 12-yr

> > old to your husband's

> > > >doc

> > > > > visits. Both my parents had cancer, and

> > although I was older (20

> > > >years old),

> > > > > I started going to my mom's oncologist

> > appointments with her, and

> > > >it gave me

> > > > > a sense of empowerment in that I started

> > understand the cancer

> > > >that she had.

> > > > > Granted, your son is much younger, but it will

> > probably put his

> > > >mind at

> > > > > ease.

> > > > >

> > > > > I, too, can relate to the crying and

> > devastation when you first

> > > >got the news

> > > > > about your husband. I remember that very well.

> > For us, it was last

> > > >July, and

> > > > > our son was just 2 months old...I still hadnt

> > " recovered " from

> > > >having a

> > > > > baby, then we got the triple-whammer news

> > about my husband from

> > > >the ER

> > > > > doctors.... " Well........you might want to

> > sit down...the

> >

> === message truncated ===

>

> __________________________________________________________

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>

July 14, 2007

The agony of having someone you love, and yet so

young was so devastating, and fearful. Thats the case

we are experiencing now, knowing that in few months

from now our beloved grandson will be gone.There are

sleepless night that i keep also thinking why it

happened to him, so young and full of life yet inspite

of all these things we always put our hope in God that

He will strengthen us, much more with Errizsel, my

grandson..I want you to keep us in your prayers..

Rene

--- Cervera <weez_555@...> wrote:

> --

> I think it is a great idea taking your 12-yr old to

> your husband's doc

> visits. Both my parents had cancer, and although I

> was older (20 years old),

> I started going to my mom's oncologist appointments

> with her, and it gave me

> a sense of empowerment in that I started understand

> the cancer that she had.

> Granted, your son is much younger, but it will

> probably put his mind at

> ease.

>

> I, too, can relate to the crying and devastation

> when you first got the news

> about your husband. I remember that very well. For

> us, it was last July, and

> our son was just 2 months old...I still hadnt

> " recovered " from having a

> baby, then we got the triple-whammer news about my

> husband from the ER

> doctors.... " Well........you might want to sit

> down...the reason you have

> lost mobility on your left side is due to a stroke,

> caused by a blood clot

> in your brain, we think caused by the fact that you

> have 449,000 white blood

> cell count due to the fact that you have leukemia. "

> I remember standing in

> the ER with my newborn, almost falling to the

> ground. The worst part for my

> husband was that he felt like HE was causing me so

> much pain and grief...I

> had already lost both my parents to cancer, now we

> were being told he has

> cancer.

>

> All of that happened one year ago this coming

> Sunday. And, I cant believe

> HOW FAR we have come in 1 year---many thanks to this

> forum, 's team of

> doctors, and Dr. Druker and Dr. Neil Shah! My

> husband was in the ICU for 2

> weeks, after having multiple brain surgeries. They

> removed the blood clot,

> his mobility started coming back, and it seemed like

> the leukemia was the

> last thing on our mind. But, he started

> Gleevec....and slowly life started

> returning to normal...well, as normal as it could

> be...which actually was

> pretty darn normal. He recently developed a

> resistance to Gleevec and is now

> on Sprycel.

>

> I still have my nights once in a while when some

> tears come, But not because

> this is " unfair " , not because " why us " ?, not even

> because " what if his

> health changes " . Now the tears come in

> thanksgiving...to God...for how

> blessed we are, and how blessed we have been in the

> last year. I felt so

> hopeless only one year ago, and yes...things might

> still change in the

> future...but we will deal with them if they do, and

> until then we enjoy

> every day we have together...

>

> Good luck with your son, I will keep your family in

> my thoughts...

> Regards,

>

> >From: sarahschrade <no_reply >

> >Reply-

> >

> >Subject: Re: [ ] How to tell your children

> >Date: Thu, 12 Jul 2007 19:49:28 -0000

> >

> >Thank you so much Terry. Me and my husband have

> been married for 11

> >years in August. But we have been dating since we

> were in the 9th

> >grade. He is 30 and I am 29. We had our first son

> when we were in

> >11th grade. We both had to grow up really fast. He

> is not just my

> >husband he is also my best friend. We have been

> through so much

> >together. But him getting CML has been the worst.

> He is the type of

> >man that does not show any emotion. When we found

> out the news I

> >was devastated. It did not seem to bother him that

> much but I know

> >it did. It had too. I cried every night for about

> a month after

> >everybody went to bed, asking God why it did not

> happen to me

> >instead. did not deserve this. I finally

> snapped out of what

> >ever I was going threw. I never told my husband

> about it. I could

> >only imagine what he is going threw I did not want

> him to worry

> >about me too. It really hit me hard. Everything

> is fine now for me

> >except my 12 year old being distant from his dad. I

> am going to try

> >to talk him into going to his appointment in

> August. He also gets

> >blood work done once a month and every three months

> he see the

> >doctor. Again thank you so much. Take care

> >

> > >

> > > ,

> > >

> > > I have a 13 year old soon that was 10 when I was

> dx'ed. My wife at

> >the time

> > > totally changed from

> > > the woman I feel in love with and married, and

> actually told my

> >son and

> > > step-son that they were

> > > going to cause their father to die!! I was sick

> and my body was

> >getting used

> > > to the gleevec, and I was

> > > going through allot mentally so she was doing

> things like that

> >when I was

> > > laying down and I was not aware of

> > > it. It caused my son to want to go live back

> with his mother.(I at

> >that

> > > point had my son Nick since he was 5)

> > > Recently my son has came back to live with

> me(for good) nd my new

> >wife. He

> > > has been scared to death of me dying. So what I

> did was take him

> >in with me

> > > and had him talk with the doctor I saw on one of

> the appointments

> >where I

> > > saw a doctor.(At present I have blood work done

> each month and on

> >the third

> > > month I see the doctor) It helped him

> tremendously, because my

> >doctor

> > > explained to him that even though his dad might

> be sick and have a

> >major

> > > disease the gleevec is working great and I would

> be around for a

> >long time,

> > > even to see my grandkids.(He threw in a joke to

> Nick that better

> >not happen

> > > to soon..hehe) So YES!! Take your 12 year old in

> to talk to the

> >doctor, and

> > > even the 5 year old if he wonders why the 12

> year old gets to go

> >and he

> > > doesn't.

> > > It broke my heart to find out later what my

> ex-wife had said to my

> >son. I

> > > did not find out the things she was saying until

> much later after

> >she booted

> > > me out of the house. I knew there were issues

> because the ex

> >stopped going

> > > to my doctor visits with me(my mother ended up

> going in her place)

> >and she

> > > even stopped asking what they had said.

> > > She was supposedly Wiccan and thought through

> her practice of

> >using crystals

> > > and various Wiccan treatments she could cure me.

> I went along with

> >this

> > > stuff because I loved her and I was taking my

> gleevec so I figured

> >if it

> > > made her feel better It would not hurt me to go

> along with it. She

> > > complained I spent to much time on the PC(I am

> a gamer, and I was

> >also on

>

=== message truncated ===

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July 14, 2007

Hi Terry, My husband works out side in the sun and the heat, It is

very hard om him since he was dx'd. He comes home dead tired. He

also sunburns more easy so he had to start wearing sunscreen. His

doctor said it was from the Sprycel.

> > > > > >

> > > > > > ,

> > > > > >

> > > > > > I have a 13 year old soon that was 10 when I was dx'ed.

My

> > >wife at

> > > > >the time

> > > > > > totally changed from

> > > > > > the woman I feel in love with and married, and actually

told my

> > > > >son and

> > > > > > step-son that they were

> > > > > > going to cause their father to die!! I was sick and my

body was

> > > > >getting used

> > > > > > to the gleevec, and I was

> > > > > > going through allot mentally so she was doing things

like that

> > > > >when I was

> > > > > > laying down and I was not aware of

> > > > > > it. It caused my son to want to go live back with his

mother.

> > >(I at

> > > > >that

> > > > > > point had my son Nick since he was 5)

> > > > > > Recently my son has came back to live with me(for good)

nd my

> > >new

> > > > >wife. He

> > > > > > has been scared to death of me dying. So what I did was

take

> > >him

> > > > >in with me

> > > > > > and had him talk with the doctor I saw on one of the

> > >appointments

> > > > >where I

> > > > > > saw a doctor.(At present I have blood work done each

month and

> > >on

> > > > >the third

> > > > > > month I see the doctor) It helped him tremendously,

because my

> > > > >doctor

> > > > > > explained to him that even though his dad might be sick

and

> > >have a

> > > > >major

> > > > > > disease the gleevec is working great and I would be

around for

> > >a

> > > > >long time,

> > > > > > even to see my grandkids.(He threw in a joke to Nick that

> > >better

> > > > >not happen

> > > > > > to soon..hehe) So YES!! Take your 12 year old in to talk

to the

> > > > >doctor, and

> > > > > > even the 5 year old if he wonders why the 12 year old

gets to

> > >go

> > > > >and he

> > > > > > doesn't.

> > > > > > It broke my heart to find out later what my ex-wife had

said

> > >to my

> > > > >son. I

> > > > > > did not find out the things she was saying until much

later

> > >after

> > > > >she booted

> > > > > > me out of the house. I knew there were issues because

the ex

> > > > >stopped going

> > > > > > to my doctor visits with me(my mother ended up going in

her

> > >place)

> > > > >and she

> > > > > > even stopped asking what they had said.

> > > > > > She was supposedly Wiccan and thought through her

practice of

> > > > >using crystals

> > > > > > and various Wiccan treatments she could cure me. I went

along

> > >with

> > > > >this

> > > > > > stuff because I loved her and I was taking my gleevec so

I

> > >figured

> > > > >if it

> > > > > > made her feel better It would not hurt me to go along

with it.

> > >She

> > > > > > complained I spent to much time on the PC(I am a gamer,

and I

> > >was

> > > > >also on

> > > > > > in this group) so, I cut my PC usage over half of what I

used

> > >to

> > > > >spend. She

> > > > > > then ended up spending hours a day on the PC herself

getting

> > > > >immersed into

> > > > > > some sort of Prophecy forum group that talked about the

end of

> > >the

> > > > >world,

> > > > > > started storing gallon jugs in the basement, and looking

at a

> > >web

> > > > >site that

> > > > > > showed where each day every little tremor or earthquake

is

> > > > >reported. She

> > > > > > even at one point wanted us to move to some sort of

commune in

> > > > >Tennessee. I

> > > > > > of course said no because I needed to be close to an Onco

> > >doctor,

> > > > >and I

> > > > > > could tell she seemed to be losing it a bit. Well when I

had my

> > > > >second BMT

> > > > > > and it showed I still had CML she totally flipped out.

She

> > >blamed

> > > > >me because

> > > > > > I did not have enough faith in her treatments. We then

grew

> > >even

> > > > >further

> > > > > > apart and did not have sex for the last six months we

were

> > >living

> > > > >in the

> > > > > > same household, she quit bathing on a normal basis and

did not

> > > > >want to leave

> > > > > > the house, many days never changing out of her night

gown. Well

> > > > >things came

> > > > > > to a head when my side effects lessened enough to just

not

> > >take it

> > > > >anymore,

> > > > > > and I confronted her about the state of our marriage. Her

> > >response

> > > > >was for

> > > > > > me to get the hell out.

> > > > > > I know this seems to be to much info but it is leading

up to

> > >this

> > > > >statement

> > > > > > I want to make to every spouse of a CML patient that is

> > >hanging in

> > > > >there.

> > > > > > You are great people who truly deserve some sort of

award in my

> > > > >opinion,

> > > > > > because I know it is allot to have to deal with. Not

knowing

> > >if or

> > > > >when the

> > > > > > bad news may come that treatment is not working,

watching your

> > > > >husband or

> > > > > > wife go through side effects, and it some cases(like

mine)

> > >having

> > > > >your

> > > > > > household income cut in half. I cannot speak for

everyone here

> > > > >that has CML

> > > > > > but I know I did go on my own little pity party, and that

> > >can't be

> > > > >the best

> > > > > > thing in the world for a spouse to go through either. I

applaud

> > > > >you

> > > > > > and all the other loved ones that are sticking it out

with

> > >those

> > > > >that have

> > > > > > CML. Granted our disease is a long drawn out thing and

we can

> > >live

> > > > >pretty

> > > > > > much a normal life span, but it brings happiness to me

to see

> > >it

> > > > >when I see

> > > > > > women(or men) like you that are there for your

husband.

> > >You

> > > > >and

> > > > > > other's like you(my new wife included) are the greatest

gifts

> > >we

> > > > >CML'ers

> > > > > > could ask for. Take care sweety, with you at his side

your

> > > > >husband, and your

> > > > > > kids will be just fine:)

> > > > > >

> > > > > > Take care,

> > > > > >

> > > > > > Terry

> > > > > >

> > > > > > On 7/12/07, sarahschrade <no_reply >

wrote:

> > > > > > >

> > > > > > > My husband was dx in Nov of 06. I have two boys

(ages 12

> > >and

> > > > >5). The

> > > > > > > 5 year old does not understand what's going on but my

12 year

> > > > >old was

> > > > > > > really upset about it. We told him that everything was

going

> > >to

> > > > >be

> > > > > > > fine but he his constantly asking (my husband)

if he

> > >feels

> > > > >ok. I

> > > > > > > know he is going to worry about, we all do. I just

don't want

> > > > >him to

> > > > > > > worry himself silly. I have thought about taking him

to one

> > >of

> > > > > > > Chris's appointments that way it may reassure him. Any

> > > > >suggestions??

> > > > > > >

> > > > > > > Thanks

> > > > > > >

> > > > > >

July 14, 2007

Rene,

I am so sorry about your grandson's condition, but try to hang in there.

I am not a very reglious person but I do believe there is a higher power and

I hope that higher power

can be some comfort to you and your family during this terrible time. It

breaks my heart to hear of

kids that come down with CML or any type of Leukemia. It is very unfair

especially when it is the type that

is a long and drawn out process. I will keep you, your family and your

grandson in my thoughts and wish

you well and hope things get better. Again I am so sorry.

,

I am very glad your husband can still work but I also feel very sorry he has

to work out in the heat like that. As I said I can't last very long at all

in heat. That I think was the worse thing for me to get used to, not being

able to work, and I had a desk job. I had gotten so used to making a good

living and loved my job, but because of fatigue and my loss of

concentration, and having to take pain meds for my bone pain I just

couldn't do it. I did try to go back the first week of July in 04 and it was

a disaster. I got the mistake in time but I almost made a mistake I would

normally never do that would have cost my company about 50 grand.

The sad thing is if I were ever able to work again my doctors advised

against trying it because many places would find a reason to get rid of me

because I would raise the cost of their insurance, and saddly the state I

live in does not have many laws to protect people from that. Because an

employer can come up with any reason to get rid of you.

Terry

On 7/14/07, ireneo bueno <ibbueno2001@...> wrote:

>

> The agony of having someone you love, and yet so

> young was so devastating, and fearful. Thats the case

> we are experiencing now, knowing that in few months

> from now our beloved grandson will be gone.There are

> sleepless night that i keep also thinking why it

> happened to him, so young and full of life yet inspite

> of all these things we always put our hope in God that

> He will strengthen us, much more with Errizsel, my

> grandson..I want you to keep us in your prayers..

> Rene

> --- Cervera <weez_555@... <weez_555%40hotmail.com>> wrote:

>

> > --

> > I think it is a great idea taking your 12-yr old to

> > your husband's doc

> > visits. Both my parents had cancer, and although I

> > was older (20 years old),

> > I started going to my mom's oncologist appointments

> > with her, and it gave me

> > a sense of empowerment in that I started understand

> > the cancer that she had.

> > Granted, your son is much younger, but it will

> > probably put his mind at

> > ease.

> >

> > I, too, can relate to the crying and devastation

> > when you first got the news

> > about your husband. I remember that very well. For

> > us, it was last July, and

> > our son was just 2 months old...I still hadnt

> > " recovered " from having a

> > baby, then we got the triple-whammer news about my

> > husband from the ER

> > doctors.... " Well........you might want to sit

> > down...the reason you have

> > lost mobility on your left side is due to a stroke,

> > caused by a blood clot

> > in your brain, we think caused by the fact that you

> > have 449,000 white blood

> > cell count due to the fact that you have leukemia. "

> > I remember standing in

> > the ER with my newborn, almost falling to the

> > ground. The worst part for my

> > husband was that he felt like HE was causing me so

> > much pain and grief...I

> > had already lost both my parents to cancer, now we

> > were being told he has

> > cancer.

> >

> > All of that happened one year ago this coming

> > Sunday. And, I cant believe

> > HOW FAR we have come in 1 year---many thanks to this

> > forum, 's team of

> > doctors, and Dr. Druker and Dr. Neil Shah! My

> > husband was in the ICU for 2

> > weeks, after having multiple brain surgeries. They

> > removed the blood clot,

> > his mobility started coming back, and it seemed like

> > the leukemia was the

> > last thing on our mind. But, he started

> > Gleevec....and slowly life started

> > returning to normal...well, as normal as it could

> > be...which actually was

> > pretty darn normal. He recently developed a

> > resistance to Gleevec and is now

> > on Sprycel.

> >

> > I still have my nights once in a while when some

> > tears come, But not because

> > this is " unfair " , not because " why us " ?, not even

> > because " what if his

> > health changes " . Now the tears come in

> > thanksgiving...to God...for how

> > blessed we are, and how blessed we have been in the

> > last year. I felt so

> > hopeless only one year ago, and yes...things might

> > still change in the

> > future...but we will deal with them if they do, and

> > until then we enjoy

> > every day we have together...

> >

> > Good luck with your son, I will keep your family in

> > my thoughts...

> > Regards,

> >

> > >From: sarahschrade <no_reply <no_reply%40>

> >

> > >Reply- <%40>

> > > <%40>

> > >Subject: Re: [ ] How to tell your children

> > >Date: Thu, 12 Jul 2007 19:49:28 -0000

> > >

> > >Thank you so much Terry. Me and my husband have

> > been married for 11

> > >years in August. But we have been dating since we

> > were in the 9th

> > >grade. He is 30 and I am 29. We had our first son

> > when we were in

> > >11th grade. We both had to grow up really fast. He

> > is not just my

> > >husband he is also my best friend. We have been

> > through so much

> > >together. But him getting CML has been the worst.

> > He is the type of

> > >man that does not show any emotion. When we found

> > out the news I

> > >was devastated. It did not seem to bother him that

> > much but I know

> > >it did. It had too. I cried every night for about

> > a month after

> > >everybody went to bed, asking God why it did not

> > happen to me

> > >instead. did not deserve this. I finally

> > snapped out of what

> > >ever I was going threw. I never told my husband

> > about it. I could

> > >only imagine what he is going threw I did not want

> > him to worry

> > >about me too. It really hit me hard. Everything

> > is fine now for me

> > >except my 12 year old being distant from his dad. I

> > am going to try

> > >to talk him into going to his appointment in

> > August. He also gets

> > >blood work done once a month and every three months

> > he see the

> > >doctor. Again thank you so much. Take care

> > >

> > > >

> > > > ,

> > > >

> > > > I have a 13 year old soon that was 10 when I was

> > dx'ed. My wife at

> > >the time

> > > > totally changed from

> > > > the woman I feel in love with and married, and

> > actually told my

> > >son and

> > > > step-son that they were

> > > > going to cause their father to die!! I was sick

> > and my body was

> > >getting used

> > > > to the gleevec, and I was

> > > > going through allot mentally so she was doing

> > things like that

> > >when I was

> > > > laying down and I was not aware of

> > > > it. It caused my son to want to go live back

> > with his mother.(I at

> > >that

> > > > point had my son Nick since he was 5)

> > > > Recently my son has came back to live with

> > me(for good) nd my new

> > >wife. He

> > > > has been scared to death of me dying. So what I

> > did was take him

> > >in with me

> > > > and had him talk with the doctor I saw on one of

> > the appointments

> > >where I

> > > > saw a doctor.(At present I have blood work done

> > each month and on

> > >the third

> > > > month I see the doctor) It helped him

> > tremendously, because my

> > >doctor

> > > > explained to him that even though his dad might

> > be sick and have a

> > >major

> > > > disease the gleevec is working great and I would

> > be around for a

> > >long time,

> > > > even to see my grandkids.(He threw in a joke to

> > Nick that better

> > >not happen

> > > > to soon..hehe) So YES!! Take your 12 year old in

> > to talk to the

> > >doctor, and

> > > > even the 5 year old if he wonders why the 12

> > year old gets to go

> > >and he

> > > > doesn't.

> > > > It broke my heart to find out later what my

> > ex-wife had said to my

> > >son. I

> > > > did not find out the things she was saying until

> > much later after

> > >she booted

> > > > me out of the house. I knew there were issues

> > because the ex

> > >stopped going

> > > > to my doctor visits with me(my mother ended up

> > going in her place)

> > >and she

> > > > even stopped asking what they had said.

> > > > She was supposedly Wiccan and thought through

> > her practice of

> > >using crystals

> > > > and various Wiccan treatments she could cure me.

> > I went along with

> > >this

> > > > stuff because I loved her and I was taking my

> > gleevec so I figured

> > >if it

> > > > made her feel better It would not hurt me to go

> > along with it. She

> > > > complained I spent to much time on the PC(I am

> > a gamer, and I was

> > >also on

> >

> === message truncated ===

>

> __________________________________________________________

> Luggage? GPS? Comic books?

> Check out fitting gifts for grads at Search

> http://search./search?fr=oni_on_mail & p=graduation+gifts & cs=bz

>

July 14, 2007

Rene, I am so sorry to hear about your grandson. I will keep you and

your family in our prayers and our hearts. God Bless

> > > >

> > > > ,

> > > >

> > > > I have a 13 year old soon that was 10 when I was

> > dx'ed. My wife at

> > >the time

> > > > totally changed from

> > > > the woman I feel in love with and married, and

> > actually told my

> > >son and

> > > > step-son that they were

> > > > going to cause their father to die!! I was sick

> > and my body was

> > >getting used

> > > > to the gleevec, and I was

> > > > going through allot mentally so she was doing

> > things like that

> > >when I was

> > > > laying down and I was not aware of

> > > > it. It caused my son to want to go live back

> > with his mother.(I at

> > >that

> > > > point had my son Nick since he was 5)

> > > > Recently my son has came back to live with

> > me(for good) nd my new

> > >wife. He

> > > > has been scared to death of me dying. So what I

> > did was take him

> > >in with me

> > > > and had him talk with the doctor I saw on one of

> > the appointments

> > >where I

> > > > saw a doctor.(At present I have blood work done

> > each month and on

> > >the third

> > > > month I see the doctor) It helped him

> > tremendously, because my

> > >doctor

> > > > explained to him that even though his dad might

> > be sick and have a

> > >major

> > > > disease the gleevec is working great and I would

> > be around for a

> > >long time,

> > > > even to see my grandkids.(He threw in a joke to

> > Nick that better

> > >not happen

> > > > to soon..hehe) So YES!! Take your 12 year old in

> > to talk to the

> > >doctor, and

> > > > even the 5 year old if he wonders why the 12

> > year old gets to go

> > >and he

> > > > doesn't.

> > > > It broke my heart to find out later what my

> > ex-wife had said to my

> > >son. I

> > > > did not find out the things she was saying until

> > much later after

> > >she booted

> > > > me out of the house. I knew there were issues

> > because the ex

> > >stopped going

> > > > to my doctor visits with me(my mother ended up

> > going in her place)

> > >and she

> > > > even stopped asking what they had said.

> > > > She was supposedly Wiccan and thought through

> > her practice of

> > >using crystals

> > > > and various Wiccan treatments she could cure me.

> > I went along with

> > >this

> > > > stuff because I loved her and I was taking my

> > gleevec so I figured

> > >if it

> > > > made her feel better It would not hurt me to go

> > along with it. She

> > > > complained I spent to much time on the PC(I am

> > a gamer, and I was

> > >also on

> >

> === message truncated ===

>

_____________________________________________________________________

_______________

> Luggage? GPS? Comic books?

> Check out fitting gifts for grads at Search

> http://search./search?

fr=oni_on_mail & p=graduation+gifts & cs=bz

>

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