Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 Hi , Congratulations on this wonderful achievement. is # 483 in the Zero Club. She reached Zero while on the HSP-70 vaccine trial back in April 2003. Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.2 log reduction Jun/07 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of loewen1 Sent: September 11, 2007 9:19 AM Subject: [ ] PCR Report- L Hi Everyone, I've been in a Sprycel trial at the Greenebaum Cancer Center at the University of land for a little more than a year and have done well with the drug from the beginning. I was taking 800 mg Gleevec since 2001 but it suddenly stopped working. My onc first saw a 4% FISH and three months later when I got into the trial on the last day it was open to new patients I had 17 positive cells out of 20 which is where I was when I was first diagnosed. Be aware that if your doctor finds something even very small to indicate that you're regressing then do something immediately! Now for the good news. Yesterday I got my latst bone marrow test results and they were completely 0 in every aspect including PCR. The PCR was taken from the marrow and not peripheral blood so we still need to do that. For now I'm very grateful for this new drug but, as we probably all are, forever vigilant. Peace and love, L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 Thank you for your note, Zavie. Brings back memories mentioning my first zero status in April 2003. It took two years to get there. So you're 69, huh? And still keeping those statistics in order. I'm 61 in Northern Virginia just outside Washington, DC and currently looking for a job. It isn't easy to even find something part-time and I'm looking for a career position so I can live a real life again! I've been looking at non-profit work because that was my last fulltime job. But I haven't had any luck and now I'm taking on the media folks since I have a background in that, too. I'm restarting a blog and will give you the address soon if you want to browse through it. All the best, [ ] PCR Report- L Hi Everyone, I've been in a Sprycel trial at the Greenebaum Cancer Center at the University of land for a little more than a year and have done well with the drug from the beginning. I was taking 800 mg Gleevec since 2001 but it suddenly stopped working. My onc first saw a 4% FISH and three months later when I got into the trial on the last day it was open to new patients I had 17 positive cells out of 20 which is where I was when I was first diagnosed. Be aware that if your doctor finds something even very small to indicate that you're regressing then do something immediately! Now for the good news. Yesterday I got my latst bone marrow test results and they were completely 0 in every aspect including PCR. The PCR was taken from the marrow and not peripheral blood so we still need to do that. For now I'm very grateful for this new drug but, as we probably all are, forever vigilant. Peace and love, L Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.