Re: Question's on Sprycel & Side Effects

[Guest guest]

Hi ,

I was on 800 mg Gleevec for about 2 1/2 years and had lots of side effects. I

lost my response to the drug a little more thaan a year ago and transitioned to

100 mg of Sprycel per day. I have not had any side effects at all. However,

your daughter is taking 140 mg which is quite a different dose than mine. I

suggest that you go to www.newcmldrug.com and on the home page you'll find a

list of discussion groups on the left hand side. Click on the Sprycel

Discussion and you'll find a lot of information, a place to post and lots of

people on Sprycel who have had many different reactions to Sprycel.

Best luck,

L

[ ] Question's on Sprycel & Side Effects

My daughter (14) is a CML patient and on Gleevec (600mg) for 2 years.

Resistence was identified just recently and she has transitioned to

Sprycel (140mg) just this past week.

I am curious to know anyone in a similar situation, on Sprycel, and the

side effects encountered and durations. The 12 pages of " side-effect

horror " provided by our Onc Team and Pharmacy is helpful, but

recognizing everyone reacts differently, I am curious to know how

others are affected.

Only into Sprycel for a week, we have experienced (separately) brief

headache, brief abdominal pain, and now facial rash.

Any information is helpful! Also, anyone needing tips on coping with

teen gleevec side effects, ways to ease the awful taste and nausea,

please ask!

Thanks...

[Guest guest]

>

> My daughter (14) is a CML patient and on Gleevec (600mg) for 2 years.

> Resistence was identified just recently and she has transitioned to

> Sprycel (140mg) just this past week.

>

> I am curious to know anyone in a similar situation, on Sprycel, and

the

> side effects encountered and durations. The 12 pages of " side-effect

> horror " provided by our Onc Team and Pharmacy is helpful, but

> recognizing everyone reacts differently, I am curious to know how

I was on gleeve for 1 1/2 years, When on sprycel for two weeks. I

started get chest pain went to the drs. they all kleep saying it was

pneumonia, but it was actually fluid around my lungs, a side affect

from the sprycel, so watch her for that, It went on for almost 2 weeks

before they found out what it was.

Wanda

> others are affected.

>

> Only into Sprycel for a week, we have experienced (separately) brief

> headache, brief abdominal pain, and now facial rash.

>

> Any information is helpful! Also, anyone needing tips on coping with

> teen gleevec side effects, ways to ease the awful taste and nausea,

> please ask!

>

> Thanks...

>