Re: Re:MD

[Guest guest]

Yes, the BMB and BMA at MDACC are done very well. Especially if you know

who to ask for. My last one there was not as successful as they were

training

someone new. When I winced and got up I asked her how long she had been

doing this procedure, she replied " since Monday " and this was Thursday.

However, all the previous ones I had there were excellent.

Also, for those of you reading about MDACC, they do feel that you should

start

out on 800 mg per day for the first year, as opposed to others medical

experts

who will start out on a lower dose. The reason they gave me was that those

who reach their markers quicker, have better long term results. However, I

really did notice an erosion of my quality of life on a higher dose. In the

end, you should remember that you are in charge and only you know what

is best for your body and quality of life.

Sincerely,

Matt

Zero Club #1078

ville, Florida

Dx January of 2005

Gleevec since March of 2005

Treated at MD

Father of 3

In a message dated 10/30/2007 1:16:05 P.M. Eastern Standard Time,

no_reply writes:

Hi all,

With regard to BMA's and BMB's. I had my 1st one's in the ER by my

oncologist and wow did it hurt!!! When I went to Houston for a 2nd

opinion I had the procedures again with no type of anaesthetic.opinion I

asked the guy performing this " how many of these have you done

today " he said " about 9 " , it showed that practice makes perfect as

it was just a bit uncomfortable and not like the previous time!!!

Donna--- In _@..._ (mailto: ) , "

ez " <lmartinez@.lm>

wrote:

>

> Hi Laurie,

>

> I can tell by your e-mail address that you live in the Tampa bay

area and

> you mentioned St sburg.

>

> I have had cml for 7 years on 400 mgs of gleevec. First year was

other

> treatment prior to gleevec approval.

>

> If I were in blast phase or all current medications were not

working, I

> would probably consult with Dr Druker before doing anything.

>

> I would go to MD only if I needed a transplant. I do not

feel that

> Moffitt is yet capable of providing the best care for transplant

patients. I

> pray that changes.

>

> However, Moffitt does participate in all the trials and they have

excellent

> and very well known Dr's that work on that team now as oppose to 7

years

> ago. Those Dr's are not the same Dr's that are on the transplant

teams -

> although they participate when necessary, they are not on the same

team.

> This I believe is the leading cause of not them not having the

ability to

> properly care for transplant patients.

>

> I am curious as to why your husbands Dr would tell you to go to MD

> right away? Was your husband in blast phase or is the Dr who sent

you to MD

> so quickly inexperienced in the CML world.

>

> If you're interested in a consulting with a great Oncologist in

Tampa please

> write me off line. He has many patients with cml and stays in

touch with all

> the experts.

>

> He does biopsies in his facility which he is equipped for and

fortunately he

> is so good at doing them I only have local anesthesia and usually

go to work

> right after we're done. Local anesthesia is my choice of course

but If I had

> it done the first time that way and made it through, I decided to

always

> have it done that way. Again, he is also very good at doing them

which makes

> it possible for me to choose local anesthesia over being

sedated.

>

>

>

>

>

>

>

> ez

>

>

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

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