Hi everyone! and Neuropathy

[Guest guest]

Hi Vicki and everyone, I joined the group this week, and I already found

a clue to a question I have had for months thanks! I have been

puzzled by a mysterious numbed toe for a couple of months. My

hemato-oncologist sent me in physiotherapy but everything was fine.

Thanks for mentionning neuropathy, I will try to investigate more with

my doctor. It can be linked to Gleevec, see:

http://www.rxlist.com/cgi/generic/gleevec_ad.htm

This would be my only side effect from Gleevec, except the fatigue.

Thank you again for sharing,

Have a great day!

ciao

Myriam (age 35)

Montreal, Quebec

Now: Doing my best to finish writing my thesis for a Master's Degree in

Film Studies

dxd MAR/24/07 (severe splenomegaly,WBC:306,PLT:1203)

Hydrea MAR/24/07 to APR/23/07

Gleevec 400mg since APR/26/07

CHR and CBR(spleen) after 3 weeks of Gleevec

FISH BCR/ABL ES: 95% APR/25/07

FISH BCR/ABL ES: 8% JUL/30/07

On Fri, 14 Sep 2007 03:35:09 -0000, " vickistu " <vickistu@...>

said:

>

> Hi Don, I too have type II diabetes and CML in chronic phase, and

> have just appealed SSDI decision to disallow coverage. This is my

> first appeal, so will have to see how it goes and keep our fingers

> crossed. I also have severe side-effects with Gleevec and diabetic

> neuropathy in my feet, and I know what you mean about it being

> difficult to contemplate working. I also have severe daily sweats

> which doctor says are related to CML, and other symptoms such as

> extreme fatigue, etc. I am sure you know them well! Anyway, we just

> have to keep applying and if necessary retaining an attorney,

> although where I can find the $$ for that is a mystery to me. I also

> have not worked for six months. I have 3 unemployment checks

> left,and then I am in the soup for sure...I am praying that things

> go more favorably this time. It gets rather depressing and stressful

> and that just makes all symptoms worse, doesn't it. I try to get out

> for a walk every day and the fall weather is so beautiful here in

> Pacific Northwest that I feel cheered up. My dog is also having

> health issues--having biopsies tomorrow, so I try to worry about him

> instead of me. It helps having a distraction.

>

> Best of luck--

>

> Vicki in Seattle area

>

>

>

> >

> > I would like to know if there are people who have CML who are not

> in the acute stage that have actually been approved for SS

> benefits. As a CML patient for only eight months I know that some

> of the side effects of Gleevec can make " work " very difficult or

> impossible some days. Along with my type II diabetes and CML I

> doubt very seriously if I could handle a 40 hour week any longer.

> The guidelines for SS, however, disallow approval based on those two

> conditions. Does anyone have different information?

> Thanks. Don

> >

> >

> > ---------------------------------

> > Pinpoint customers who are looking for what you sell.

> >

> >