Re: I'm Back--Rene

[Guest guest]

Hi Rene,

Welcome to the group. I'm sorry to hear about your grandson. Do you

know why the doctors don't want to do a BMT on your grandson? Is it

because he's doing well on the treatment they are currently giving

him and a BMT isn't necessary at this time?

I'm not very familiar with ALL (most of us here have CML) but I do

know that the cure rates for children with ALL are very high.

The Leukemia & Lymphoma Society has a lot of good information about

ALL. You can read their site here:

http://www.leukemia-lymphoma.org/all_page?item_id=7049

All the best to you and your family,

Tracey

> > >

> > > Greetings!!

> > > My name is Terry and I was a member of this group

> > in the past and

> > now that

> > > my life has gotten more order in it I have decided

> > to return.

> > > For those new or do not remember me I will give

> > you some info.

> > > I am 40 years old and was dx'ed in April of 04,

> > have been on

> > 400mg's of

> > > gleevec since and been in remission since as well.

> > Aside from many

> > of the

> > > side effects I am doing well, I finally have the

> > ride combo on pain

> > meds and

> > > other meds to manage the side effects.

> > Unfortuantely I am unable to

> > work. I

> > > have been finally approved for SS disabilty but my

> > former employer

> > Bank of

> > > America decided to cut me off their retiree

> > insurance because I had

> > not

> > > worked there for 10 years. I was a former credit

> > card fraud

> > investigator.

> > > Recent events in my life have been mixed but over

> > all very good. I

> > got rid

> > > of a girlfriend that was using me for money, and

> > found a lovely

> > woman and

> > > got married June 15th of this year. It was on her

> > birthday so it

> > will be

> > > easy for me not to forget our anniversary..lol.

> > The bad thing was

> > on our way

> > > home we were in a car accident(T-boned by a ford

> > explorer) We both

> > have neck

> > > and back injuries as well as I have a bad left

> > shoulder. But we are

> > being

> > > treated for that. Also the social worker from my

> > Onco's office is

> > helping me

> > > get my Gleevec free so I will not have to pay

> > almost 3 grand a

> > month for it

> > > since I lost my RX coverage. So things are looking

> > up a bit even

> > with the

> > > bad stuff that has happened. I rejoined because I

> > missed many in

> > the group

> > > especially my big sis K, as well as , and

> > also I wanted to be

> > as much

> > > help as I can to anyone new to our little disease.

> > So I am back

> > folks. I

> > > have a dark sense of humor so be warned..rotfl.

> > >

> > > Terry

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> > Hi there. I am a new comer and I just have a couple

> > of questions, If

> > you don't mind.......How did you actually get the

> > ssi? I mean what

> > symptoms did they take in to consideration? what

> > side effects to you

> > have? and what causes the pain? and also how long

> > did it take to get

> > it and did you have to hire an attorney? thank you

> > very much, maxine

> >

> >

>

>

>

>

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