Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Thanks everyone for the support. I showed my wife the responses and they are very encouraging and just what we need at this point. I will set her up as a member here eventually and she will be able to read and participate. Things are still sinking in and we still don't even know what questions to ask at this point. A little back ground for those interested. I'm 45 and My wife is 39. we have a 16 y/o and a 2.5 y/o both girls. About two weeks ago my wife noted a discomforte in here belly when she would lay down. We kinda brushed it off but I'm a paramedic and when I felt the area I was thinking maybe it was here spleen. She had a routine Dr. visit coming up so they did blood work and that is when the lukemia was found My wife was actually at work as a respiratory therapist when her dr. called and said he would come right over. By the time I got there They were both hugging and in tears, I knew it could'nt be good but wow. That was a sat. our GP called an oncologist (spelling maybe, I suck at it) anyway, there was some relief when he told us that by the bloodwork things looked like CML not AML. Heck of a thing to be relieved about but at that point any good news was wonderfull. On monday my wife had her biopsy done and she was placed on Hydroxyureia and allopurinal to get her white count under control. ( it was 85,000) Our next appointment with the oncologist is on the 5th and she will be starting on Gleevec at 400mg. I know because the prescription was called into our hospital pharmacy which luckily will cover most of the cost. We will have a 20.00 co-pay monthly so I don't think we could hope for better than that. The Dr. will give us the official verdict on the 5th but the plan was to start Gleevec at 400mg. if she was in the chronic phase and 600-800mg. if she was in the accelerated phase so I'm taking this as a sort of sidways confirmation that she is in the chronic phase untill we actually sit down with our Dr. and get the official word. Since then we have been living life pretty much as we normally have. Kind of wierd, so far it all feels a bit to easy. I'm sure there will be ups and downs but we are starting to realize that we most likely will have many years left to watch our children grow and to grow old togeather. Thanks again I'm sure you will be hearing alot from us. Quote Link to comment Share on other sites More sharing options...
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