Re: 0 ~~ ZERO CLUB

[Guest guest]

Forgive me if I sound stupid but what is club zero? I am new to all

of this and I have no idea what you are talking about. I am just

curious.

--- In , IAintFinishedYet <kttweety@...>

wrote:

>

> Hey Sassy Sue. . .

> You are absolutely correct, and I'm not interested in the CCP

approving you for disability in Canada. Being a USA citizen, I am

very much aware of the differences in the two country's; Canada's

medication policy is much more lax than ours (people go to/order

Canadian medications online prior to governmental restrictions).

However per your response to several days ago in Digest #1051

regarding the Zero Club is of my concern as a CML Survivor. I most

definitely want to know what was said about the '0'~~ZERO CLUB at

the Novartis meeting in Germany. Per your post to in 1g. of the

digest; you stated that should " ask Zavie how the 'ZERO CLUB'

was reacted to during the meeting. . .you are sure that he would

love for this information to be on this site " .

> Well, Sassy; you don't have to post it to the site; however, I

would like for you to email me personally and let me know how Zavie

& the Zero Club were received at the Novartis meeting in Germany.

Unlike you, being disabled in the USA; I am unable to attend the

meeting due to personal finances (lack of. . .hehehe). Please email

me privately and let me know.

> Many Survivors have moved on since the Clinical Trials and the

Pioneering days of our gold~~Gleevec. I, as everyone knows, don't

have the 'options'. I remember years ago, after Zavie began

the " 0 " ~~Zero Club (and I'm glad that he did). It gave Survivors

something to strive for as we battled our disease. Finally, we had a

maintenance medication and I Survived; though 8 out of 8 H/O

Specialists said 2-5 months morbid mortality. Then the 2nd

generation medications were in research & development (Sprycel,

Dasatib, etc.). Now it has became 'fashionable' to become 1st to be

placed on whatever's in trial at the time. The sad thing is that

some survivors are actually going down the yellow brick road and

ruining their responses. There is 'NO CURE' for CML ! ! !

> As I stated, Sassy Sue; I would love for you to email me

personally and let me know how the '0'~~Zero Club was

received. . .because it meant a lot to me years ago. Just as the RT-

PCR Test means a lot to me today.

> I have you & yours in my prayers as always. . . " K "

>

>

>

> " K "

> " I AIN'T FINISHED YET " !!!

>

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