Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Hi Laurie, I can tell by your e-mail address that you live in the Tampa bay area and you mentioned St sburg. I have had cml for 7 years on 400 mgs of gleevec. First year was other treatment prior to gleevec approval. If I were in blast phase or all current medications were not working, I would probably consult with Dr Druker before doing anything. I would go to MD only if I needed a transplant. I do not feel that Moffitt is yet capable of providing the best care for transplant patients. I pray that changes. However, Moffitt does participate in all the trials and they have excellent and very well known Dr's that work on that team now as oppose to 7 years ago. Those Dr's are not the same Dr's that are on the transplant teams - although they participate when necessary, they are not on the same team. This I believe is the leading cause of not them not having the ability to properly care for transplant patients. I am curious as to why your husbands Dr would tell you to go to MD right away? Was your husband in blast phase or is the Dr who sent you to MD so quickly inexperienced in the CML world. If you're interested in a consulting with a great Oncologist in Tampa please write me off line. He has many patients with cml and stays in touch with all the experts. He does biopsies in his facility which he is equipped for and fortunately he is so good at doing them I only have local anesthesia and usually go to work right after we're done. Local anesthesia is my choice of course but If I had it done the first time that way and made it through, I decided to always have it done that way. Again, he is also very good at doing them which makes it possible for me to choose local anesthesia over being sedated. ez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Hi all, With regard to BMA's and BMB's. I had my 1st one's in the ER by my oncologist and wow did it hurt!!! When I went to Houston for a 2nd opinion I had the procedures again with no type of anaesthetic....I asked the guy performing this " how many of these have you done today " he said " about 9 " , it showed that practice makes perfect as it was just a bit uncomfortable and not like the previous time!!! Donna--- In , " ez " <lmartinez@...> wrote: > > Hi Laurie, > > I can tell by your e-mail address that you live in the Tampa bay area and > you mentioned St sburg. > > I have had cml for 7 years on 400 mgs of gleevec. First year was other > treatment prior to gleevec approval. > > If I were in blast phase or all current medications were not working, I > would probably consult with Dr Druker before doing anything. > > I would go to MD only if I needed a transplant. I do not feel that > Moffitt is yet capable of providing the best care for transplant patients. I > pray that changes. > > However, Moffitt does participate in all the trials and they have excellent > and very well known Dr's that work on that team now as oppose to 7 years > ago. Those Dr's are not the same Dr's that are on the transplant teams - > although they participate when necessary, they are not on the same team. > This I believe is the leading cause of not them not having the ability to > properly care for transplant patients. > > I am curious as to why your husbands Dr would tell you to go to MD > right away? Was your husband in blast phase or is the Dr who sent you to MD > so quickly inexperienced in the CML world. > > If you're interested in a consulting with a great Oncologist in Tampa please > write me off line. He has many patients with cml and stays in touch with all > the experts. > > He does biopsies in his facility which he is equipped for and fortunately he > is so good at doing them I only have local anesthesia and usually go to work > right after we're done. Local anesthesia is my choice of course but If I had > it done the first time that way and made it through, I decided to always > have it done that way. Again, he is also very good at doing them which makes > it possible for me to choose local anesthesia over being sedated. > > > > > > > > ez > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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