0 ~~ ZERO CLUB

[Guest guest]

Hey Sassy Sue. . .

You are absolutely correct, and I'm not interested in the CCP approving you

for disability in Canada. Being a USA citizen, I am very much aware of the

differences in the two country's; Canada's medication policy is much more lax

than ours (people go to/order Canadian medications online prior to governmental

restrictions). However per your response to several days ago in Digest

#1051 regarding the Zero Club is of my concern as a CML Survivor. I most

definitely want to know what was said about the '0'~~ZERO CLUB at the Novartis

meeting in Germany. Per your post to in 1g. of the digest; you stated that

should " ask Zavie how the 'ZERO CLUB' was reacted to during the meeting. .

..you are sure that he would love for this information to be on this site " .

Well, Sassy; you don't have to post it to the site; however, I would like for

you to email me personally and let me know how Zavie & the Zero Club were

received at the Novartis meeting in Germany. Unlike you, being disabled in the

USA; I am unable to attend the meeting due to personal finances (lack of. .

..hehehe). Please email me privately and let me know.

Many Survivors have moved on since the Clinical Trials and the Pioneering days

of our gold~~Gleevec. I, as everyone knows, don't have the 'options'. I remember

years ago, after Zavie began the " 0 " ~~Zero Club (and I'm glad that he did). It

gave Survivors something to strive for as we battled our disease. Finally, we

had a maintenance medication and I Survived; though 8 out of 8 H/O Specialists

said 2-5 months morbid mortality. Then the 2nd generation medications were in

research & development (Sprycel, Dasatib, etc.). Now it has became 'fashionable'

to become 1st to be placed on whatever's in trial at the time. The sad thing is

that some survivors are actually going down the yellow brick road and ruining

their responses. There is 'NO CURE' for CML ! ! !

As I stated, Sassy Sue; I would love for you to email me personally and let me

know how the '0'~~Zero Club was received. . .because it meant a lot to me years

ago. Just as the RT-PCR Test means a lot to me today.

I have you & yours in my prayers as always. . . " K "

" K "

" I AIN'T FINISHED YET " !!!