Re: Thanks so much!! and story but a bit long.

[Guest guest]

--- In , " monkeyfun_16901 " <monkeyfun_16901@...>

wrote:

>

> Thanks everyone for the support. I showed my wife the responses and

> they are very encouraging and just what we need at this point. I

> will set her up as a member here eventually and she will be able to

> read and participate. Things are still sinking in and we still

don't

> even know what questions to ask at this point. A little back

ground

> for those interested.

>

> I'm 45 and My wife is 39. we have a 16 y/o and a 2.5 y/o both

girls.

> About two weeks ago my wife noted a discomforte in here belly when

> she would lay down. We kinda brushed it off but I'm a paramedic and

> when I felt the area I was thinking maybe it was here spleen. She

> had a routine Dr. visit coming up so they did blood work and that

is

> when the lukemia was found My wife was actually at work as a

> respiratory therapist when her dr. called and said he would come

> right over. By the time I got there They were both hugging and in

> tears, I knew it could'nt be good but wow. That was a sat. our GP

> called an oncologist (spelling maybe, I suck at it) anyway, there

> was some relief when he told us that by the bloodwork things looked

> like CML not AML. Heck of a thing to be relieved about but at that

> point any good news was wonderfull. On monday my wife had her

biopsy

> done and she was placed on Hydroxyureia and allopurinal to get her

> white count under control. ( it was 85,000) Our next appointment

> with the oncologist is on the 5th and she will be starting on

> Gleevec at 400mg. I know because the prescription was called into

> our hospital pharmacy which luckily will cover most of the cost. We

> will have a 20.00 co-pay monthly so I don't think we could hope for

> better than that. The Dr. will give us the official verdict on the

> 5th but the plan was to start Gleevec at 400mg. if she was in the

> chronic phase and 600-800mg. if she was in the accelerated phase so

> I'm taking this as a sort of sidways confirmation that she is in

the

> chronic phase untill we actually sit down with our Dr. and get the

> official word. Since then we have been living life pretty much as

we

> normally have. Kind of wierd, so far it all feels a bit to easy.

I'm

> sure there will be ups and downs but we are starting to realize

that

> we most likely will have many years left to watch our children grow

> and to grow old togeather.

> Thanks again I'm sure you will be hearing alot from us.

>

Hi, sorry you have to be here,but this group is a wealth of

information and a great support.Just wanted to say that I was getting

my Gleevec Monthly at $30.00 co-pay,and found out if I get a 3 month

supply I only pay $50.00 for 3 months, so get your doctor to right

you a 3 month supply perscription. Take care

Esther

Zavie #1092