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Re: Digest Number 1055

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How do I find the Down Syndrom group... I have

searched all over and only found an Austrailain one is

there a Adult User group?

Cat mom to Alysha 24

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Hi Beth ,

Thanks for the DS Website info . I'm suprised , I've never ran into

this site . Since, I've found more info with the Autism sites which

has helped me understand my son . I will check this site out , since

it does involve alot of DS . Boy ! Just thought I let you know that

the information you sent , had described something that I kept

telling everyone that there should be something that will let us know

if our child has urinated in the toilet . Sometimes if I walked out

for a quick run to do something or try to see if he will do something

by having some privacy . I would not know if he did anything in the

toilet , it was hard to tell . I was surprised to see an answer for

that . It was , place a small dry piece of toilet paper right above

the water line inside the toilet . That was a neat idea . An update

on his 10th day . Yesterday evening , I had decided for to

wear a pull-up , reason behind that was he had the runs , yuck . No

telling what eat ate at school . I just tossed the underwear away .

Boy ! Did give me a smile when he realized I allowed him to

wear a pull-up . Well he slept peacefully last night . Woke up early

in a very good mood . After I had changed him this morning I had him

wear an underwear with no fuss . So far ok . Has been cooperating

nicely with the routine , no luck in the toilet . Maybe I'll just

concentrate with day time control , and worry about the night control

later . One way another , I'll have him scheduled trained . Then I

guess the rest will follow . Not giving up totally , YET . Ok , g2g ,

timer just buzzed . Thank you , soooo very much ! Take care .

Irma , 13,DS/ASD.

> ,

>

> Go to

>

>

> http://listserv.nodak.edu/archives/down-syn.html

>

> You can read the archives without having to join the list. I also

belong

> to this list in the form of a Usenet Newsgroup, but only some of

the posts

> show up so I just go to the archives.

>

>

> Beth

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  • 3 months later...

I was told that mucous in the stools forms when the bowels coat themselves

when they become inflamed from an allergic reaction to food. I know that's

one of the first things I'll see if I eat something I shouldn't.

Date: Thu, 06 Dec 2001 13:36:20 -0000

From: " henhao_us " <henhao_us@...>

Subject: mucuous in stools?

What does it mean when you have mucuous in your stools? Is this a

cleansing sign?

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  • 1 year later...

My name is Eddie, and I am recentley diagnosed with Hepatitis C. I am searching for as much feed back on the combined treatment as possible. I would like to find a board or chat room that I could join. I will be starting my treatments on thursday 8-21-03, and I have a feeling in the begining I might need some support. Thanks P.S. prayers are more than welcome.

"Be what you is, not what you ain't. Cause when you is what you ain't, then you ain't what you is."

EDDIE

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Hi Eddie , i am only this Wife of Hepper ( husband has been threw treatment one time and it didnt work 100%, so he will be starting a nother treatment next month ) BUt i have found a wonderful suport group in something called Delphi Fourms,,,,,,,, it has lot of chat rooms and messaeges posted , lots of good info !!!!!!!!!! you will be OK Look for this forum, if i was better at the computer i could send you a Link,,,,,,,,,, but lolTubs46@... wrote:

My name is Eddie, and I am recentley diagnosed with Hepatitis C. I am searching for as much feed back on the combined treatment as possible. I would like to find a board or chat room that I could join. I will be starting my treatments on thursday 8-21-03, and I have a feeling in the begining I might need some support. Thanks P.S. prayers are more than welcome."Be what you is, not what you ain't. Cause when you is what you ain't, then you ain't what you is."EDDIE

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  • 2 years later...
  • 1 year later...
Guest guest

I think this is excellent advice. I have three small children and

I think I will start involving them more, so they will feel less

frightened.

With warm regards,

Matt

Florida

DX January 2005

Gleevec since March 2005

Father of Three

In a message dated 7/15/2007 7:53:37 P.M. Eastern Daylight Time,

kttweety@... writes:

Hey Group. . .

Due to my overall general health declining from the '80s, I had to make the

decision to involve my 2~~now adult children in my visits to the Dr's, Xrays,

Therapy, Hospitalizations, Surgery's, etc., At the time I was a stay-at-home

Mom and made the decision to involve them in as many of my appointments as

they were able to participate in over the years.

Now, looking back; they tell me that they're glad that they were always

involved. I did make the mistake of not telling them when I was diagnosed with

our bug and given my morbid mortality. Father came to the house, had

pre-arranged daughter in college coming and my son via phone; who had went into

the

USAF only 11 days prior to my hospit

************************************** Get a sneak peak of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

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Guest guest

Very well stated " K " .... My 3 young kids have been involved in everything.

They all respond and understand at their own level. I have found that

including them gives them some control. And lets face it, even us as adults

when

not sure or question, we always have a way of resorting to the worst.

Include them, be honest. I think they appreciate it.

Hugs-

CML 5/13/05

Gleevec 800mg PCRU

Wife and mother to 3 (11,8,6)

************************************** Get a sneak peak of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

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Guest guest

Hey Group. . .

Due to my overall general health declining from the '80s, I had to make the

decision to involve my 2~~now adult children in my visits to the Dr's, Xrays,

Therapy, Hospitalizations, Surgery's, etc., At the time I was a stay-at-home Mom

and made the decision to involve them in as many of my appointments as they were

able to participate in over the years.

Now, looking back; they tell me that they're glad that they were always

involved. I did make the mistake of not telling them when I was diagnosed with

our bug and given my morbid mortality. Father came to the house, had

pre-arranged daughter in college coming and my son via phone; who had went into

the USAF only 11 days prior to my hospitalization and diagnosis. I hadn't wanted

to add the Xtra pressure to either of them with her mid-terms and his basic

training.

Parents of young children, please involve them as much as possible in your

health. I will never forget my 3-year old son climbing up in the bed with me

when I had Pneumonia and had been told that I wouldn't make it. He said 'nobody

do it like Mommy do it' when I asked him how he was~~he and his sister remember

that and other things that you don't think they will remember as such early

ages~~they are more resilient than we ever give them credit . . .

and believe me. . .they DO need to be a part of everything. They process a lot

more mentally than we give them credit for at very early ages.

Take care. . .ALL are in my prayers.

" K "

" I AIN'T FINISHED YET " !!!

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