Re:New to group 4 years CML, Moffit Tampa

[Guest guest]

Hi , My name is .

42 diagnosed in 2000 I had one year of interferon and ARC injections while

waiting for gleevec to be approved.

I live in Tampa and go to Moffitt annually only to stay in touch with the

center in the event I needed to participate in any type trial. I had no luck

joining the gleevec trial in my first year there. Dr List is the Dr I see

when I do go there.

My oncologist is Dr Al-Hassani @ University Hematology & Oncology his office

is located directly across from Moffitt on Fletcher Ave. He’s great! And my

PCR and BMB’s are sent to Genzyne Genetics. From my research they have the

most updated equipment necessary for sensitive testing.

Even when Moffitts lab says no detection (and it always does) and Genzyne

says there is a slight detection I know what lab to follow and that’s

Genzyne. But as long as they both report that I still maintain over a 3 log

reduction I know I’m ok.

I’ve been on 400 mgs of Gleevec since 2001 as soon as it was FDA approved

and I am doing well.

Still some side affects but not too much to complain about compared to the

old days.

I have a career and work full time since being on Gleevec . I have children,

grandchildren and a fiancé.

Just curious, why did you switch to sprycel? Did you participate in the

trial at Moffitt or did you get it once it was approved by the FDA?

ez