zero Club

[Guest guest]

I've sat back and read all the dialogue and, quite frankly, I don't care how any

group other than MYSELF thinks of Zavie and the zero club. He is my hero and I

appreciate a time when my daughter had no insurance to help pay for Gleevec and

he found a way to get it.

I appreciate that he set up this group. And he was there to greet us when we

had to join it.

Like many others, I was met with the hope and support we needed to get us

through the most horrendous time in our lives.

Zavie only said what others of us were thinking. And yes, that might get some

folks irate but I speak the truth. I know from watching my daughter the effects

of Gleevec and CML and I know my daughter can barely walk up a flight of stairs

without stopping for a breath. I am very thankful to know she has been approved

for her Social Security Disability. What others are doing, I don't care. My

life centers with my own family.

Sue

---------------------------------

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[Guest guest]

_____

From: Lottie Duthu [mailto:lotajam@...]

Sent: February 20, 2008 4:16 PM

Zavie

Subject: Zero Club

Zavie,

Another email bounced back with the same message that someone in the group's

email is incorrect. Looks like I'm out of the loop before I even get in.

LOL. By the way, I have an oncologist who offered to answer questions if

you would want to have a Q & A. I would collect a few at a time, send them

to him and then skoot them back to the group, but I can't do that if my

emails aren't going through.

Lottie

Dear group,

Congratulations to on the new grandbaby. Another one to spoil, no

doubt. They are just great and you can always give them back to their moms

when you've had enough. Not something you can get away with when you are

" the mom " .

These zeroes must be putting a strain on Zavie, please members, we don't

want him to have a heart attack. LOL. Congratulations on the zeroes, too

and may you stay that way and continue on and stack up the logs for a rainy

day. Isn't there a limit on how many Yippee's can he have in a day,

anyway??????????

Best wishes,

Lottie

[Guest guest]

Lottie, thanks for your encouragement, and the Irish blessing ( My maiden

name is O'Brien) so I have always counted on the luck of the Irish. I am

feeling a lot better mentally at least . I have terrible bone aches from my

hips to my ankles. My heating pad is now my best friend .I am not

complaining though , you guys certainly put this in perspective for me. My

glass is always half full now and never was before. Thank you all for that .

I think I am a better person for it . You are all in my thoughts and

prayers. Take care. Eva

--------------------------------------------------

From: " Lottie Duthu " <lotajam@...>

Sent: Sunday, April 20, 2008 1:21 AM

" CML " < >

Subject: [ ] Zero Club

> Dear Eva,

> If you beat me to the Zero club, you will have to answer to me. I have

> been waiting nearly 12 years and you are passing me up. Go figure. I, as

> well as the rest of the members feel joy for you, as the beginning was so

> stressful waiting to get an appointment while looking at your CBC and the

> awfully high numbers. I hope all goes well from here on.

> Blessings,

> Lottie

> You can have an Irish poem for that:

>

> Oh, call it by some better name,

> For Friendship sounds too cold,

> While love is now a worldly flame,

> Whose shrine must be of gold;

> And Passion like, the sun at noon,

> That burns o'er all he sees

> Awhile as warm, will set as soon -

> Then, call it none of these.

> ( )

>

>