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Newly Diagnosed CML

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Dear everyone,

I am a 31 year old married male Filipino-Australian living in

Adelaide, Australia. I was recently diagnosed with CML. Like most of

you here, it was an incidental finding in a routine yearly blood

test. I do not have any symptoms when I was diagnosed that why we

were so shocked about the diagnosis.

My haematologist is Prof. of the IMVS and Royal

Adelaide Hospital. He is a CML expert and is known worldwide for his

research in CML.

My WBC when I was diagnosed was 124 now its between 4 to 7. I had my

bone marrow biopsy test done 2 weeks ago. I was told that

the " morphology " result is not too bad and Prof. was pleased

and he told me that I have a low grade CML. We are still waiting for

the other report (chromosome).

I have been taking hydrea for the past 4 weeks and I will start with

Gleevec therapy mid-October. I will be included in an Australasian

wide clinical trial designed by Prof. - Use of Nilotinib once

they find out that I am not responding well with high dose of Gleevek

(600mg).

I hope to be active in this support group. Regards and best wishes to

everyone.

Ray

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